Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 03:56AM

Posted on: Feb 1, 2013 03:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Jun 9, 2022 07:33PM nicolerod wrote:

ok..thanks Mods I understand. What about those that their FSH was 0% for HER2?? Could they still be low?

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 Cryoblation on 2 of 4 tumors in liver. Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy; Mastectomy (Left); Mastectomy (Right)
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Jun 10, 2022 08:00PM cookie54 wrote:

So I now joined the Stage IV TNBC group officially dx with lung mets. Not much to say because it just stinks!!!!Question, has anyone ever been told their cancer seems slow growing? My MO today stated this due to the fact these lung mets have been slow growing for 6 months now. Largest was 6.1 mm and other two are 4mm maybe doubling in size over 3 months. Going to get some new scans and plan is to go back on Xeloda being she said it works well with metastatic disease. She feels as of right now it's a slow grower and she would like to try this to give me more freedom. Feels like we should refrain from rolling through the list of chemo as of now. So anyone out there who has heard this ?

Thanks!

Current Tx: Xeloda& Keytruda ,lung mets 6/22 Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/14/2016 Mastectomy; Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant Chemotherapy 10/14/2016 AC Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, 5/8 nodes, ER-/PR-, HER2- Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Surgery 10/19/2020 Lymph node removal; Lymph node removal (Right) Radiation Therapy 11/23/2020 Whole breast: Breast, Lymph nodes, Chest wall Chemotherapy 7/1/2022 Other Immunotherapy 7/5/2022 Keytruda (pembrolizumab) Dx IDC, Other, Stage IV, ER-/PR-, HER2- Chemotherapy Xeloda (capecitabine)
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Jun 11, 2022 11:42AM elderberry wrote:

Hi. I am not TNBC but I wanted to pop in with some news of which you may or may not be aware. Last night as I was watching the news, the banner below scrolled that a lab grown molecule has been developed that appears to attack and kill hard to treat cancer cells like Triple Negative BC, Pancreatic and Ovarian cancers. I hope we hear more of that!! It could be TNBC answer to HER2+ 's Herceptin. HOPE

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Jun 11, 2022 12:27PM cookie54 wrote:

Elderberry thanks for the the ray of hope! Everyone can always use it!

Current Tx: Xeloda& Keytruda ,lung mets 6/22 Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/14/2016 Mastectomy; Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant Chemotherapy 10/14/2016 AC Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, 5/8 nodes, ER-/PR-, HER2- Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Surgery 10/19/2020 Lymph node removal; Lymph node removal (Right) Radiation Therapy 11/23/2020 Whole breast: Breast, Lymph nodes, Chest wall Chemotherapy 7/1/2022 Other Immunotherapy 7/5/2022 Keytruda (pembrolizumab) Dx IDC, Other, Stage IV, ER-/PR-, HER2- Chemotherapy Xeloda (capecitabine)
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Jun 11, 2022 12:56PM ap3 wrote:

Just wanted to add a link to a post re the molecule elderberry mentioned. It looks really promising!

https://www.sciencedaily.com/releases/2022/06/220609173629.htm

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Jun 11, 2022 02:12PM cookie54 wrote:

Wow, thanks for attaching the article. Very interesting as it even shows potential with glioblastoma's which is a very aggressive cancer. Keeping the faith that one of these days research will break this hard to crack nut open!!

Current Tx: Xeloda& Keytruda ,lung mets 6/22 Dx 8/15/2016, IDC, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 9/14/2016 Mastectomy; Reconstruction (Left): Saline implant; Reconstruction (Right): Saline implant Chemotherapy 10/14/2016 AC Dx 6/2020, IDC, Right, Stage IIIC, Grade 3, 5/8 nodes, ER-/PR-, HER2- Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Gemzar (gemcitabine) Surgery 10/19/2020 Lymph node removal; Lymph node removal (Right) Radiation Therapy 11/23/2020 Whole breast: Breast, Lymph nodes, Chest wall Chemotherapy 7/1/2022 Other Immunotherapy 7/5/2022 Keytruda (pembrolizumab) Dx IDC, Other, Stage IV, ER-/PR-, HER2- Chemotherapy Xeloda (capecitabine)
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Jun 29, 2022 08:25PM moth wrote:

my platelets ranked really low after gemcitabine + cisplatin day 1 on June 23. No chemo for me tomorrow, cancelled for 2 weeks.

Does anyone have tips to raise the platelet?? I've read that many don't really raise them 😦😟☹ am very worried

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Jun 29, 2022 09:53PM rosie24 wrote:

Moth, I was on Gem with Carboplatin recently and ran into the low platelet problem. I had to wait a week and they did come back up after an extra week off. Wishing you the best.

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/4/2019 Lumpectomy; Lumpectomy (Left) Surgery 12/4/2019 Lymph node removal Radiation Therapy 3/18/2020 Whole breast Dx IDC/DCIS, ER-/PR-, HER2-
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Jun 30, 2022 10:49AM moth wrote:

rosie I'm super happy to hear that yours responded that quickly! I'd heard from some who said it took a long time to get back & that was depressing but yours is excellent! so I'm now I'm really cheering about your story and hoping that is a better interpretation of how things go 😊

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Jun 30, 2022 01:55PM chicagoan wrote:

Moth,

A friend of mine with pancreatic cancer had good success in raising his platelets by eating poppy seeds. He discovered this in a fluke when his wife brought back poppy seed pastries from NYC. Solo has canned poppy seed filling if you want to try it.

Best wishes.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)

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