Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 12:56AM

Posted on: Feb 1, 2013 12:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/23/2012 Lumpectomy: Right
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Dec 19, 2014 01:24AM keldel wrote:

Finally got in to see a oncology focused naturopath yesterday.  She would like to start me on mistletoe and vit  c infusions in the new year.  My goal is to improve my immune system and try to stabilized  cancer growth.  She also recommended a metformin type herb (I tested positive for igf-1 gene on my foundation one test) and said no sweetners except xytol and stevia... even maple syrup and agave are bad.  There was another supplument called breastdefense.  Also probably more vit d.   Am getting some bloodwork done and will be  checking all with my oncs.  Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Dec 19, 2014 08:34PM Adnerb wrote:

Yes. I heard about dropping the carbo and just doing the gemzar. My MO wanted that to happen before we realized it had stopped working altogether.

Kelly, I am pulling for you!

Hugs,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Dec 19, 2014 09:03PM - edited Dec 19, 2014 10:13PM by LydiaHouse

having a hard time wrapping my head around brain met. Just diagnosed yesterday and its the size of a golf ball. They haven't even given me aa actual size. My family is imploding.the body scan was clear and MRI shows only the one tumor, but I'm petrified. Having the tumor removed on monday and it is in a good place as they say. Relatively easy to remove. After this I'm just to go to radiation. No meds for triple neg brain tumor... it seems so strange. I,m wigging out here. My husband has been wonderful, but everyone is so tired. I'm so scared.

I haven't read about anyone who actually h$ brain surgery to remove tumors. This must be a very bad sign.



Dx 12/16/2013, IDC, 5cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 1/21/2014 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 3/2/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex), Taxotere (docetaxel)
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Dec 19, 2014 11:24PM keldel wrote:

Lydiahouse.  There is a thread called Brain mets sisters hete and you may find more info there.  Surgery is not uncommon if there are only one or two tumours and they are easy to get at.  If you have headaches ask for steriods to reduce the pressure.   Also ask for some anti anxiety meds  for yourself and your husband.  I like Ativan.  You just take it when needed and it helps take that edge off.  Also ask your hosptial or doc for social or emotional support help.  This is scary stuff but it really sounds scarier than it is.  Stay away fom Dr google too. Hugs xo

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Dec 20, 2014 02:07PM ReadingMama wrote:

Lydia, ((((HUGS))) to you.  I don't have any more to add than what keldel said, but I do echo her that the brain mets thred probably had a lot of good information and support and an anti-anxiety med is good to help you cope.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/6/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/18/2015 Halaven (eribulin)
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Dec 20, 2014 10:34PM DeliriumPie wrote:

Lydia. Do look at the brain mets thread. There are not a huge number of us there but you are certainly not alone. The beginning is so scary. Your case sounds pretty favorable - I mean, if you have to have brain mets... Also xeloda can be used for trip neg brain mets. Hang in there.

"She's been everybody else's girl. Maybe one day she'll be her own" Tori Amos Dx 3/11/2013, IDC, 4cm, Stage IIB, Grade 3, 3/30 nodes, ER-/PR-, HER2- Chemotherapy 4/9/2013 AC + T (Taxol) Surgery 8/11/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/1/2013 Halaven (eribulin) Radiation Therapy 10/8/2013 Breast, Lymph nodes Dx 3/14/2014, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2- Radiation Therapy 9/2/2014 Brain Chemotherapy 9/25/2014 Ixempra (ixabepilone), Xeloda (capecitabine)
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Dec 23, 2014 09:26AM keldel wrote:

Finally saw my MRI results yesterday. While I have 2 small tumours at the back of my head. The lesions are really small and may just be fluid or swelling. Its great news to get. My onc is feeling very optimistic! Thank you to everyone for your support with this. Merry Christmas and Happy New Year as well.

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Dec 23, 2014 11:05AM Adnerb wrote:

Kelly, what a great gift right before Christmas! May this coming year give everyone here joy and hope!

Love,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Dec 28, 2014 12:56AM keldel wrote:

Yes Brenda.  I couldn't agree more.  How arecu doing?


Keld

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Dec 28, 2014 11:48AM Adnerb wrote:

Kelly,

I am trying Faslodex in between chemo regimens. I get a scare now and then because I am so used to the chemo working and when I am not on it I feel like I am tempting fate. But my onc said that my disease was stable enough to try Faslodex. It does not give me any of the common side effects, thank goodness, but I had a scare a few weeks ago when my chest hurt every time I sneezed! Being the alarmist that I am I was sure my lung mets had progressed, but I was unwilling to tell anyone about it. Now, for some reason that symptom is gone. I am sneezing normally now. So I'm keeping my fingers crossed and hoping that the Faslodex gives me more time!

I hope everyone here has a much better year to come!!!!

Love,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)

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