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Mar 4, 2015 04:44PM
Hi tbryer and welcome!
We understand you are scared. The met diagnosis is pretty scary, and some doctors who look at older research might have a less optimistic attitude. But the truth is that things have changed a lot in terms of treatment and survival of metastatic TNBC. I don't have lung mets, my mets were in the pleura (the membrane around the lungs) so there was pleural fluid accumulation around the lungs and heart. They drained it and then I started chemo which reduced fluid production to very little so I'm doing fine and continuing the chemo.
I assume your original chemo treatment (standard) was adriamycin, citoxan and then taxol. The next step is usually either xeloda or gemzar/carboplatin (I'm on the later). I was on xeloda before my mets diagnosis.
It's kind of weird that your doc said there is no experimental treatment for you and 'it's back to chemo'. Besides the fact that there is always an experimental treatment (unless you exhausted all the clinical trials out there) 'back to chemo' is in fact the standard approach. They will use first the drugs that they know will work in most patients, the approved and tried ones before the experimental ones.
So don't lose hope. You are just starting a journey, and it will have some ups and some downs, but we are here to encourage each other and to share information that could help.
Btw - if you don't like your MO - change him/her. Their job is not only to treat you, but also to guide and help you through this journey (psychologically). So if needed, find a better one with whom you communicate better and feel great talking with them!
7/2012, IDC, 4cm, Stage IIIA, 10/18 nodes, ER-/PR-, HER2-
7/31/2012 AC + T (Taxol)
1/11/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right
2/28/2013 Xeloda (capecitabine)
3/2013, IDC, Stage IIIA, ER-/PR-, HER2-
9/9/2014, IDC, Stage IV, mets, ER-/PR-, HER2-
1/4/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)