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Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Feb 1, 2013 11:56AM

Posted on: Feb 1, 2013 11:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/24/2012 Lumpectomy: Right
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Jan 23, 2015 12:27AM keldel wrote:

Hello BarbDenise64 - WOW! That IS great news. Definately celebrations are in order. I am so happy for you. :)

Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/8/2012 Mastectomy: Right Chemotherapy 4/16/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/14/2012 Breast Hormonal Therapy 11/10/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/14/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/31/2014 Lymph nodes Radiation Therapy 12/16/2014 Brain
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Jan 23, 2015 08:21AM ReadingMama wrote:

BarbDenise, congrats, that is great news!! Enjoy your chemo break, I hope you can fit in special fun things, as well as daily living well.

Meegan - Age 47 @ 9/15/14 Mets to bone (sternum), liver, lung membrane and lymph nodes. Dx Recurrence on 10/14/11. BMX Nov 30th w/DIEP recon. Dx #1 9/2010 - ACx4, Taxolx4, Lump & ALND 2/16/11, Rads April, Herceptin 1 year, ended Nov. 2011 Dx 9/7/2010, IDC, 2cm, Stage IIB, Grade 2, 1/7 nodes, ER-/PR-, HER2+ Dx 9/15/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 10/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 5/19/2015 Halaven (eribulin)
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Jan 24, 2015 12:45AM BarbDenise64 wrote:


Kelly

Hope you are feeling better. We have enough to cope with without those sort of extra things. All the best. B

Dx 8/2014, Right, Stage IV, metastasized to other, Grade 3, 2/15 nodes, ER-/PR-, HER2- Chemotherapy
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Feb 12, 2015 01:59AM lbgal wrote:

Hi all,

I'm TNBC stage IV too. I just joined and I've been posting in the stage IV forum. I'm glad I found this thread which is for TNBC. I'm not sure how this works, how can I post to the TNBC group? Especially if I have a question?

Thank you

Dx 7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2- Chemotherapy 8/1/2012 AC + T (Taxol) Surgery 1/12/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 3/2013, IDC, Stage IIIA, ER-/PR-, HER2- Chemotherapy 3/1/2013 Xeloda (capecitabine) Dx 9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 1/5/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Feb 12, 2015 05:36AM Beachbum1023 wrote:

Hi lbgal, you can post here, this is triple negative. I post in a lot of different forums also. I hope you are well.

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/19/2014 AC Chemotherapy 10/14/2014 Taxol (paclitaxel) Surgery 12/15/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/26/2015 Breast, Lymph nodes
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Feb 23, 2015 11:27PM Adnerb wrote:

Very quiet here. This is still one of my favorites because my first dx was TN. Plus, my MBC has yet to respond to an anti-hormonal. I've tried 3 and they all failed. Chemo has worked well for me, so I'm thinking that my cancer is still behaving like TNBC.

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Feb 24, 2015 02:55AM smiley47 wrote:

hi:

I've noticed how quiet it is too. I would like to know if anyone has any experience with navalbine, taxol has stopped working. Progression noted and possible brain met 8mm, wondering if there is anyone out there with advice on mets to brain that small. Will they stop me from driving? Is it better to do whole brain radiation or just the one.

Thanks

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)
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Feb 24, 2015 03:10AM Beachbum1023 wrote:

Hi Smiley, I do not have any history with that yet, but I am finishing rads now. I will be seeing the MO after I finish rads, and probably back to chemo. I cannot do any Adriamycin or Taxanes. I have heart damage from the Adriamycin, and my tumor grew back quickly on Taxol. But being triple negative, it will be challenging.

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/19/2014 AC Chemotherapy 10/14/2014 Taxol (paclitaxel) Surgery 12/15/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/26/2015 Breast, Lymph nodes
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Feb 24, 2015 02:45PM keldel wrote:

Hi smiley47

They found brain mets in early December 2014. Two in my cerebellum (back, bottom, also called little brain) and a number of small lesions throughout. I had 10 whole brain radiation treatments ending December 31. I tolerated them pretty well, brain fog, lots of fatigue but no nausea. I am still on steriods for swelling issues. (Oh and yes I lost my hair and it is starting to come back now.)

I was told not to drive and I feel that I couldn't - I can't make a decision as quickly and my short term memory is pretty funny. Like I will take something out of the cupboard and then go looking for it in the cupboard again. (LOL) If you just have one met, they can probably do a more targeted treatment. All my sites have shrunk, some as much as 30% and apparently they continue to shrink for as much as months. Overall the consensus is that radiation is very effective for brain mets.

There is a brain mets thread you should check out. Ask lots of questions of your oncologist and make the decision you are comfortable with.

Good luck.

Kelly

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/8/2012 Mastectomy: Right Chemotherapy 4/16/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/14/2012 Breast Hormonal Therapy 11/10/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/14/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/31/2014 Lymph nodes Radiation Therapy 12/16/2014 Brain
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Feb 24, 2015 05:06PM smiley47 wrote:

Thanks Beachbum102:

Hope your treatment is successful for you, I find it scary how quickly the cancer can grow. I have progression in about 4 wks when a treatment is no longer working to a new organ. I did very well on taxol for the se's and my doc told me in frustration that I am her only patient ever to be on taxol and have good blood counts and no SE's. We had both hoped to get more time out of taxol but now I'm trying navelbine and just hope it works.

Keldel: Thankyou for your input and experiences with radiation, i have been following you for a while on this forum and a few others. Your personnal strength and sharing to our community is very much appreciated

Dx 9/9/2008, DCIS, Left, 5cm, Stage 0, Grade 3, 15/40 nodes, mets, ER+/PR+, HER2- Surgery 9/27/2008 Lumpectomy: Left; Lymph node removal: Left; Mastectomy: Left; Prophylactic ovary removal Radiation Therapy 3/9/2009 3DCRT: Lymph nodes, Bone Hormonal Therapy 5/10/2009 Hormonal Therapy 5/10/2011 Aromasin (exemestane) Chemotherapy 11/10/2013 Xeloda (capecitabine) Chemotherapy 1/10/2014 Taxol (paclitaxel)

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