A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.
MamaPeg2
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Aug 16, 2013 04:52PM
MamaPeg2
wrote:
I have liver mets. On Xeloda since June. Had my 1st CT scan today to get an update. From what I have read about Xeloda, sometimes there isn't any change at first but later, after a few more rounds, tumors shrink or are gone. I have had lots of side effects, so not looking for improvement yet. Actually, never had any liver pain.
Dx
9/11/2012, IDC, 5cm, Stage IV, Grade 2, 1/30 nodes, mets, ER-/PR-, HER2-
Targeted Therapy
11/29/2012 Herceptin (trastuzumab)
Surgery
2/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right
Radiation Therapy
4/15/2013 Breast, Lymph nodes
Radiation Therapy
1/29/2014 Bone, Brain
MaryGLA
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Aug 16, 2013 05:09PM
MaryGLA
wrote:
I was diagnosed with liver mets two years and three months ago, not that I'm counting. They have grown and shrunk with various treatments, but I have only had pain once for about a week when abraxane/Avastin stopped working and we switched to Xeloda. I have been on gemzar/carboplatin for the past year and there is currently no evidence of disease in my liver.
Dilaudid took care of the pain while we waited for the Xeloda to kick in. You should not have to suffer if you have proper pain management. That's what my doctor tells me, anyway. I am 5'8" and weigh 120. Not sure what size has to do with pain. It's not like we have giant-sized organs in petite bodies!
Good luck! I am positive most of the time, but sometimes I get a little down. Then I just cry it out on my husband's shoulder and try to move past it. Hang in there! What is your next chemo going to be?
Diagnosed with Stage I IDC in October 2006. DMX, chemo, hysterectomy. April 2011- diagnosed with mets to bones, liver, lungs.
Dx
10/11/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
Dx
4/24/2011, Stage IV, ER+/PR-, HER2-
Trish03
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Aug 16, 2013 05:13PM
Trish03
wrote:
Blonde, thanks for starting this thread. I was dx with liver mets the end of May, and I would like to hear how others are doing. I have my first scans Monday after 3 rounds of perjeta/herceptin/taxotere. Liver enzymes have dropped to normal range, so I hope this results in good scans. I had a lot of pain at first, but it went away shortly after starting chemo. You're right, liver mets are very scary. I hope others will share their stories.
Dx 09/03, ILC, Stage IIIa, 7 cm, 4/18+ nodes, ER+/PR+, Her2-, 11/05 BL DIEP, 5/13 Stage IV, dx mets to liver
Dx
9/15/2003, ILC, 6cm+, Stage IIIA, 4/18 nodes, ER+/PR+, HER2-
Surgery
10/1/2003 Mastectomy: Right
Chemotherapy
10/15/2003 AC + T (Taxol)
Hormonal Therapy
4/15/2004 Arimidex (anastrozole)
Radiation Therapy
4/15/2004 Breast
Surgery
11/17/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Dx
5/27/2013, ILC, 6cm+, Stage IV, ER+/PR+, HER2+
Targeted Therapy
6/24/2013 Herceptin (trastuzumab)
Targeted Therapy
6/24/2013 Perjeta (pertuzumab)
Chemotherapy
6/24/2013 Taxotere (docetaxel)
OBXK
Columbia, NC
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Aug 16, 2013 06:52PM
OBXK
wrote:
I was dx about 10 months ago. No pain, and no luck with any drugs, I am triple negative.
I just found out that I have the antigen needed for a trial - the drug is xtandi. It is used to treat prostate cancer.
I am very upbeat. I am also very aware that my days are numbered. So I just enjoy them as they come.
Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
gonegirl
Washington, DC
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Aug 16, 2013 07:29PM
gonegirl
wrote:
Liver mets from start. Liver covered with spots. Taxol with Herceptin for 5 months. Now just Herceptin. My liver did hurt. I think it depends on how swollen liver gets, not size of body. My liver would hurt after each Taxol. I took that as sign that chemo was worked. My liver enzymes and tumor markers dropped with each treatment. I've talked to 4 women who are more than 10 years out from liver mets.
uppitycancerpatient.blogspot.com
Dx
1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+
Targeted Therapy
2/10/2012 Herceptin (trastuzumab)
Chemotherapy
2/10/2012 Taxol (paclitaxel)
Surgery
11/6/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
Targeted Therapy
12/8/2013 Kadcyla (T-DM1, ado-trastuzumab)
Radiation Therapy
11/7/2015 External: Bone
nancyh
Seattle
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Aug 16, 2013 07:45PM
nancyh
wrote:
I'm nearly 4 years out with liver mets, still going strong. I've been through several hormonal therapies and half a dozen chemos or so, but my onc says we still have lots of tools in the arsenal. Hang in there!
