Posted on:
Feb 1, 2013 03:56AM
R
Australia
Joined:
Jan 2013
Posts:
99
Latest activity:
Apr 27, 2017
Posted on:
Feb 1, 2013 03:56AM
Renae64
wrote:
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
Dx
4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2-
Surgery
4/24/2012 Lumpectomy: Right
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S
SpiritBlessing
Joined:
Oct 2013
Posts:
583
Latest activity:
Jan 27, 2016
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Mar 26, 2015 02:47AM
SpiritBlessing
wrote:
Whew...what a whirlwind of a day. So the results of the biopsy shows the lymph node is the same TNBC...so God will take me on another journey. Not the news I wanted to hear at all. So for now the plan is I am off the study trial that I had been on. My MO says it's been really good for me and has done a great job but now it has failed and its time to move on to another treatment. She wants me to take a couple of weeks off to clear out system and is recommending a few options. One is Xeloda which is a pill. The other is Eribulin infusion chemo which is on a study trial as well. Anyone have experience with these?
God will be with me on this journey too. It is discouraging I must admit and it makes me sad. We are going tomorrow for our camping trip and it is supposed to be a nice weekend...thank God! It will be nice to take a break for. My treatment and pills. But it will also be very odd to not have my pill to pray over. The doc said I can take 2 or 3 weeks and it would be fine and I will make a decision on what I need to do. I will be praying for God to give me wisdom and clarity in directing my decision. She gave me some info on the drugs and so I will be doing some reading after we get back on Sunday.
I plan to spend some time this weekend connecting with my soul and spirit and getting back on track and grounded. Today was tough but I know it won't last long. I have to keep my eyes on God and stay focused and positive.
Good nightLucy
Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10
Dx
8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2-
Surgery
9/18/2013 Lumpectomy: Left
Dx
11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2-
Chemotherapy
11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)
A
Adnerb
Joined:
Aug 2005
Posts:
1,759
Latest activity:
Oct 5, 2015
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Mar 26, 2015 04:53PM
Adnerb
wrote:
Hugs and prayers go out to you!
Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas
Dx
7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Chemotherapy
10/1/2005 AC
Radiation Therapy
3/14/2006 Breast
Dx
7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2-
Chemotherapy
10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2-
Chemotherapy
10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Hormonal Therapy
11/7/2014 Faslodex (fulvestrant)
Chemotherapy
3/1/2015 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
7/7/2015 Ixempra (ixabepilone)
K
keldel
Joined:
May 2012
Posts:
84
Latest activity:
Apr 11, 2015
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Mar 26, 2015 05:43PM
keldel
wrote:
SpiritBlessing may you have a rejuvenating weekend. I believe your attitude will benefit you greatly.
Unfortunately, I have no experience with Xeloda or Erubilin.
My thoughts are with you for successful treatment. (HUGS)
Kelly
TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain
Dx
1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2-
Surgery
2/7/2012 Mastectomy: Right
Chemotherapy
4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Radiation Therapy
9/13/2012 Breast
Hormonal Therapy
11/9/2012
Dx
2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2-
Chemotherapy
2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel)
Radiation Therapy
10/30/2014 Lymph nodes
Radiation Therapy
12/15/2014 Brain
B
BarbDenise64
Joined:
Aug 2014
Posts:
116
Latest activity:
Oct 1, 2016
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Mar 31, 2015 05:40PM
BarbDenise64
wrote:
Hi everyone. Sorry haven't been on for quite a while. I hope everybody is doing well, I have just been to my oncologist today after 2 months off treatment fearing the worst as I felt swelling in the sternum but he said after looking at my blood tests and examine me that he thinks I am ok and to see him again in 3 months so I am RELIEVED! Prayer really works . All the best Barbar
Dx
8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2-
Chemotherapy
S
Sabel
Joined:
Aug 2012
Posts:
53
Latest activity:
May 24, 2017
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Apr 4, 2015 01:52PM
Sabel
wrote:
What great news, BarbDenise6!!! I guess the answer is to keep doing what you've been doing for the next 3 months.
