Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 03:56AM

Posted on: Feb 1, 2013 03:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
Log in to post a reply

Page 92 of 306 (3,060 results)

Log in to post a reply

Dec 28, 2014 05:27PM BarbDenise64 wrote:


Hi to everyone. I haven't been on for ages and have been finding the treatment hard but am now about to have the 6th taxi chemo before a scan and visit to oncologist. After 3 he said it was working and some shrinkage had occurred . It had t gone -just hope it isn't any worse. Have been catching up on how everybody is getting on. Best wishes to all Ba

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
Log in to post a reply

Dec 29, 2014 01:29PM smiley47 wrote:


Great to meet you and glad the taxol is doing its job, ive been on taxol for the second time since July and managed the SEs well but last scan was questionable. So now I am feeling nervous that it has stopped working, will know more on next scan in six weeks or if I have symptoms. Every ache or pain scares me, but what can I do.

What bothered you bout the chemo?


Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
Log in to post a reply

Dec 30, 2014 06:07PM BarbDenise64 wrote:


Hi Smiley47. I had an allergic reaction to the first 2 chemos and I am not the best of patients. Also it has been affecting my nerves quite a lot both with the kegs and the finger tips and as it's gone on I am so tired I have been having difficulty keeping going with my usual activities with the kids. Ba

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
Log in to post a reply

Dec 30, 2014 08:03PM smiley47 wrote:

Hi BarbDenise64:

Sorry to hear your suffering with nerves from all the stress; I think we all do. I read a post about finger nail care that helped with chemo but not sure which site I was on to be able repeat it to you; i will look into it. Maybe you could ask on this site if any ladies know of any remedies, I think it was vinegar and water but not sure of the quantities. Hang in there and vent away you can message privately if you like.

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
Log in to post a reply

Dec 31, 2014 05:16AM DeliriumPie wrote:

hi barb. I'm sorry you are experiencing neuropathy. Have you discussed with your dr? Perhaps a gabapentin rx would help? While I was on taxol, I iced my hands and feet for prevention. I also took L-glutamine because I read in here that it helped. I hasd very minimal issues. I am currently on abraxane which is also a taxane. I've been icing and so far no problems.

Good luck.

"She's been everybody else's girl. Maybe one day she'll be her own" Tori Amos Dx 3/11/2013, IDC, 4cm, Stage IIB, Grade 3, 3/30 nodes, ER-/PR-, HER2- Chemotherapy 4/10/2013 AC + T (Taxol) Surgery 8/12/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/2/2013 Halaven (eribulin) Radiation Therapy 10/9/2013 Breast, Lymph nodes Dx 3/14/2014, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2- Radiation Therapy 9/3/2014 Brain Chemotherapy 9/26/2014 Ixempra (ixabepilone), Xeloda (capecitabine)
Log in to post a reply

Dec 31, 2014 11:08PM keldel wrote:

Completed 10 of 10 prescribed whole brain radiation treatments today.  Fatigue is terrible.   Otherwise my sysmptoms like balance and motor skills seem to have improved.  Scalp is itchy and hair is coming out.  My radiation oncologist says that radiation is very effective for brain mets.  Next follow-up is in mid Jan

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
Log in to post a reply

Dec 31, 2014 11:16PM smiley47 wrote:

congratulations on your radiation being completed, fingers crossed it was effective for you. Wishing well for 2015!!!

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
Log in to post a reply

Jan 1, 2015 07:11AM BarbDenise64 wrote:


Thanks for the helpful suggestions. Did anybody else experience marked increase in fatigue as the number of chemos increase. I find I am much more tired than I wasa few weeks ago. Ba

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
Log in to post a reply

Jan 3, 2015 01:06AM ReadingMama wrote:

Hi, I'm wondering how many TN girls reach past the 5 year mark after mets? Stage IV still new to me and I had a goal of 8 years, which now seems quite long.

I have gone to a support group for mbc at my cancer center and there is one TN girl 4-5 years out, which makes me hopeful.

Anyone here 4-5 years from mets dx? Longer?

Best wishes for all of us for the best 2015 with as little progression as possible!

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/19/2015 Halaven (eribulin)
Log in to post a reply

Jan 3, 2015 01:47AM - edited Jan 3, 2015 02:05AM by hydeskate

I found my lump Dec 2007 by Feb 2008 I was told I had Stage IV Triple Negative with Mets to my liver (over a dozen spots largest the size of a quarter), and lungs (my entire left lung glowed brightly on the CT scan and had a few spots in my right). Chemo #1 Abraxane, Chemo #2 A/C, first NED scan, Surgery (Bilateral Mastectomy), Radiation, 2nd NED Scan,, Chemo #3 Abraxane again, Oct 2009 3rd NED scan.

Doctors decided to give my body a break, and Grant me a Chemo break, I was told it would be short lived since I was Triple Negative, yeah it is 2015, the beginning of my 7th year with Stage IV. I was dx in the Summer of 2010 with an Autoimmune Disorder called Sjogren's Syndrome, Fibromaylgia, Raynauds which has been a royal pain in my ass, the doctors believe that it is some how keeping the Cancer under-control but it is a double edge sword. All moisture making glands, in my body are dead or dying my partoid glands are always swollen, I have little to no saliva, I have Severe dry eyes,which has caused me to have Photo-phobia, (my eyes when inflamed can't stand any kind of light I wear shades the majority of the time), I have no sweat glands so I have issues with regulating hot and cold, Extreme Fatigue, Swollen Joints, my skin allerigic to water and the list goes on.

I have been on Methotrexate an old Chemo drug since 2012 in a low dose in an attempt to keep the Sjogren's under-control, I also have to take Plaquenil,Gabapentin, and a crap load more pills, I had been working Full time through Chemo until I was slammed with the Sjogren's, my body was like nope not happening, so I went on Long Term Disability from work which has helped allot, was able to move back home and reconnect with my extended family. That and having your EMT/Registered Nurse Cousin living right next door comes in handy and retired Aunts and Uncles that love driving you the 2 hours to then Cancer Hospital/rheumatology clinic/eye clinic every month comes in handy. That and all the home cooked meals.

heidiy13.blogspot.com/ Chemotherapy 3/8/2008 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/25/2008 Adriamycin (doxorubicin) Surgery 2/12/2009 Lymph node removal: Left; Mastectomy: Left, Right Radiation Therapy 7/1/2009 Breast, Lymph nodes Chemotherapy 8/4/2009 Abraxane (albumin-bound or nab-paclitaxel) Dx IDC, Left, 1cm, Stage IV, metastasized to liver/lungs, Grade 3, 2/20 nodes, mets, ER-/PR-, HER2-

Page 92 of 306 (3,060 results)

Scroll to top button