Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 03:56AM

Posted on: Feb 1, 2013 03:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Feb 2, 2013 07:37PM Hope-downunder wrote:

I am quite new to the world of ABC 6 months. Prior to this I was just starting to feel confident about the future and not fear recurrence counting down toward the goal of five years. Just under half way and have an incidental finding of lung mets on my annual breast MRI.
I stated chemo immediately, calyx. Tumours grew slightly after 3 months. Started xeloda in December 2012. I now have subcutaneous nodule below my clavicle. Is this what is referred to as skin mets?

I am worried that I will be one of those that does not respond to chemo and struggling with feelings that nothing is going to work. Sorry to be a downer. I would be interested to read if anyone else has struggled like this. Following the diagnosis I was ready to tackle this, with no real positives since diagnosis I'm really worried about my upcoming scans and surviving greater than two years.

Dx 3/2010, IDC, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/5/2012, IDC, Stage IV, Grade 3, 0/1 nodes, mets, ER-/PR-, HER2- Chemotherapy 12/1/2012 Xeloda (capecitabine)
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Feb 2, 2013 07:43PM Hope-downunder wrote:

There was an article in one of the Sydney papers yesterday re triple neg, still a long way from getting something targeted.

Dx 3/2010, IDC, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/5/2012, IDC, Stage IV, Grade 3, 0/1 nodes, mets, ER-/PR-, HER2- Chemotherapy 12/1/2012 Xeloda (capecitabine)
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Feb 2, 2013 08:16PM Renae64 wrote:

What did the article say? Don't give up, easy for me to say. We are in the same boat, and I feel like giving in. It is just so hard to deal with this, it's just too much. I wish I could give you a hug from Melb to Sydney. Hugs, Renae

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Feb 2, 2013 08:37PM marywh wrote:

There are so many chemo drugs out there. They all seem to work differently on different women. My magic bullet happens to be abraxane which I take weekly for 3 weeks off for 1. I'll be on that indefinately, but its working really well right now. It did take awhile to find something that worked for me though.

Dx 1/2008, IDC, 2cm, Stage IV, Grade 3, 2/3 nodes, ER-/PR-, HER2- Surgery 6/15/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/1/2008 Breast Surgery 8/5/2011 Mastectomy: Left Chemotherapy 8/25/2012 Abraxane (albumin-bound or nab-paclitaxel), Carboplatin (Paraplatin) Chemotherapy AC Chemotherapy Doxil (doxorubicin), Xeloda (capecitabine)
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Feb 2, 2013 09:44PM tlangston07 wrote:

Count me in also. Stage IV TN from the start in Jan 2012. I was on taxotere/cytoxin, then gemzar/carbo and now fixing to start adriamycin.

Hope-downunder-There are plenty of chemos out there and I have heard that TN respond good to chemo. Your onc will find one that works for you. You are not a downer, we all feel like that sometimes. My mets in my liver grew quite a bit from November til now. The gemzar/carbo did not work for me.

I am so glad for this topic. Thank you, Renae.

Terry

Dx 1/16/2012, IDC, 6cm+, Stage IV, Grade 3, 1/18 nodes, mets, ER-/PR-, HER2-
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Feb 3, 2013 03:04PM joaniji wrote:

I am here too!  Diagnosed stage 2 er+ in late 2004 then with mets in 2008. When cancer spread to my liver in the fall of 2011, a biopsy confirmed that I was now TN.  Did a year of Xeloda and am now on Gemzar.  Bone and liver are now stable.  The best to you all!

joani Dx 1/1/2009, 2cm, Stage IV, Grade 2, 0/3 nodes, mets, ER-/PR-, HER2-
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Feb 3, 2013 03:31PM debbiej wrote:

Hi, I am also Stage IV TN.  Dx from the get go in Sept of 2012.  I've had a lumpectomy then found out I also had a nodule in my lung.  Had that Surgery right before x-mas.  I am now on Chemo (Taxol).  I am having my 3rd treatment Tues Feb 5.  So far I still have my hair!  I know it will fall out for sure the next 3 months of chemo because I was told it will be much stronger.  It is 3 drugs mixed together and I will receive it once every three weeks.  The drugs are Fluorouracil, Doxorubicin(adriamycin) and Cyclophosphamide (Cytoxan).  After that I am suppose to have 6 wks of radiation.  It's a long haul, I am taking one day at time.  I have an 11 yr old boy so we are trying to make life as normal as possible for him.  What I wish for the most is to know if the chemo is working.  My ON told me either it will work or it won't.  Pretty much 50/50 chance.  I really don't like those odds.  I pray they find something more to treat TNBC for us all! 

Thank Heavens for this site!  Debbie

debbie
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Feb 3, 2013 04:32PM Renae64 wrote:

I am so happy this thread is bringing us together. You are making yourself known so others with TN Stage IV can be supported. Thank you! Hugs, Renae

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Feb 4, 2013 09:58AM Elisha82 wrote:

I only have a minute to post....have to get ready for chemo #9-IT methotrexate and s steroid not approved by FDA. Hope all goes well! I'll come back n post more later



www.elisha-everthesame.blogspot.com

www.elisha-everthesame.blogspo... Dx 11/9/2011, IDC, 6cm+, Stage IIIC, 12/14 nodes, ER-/PR-, HER2- Surgery 11/21/2011 Mastectomy: Left, Right Chemotherapy 12/21/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/7/2012 Breast
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Feb 4, 2013 10:29AM - edited Feb 4, 2013 06:21PM by hydeskate

Stage IV TNBC and Brac 1+, dx out of the gate in 2008 @ 29.  I have been NED since 2009 and I have been on a Chemo holiday since OCt 2009, I get scanned every 3 months.  That was the good news the bad after my immune system came back on line it activated an autoimmune disorder called Sjogren's, bacsically my immune system is attacking mositure making organs, I fell like I am on Chemo but I am not, dry mouth, nose and eyes, joint pain, fatigue, and now appears to be jacking around with my diegestive system.

On another good note they think the Sjogren's is keeping the cancer in check.  I still have to take alot of medciation to keep the Sjogren's undercontrol but part of me wants the chemo back becasue that means no immune system which equals no sjogren's.



heidiy13.blogspot.com/ Chemotherapy 3/8/2008 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/25/2008 Adriamycin (doxorubicin) Surgery 2/12/2009 Lymph node removal: Left; Mastectomy: Left, Right Radiation Therapy 7/1/2009 Breast, Lymph nodes Chemotherapy 8/4/2009 Abraxane (albumin-bound or nab-paclitaxel) Dx IDC, Left, 1cm, Stage IV, metastasized to liver/lungs, Grade 3, 2/20 nodes, mets, ER-/PR-, HER2-

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