Stage 4 in 2009, mets to liver, lungs, bones, and brain.
Dx
8/12/2002, IDC, 1cm, Stage IIB, 3/12 nodes, ER+/PR+, HER2-
Chemotherapy
10/1/2002 AC
Chemotherapy
1/1/2003 Taxol (paclitaxel)
Hormonal Therapy
5/1/2003
Dx
4/2/2007, IDC, 1cm, Stage II, ER+/PR+, HER2-
Chemotherapy
6/1/2007 CMF
Dx
9/1/2009, IDC, Stage IV, metastasized to brain/bone/liver/lungs, mets, ER+/PR+, HER2-
Targeted Therapy
9/1/2009 Avastin (bevacizumab)
Chemotherapy
9/1/2009 Abraxane (albumin-bound or nab-paclitaxel)
Hormonal Therapy
6/1/2010 Femara (letrozole)
Chemotherapy
9/1/2011 Xeloda (capecitabine)
Hormonal Therapy
1/1/2012 Faslodex (fulvestrant)
Chemotherapy
6/1/2012 Navelbine (vinorelbine)
Chemotherapy
5/1/2013 Gemzar (gemcitabine)
Hormonal Therapy
6/1/2013 Aromasin (exemestane)
Targeted Therapy
8/1/2013 Afinitor (everolimus)
Chemotherapy
10/28/2013 Halaven (eribulin)
Chemotherapy
11/12/2014 Taxotere (docetaxel)
Chemotherapy
10/1/2015 Adriamycin (doxorubicin)
Targeted Therapy
Ibrance (palbociclib)
MamaPeg2
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Aug 16, 2013 07:49PM
MamaPeg2
wrote:
MaryGLA - why did you go off the Xeloda?
Two advantages of Xeloda are - pill form and my hair is growing.
Dx
9/11/2012, IDC, 5cm, Stage IV, Grade 2, 1/30 nodes, mets, ER-/PR-, HER2-
Targeted Therapy
11/29/2012 Herceptin (trastuzumab)
Surgery
2/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right
Radiation Therapy
4/15/2013 Breast, Lymph nodes
Radiation Therapy
1/29/2014 Bone, Brain
OBXK
Columbia, NC
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Aug 16, 2013 08:11PM
OBXK
wrote:
Mama Peg - I had no real side effects from Xeloda. It didn't do a thing for me. Hope it is working for you!!!!
Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
Mamita49
Montréal
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Aug 17, 2013 05:42AM
Mamita49
wrote:
I started back again with liver mets after almost 5 years in Dec. 2012.
My Onc gave me the choice of changing from Tamox to Femera only, which would take a long time to work, or take the fast track and take Chemo ( Navalbine) to get rid of the buggers fast.
He recom. Navalbine, and my last scan in July showed that I have no tumors in my liver, all resolved. He wanted me to get " maxim. results" and said that I would take the Navalbine for another 3 months, just to be sure. I do have no SE at all, and I must say, taking the Navalbine is like eating blueberries. ( My tumor markers are presently at 15. 05) If this is still an indication that cells are in the blood system ? Maybe !!! After my next scan in 3 months, I will be on Femera. And than.......Who knows....
Never felt a thing, besides the pain in the bottom going to the hospital, I feel great, just like the last 5 years.
small little liver buggers
Dx
12/15/2008, IDC, 3cm, Grade 3, 2/7 nodes, ER+/PR+, HER2-
Dx
12/2012, IDC, Stage IV, Grade 3, 0/0 nodes, mets, ER+/PR-, HER2-
blondie1
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Aug 17, 2013 06:40AM
blondie1
wrote:
Thanks for the feedback. My onc started me on xeloda but because of liver enlargement causing me problems wants me on iv chemo to knock it out quicker then at some point go back on xeloda. It got enlarged while I was off chemo for a month doing radiation for back/leg pain. The enlargement is what causes the pain and bloating as it is pressing on other organs like the stomach. Even small meals can cause the bloating and pressure.
