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Topic: Anyone else with Stage IV and in Remission?

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Oct 14, 2012 05:28PM

ThePowerOfPink wrote:

My last scans show that I am in complete remission.  My Oncologist said it is miraculous.  I was in the exam room with my Husband and Mother when we got the news.  We were all three dumbfounded. I look back now and I am a little embarrassed at our response.  We walked out and were in shock.  Happy Numb is how I would describe it. That was July 2012.

It took about a month to sink in and to begin changing my daily way of thinking.  The first feeling I was able to identify was guilt.  Why me?  I had made peace with making the absoulte most of every day and accepting that I would not be here with my family as long as I had planned and wanted to be.  But I was NOT giving up by any means and was fighting to be here as long as I could.

I was hoping for improvment to show on my scans with the new treatment I was on, but NEVER is a million years expected to hear that there were no signs of any active cancer in my liver, lungs or bones (it was in my bones from my skull to my knees) anymore.

It has been 3 months now and I was cruising along with the new plan. (I will continue my treatment as is and rescan in 6 months - My Oncologist doesn't want to change anything at this time.)  I had figured out how to live life on treatment with this new happy happy news and even managed to not think about reoccurrence. Believe it or not - ha ha  Then Friday I called to schedule my annual PAP since I am due in December for this.  The nurse called me back to confirm that I could schedule my appointment while on this chemo and not worry about it effecting the PAP test results.  The nurse left a very sweet voice mail about this and how they are there for me and that they would schedule an appointment in the morning so I would not have to be in the waiting are for a long time.  Then as she was hanging up the phone I heard her speaking with a coworker.  She said, "Wow! Stage IV breast cancer. How sad. I mean what do you do?"  Of course I had to replay it to make sure I heard it right.  Yes I did and now all of a sudden I am sucked back in to this doomsday sadness and worry again like back in 2008.  Reading and searching for others in a similar situation and wanting to be encouraged by other success stories.  I fear this will consume my thoughts again.

Anyone else out there in a similar situation?

 A little history:

Nov 2008 diagnosed with Stage I Grade 3 IDC

Sep 2009 NED

Nov 2011 diagnosed with Stage IV (in liver, lungs and bones) E+, P+ Her2+

Jul 2012 complete remission

Dx 12/2008, DCIS, 2cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 1/9/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 3/1/2009 Herceptin (trastuzumab) Chemotherapy 3/1/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 1/9/2011 Xeloda (capecitabine) Dx 12/9/2011, DCIS, Stage IV, Grade 3, ER+/PR+, HER2+ Targeted Therapy 1/9/2012 Herceptin (trastuzumab) Hormonal Therapy
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Oct 14, 2012 05:36PM CoolBreeze wrote:

I haven't hit NED yet but many woman have and have stayed that way for years.  Don't let that woman's comment get to you - she was just looking at your chart.  She was treating you as a statistic but we are all individuals.  I think the news from the latest conference on metastatic breast cancer said about 5% can actually be cured outright!  Maybe you are in that category - why not?

Good luck for your continued remission and I hope you get a good, long life out of it.  One thing I know - worrying does nothing to make your days better.  Remember this quote:  "Worry never robs tomorrow of its sorrow, it only saps today of its joy."  ~Leo Buscaglia 

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV Dx 8/17/2009, IDC, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Oct 14, 2012 05:59PM kayrnic wrote:

I also am not NED, but so far, I only have one met on my L2 vertabrae. I have experienced people talking to me and about me as if I am going to die any second. It just speaks to the fact that stage IV is so misunderstood. People do not realize that some women can live a decade or longer with the disease. You just have to try and not let it get to you. I know it is hard, but Ann is right.....if you don't enjoy these NED days while they're here, you may regret it later! I wish you a lifetime of NED! Stories like yours need to be told more often because they give all of us what we need the most....HOPE!

Kay ---bone mets Dx 11/14/2001, IDC, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Dx 3/9/2012, IDC, Stage IV, mets, ER+/PR+, HER2-
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Oct 14, 2012 07:52PM bmaybee67 wrote:

I hope you and NED have a LONG affair!  I have been NED for about 3 years and have had many of the feeling you have.  I was stage IV from the get go (Aug 2007) with only one met to the sternum.  I have had a hard time finding my new place in the world.  I dont feel really sick most of the time, but I am not the same as I was before cancer.   I am trying to enjoy each day because we just neve know.  I could be lucky and be NED for 20 years or it can come back.

Good luck, Barbie

Barbie
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Oct 14, 2012 08:56PM ThePowerOfPink wrote:

Ann, thank you very much for reminding me. Sometimes that worry just sneaks up on us.

