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Jul 9, 2012 11:19PM
Jul 10, 2012 05:08PM
On weekly taxol (3 weeks on, 1 week off) since Nov 4, so tomorrow is treatment 32. Didn't really fully lose my hair, it has started to grow back, and I am on a biweekly prescription of hairdresser to try to blend the new hair and the old :)
Fatigue - pretty bad on weekends (I have treatments on Tuesday, and still was working full time through May, so weekends I would recover).
Nausea - not so bad until last week, when I couldn't even keep anti-nausea meds down - Zofran that dissolves on tongue took care of that problem. Doctor and nurses think I got the flu :)
steroids - hate, hate, hate!!! Have flushed face, neck, arms day after treatment - everyone knows when I have had chemo :) Am getting treatment here in StL while I stay with my mom who is in hospice for stage iv pancreatic cancer, they use different steroid - at home, steroid they use (solumedrol) only keeps me wired for one night; one they are using here kept me up 3 days straight last week after 1st treatment here (not solumedrol, but something else - you only get solumedrol if you have reaction to what they are using) - not good since I am trying to help provide care for my mom and get a little fried after 72 hours with no sleep.
Neuropathy - I started taking l-glutamine (thank you CoolBreeze:) about 5 months ago, currently 2.5 g per day, and fingers/toes not numb at all. I started at 0.5 g per day, and every time my toes'/finghers start to feel numb, I increase one 500 mg tablet. Study of l-glutamine with high dose taxol (once every three weeks) had folks taking 10 g each day for 4 days o after treatment.
Overall? chemo has not been as bad as I expected - I really thought I would have a new BFF to hug (the toilet)!
P.S. My doctor at MDA is of same philosophy as yours - I will be on taxol until I have progression or side effects drive me off - why change what is working - I have had clear scans since January (liver mets and recurrent bone mets showed up in October). Local onc giving me treatment keeps wanting me to stop (because I have had 3 clear scans) , but I know that would mean progression down the road, so I will tolerate taxol as long as I can
Becky, Stage IV, bone mets, ER+/PR+, HER2-, diagnosed June 2008, right mastectomy May 2009, 0/13 nodes, pleural effusion May 2011, mets to liver October 2011