Wishing you all the best with your journeys.
cmhartley
Magnolia, TX
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Aug 17, 2013 07:39AM
cmhartley
wrote:
Hang in there! I have diffuse liver mets and as a result grade 4, early stage cirrhosis and right now happy to say doing great!!! I've been on taxol, abraxane, Xeloda and now Halaven. So far, Halaven seems to be the magic bullet for me for my bone marrow mets as well as those liver mets. I've been going at it for almost 4 yrs with a good quality of life.
Hugs to all,
Katie
Original Diagnosis: 3/08/2005 Stage IIb IDC, ER+, PR-, HER2-, 3/11 nodes positive; Recurrence 10/22/2009 extensive bone mets; 11/20/2010 diffuse liver mets; 1/2013: grade 4 liver cirrhosis, portal hypertension and esophageal varicies
Chemotherapy
4/5/2005 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Surgery
10/4/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left
Hormonal Therapy
9/23/2009
Dx
10/22/2009, IDC, 3cm, Stage IV, Grade 2, 3/11 nodes, mets, ER+/PR-, HER2-
Hormonal Therapy
1/15/2010 Femara (letrozole)
Hormonal Therapy
3/1/2010 Aromasin (exemestane)
Targeted Therapy
5/15/2010 Avastin (bevacizumab)
Chemotherapy
5/20/2010 Taxol (paclitaxel)
Chemotherapy
3/22/2011 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
7/1/2012 Xeloda (capecitabine)
Chemotherapy
2/13/2013 Halaven (eribulin)
Chemotherapy
12/6/2013 Gemzar (gemcitabine)
Radiation Therapy
1/2/2014 Brain
NickyJ
Bordeaux , France
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Aug 17, 2013 07:49AM
NickyJ
wrote:
Like Gritgirl, I had liver mets from the outset and did taxol /herceptin, now just herceptin. After taxol a PET scan showed my liver was clear and I am currently NED. I never had any pain from liver mets. Things can get better, you just need to find what works for you!
Nicky
Nicky, stage IV from the get go, mets to liver, sternum, spine, left shoulder and left hip
Dx
8/9/2012, 4cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
Targeted Therapy
8/29/2012 Herceptin (trastuzumab)
Chemotherapy
8/29/2012 Taxol (paclitaxel)
Radiation Therapy
12/28/2012 Bone
Hormonal Therapy
2/25/2013
Hormonal Therapy
1/28/2014 Faslodex (fulvestrant)
MaryGLA
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Aug 17, 2013 08:49AM
MaryGLA
wrote:
Mamapeg2- I progressed after 7 months on Xeloda. I switched to aromisin/affinitor for two months and had major progression- near liver failure. And then I started gem/carb which as been working for a year.
Diagnosed with Stage I IDC in October 2006. DMX, chemo, hysterectomy. April 2011- diagnosed with mets to bones, liver, lungs.
Dx
10/11/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
Dx
4/24/2011, Stage IV, ER+/PR-, HER2-
curveball
Western Washington State
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Aug 17, 2013 04:55PM
curveball
wrote:
I was dx with liver mets in February, but I suspect they have been there all along. There is one big (4 cm) one medium (2.5 cm) three small (<1 cm) and lots of speckles (too small to measure, too many to count) They weren't found before I started chemo with CMF and don't show on the only scan I had before that time, so I don't know how or if the CMF affected them. After chemo I had anastrozole for several months but had slight progression between Feb and May. Since May I have been taking a different AI, plus another medication (see signature), and my most recent scan the middle of last month showed no progression since May. My onc told me at my May appointment to get scan results that they may even shrink with continued treatment. I also have suspicious lung speckles, but they are too small to biopsy, so it isn't known for sure whether they are mets or not.
I have never had pain or symptoms from my liver mets.
Oncotype score 28--Age 56 at initial DX--mets found at 57 (but I suspect they were there from the start)--mixed IDC & carcenoid (neuroendocrine) tumor. Octreotide (a carcenoid treatment) June-Sept 2013, failed.