Dx
6/28/2012, IDC, 2cm, Stage IIA, Grade 3, 0/6 nodes, ER-/PR-, HER2-
C
CatWhispurrer
Joined:
Dec 2011
Posts:
263
Latest activity:
May 1, 2015
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Apr 8, 2015 12:36PM
CatWhispurrer
wrote:
BarbDenise- That is great news. May you have many more good checkups.
Lucy - I am glad you get a break from treatment. I would love to hear what you decide on next treatment. I am waiting for my brain MRI next monday and pray it is clear. My onc also wants me to look at clinical trials and one is with Eribulin (Halavan).
Tina / Chemo: Dose Dense 4 AC / 4 Taxol every two wks for 8 cycles / 33 external RADs after Chemo, 3/2014 Stage IV chest/lungs -taxol, 8/26/14 cisplatin, 2/24/15 brain mets-WBR radiation
Dx
10/27/2011, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
Surgery
12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel
Dx
3/14/2014, IDC, 1cm, Stage IV, ER-/PR-, HER2-
A
Adnerb
Joined:
Aug 2005
Posts:
1,759
Latest activity:
Oct 5, 2015
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Apr 8, 2015 02:38PM
Adnerb
wrote:
Cat, I also pray and hope that your MRI is clear!
Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas
Dx
7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Chemotherapy
10/1/2005 AC
Radiation Therapy
3/14/2006 Breast
Dx
7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2-
Chemotherapy
10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2-
Chemotherapy
10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Hormonal Therapy
11/7/2014 Faslodex (fulvestrant)
Chemotherapy
3/1/2015 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
7/7/2015 Ixempra (ixabepilone)
K
keldel
Joined:
May 2012
Posts:
84
Latest activity:
Apr 11, 2015
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Apr 8, 2015 03:21PM
keldel
wrote:
Good luck on Monday Cat. I am thinking only positive results for your scan.
Kelly
TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain
Dx
1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2-
Surgery
2/7/2012 Mastectomy: Right
Chemotherapy
4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Radiation Therapy
9/13/2012 Breast
Hormonal Therapy
11/9/2012
Dx
2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2-
Chemotherapy
2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel)
Radiation Therapy
10/30/2014 Lymph nodes
Radiation Therapy
12/15/2014 Brain
B
BarbDenise64
Joined:
Aug 2014
Posts:
116
Latest activity:
Oct 1, 2016
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Apr 8, 2015 03:39PM
BarbDenise64
wrote:
Cat
Best wishes for your MRI. Barbar
Dx
8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2-
Chemotherapy
C
CupcakeMama
Joined:
May 2013
Posts:
1
Latest activity:
Apr 20, 2015
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Apr 13, 2015 03:44PM
CupcakeMama
wrote:
Lucy and Catwhispurrer - I was on a Halaven/Eribulin trial briefly for widespread mets. The trial was Halaven combined with mifepristone, which is supposed to lower the body's resistance to chemo. It didn't work for me, but I've heard from my onc and one of the nurses (informally)that they're seeing good results. And this trial was specifically targeting TN stage 4/metastatic. If you go that route, I hope you'll be among the lucky ones!
Lynne
Dx
5/1/2013, IDC, Left, 6cm+, Stage IIIB, Grade 3, 6/6 nodes, mets, ER-/PR-, HER2-
Dx
5/1/2014, IDC, Stage IV
Chemotherapy
Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
Halaven (eribulin)
Surgery
Lymph node removal: Left, Sentinel; Mastectomy: Left
Chemotherapy
AC
Chemotherapy
Taxol (paclitaxel)
Radiation Therapy
Whole breast: Breast, Lymph nodes, Chest wall, Bone
Chemotherapy
Gemzar (gemcitabine)
Radiation Therapy
External: Brain
