Mar 3, 2015 09:29PM Beachbum1023 wrote:

Welcome SpiritBlessing, look through all of the active topics and see what will interest you. You can read through them, and join in where you feel comfortable. I have met the most amazing ladies here. They are so helpful and kind. It is nice to offer experience to the newbies along the way. I hope you enjoy the threads as much as I do. Cheryl

Mar 4, 2015 04:22AM Tbryer wrote:

As i said before I am still trying to figure out how this message board works lol. As for the chemo medicines I have done so far i am not sure. I told doctor my last visit that I wanted a print out of everything but I forgot to re mention it before I left. So needless to say I walked out without them. But I noticed how you all have everything listed at that bottoms of your pages so I will be updating all mine here soon.

Mar 4, 2015 04:44PM lbgal wrote:

Hi tbryer and welcome!

We understand you are scared. The met diagnosis is pretty scary, and some doctors who look at older research might have a less optimistic attitude. But the truth is that things have changed a lot in terms of treatment and survival of metastatic TNBC. I don't have lung mets, my mets were in the pleura (the membrane around the lungs) so there was pleural fluid accumulation around the lungs and heart. They drained it and then I started chemo which reduced fluid production to very little so I'm doing fine and continuing the chemo.

I assume your original chemo treatment (standard) was adriamycin, citoxan and then taxol. The next step is usually either xeloda or gemzar/carboplatin (I'm on the later). I was on xeloda before my mets diagnosis.

It's kind of weird that your doc said there is no experimental treatment for you and 'it's back to chemo'. Besides the fact that there is always an experimental treatment (unless you exhausted all the clinical trials out there) 'back to chemo' is in fact the standard approach. They will use first the drugs that they know will work in most patients, the approved and tried ones before the experimental ones.

So don't lose hope. You are just starting a journey, and it will have some ups and some downs, but we are here to encourage each other and to share information that could help.

Btw - if you don't like your MO - change him/her. Their job is not only to treat you, but also to guide and help you through this journey (psychologically). So if needed, find a better one with whom you communicate better and feel great talking with them!

Mar 5, 2015 01:34PM CatWhispurrer wrote:

Tbryer -I concur that you should get a second opinion, and maybe a third until you find one with good rapore and that you feel comfortable.

My body scan showed no progression anywhere! Yeah! I finish my WBR wih 3 more treatments. I feel almost back to normal except all the steroids. Then, the following week, I will go back on Cisplatin while my MO looks into a new cutting-edge trial at Vanderbilt that is testing stimulated T-cells "eating up" the cancer cells. I have seen research on this and it looks very promising.

Mar 5, 2015 05:23PM CatWhispurrer wrote:

Brenda,

I don't know anything about the VICE program, so can't say.