Kay, HOPE is what we all need. Thank you for reminding me of the potential regrets.  That is not what I want at all.

Barbie, I love to hear that you have been NED for 3 years! More hope :)  I should have joined this group in 2008 instead of trying to do this without everyone here that can relate to everything we are going through. I too am having a hard time finding my place.  I have the hardest time with the joint pain.  Just walking is a struggle and frusterating.  I am better after about five steps but move like a 100 year old lady to get me started.  My fatigue is a challenge but I just sleep when my body says sleep.  I started to get SSD income in January which has helped me mentally a great deal.  That was a difficult phone call when they called to tell me that because of my "terminal" disease I have been approved to receive benefits.  But, I am so very glad it is there because I am a new wife since last February and before that I was a single mother for 9 years and so used to taking care of myself.  I don't want to sound petty at all. It just helps to be able to contribute financially.  I hope everyone knows about the quick approval process for Stage IV breast cancer patients.

hugs,

sherri

Dx 12/2008, DCIS, 2cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 1/9/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 3/1/2009 Herceptin (trastuzumab) Chemotherapy 3/1/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 1/9/2011 Xeloda (capecitabine) Dx 12/9/2011, DCIS, Stage IV, Grade 3, ER+/PR+, HER2+ Targeted Therapy 1/9/2012 Herceptin (trastuzumab) Hormonal Therapy
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Oct 14, 2012 09:51PM JeninMichigan wrote:

Sherri

 I was diagnosed Stage IV right from the start with mets to my liver (4 tumors), ribs, hip, chest nodes.    I did 6 cycles of Taxotere, Carbo, and Herceptin.  After 3 cycles, they scanned me and I was NED.  That was June 2008 and I am still NED.   I finished my chemo.  Did a year of Tykerb and Herceptin and have been on herceptin ever since.  I also take Tamoxifen.   I am due for annual scans in November but as of last November, I was still NED.    don't let anyone drag you down.    Wishing many many years of NED for you too!!

Jennifer

Dx 2/22/2008, IDC, 2cm, Stage IV, Grade 3, 4/9 nodes, mets, ER+/PR-, HER2+
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Oct 14, 2012 10:00PM bhd1 wrote:

enjoy your time w ned

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Oct 14, 2012 10:30PM ThePowerOfPink wrote:

Thank you very much Barb. Smile I feel better already just being here with everyone.  I was just enjoying a cup of coffee with my husband and telling him how I should have come online here in 2008.  My family is and has been wonderful but it really makes a differnece being here with all of you.

hugs,

sherri

Dx 12/2008, DCIS, 2cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 1/9/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 3/1/2009 Herceptin (trastuzumab) Chemotherapy 3/1/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 1/9/2011 Xeloda (capecitabine) Dx 12/9/2011, DCIS, Stage IV, Grade 3, ER+/PR+, HER2+ Targeted Therapy 1/9/2012 Herceptin (trastuzumab) Hormonal Therapy
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Oct 14, 2012 10:33PM CoolBreeze wrote:

I hope you hang around and inspire us all with your disease-free state!  We love the happy stories!

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV Dx 8/17/2009, IDC, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Oct 14, 2012 11:16PM Surly wrote:

Sherri, thanks so much for posting your story. Congratulations! I hope you stay NED forever. I can't imagine how one would shift her thinking and reconsider the future. But your story does give me hope. Thanks again for bothering to visit. Take care! 

Pardon me, hounded hope, for laughing from time to time. . . . Mets to bones, liver, and lungs. Brain mets treated with gamma knife. Dx 3/25/2010, IDC, Stage IV, mets, ER-/PR-, HER2+
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Oct 14, 2012 11:25PM BouncingBetties wrote:

Like many of the ladies here, I was stage IV from the start. Cancer in my breast, liver, bones and lungs. I had 6 months of weekly Taxol, and have been on Tamo since January 2012. As of my last onc appointment on July 17 I was in remission. I had my follow up scan on October 3 and get my results on Tuesday. I'm hoping to still be in remission.

CANCER SUCKS!!! I'm almost out of txt options, Metsisters. 😔 Dx 7/12/2011, IDC, 6cm+, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 8/5/2011 Taxol (paclitaxel) Hormonal Therapy 1/19/2012 Surgery 1/3/2013 Lumpectomy: Right Chemotherapy 1/25/2013 Xeloda (capecitabine) Hormonal Therapy 7/25/2013 Femara (letrozole) Hormonal Therapy 11/5/2013 Aromasin (exemestane) Targeted Therapy 11/9/2013 Afinitor (everolimus) Chemotherapy 2/14/2014 AC Hormonal Therapy 6/19/2014 Faslodex (fulvestrant)
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Oct 14, 2012 11:27PM aic wrote:

Love to hear the NED stories! Jennifer, you inspire me! Sherri, enjoy it, my dear!