Dx
3/23/2012, IDC, 1cm, Stage IB, Grade 2, 1/13 nodes, ER+/PR+, HER2-
Chemotherapy
7/18/2012 CMF
Hormonal Therapy
1/10/2013 Arimidex (anastrozole)
Dx
2/26/2013, IDC, 1cm, Stage IV, Grade 2, 1/13 nodes, mets, ER+/PR+, HER2-
Hormonal Therapy
6/3/2013 Aromasin (exemestane)
Chemotherapy
10/30/2013 Taxol (paclitaxel)
Chemotherapy
1/22/2014 Doxil (doxorubicin)
Hormonal Therapy
4/7/2014
KarenNY
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Aug 17, 2013 06:06PM
KarenNY
wrote:
I was encouraged by gritgirl's comment about 4 women living with liver mets 10 years already. I was diagnosed in 2006 with stage IIA then rediagnosed in 2012 with stage IV when it went to my liver. I was dealing with nausea but no other symptoms. After having my liver biopsies I developed a fever which lasted a few weeks. After my first round of Taxol, my fever and nausea disappeared. Taxol worked well for me, then I tried Faslodex. That didn't work, so I'm now taking abraxane which is working but has totally killed my taste buds/appetite. I never had any pain in my liver until I had the biopsies.
raro
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Aug 18, 2013 01:18PM
raro
wrote:
I am so grateful that you started this thread, Blondie...I've had bone mets for 4 years and now liver mets. I've had no pain, but a little nausea. I have 2 tumors, one 3 cm and one 1.8 cm, and fortunately that seems to be it.
I'm intrigued by those of you who say their drs. told them that chemo works faster than hormonals. I've been on pretty much every hormonal and done okay on them, but have always had progression with chemo, which is why I'm nervous about starting it again. I've done xeloda, taxotere, abraxane, and the orginal TAC chemo, with lousy results. My onc wants to start me on Gemzar/carbo, unless the liver biopsy turns out to be positive HER-2. He said it changes sometimes, and if it does there are a bunch more options.
I am very heartened by hearing of those of you who have gotten to NED with chemo. It gives me hope!
Latte
Israel
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Aug 18, 2013 01:46PM
Latte
wrote:
Raro - our onc didn't say that chemo works better than hormonals, but rather that you can tell more quickly whether it is going to work or not. Most antihormonals take approx 2-3 months to kick in, and faslodex takes even longer. Just because you progressed on most chemos doesn't mean this isn't correct - the question is how quickly your onc realized that you progressed and changed your tx accordingly.
In my case, tamox didn't work for me, and my onc put me on femara. After one month, my markers were still going up and I had progression in a scan, and my onc said it didn't mean it wasn't working but rather that I needed to give it another month or two and then scan again to see if it was working. We decided together not to wait, because I felt like I was wasting time, and to switch to chemo instead, where I saw improved results after one cycle already. I can go back to femara etc in future when my mets are quieter and the slower start doesn't matter.
I hope this clarifies it for you.
30 Dec 2012: It's back! Stage IV, bone mets to spine, hip, femur, rads, Zometa, Letrozole. May 2013: further spread to ribs, skull, iliac, plus suspicious spots in lung and liver. Clinical trial with taxol and carbo plus velaparib/placebo.
Dx
5/3/2010, IDC, 2cm, Stage IIIC, 1/2 nodes, ER+/PR+, HER2-
Chemotherapy
6/3/2010 AC + T (Taxol)
Surgery
10/27/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel
Radiation Therapy
12/11/2010 Breast, Lymph nodes
Surgery
3/15/2011 Prophylactic ovary removal
Hormonal Therapy
3/17/2011
Dx
12/30/2012, IDC, Stage IV, mets, ER+/PR-, HER2-
Radiation Therapy
3/2/2013 Bone
Hormonal Therapy
3/10/2013 Femara (letrozole)
Chemotherapy
5/13/2013 Carboplatin (Paraplatin), Taxol (paclitaxel)
lilsiskathy…
Wichita Falls, TX, USA
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Oct 21, 2013
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Aug 18, 2013 06:20PM
lilsiskathy
wrote:
I'm new to this site, but I was on zeloda. I couldn't take the side effects. I got really sick and could hardly walk, and it didn't shrink my tumors. However I know everyone is different, I have read a lot of post here, and other sites, where it worked wonders. I have had liver pain from the beginning. I've had bc with liver mets for almost 5 yrs and have not been in remmission yet. I am currently on afinitor. I'm just getting tired of nothing working for me. That doesn't mean it won't for you, even the side effects are different for everyone. Damn cancer! Got to hand it to it, it is smart. Well good luck to you.
