Log in to post a reply
Jan 3, 2015 01:47AM
Jan 3, 2015 02:05AM
I found my lump Dec 2007 by Feb 2008 I was told I had Stage IV Triple Negative with Mets to my liver (over a dozen spots largest the size of a quarter), and lungs (my entire left lung glowed brightly on the CT scan and had a few spots in my right). Chemo #1 Abraxane, Chemo #2 A/C, first NED scan, Surgery (Bilateral Mastectomy), Radiation, 2nd NED Scan,, Chemo #3 Abraxane again, Oct 2009 3rd NED scan.
Doctors decided to give my body a break, and Grant me a Chemo break, I was told it would be short lived since I was Triple Negative, yeah it is 2015, the beginning of my 7th year with Stage IV. I was dx in the Summer of 2010 with an Autoimmune Disorder called Sjogren's Syndrome, Fibromaylgia, Raynauds which has been a royal pain in my ass, the doctors believe that it is some how keeping the Cancer under-control but it is a double edge sword. All moisture making glands, in my body are dead or dying my partoid glands are always swollen, I have little to no saliva, I have Severe dry eyes,which has caused me to have Photo-phobia, (my eyes when inflamed can't stand any kind of light I wear shades the majority of the time), I have no sweat glands so I have issues with regulating hot and cold, Extreme Fatigue, Swollen Joints, my skin allerigic to water and the list goes on.
I have been on Methotrexate an old Chemo drug since 2012 in a low dose in an attempt to keep the Sjogren's under-control, I also have to take Plaquenil,Gabapentin, and a crap load more pills, I had been working Full time through Chemo until I was slammed with the Sjogren's, my body was like nope not happening, so I went on Long Term Disability from work which has helped allot, was able to move back home and reconnect with my extended family. That and having your EMT/Registered Nurse Cousin living right next door comes in handy and retired Aunts and Uncles that love driving you the 2 hours to then Cancer Hospital/rheumatology clinic/eye clinic every month comes in handy. That and all the home cooked meals.
3/8/2008 Abraxane (albumin-bound or nab-paclitaxel)
10/25/2008 Adriamycin (doxorubicin)
2/12/2009 Lymph node removal: Left; Mastectomy: Left, Right
7/1/2009 Breast, Lymph nodes
8/4/2009 Abraxane (albumin-bound or nab-paclitaxel)
IDC, Left, 1cm, Stage IV, metastasized to liver/lungs, Grade 3, 2/20 nodes, mets, ER-/PR-, HER2-