Dx 8/31/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ Targeted Therapy 9/24/2012 Herceptin (trastuzumab) Targeted Therapy 9/24/2012 Perjeta (pertuzumab) Chemotherapy 9/24/2012 Taxotere (docetaxel)
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Oct 14, 2012 11:29PM aic wrote:

BouncingBetties, that is awesome...keep us posted on your scan results...thinking positive thoughts!

Dx 8/31/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ Targeted Therapy 9/24/2012 Herceptin (trastuzumab) Targeted Therapy 9/24/2012 Perjeta (pertuzumab) Chemotherapy 9/24/2012 Taxotere (docetaxel)
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Oct 14, 2012 11:30PM BouncingBetties wrote:

As Surly has said, congratulations! I also hope you stay in remission forever. I wish that I could change my thinking and believe I may have a future but it's hard. Maybe if I can stay in remission long enough, I might be able to change my thinking? Like many of the ladies here, I was stage IV from the start. Cancer in my breast, liver, bones and lungs. I had 6 months of weekly Taxol, and have been on Tamo since January 2012. As of my last onc appointment on July 17 I was in remission. I had my follow up scan on October 3 and get my results on Tuesday. I'm hoping to still be in remission. 3 months of remission just isn't enough for me...I want more!

CANCER SUCKS!!! I'm almost out of txt options, Metsisters. 😔 Dx 7/12/2011, IDC, 6cm+, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 8/5/2011 Taxol (paclitaxel) Hormonal Therapy 1/19/2012 Surgery 1/3/2013 Lumpectomy: Right Chemotherapy 1/25/2013 Xeloda (capecitabine) Hormonal Therapy 7/25/2013 Femara (letrozole) Hormonal Therapy 11/5/2013 Aromasin (exemestane) Targeted Therapy 11/9/2013 Afinitor (everolimus) Chemotherapy 2/14/2014 AC Hormonal Therapy 6/19/2014 Faslodex (fulvestrant)
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Oct 14, 2012 11:32PM BouncingBetties wrote:

Thanks! I will be sure to let everyone know. There must be a issue with my server. My first post wasn't showing when I checked? Ah, technology. Just as reliable as the human body ; )

CANCER SUCKS!!! I'm almost out of txt options, Metsisters. 😔 Dx 7/12/2011, IDC, 6cm+, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 8/5/2011 Taxol (paclitaxel) Hormonal Therapy 1/19/2012 Surgery 1/3/2013 Lumpectomy: Right Chemotherapy 1/25/2013 Xeloda (capecitabine) Hormonal Therapy 7/25/2013 Femara (letrozole) Hormonal Therapy 11/5/2013 Aromasin (exemestane) Targeted Therapy 11/9/2013 Afinitor (everolimus) Chemotherapy 2/14/2014 AC Hormonal Therapy 6/19/2014 Faslodex (fulvestrant)
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Oct 15, 2012 08:49AM - edited Oct 15, 2012 08:50AM by ForestDweller

I'm currently in remission and have been since Dec. 2011 scan.  It's difficult for me to even mention this because I know the cancer can return in a heartbeat.  For me stage 4 is stage 4.  I'm currently on hormonals which is scary for me because I've failed two hormonals already and each time it returned with a vengence.  My doc is a very optimistic guy, but I know there's a reason why he sees me every month, scans me every three, and tells me there's no cure for stage 4.

In the meantime I enjoy every day, laugh a lot, and eat desert daily.

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Oct 15, 2012 10:07AM steelrose wrote:

PowerofPink...
You have received some excellent replies and advice! I have been in remission since Jan. 2011. I am very cautious and very aware of our Stage IV diagnosis but I will NOT waste precious time looking behind me... cancer has stripped us of enough already. Onward we go, with determination... with hope!!!!

Love to you,

Rose.

Dx 1/22/2010, IDC, Stage IV, mets, ER+/PR+, HER2-
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Oct 15, 2012 08:20PM chefmiche wrote:

Love hearing positive stories!  I have been NED since April and earlier this month was told I was in remission.  I asked, what does that mean?  Onc said you can be in remission for 3 mo or 3 years, but it will come back.  I wish I had a more optimistic onc like you do.  I have been on SSDI since April and married in May (my DH asked me at Christmas after my stage IV diagnosis, he is amazing) so I have been home trying to be the very best wife I can be and try to enjoy every moment.  I battle my mind every day thinking about cancer, but keeping busy and positive helps so much!  Every one only has today, let's make it great!