Dx
3/2009, DCIS, 3cm, Stage IV, HER2+
brandall
Arvada, CO
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Aug 18, 2013 06:27PM
brandall
wrote:
I was diagnosed as stage IV with liver mets pretty much out of the gate last July. They resolved with chemo, which was 8 weeks dose dense ACT (the T being Taxol). I was scanned after the AC cycles and the mets had shrunk a little, but not a lot. After the Taxol they weren't there anymore, that was in December. I've been NED since then, but just in the past few weeks I've had a lot of hip pain, so my PET was moved from September to next week. My liver mets never hurt at all. I've got my fingers crossed that NED didn't leave me ;)
Brandi - Mother of 2 - Daughter age 6, Son age 3; Liver mets
Dx
7/24/2012, IDC, Stage IV, Grade 3, 7/17 nodes, mets, ER+/PR-, HER2-
Surgery
8/1/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left
Chemotherapy
9/10/2012 AC + T (Taxol)
Radiation Therapy
1/20/2013 Breast, Lymph nodes
Hormonal Therapy
2/28/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
3/19/2013 Prophylactic ovary removal
Hormonal Therapy
2/20/2014 Femara (letrozole)
Hormonal Therapy
5/30/2014 Faslodex (fulvestrant)
Targeted Therapy
4/8/2015 Afinitor (everolimus)
Hormonal Therapy
Aromasin (exemestane)
brandall
Arvada, CO
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Aug 18, 2013 06:28PM
brandall
wrote:
Oh and lilsiskathy - 5 years with liver mets gives me hope! Thanks for posting :)
Brandi - Mother of 2 - Daughter age 6, Son age 3; Liver mets
Dx
7/24/2012, IDC, Stage IV, Grade 3, 7/17 nodes, mets, ER+/PR-, HER2-
Surgery
8/1/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left
Chemotherapy
9/10/2012 AC + T (Taxol)
Radiation Therapy
1/20/2013 Breast, Lymph nodes
Hormonal Therapy
2/28/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
3/19/2013 Prophylactic ovary removal
Hormonal Therapy
2/20/2014 Femara (letrozole)
Hormonal Therapy
5/30/2014 Faslodex (fulvestrant)
Targeted Therapy
4/8/2015 Afinitor (everolimus)
Hormonal Therapy
Aromasin (exemestane)
blondie1
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Aug 19, 2013 09:08AM
blondie1
wrote:
Thanks for the additional posts. I keep searching for good news hoping it is out there for me. My onc is looking for a chemo that will get me stable quickly and then going back to something that can be easily maintained. There always seems to be a bump in the road over the last 2 years. I wind up having to do radiation for a bone met causing me severe pain and then by the time I am done with the radiation the cancer starts progressing in other parts of my body. It really sucks to feel I can't get it under control now after having it under control for so many years. Prayers to all of you fighting this battle.
MamaPeg2
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Aug 19, 2013 06:01PM
MamaPeg2
wrote:
GREAT NEWS! I had my 1st CT scan today after 3 rounds of Xeloda.
1 small lesion stable
1 small one GONE
the larger one - shrank over 50%
I was shocked! All the side effects were worth it! So far anyway!
Dx
9/11/2012, IDC, 5cm, Stage IV, Grade 2, 1/30 nodes, mets, ER-/PR-, HER2-
Targeted Therapy
11/29/2012 Herceptin (trastuzumab)
Surgery
2/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right
Radiation Therapy
4/15/2013 Breast, Lymph nodes
Radiation Therapy
1/29/2014 Bone, Brain
Anko66
Japan
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Aug 19, 2013 06:11PM
Anko66
wrote:
I was diagnosed with two small liver mets in Dec 2011, stage IV from the start. Did about 20 weeks of Taxol and Herceptin which got me to NED (or so we thought). Switched to Tamox and Herceptin but by Dec 2012, scans showed 5 mets in my liver. I was re-biopsed and the cancer had flipped to triple negative. I have now been on Taxol since January this year and I am stable - liver mets down to about three although not necessarily shrinkage in some. I also started Avastin in June so I'm hoping for good news in my next scans in September.
As for liver pain, I have occasionally felt pain after chemo - again I took this as a sign it was working. The pain was specific to the biopsy site.
