Jan 22, 2015 01:27PM keldel wrote:
Hello BarbDenise64 - WOW! That IS great news. Definately celebrations are in order. I am so happy for you. :)
Kelly
Posted on: Feb 1, 2013 12:56AM
Posted on: Feb 1, 2013 12:56AM
Renae64 wrote:
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
Jan 22, 2015 01:27PM keldel wrote:
Hello BarbDenise64 - WOW! That IS great news. Definately celebrations are in order. I am so happy for you. :)
Kelly
Jan 22, 2015 09:21PM ReadingMama wrote:
BarbDenise, congrats, that is great news!! Enjoy your chemo break, I hope you can fit in special fun things, as well as daily living well.
Jan 23, 2015 01:45PM BarbDenise64 wrote:
Kelly
Hope you are feeling better. We have enough to cope with without those sort of extra things. All the best. B
Feb 11, 2015 02:59PM lbgal wrote:
Hi all,
I'm TNBC stage IV too. I just joined and I've been posting in the stage IV forum. I'm glad I found this thread which is for TNBC. I'm not sure how this works, how can I post to the TNBC group? Especially if I have a question?
Thank you
Feb 11, 2015 06:36PM Beachbum1023 wrote:
Hi lbgal, you can post here, this is triple negative. I post in a lot of different forums also. I hope you are well.
Feb 23, 2015 12:27PM Adnerb wrote:
Very quiet here. This is still one of my favorites because my first dx was TN. Plus, my MBC has yet to respond to an anti-hormonal. I've tried 3 and they all failed. Chemo has worked well for me, so I'm thinking that my cancer is still behaving like TNBC.
Feb 23, 2015 03:55PM smiley47 wrote:
hi:
I've noticed how quiet it is too. I would like to know if anyone has any experience with navalbine, taxol has stopped working. Progression noted and possible brain met 8mm, wondering if there is anyone out there with advice on mets to brain that small. Will they stop me from driving? Is it better to do whole brain radiation or just the one.
Thanks
Feb 23, 2015 04:10PM Beachbum1023 wrote:
Hi Smiley, I do not have any history with that yet, but I am finishing rads now. I will be seeing the MO after I finish rads, and probably back to chemo. I cannot do any Adriamycin or Taxanes. I have heart damage from the Adriamycin, and my tumor grew back quickly on Taxol. But being triple negative, it will be challenging.
Feb 24, 2015 03:45AM keldel wrote:
Hi smiley47
They found brain mets in early December 2014. Two in my cerebellum (back, bottom, also called little brain) and a number of small lesions throughout. I had 10 whole brain radiation treatments ending December 31. I tolerated them pretty well, brain fog, lots of fatigue but no nausea. I am still on steriods for swelling issues. (Oh and yes I lost my hair and it is starting to come back now.)
I was told not to drive and I feel that I couldn't - I can't make a decision as quickly and my short term memory is pretty funny. Like I will take something out of the cupboard and then go looking for it in the cupboard again. (LOL) If you just have one met, they can probably do a more targeted treatment. All my sites have shrunk, some as much as 30% and apparently they continue to shrink for as much as months. Overall the consensus is that radiation is very effective for brain mets.
There is a brain mets thread you should check out. Ask lots of questions of your oncologist and make the decision you are comfortable with.
Good luck.
Kelly
Feb 24, 2015 06:06AM smiley47 wrote:
Thanks Beachbum102:
Hope your treatment is successful for you, I find it scary how quickly the cancer can grow. I have progression in about 4 wks when a treatment is no longer working to a new organ. I did very well on taxol for the se's and my doc told me in frustration that I am her only patient ever to be on taxol and have good blood counts and no SE's. We had both hoped to get more time out of taxol but now I'm trying navelbine and just hope it works.
Keldel: Thankyou for your input and experiences with radiation, i have been following you for a while on this forum and a few others. Your personnal strength and sharing to our community is very much appreciated