Chemotherapy 7/10/2007 AC + T (Taxol) Surgery 11/23/2007 Mastectomy: Left, Right Hormonal Therapy 11/29/2007 Radiation Therapy 1/15/2008 Breast Surgery 4/15/2008 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 9/2011, Stage IV, mets, ER+/PR+, HER2- Hormonal Therapy 9/28/2011 Aromasin (exemestane) Radiation Therapy 10/5/2011 Bone Surgery 12/9/2011 Prophylactic ovary removal Targeted Therapy 1/29/2013 Afinitor (everolimus) Chemotherapy 5/13/2013 Xeloda (capecitabine) Chemotherapy 3/13/2014 Gemzar (gemcitabine) Hormonal Therapy 8/14/2014 Faslodex (fulvestrant) Radiation Therapy 11/11/2014 Bone Chemotherapy 2/6/2015 Halaven (eribulin)
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Oct 15, 2012 11:38PM ThePowerOfPink wrote:

Thank you to everyone that has responded!  I can't say enough how much of a blessing it is to have found this place and all of you women. 

Dx 12/2008, DCIS, 2cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 1/9/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 3/1/2009 Herceptin (trastuzumab) Chemotherapy 3/1/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 1/9/2011 Xeloda (capecitabine) Dx 12/9/2011, DCIS, Stage IV, Grade 3, ER+/PR+, HER2+ Targeted Therapy 1/9/2012 Herceptin (trastuzumab) Hormonal Therapy
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Oct 17, 2012 01:29AM BouncingBetties wrote:

ForestDweller, I know exactly what you mean! Today my onc told me that my bone scan was clean, and my PET only lit up with my primary tumor, and that it's now only 1 cm! He said that's the only active area and we may want to consider surgery because of that. From 6 cm, bone, lung and liver mets, to just the 1 cm primary tumor and possible surgery...15 months of thinking it was just going to keep spreading and now I get great news, but I'm so afraid to believe it or hope too much. If I have what's left removed, I'll technically have acheived NED. I wished and hoped and bargained for this but didn't know if it was possible. I'm so happy, relieved and grateful, but still afraid I'll wake up and it will have been a dream.

CANCER SUCKS!!! I'm almost out of txt options, Metsisters. 😔 Dx 7/12/2011, IDC, 6cm+, Stage IV, mets, ER+/PR+, HER2- Chemotherapy 8/5/2011 Taxol (paclitaxel) Hormonal Therapy 1/19/2012 Surgery 1/3/2013 Lumpectomy: Right Chemotherapy 1/25/2013 Xeloda (capecitabine) Hormonal Therapy 7/25/2013 Femara (letrozole) Hormonal Therapy 11/5/2013 Aromasin (exemestane) Targeted Therapy 11/9/2013 Afinitor (everolimus) Chemotherapy 2/14/2014 AC Hormonal Therapy 6/19/2014 Faslodex (fulvestrant)
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Oct 17, 2012 09:14AM aic wrote:

BouncingBetties,
Great news....so happy for you! Sitting here feeling crappy after my chemo on Monday, and you made me smile!

Dx 8/31/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ Targeted Therapy 9/24/2012 Herceptin (trastuzumab) Targeted Therapy 9/24/2012 Perjeta (pertuzumab) Chemotherapy 9/24/2012 Taxotere (docetaxel)
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Oct 17, 2012 09:51AM ForestDweller wrote:

Wow, BouncingBetties, that's fantastic!!!!! 

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Oct 17, 2012 10:45AM Tina2 wrote:

I believe that I am technically in remission after just over a year on Faslodex. Although the mets in my lungs still show up, they were not seen to be metabolically active on the last PET-CT. It is strange after a year and a half of what felt like hanging by my thumbs that I might have much more time before I drop than I initially thought. I don't want to treat this gift casually, but am trying to achieve a balance between relaxing my antennae and staying alert and prepared. Tomorrow is my monthly visit to the onc and my Faslodex injection. It is the first time since I have started this Stage IV trek that I do not have a scrawled list of questions for him. There's just one: are we sticking to the previous scan schedule?

Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
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Oct 17, 2012 01:53PM chemochar wrote:

  HI Barbie,  i have the same diagnosis as you--you are the first one I've found with the clavicle involvement.    I had a  ct last march and it showed no signs of cancer under the collarbone.   It's good to hear that i may have more time than I had imagined. Sure hope so, i have a 6 year old beautiful grandaughter whom i would like to see grow up.

