Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 12:56AM

Posted on: Feb 1, 2013 12:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/23/2012 Lumpectomy: Right
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Jan 6, 2015 10:14AM BarbDenise64 wrote:


Hi. I have scan tomorrow and am really scared. Encouragement much appreciated!! B

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
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Jan 6, 2015 11:32AM smiley47 wrote:

BarbDenise64

Will definately keep you in my thoughts and prayers, I totally understand the anxiety you are going theough.

Hugs

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/26/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/8/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/9/2009 Hormonal Therapy 5/9/2011 Aromasin (exemestane) Chemotherapy 11/9/2013 Xeloda (capecitabine) Chemotherapy 1/9/2014 Taxol (paclitaxel)
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Jan 6, 2015 01:14PM ReadingMama wrote:

B - ((((hugs)))) for an anxiety free scan and good results.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/6/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/18/2015 Halaven (eribulin)
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Jan 6, 2015 02:24PM keldel wrote:

Hello BarbDenise64

Best wishes for a good scan. Sending love and positive thoughts your way.

I get the anxiety with them too. (((((HUGS)))))

K

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Jan 7, 2015 05:42PM Adnerb wrote:

BarbDenise, hope your scan went well!!!

Kelly: Lotusblossom posts here, I'm sure. I did just see an update on tnbcfoundation.org. She has been living with TNBC mets for more than 5 years and has had NED for almost a year now.

http://forum.tnbcfoundation.org/5-years-with-mets-and-counting_topic12038.html

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Jan 7, 2015 08:31PM keldel wrote:

Hello BarbDenis, just checking in - I know sometimes one has to wait a few days to get the report. Hoping it went well,

Thanks Adnerb about Lotusblossom! I do follow her as I find her story inspirational. Sounds like she has a good oncologist and was a good patient to be persistent. (Sometimes my husband says, "why do you always have to challenge the doc?", S/he went to school for this. I say because it gets them to look at me as a person, not just a "case". It also helps me to buy into the recommended treatment more.) I believe LotusBlossom was stage iv from the first dx too.

K

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Jan 10, 2015 11:47AM lotusblossom wrote:

Hi all,

I was diagnosed with mets from the get-go in June 2009. At the time of diagnosis, my mets were so extensive that the PET scan report was 3 pages long. My onc told me I looked like I had been in a radioactive accident. Mets included axilla nodes, neck nodes, hilar and mediastinal nodes, lungs, biliary tract, spleen, pericardial sac, pancreas,spine, muscles and soft tissue.

I started treatment with Xeloda/Gemzar for 8 months. Initially there was some response but then eventually progression. I was switched to Caelyx(Doxil?) which failed. I then was switched to Taxol for 16 months. Again, initial response to progression. Then I was switched to Navelbine as a last resort. Navelbine kept me stable for 20 months. Then, quite suddenly, I began to show rapid response which brought me to NED. That was in February 2013. I have been without treatment since.

Throughout my treatment, I never took more than a couple of weeks of chemo holiday and was diligent in all health matters. I exercised regularly and continued to work until the day my employer forced me onto disability (that's a whole other story).

It has been almost 6 years since my stage 4 diagnosis. I am doing well.

Here is a video that I did with the Canadian Breast Cancer Network called "Living Legacy". We are 3 participants in the video, 2 of us are stage 4 TN. I am the red head with the Chinese name, which in English means lotus blossom. I hope the link works.....

http://www.cbcn.ca/index.php?pageaction=content.pa...



Dx 6/5/2009, Right, <1cm, Stage IV, metastasized to bone/lungs/other, mets, ER-/PR-, HER2-
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Jan 10, 2015 12:17PM keldel wrote:

lotusblossom

Thank you so much for sharing.  I really appreciate knowing the details. 

Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Jan 10, 2015 12:22PM smiley47 wrote:

Great you made it over to the group, thank you.

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/26/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/8/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/9/2009 Hormonal Therapy 5/9/2011 Aromasin (exemestane) Chemotherapy 11/9/2013 Xeloda (capecitabine) Chemotherapy 1/9/2014 Taxol (paclitaxel)
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Jan 10, 2015 08:31PM ReadingMama wrote:

lotus, thank you so much for sharing your story! Very inspirational and hopeful for me. I have not heard of a TN over 5 years, so that is very exciting.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/6/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/18/2015 Halaven (eribulin)

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