Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 03:56AM

Posted on: Feb 1, 2013 03:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Mar 26, 2015 02:47AM SpiritBlessing wrote:

Whew...what a whirlwind of a day. So the results of the biopsy shows the lymph node is the same TNBC...so God will take me on another journey. Not the news I wanted to hear at all. So for now the plan is I am off the study trial that I had been on. My MO says it's been really good for me and has done a great job but now it has failed and its time to move on to another treatment. She wants me to take a couple of weeks off to clear out system and is recommending a few options. One is Xeloda which is a pill. The other is Eribulin infusion chemo which is on a study trial as well. Anyone have experience with these?

God will be with me on this journey too. It is discouraging I must admit and it makes me sad. We are going tomorrow for our camping trip and it is supposed to be a nice weekend...thank God! It will be nice to take a break for. My treatment and pills. But it will also be very odd to not have my pill to pray over. The doc said I can take 2 or 3 weeks and it would be fine and I will make a decision on what I need to do. I will be praying for God to give me wisdom and clarity in directing my decision. She gave me some info on the drugs and so I will be doing some reading after we get back on Sunday.

I plan to spend some time this weekend connecting with my soul and spirit and getting back on track and grounded. Today was tough but I know it won't last long. I have to keep my eyes on God and stay focused and positive.

Good nightLucy

Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10 Dx 8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 9/18/2013 Lumpectomy: Left Dx 11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2- Chemotherapy 11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)
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Mar 26, 2015 04:53PM Adnerb wrote:

Hugs and prayers go out to you!

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Mar 26, 2015 05:43PM keldel wrote:

SpiritBlessing may you have a rejuvenating weekend. I believe your attitude will benefit you greatly.

Unfortunately, I have no experience with Xeloda or Erubilin.

My thoughts are with you for successful treatment. (HUGS)

Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Mar 31, 2015 05:40PM BarbDenise64 wrote:

Hi everyone. Sorry haven't been on for quite a while. I hope everybody is doing well, I have just been to my oncologist today after 2 months off treatment fearing the worst as I felt swelling in the sternum but he said after looking at my blood tests and examine me that he thinks I am ok and to see him again in 3 months so I am RELIEVED! Prayer really works . All the best Barbar

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
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Apr 4, 2015 01:52PM Sabel wrote:

What great news, BarbDenise6!!! I guess the answer is to keep doing what you've been doing for the next 3 months.Happy

Dx 6/28/2012, IDC, 2cm, Stage IIA, Grade 3, 0/6 nodes, ER-/PR-, HER2-
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Apr 8, 2015 12:36PM CatWhispurrer wrote:

BarbDenise- That is great news. May you have many more good checkups.

Lucy - I am glad you get a break from treatment. I would love to hear what you decide on next treatment. I am waiting for my brain MRI next monday and pray it is clear. My onc also wants me to look at clinical trials and one is with Eribulin (Halavan).

Tina / Chemo: Dose Dense 4 AC / 4 Taxol every two wks for 8 cycles / 33 external RADs after Chemo, 3/2014 Stage IV chest/lungs -taxol, 8/26/14 cisplatin, 2/24/15 brain mets-WBR radiation Dx 10/27/2011, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 12/7/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 3/14/2014, IDC, 1cm, Stage IV, ER-/PR-, HER2-
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Apr 8, 2015 02:38PM Adnerb wrote:

Cat, I also pray and hope that your MRI is clear!

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Apr 8, 2015 03:21PM keldel wrote:

Good luck on Monday Cat.  I am thinking only positive results for your scan.

Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Apr 8, 2015 03:39PM BarbDenise64 wrote:

Cat

Best wishes for your MRI. Barbar

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
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Apr 13, 2015 03:44PM CupcakeMama wrote:

Lucy and Catwhispurrer - I was on a Halaven/Eribulin trial briefly for widespread mets. The trial was Halaven combined with mifepristone, which is supposed to lower the body's resistance to chemo. It didn't work for me, but I've heard from my onc and one of the nurses (informally)that they're seeing good results. And this trial was specifically targeting TN stage 4/metastatic. If you go that route, I hope you'll be among the lucky ones!

Lynne Dx 5/1/2013, IDC, Left, 6cm+, Stage IIIB, Grade 3, 6/6 nodes, mets, ER-/PR-, HER2- Dx 5/1/2014, IDC, Stage IV Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy Halaven (eribulin) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left Chemotherapy AC Chemotherapy Taxol (paclitaxel) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall, Bone Chemotherapy Gemzar (gemcitabine) Radiation Therapy External: Brain

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