Topic: Triple Negative Stage IV

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Feb 1, 2013 12:56AM

Posted on: Feb 1, 2013 12:56AM

Renae64 wrote:

This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)

Dx 4/3/2012, IDC, 3cm, Stage IV, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 4/23/2012 Lumpectomy: Right
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Mar 3, 2015 09:29PM Beachbum1023 wrote:

Welcome SpiritBlessing, look through all of the active topics and see what will interest you. You can read through them, and join in where you feel comfortable. I have met the most amazing ladies here. They are so helpful and kind. It is nice to offer experience to the newbies along the way. I hope you enjoy the threads as much as I do. Cheryl

Beachbum - AIN'T NO 5! Dx 7/15/2014, IDC, 6cm+, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Chemotherapy 8/18/2014 AC Chemotherapy 10/13/2014 Taxol (paclitaxel) Surgery 12/14/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Dx 12/26/2014, IDC, 5cm, Stage IV, Grade 3, 0/5 nodes, mets, ER-/PR-, HER2- Radiation Therapy 1/25/2015 Breast, Lymph nodes
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Mar 4, 2015 04:15AM - edited Mar 4, 2015 04:23AM by Tbryer

i appreciate everyones response and I am very curious as to what this experimental treatment you are going through, spiritblessings I believe was your name? Also ty for your support.

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Mar 4, 2015 04:22AM Tbryer wrote:

As i said before I am still trying to figure out how this message board works lol. As for the chemo medicines I have done so far i am not sure. I told doctor my last visit that I wanted a print out of everything but I forgot to re mention it before I left. So needless to say I walked out without them. But I noticed how you all have everything listed at that bottoms of your pages so I will be updating all mine here soon.

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Mar 4, 2015 01:51PM keldel wrote:

Welcome Spiritblessing and Welcome Tbryer, this is a great board and you will find lots of support here as I can tell you I have - whether things are going well or not.  

I have stayed out of the social security discussion as I am in Canada.  I have also been enjoying a visit with Stable Boy.  My CT result last week shows every thing is small, really small in my neck or stable since last scan.  My brain MRI shows tumours shrunk by 1/2 or more or are gone.  Apparently the whole brain radiation can continue to shrink them for awhile after treatment stops so I may see more reduction.  My oncologist seemed really sincerely happy about the results.  Ofcourse I am too but always a little cautious as to how long this will last.  But hey I try to take it one day at a time and live the best day that I can and enjoy it with my husband and little dog. 

I wish all of you find the sunshine in each day even if its raining.

(((HUGS)))

Kelly


TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain
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Mar 4, 2015 04:44PM lbgal wrote:

Hi tbryer and welcome!

We understand you are scared. The met diagnosis is pretty scary, and some doctors who look at older research might have a less optimistic attitude. But the truth is that things have changed a lot in terms of treatment and survival of metastatic TNBC. I don't have lung mets, my mets were in the pleura (the membrane around the lungs) so there was pleural fluid accumulation around the lungs and heart. They drained it and then I started chemo which reduced fluid production to very little so I'm doing fine and continuing the chemo.

I assume your original chemo treatment (standard) was adriamycin, citoxan and then taxol. The next step is usually either xeloda or gemzar/carboplatin (I'm on the later). I was on xeloda before my mets diagnosis.

It's kind of weird that your doc said there is no experimental treatment for you and 'it's back to chemo'. Besides the fact that there is always an experimental treatment (unless you exhausted all the clinical trials out there) 'back to chemo' is in fact the standard approach. They will use first the drugs that they know will work in most patients, the approved and tried ones before the experimental ones.

So don't lose hope. You are just starting a journey, and it will have some ups and some downs, but we are here to encourage each other and to share information that could help.

Btw - if you don't like your MO - change him/her. Their job is not only to treat you, but also to guide and help you through this journey (psychologically). So if needed, find a better one with whom you communicate better and feel great talking with them!

Dx 7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2- Chemotherapy 7/31/2012 AC + T (Taxol) Surgery 1/11/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/28/2013 Xeloda (capecitabine) Dx 3/2013, IDC, Stage IIIA, ER-/PR-, HER2- Dx 9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 1/4/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Mar 4, 2015 04:51PM lbgal wrote:

adnerb - I sure hope the solid tumors are next for the viral therapy! But if I'm not mistaken the first patient in the VICE episode had neuroglioblastoma, which is a solid brain tumor, so it's getting there!

Cat- how is your treatment going? How are you feeling?

Dx 7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2- Chemotherapy 7/31/2012 AC + T (Taxol) Surgery 1/11/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/28/2013 Xeloda (capecitabine) Dx 3/2013, IDC, Stage IIIA, ER-/PR-, HER2- Dx 9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2- Chemotherapy 1/4/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Mar 5, 2015 01:34PM CatWhispurrer wrote:

Tbryer -I concur that you should get a second opinion, and maybe a third until you find one with good rapore and that you feel comfortable.

My body scan showed no progression anywhere! Yeah! I finish my WBR wih 3 more treatments. I feel almost back to normal except all the steroids. Then, the following week, I will go back on Cisplatin while my MO looks into a new cutting-edge trial at Vanderbilt that is testing stimulated T-cells "eating up" the cancer cells. I have seen research on this and it looks very promising.


Tina / Chemo: Dose Dense 4 AC / 4 Taxol every two wks for 8 cycles / 33 external RADs after Chemo, 3/2014 Stage IV chest/lungs -taxol, 8/26/14 cisplatin, 2/24/15 brain mets-WBR radiation Dx 10/27/2011, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 12/6/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 3/14/2014, IDC, 1cm, Stage IV, ER-/PR-, HER2-
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Mar 5, 2015 01:41PM Adnerb wrote:

Wow, Cat, are the simulated T cells anything like the modified HIV cells that were shown on the VICE program we have been talking about?

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Mar 5, 2015 05:23PM CatWhispurrer wrote:

Brenda,

I don't know anything about the VICE program, so can't say.

Tina / Chemo: Dose Dense 4 AC / 4 Taxol every two wks for 8 cycles / 33 external RADs after Chemo, 3/2014 Stage IV chest/lungs -taxol, 8/26/14 cisplatin, 2/24/15 brain mets-WBR radiation Dx 10/27/2011, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 12/6/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Dx 3/14/2014, IDC, 1cm, Stage IV, ER-/PR-, HER2-
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Mar 6, 2015 03:12AM - edited Mar 6, 2015 03:13AM by keldel

Great news Cat!  I am so excited for you. I hear you about the steriods.  :(

TNBC,AR-,BRCA1/2- 01/2014Mets:Thyroid,NeckLymph Nodes,Lung.12/2014Mets:Brain Dx 1/6/2012, IDC, 6cm+, Stage IIIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/7/2012 Mastectomy: Right Chemotherapy 4/15/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/13/2012 Breast Hormonal Therapy 11/9/2012 Dx 2/7/2014, IDC, Stage IV, Grade 3, 1/1 nodes, ER-/PR-, HER2- Chemotherapy 2/13/2014 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 10/30/2014 Lymph nodes Radiation Therapy 12/15/2014 Brain

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