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Mar 4, 2015 12:16AM
Mar 4, 2015 12:17AM
Tbryer - welcome. I am new here as well. I know it is a tough dx we have all been given. I was dx 08/13 so we have been on the journey almost the same time. I am stage IV as well from the very beginning. Unfortunately my initial team overlooked some nodules that were on my lung and so they didn't even look into them. I had my lumpectomy and my surgeon the onc and radiologist all said not to worry about them and they just wanted to focus on the lump in Breast and to remove it. Had surgery after about 6 weeks which freaked me out that it took so long. After surgery I just didnt feel right and so I went for a second opinion. Found that they said absolutely have to check nodules so had a PET and of course cancer as well. So stayed with my new team who are 2hours away but totally worth it.
I have been on a study trial since 11/25/13 which I did chemo weekly for 6 months and now am on a targeted therapy of a chemo drug every two weeks and a daily pill. So far I went from 5 nodules to 2 and 2 lymph nodes in chest to none. It's been a year and 4 months since started treatment and I have done pretty good actually and have worked most the time. I worked from home during the hard chemo but went back to work in May a few days a week and in July I was full time again except for every other Monday when I go for treatment.
As part of the trial I have to have a CT scan every 8 weeks. My last one I had three weeks ago showed a lymph node behind my stomach that they want to look at so I have a PET scan on the 9th.
I am new to this board but I have been on another board since my initial dx and the ladies there have been amazing and they are family to me. I have a strong Christian faith and this board is for women who are Christian and want to get and give prayer and support in their faith.
It's easy to be fearful in our journeys but stay focused and positive. If you like you are welcome to PM me anytime. I am also opened to phone calls and texting for support so let me know.
I in the early process of checking into applying for social security disability so hoping it goes well and just see what my options are.
Beachbum what other boards would be good to check out?
Have a blessed evening and restful sleep...Lucy.
Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10
8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2-
9/18/2013 Lumpectomy: Left
11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2-
11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)