  Hang in there!

  char

Dx 5/4/2011, IDC, 3cm, Stage IV, Grade 3, 2/14 nodes, mets, ER+, HER2+ Surgery 6/20/2011 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Chemotherapy 7/22/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/28/2011 Aromasin (exemestane) Radiation Therapy 12/29/2011 3DCRT: Breast, Lymph nodes
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Oct 17, 2012 11:39PM rosie06ct wrote:

i have been NED since Jan 2012.. had my pet scan monday and onc called and said there is no cancer in my organs,or bones , HOWEVER my lymph nodes are enlarged on both sides , AND PET scan showed uptake in my brain... So today with the Grace of God i made it through the MRI and will get my results tomorrow.. onc said it could be nothing ...   and she said somethign about adding afinator !  my tumor markers went up 4 pots for the first timein a year ..29.6 to 33.6 but i feel thats in the normal range so why change my meds .... anyways I get the mri results tomorrow and I am soooo scared  of having brain mets ...

Dx 6/6/2011, ILC, Stage IV, Grade 1, mets, ER+/PR+, HER2- Dx 6/7/2011, ILC, 1cm, Stage IV, Grade 1, mets, ER+/PR+, HER2- Targeted Therapy 7/11/2013 Afinitor (everolimus) Chemotherapy 6/24/2014 Gemzar (gemcitabine)
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Oct 17, 2012 11:56PM ThePowerOfPink wrote:

oh Rosie,

how scary. I will be thinking of you and do let us know what you find out tomorrow and how you are doing. The waiting is very very hard. There are so many amazing woman on here that will help you thru this.  One cyber hug at a time.

I go for treatment tomorrow and I always start thinking about how my markers will show up this month. I hope you stay NED!!!!!

big big hugs to you

Dx 12/2008, DCIS, 2cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 1/9/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 3/1/2009 Herceptin (trastuzumab) Chemotherapy 3/1/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 1/9/2011 Xeloda (capecitabine) Dx 12/9/2011, DCIS, Stage IV, Grade 3, ER+/PR+, HER2+ Targeted Therapy 1/9/2012 Herceptin (trastuzumab) Hormonal Therapy
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Oct 18, 2012 06:19AM aic wrote:

Praying for you Rosie....keep us posted

Dx 8/31/2012, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ Targeted Therapy 9/24/2012 Herceptin (trastuzumab) Targeted Therapy 9/24/2012 Perjeta (pertuzumab) Chemotherapy 9/24/2012 Taxotere (docetaxel)
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Oct 18, 2012 07:01AM DivineMrsM wrote:

yea, rosie, you're in my thoughts and prayers.

found lump 12/22/10~er+/pr+/her2- stage iv bone mets~chemo~lumpectomy~ radiation~arimidex~
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Oct 18, 2012 09:23PM ThePowerOfPink wrote:

Just checking in on Rosie.  I've been thinking about you all day.  How are you? Any news?

hugs

Dx 12/2008, DCIS, 2cm, Stage II, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Surgery 1/9/2009 Lymph node removal: Right; Mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 3/1/2009 Herceptin (trastuzumab) Chemotherapy 3/1/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 1/9/2011 Xeloda (capecitabine) Dx 12/9/2011, DCIS, Stage IV, Grade 3, ER+/PR+, HER2+ Targeted Therapy 1/9/2012 Herceptin (trastuzumab) Hormonal Therapy
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Oct 19, 2012 04:14AM - edited Oct 19, 2012 04:34AM by Heidihill

Sending positive thoughts to you, Rosie.

TPOP, congrats on tying the knot this year. That had to have a good effect on your health! 

I've been NED 4.5 years. Recently switched to Tamoxifen after 4.5 years on Femara. Have more hot flashes again and some nausea but otherwise feeling great.

Dx 8/2007, IDC, Left, 2cm, Stage IV, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/25/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 19, 2012 07:43AM soleil505 wrote:

I love reading stories about NED, especially Bouncing Betties because of her sock monkey  :)

Why do they call it remission and say it can return in 3 months?  That doesn't sound like remission to me.  I think remission like REMISSION!  Its gone. 

Well, anyway, I myself am praying for stable.  Stable is a good thing too.

POP, don't be sucked into doomsday sadness by nitwits.  There are alot of them around.  Ignore them.  Enjoy your remission, your beautiful husband and your life.  Good luck!

And I think to myself, what a wonderful world! Soleil Dx 4/4/2011, Stage IV, mets, ER+, HER2-

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