Dx
12/16/2011, IDC, 2cm, Stage IV, Grade 3, mets, PR+, HER2+
gonegirl
Washington, DC
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Aug 19, 2013 06:16PM
gonegirl
wrote:
Mamapeg. That is wonderful
uppitycancerpatient.blogspot.com
Dx
1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+
Targeted Therapy
2/10/2012 Herceptin (trastuzumab)
Chemotherapy
2/10/2012 Taxol (paclitaxel)
Surgery
11/6/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
Targeted Therapy
12/8/2013 Kadcyla (T-DM1, ado-trastuzumab)
Radiation Therapy
11/7/2015 External: Bone
OBXK
Columbia, NC
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Aug 19, 2013 07:18PM
OBXK
wrote:
MamaPeg - wonderful news!
Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
Trish03
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Aug 21, 2013 02:10PM
Trish03
wrote:
Wow! It's wonderful hearing from so many ladies who have survived 4-5 years with liver mets. That's really encouraging for someone new to this journey. And 4 ladies who have survived 10 years is amazing! It's also great to hear of so many different treatments that have postive results. So far, my treatment is working, but I'm happy to know that if it stops, there are many more options.
I had my first scans earlier this week, and after 3 cycles of Perjeta/Herceptin/Taxotere, my tumors have shrunk 30-40%. I was thrilled to learn that it's working!
All the best to everyone, Trish
Dx 09/03, ILC, Stage IIIa, 7 cm, 4/18+ nodes, ER+/PR+, Her2-, 11/05 BL DIEP, 5/13 Stage IV, dx mets to liver
Dx
9/15/2003, ILC, 6cm+, Stage IIIA, 4/18 nodes, ER+/PR+, HER2-
Surgery
10/1/2003 Mastectomy: Right
Chemotherapy
10/15/2003 AC + T (Taxol)
Hormonal Therapy
4/15/2004 Arimidex (anastrozole)
Radiation Therapy
4/15/2004 Breast
Surgery
11/17/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Dx
5/27/2013, ILC, 6cm+, Stage IV, ER+/PR+, HER2+
Targeted Therapy
6/24/2013 Herceptin (trastuzumab)
Targeted Therapy
6/24/2013 Perjeta (pertuzumab)
Chemotherapy
6/24/2013 Taxotere (docetaxel)
OBXK
Columbia, NC
Joined:
Nov 2010
Posts:
790
Latest activity:
Dec 13, 2013
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Aug 21, 2013 06:03PM
OBXK
wrote:
Scans tomorrow :o Sure hope I don't poop my pants!
Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
gonegirl
Washington, DC
Joined:
Jan 2012
Posts:
1,826
Latest activity:
Oct 31, 2019
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Aug 21, 2013 08:09PM
gonegirl
wrote:
Karen. Prayers coming your way
uppitycancerpatient.blogspot.com
Dx
1/3/2012, IDC, 4cm, Stage IV, Grade 2, mets, ER-/PR-, HER2+
Targeted Therapy
2/10/2012 Herceptin (trastuzumab)
Chemotherapy
2/10/2012 Taxol (paclitaxel)
Surgery
11/6/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
Targeted Therapy
12/8/2013 Kadcyla (T-DM1, ado-trastuzumab)
Radiation Therapy
11/7/2015 External: Bone
chanah
Manchester, CT, US
Joined:
Dec 2012
Posts:
363
Latest activity:
Nov 17, 2019
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Aug 22, 2013 08:09PM
chanah
wrote:
OBXK, I hope your tets went smoothly today. My thoughts are with you during the wait.
lung and liver spots grew during initial treatment
Chemotherapy
1/21/2012 AC
Dx
11/21/2012, IDC, 1cm, Stage IIA, Grade 3, 2/15 nodes, ER+/PR-, HER2+
Surgery
12/10/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right
Targeted Therapy
3/17/2013 Herceptin (trastuzumab)
Chemotherapy
3/17/2013 Taxol (paclitaxel)
Dx
4/8/2013, IDC, Left, 1cm, Stage IIIB, Grade 3, 2/17 nodes, ER+/PR+, HER2+ (FISH)
Chemotherapy
4/14/2013 Abraxane (albumin-bound or nab-paclitaxel)
Radiation Therapy
7/7/2013 Breast, Lymph nodes
Dx
7/11/2013, IDC, Stage IV, mets, ER+/PR-, HER2+
Hormonal Therapy
7/29/2013 Femara (letrozole)
OBXK
Columbia, NC
Joined:
Nov 2010
Posts:
790
Latest activity:
Dec 13, 2013
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Aug 23, 2013 05:48PM
OBXK
wrote:
Thanks!
Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda