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Jan 16, 2019 10:55AM
MM - I am so glad to hear your mouth sores are improving after this break from Afinitor. I hope you will be able to eat now and get some strength back. Thanks for the tip on the Biontene toothpaste. Hope your back pain passes and proves to be healing or nothing.
Hi Donna - Glad you are not having any se's from Afinitor. According to the prescribing info, Afinitor and Aromasin are supposed to have some kind of synergy when taken together, so I wouldn't be surprised if this combo makes for worse se's. I am surprised to learn some mo's are using Afinitor with other drugs. I am all for whatever works and still lets us have a life! Hope you continue to do well on your combo.
Nancy - Sounds like you have had a miserable experience with this combo. Glad to hear you are feeling good after stopping the Afinitor and hope your new mo has some new ideas for you.
Grannax - How is your fatigue? I was going strong for about 3 days and then turned into a total couch potato! I hate feeling like that, I'm used to being active. Did your mo order labs for you yet? If not, be sure to talk with him/her, there are a bunch of things that should be monitored while on this combo.
As for me I am doing okay after only 2 weeks. No mouth sores, definitely some fatigue and back, muscle aches. Labs show liver enzymes have gone through the roof since starting Afinitor, but were a bit better this week. Eosinophils have also been very high. I will see my mo next week.
Best wishes for healing to all!
"What do you know, and what do you just believe?" Linda Hogan "Power"
7/1/2014 Lumpectomy: Left
8/1/2014, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 4/7 nodes, mets, ER+/PR+, HER2-
8/4/2014 Arimidex (anastrozole)
4/30/2015 Faslodex (fulvestrant)
8/17/2015 Ibrance (palbociclib)
11/20/2018, IDC, 1cm, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH)
12/4/2018 Aromasin (exemestane)
1/1/2019 Afinitor (everolimus)
7/16/2019 Faslodex (fulvestrant)