Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 04:56AM

Posted on: Feb 1, 2013 04:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Mar 6, 2015 12:14PM lbgal wrote:

Yaaaay Cat! We are all so happy for you!

Dx 7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2- Chemotherapy 8/1/2012 AC + T (Taxol) Surgery 1/12/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 3/2013, IDC, Stage IIIA, ER-/PR-, HER2- Chemotherapy 3/1/2013 Xeloda (capecitabine) Dx 9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 1/5/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Mar 7, 2015 01:22PM SpiritBlessing wrote:

Morning Warriors,

Glad to hear your news Cat. I have a PET on Monday as they want to check a lymph node that showed up on a CT scan a couple of weeks ago. Praying it is nothing and all is well.

Can you share more on the T-cell treatment? Also what is the VICE program? Any new treatments are good to know about.

Have a great weekend and if you're dealing with snow stay warm and if you have sunshine, like we do here in the NW enjoy. But it is very chilly right now in the morning.

Lucy

Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10 Dx 8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 9/18/2013 Lumpectomy: Left Dx 11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2- Chemotherapy 11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)
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Mar 7, 2015 01:45PM lbgal wrote:

Good morning everyone!

Spirit - hope you get good news from the Pet scan! VICE is not a study, it is a documentary series/ investigative reporting. The last episode was about cancer and 3 clinical trials (not for breast cancer- I think it was neuroglioblastoma, multiple myeloma and leukemia) in which they used genetically modified viruses to attack cancer cells and they had very good results.

I don't know about the T cell treatment but I'll try to find out. If there is a clinical trial it should be posted on clinical trials.gov.

Dx 7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2- Chemotherapy 8/1/2012 AC + T (Taxol) Surgery 1/12/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 3/2013, IDC, Stage IIIA, ER-/PR-, HER2- Chemotherapy 3/1/2013 Xeloda (capecitabine) Dx 9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 1/5/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Mar 7, 2015 04:07PM - edited Mar 7, 2015 04:16PM by Adnerb

lbgal: Thanks for clarifying that VICE is a documentary and not a study or treatment. And when you said good results, they showed one instance of 100%: 4 out of 4 went into full remission.

Here is a link to a blurb/video:

http://www.vice.com/read/watch-vice-on-hbos-special-report-on-killing-cancer-217

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Mar 9, 2015 04:06PM Bosco19 wrote:

I have been lurking on this board for some time but only posting on Brain Mets as that was my first met diagnosis last July, 18 months after original diagnosis. One lesion than appeared in pelvis at Xmas and last week lymph node in chest lit up on a pet scan, confirmed by biopsy. Brain MRI tomorrow... Wish me luck! Oncologist switched meds from Xeloda to Gemzar/Cisplatin.

I'm posting because Lucy asked about new treatments. My oncologist - who's at the innovative end of the spectrum - has also put me on Keytruda, the melanoma drug. He is v excited about it. Not covered by insurance here alas.

Mets to brain, bone and lymph nodes Dx 1/18/2013, IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Chemotherapy 2/4/2013 Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Surgery 4/12/2013 Lumpectomy: Right Radiation Therapy 5/7/2013 Breast Chemotherapy 7/15/2013 CMF Chemotherapy 1/8/2014 Taxol (paclitaxel) Dx 6/25/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Surgery 7/8/2014 Radiation Therapy 7/21/2014 Brain Targeted Therapy 7/30/2014 Avastin (bevacizumab) Chemotherapy 7/30/2014 Xeloda (capecitabine) Dx 12/12/2014, mets, ER-/PR-, HER2- Radiation Therapy 1/20/2015 Bone Dx 3/3/2015, 1/3 nodes, mets Chemotherapy 3/3/2015 Gemzar (gemcitabine)
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Mar 9, 2015 05:54PM Beachbum1023 wrote:

Bosco - wishing you all the luck I have! Sending lots of well wishing hugs also. Keep us posted.

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/19/2014 AC Chemotherapy 10/14/2014 Taxol (paclitaxel) Surgery 12/15/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/26/2015 Breast, Lymph nodes
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Mar 9, 2015 07:35PM lbgal wrote:

Bosco - good luck tomorrow!

Are you BRCA positive or negative? I heard that some of the newer drugs like Keytruda are in clinical trials for TNBC with and without BRCA mutations. Just curious :)


Dx 7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2- Chemotherapy 8/1/2012 AC + T (Taxol) Surgery 1/12/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 3/2013, IDC, Stage IIIA, ER-/PR-, HER2- Chemotherapy 3/1/2013 Xeloda (capecitabine) Dx 9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 1/5/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Mar 9, 2015 08:46PM Bosco19 wrote:

BRCA NEGAIVE. Thanks for the good wishes

Mets to brain, bone and lymph nodes Dx 1/18/2013, IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Chemotherapy 2/4/2013 Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Surgery 4/12/2013 Lumpectomy: Right Radiation Therapy 5/7/2013 Breast Chemotherapy 7/15/2013 CMF Chemotherapy 1/8/2014 Taxol (paclitaxel) Dx 6/25/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Surgery 7/8/2014 Radiation Therapy 7/21/2014 Brain Targeted Therapy 7/30/2014 Avastin (bevacizumab) Chemotherapy 7/30/2014 Xeloda (capecitabine) Dx 12/12/2014, mets, ER-/PR-, HER2- Radiation Therapy 1/20/2015 Bone Dx 3/3/2015, 1/3 nodes, mets Chemotherapy 3/3/2015 Gemzar (gemcitabine)
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Mar 10, 2015 11:47AM Bosco19 wrote:

Brain MRI was clear. So now just got to focus on the chemo and the new immunotherapy treatment to stay that way. Thank you for good thoughts and wishes. Hope good news comes to others too

Mets to brain, bone and lymph nodes Dx 1/18/2013, IDC, Right, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Chemotherapy 2/4/2013 Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel) Surgery 4/12/2013 Lumpectomy: Right Radiation Therapy 5/7/2013 Breast Chemotherapy 7/15/2013 CMF Chemotherapy 1/8/2014 Taxol (paclitaxel) Dx 6/25/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Surgery 7/8/2014 Radiation Therapy 7/21/2014 Brain Targeted Therapy 7/30/2014 Avastin (bevacizumab) Chemotherapy 7/30/2014 Xeloda (capecitabine) Dx 12/12/2014, mets, ER-/PR-, HER2- Radiation Therapy 1/20/2015 Bone Dx 3/3/2015, 1/3 nodes, mets Chemotherapy 3/3/2015 Gemzar (gemcitabine)
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Mar 10, 2015 05:31PM Adnerb wrote:

Bosco,

Great news!!! Would you tell us more about your new immunotherapy treatment?

Thanks.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)

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