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Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Feb 1, 2013 03:56AM

Posted on: Feb 1, 2013 03:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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May 10, 2015 08:50AM lotusblossom wrote:

Hi all,

I don't visit the boards much, but I wanted to give you an update.

Next month will be six years living with a stage IV diagnosis, with extensive mets. In February 2014, I was declared NED and taken off of treatment. On Friday, a PET scan confirmed ongoing NED status. So, I have been NED for 15 months.

I wanted to share this in order to share hope.

Lotusblossom

Dx 6/5/2009, Right, <1cm, Stage IV, metastasized to bone/lungs/other, mets, ER-/PR-, HER2-
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May 10, 2015 08:56AM smiley47 wrote:

A big congratulations and thank you for the hope and encorougement you give to us all

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
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May 10, 2015 11:15AM Beachbum1023 wrote:

lotusblossom, Thank You and congratulations! I am so happy for you to be NED. You have shared far more than than hope, you have shared the possible. That makes my heart sing. Enjoy this glorious day. Cheryl

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/19/2014 AC Chemotherapy 10/14/2014 Taxol (paclitaxel) Surgery 12/15/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/26/2015 Breast, Lymph nodes
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May 11, 2015 11:50AM ReadingMama wrote:

Lotusblossom, thank you and congrats!!

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/19/2015 Halaven (eribulin)
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May 11, 2015 09:18PM SpiritBlessing wrote:

Lotus that is so awesome and we are so happy and rejoicing with you. That is absolutely hope and promise for all of us.

Please do check in again as I would like to know where you live and maybe you could PM me. I would even love to chat on phone if you're interested.

CONGRATULATIONS!!!

Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10 Dx 8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 9/18/2013 Lumpectomy: Left Dx 11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2- Chemotherapy 11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)
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May 11, 2015 11:11PM surfdreams wrote:

Lovely news, Lofusblossom! Lovely flowers, Beachbum!

Mets to lungs, pelvis, spine, brain Dx 3/2009, IDC, Right, 1cm, Stage IIB, Grade 3, 1/12 nodes, ER-/PR-, HER2- Radiation Therapy 9/1/2009 External: Breast, Bone, Brain Dx 10/2011, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- Chemotherapy 11/25/2011 Abraxane (albumin-bound or nab-paclitaxel) Dx 2/2013, Stage IV, metastasized to bone, Grade 3, ER-/PR-, HER2- Chemotherapy 2/28/2013 Abraxane (albumin-bound or nab-paclitaxel), Carboplatin (Paraplatin), Gemzar (gemcitabine) Dx 5/2015, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2-
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May 15, 2015 09:34AM Lauralind5 wrote:

Hi to everyone. I'm having trouble getting my profile to reflect everything that has gone on. Was originally diagnosed triple negative in April 2013. Underwent dose dense AC/T, surgery and rads. In November of 2014 diagnosed with a 5 cm brain tumor, had surgery and cyber knife rads. Feb of this year more mets to mediastinum 2 lymph nodes. I just stopped taxotere after 4 cycles and switching to weekly taxol 2 on 1 off. Am hoping for less side effects ! I haven't been able to walk more than about 5 feet. I'm hoping to have more of a life with the taxol.

My brain Mri in March was clear, have another coming up in June.

Dx multiple brain mets WBRT 2015/16 Dx 2 brain lesions oct 2015 CKS Dx brain mets 1 lesion 12/2014. Dx lymph nodes mets 2/2015 Dx 4/26/2013, IDC, 3cm, Stage IIB, Grade 3, 4/13 nodes, ER-/PR-, HER2- Chemotherapy 5/15/2013 AC + T (Taxol) Surgery 9/19/2013 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Surgery 10/10/2013 Lumpectomy: Left Radiation Therapy 11/11/2013 Breast, Lymph nodes Dx 11/25/2014, Right, Stage IV, ER-/PR-, HER2- Dx
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May 17, 2015 01:18AM Sasha0124 wrote:

Hi everyone! I am new to this website and forum. My 62 year old mom was just diagnosed with triple negative metastatic breast cancer. She had a <2cm primary tumor (right breast at 7 o'clock) and 20 lymph nodes under her arm removed (only 3 were positive for cancer cells). The pathology report from the surgery indicated that lymph vascular invasion was present. Her cancer was considered grade 2 from the core biopsy report, but is now grade 3 from the surgery report. Since the surgery, she has had a full-body CT scan & bone scan of her body. There were no mets present, except for one spot.

The oncologist told us that a spot was found on her L4 pedicle that had a high uptake, which makes them suspect it's metastasized cancer from the breast. She has no physical symptoms of this (ie. no pain). Therefore, she has been diagnosed with Stage IV metastatic breast cancer - without treatment she has maybe 1 year, with treatment maybe 2-3 years as the cancer is extremely aggressive. The oncologist felt that it had been present for less than a year before it was caught.

We certainly didn't go into that meeting expecting to hear that. It was quite a shock to us all & quite frankly, still a little surreal as she isn't showing any physical symptoms. Hard to believe the diagnosis when she feels fine.

She started her first dose of Taxotere yesterday and is still feeling pretty good. Just waiting for the other shoe to drop and have the side effects kick in.

Hello & warm wishes for everyone!

Dx 5/5/2015, IDC, Right, 1cm, Stage IV, Grade 3, 3/20 nodes, ER-/PR-, HER2- Chemotherapy 5/15/2015 Taxotere (docetaxel)
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May 19, 2015 01:33AM Adnerb wrote:

Sasha,

You are a good and caring daughter. Keep up the good work, your mother needs you more now than ever.

It's great that she is asymptomatic! IMO that shows that your mom is healthy enough for chemo and that the size of the mets is manageable.

Take care.

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 20, 2015 07:17PM SpiritBlessing wrote:

Hi Sasha,

So sorry to hear your news of your mom.  It is never good news and it is tough stuff to hear.  I was dx 2 years ago this August and it is still surreal to me.  I am stage IV as well and I am a strong woman of faith so I am praying for a longer life than 3 years.  I have hope of more advance treatments for us with this type of cancer.  I am on my 3rd type of treatment and still working and staying strong in the fight.

You are a good daugher and that is wonderful as this is such a tough time for your mom and all the support is so important.  Stay in touch, I see you are from Canada and I am not familiar with the treatments there or if they are any different from us.  Let me know...

Lucy

Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10 Dx 8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 9/18/2013 Lumpectomy: Left Dx 11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2- Chemotherapy 11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)

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