Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 07:02PM

Posted on: Aug 16, 2013 07:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Aug 16, 2013 07:52PM MamaPeg2 wrote:

I have liver mets. On Xeloda since June. Had my 1st CT scan today to get an update. From what I have read about Xeloda, sometimes there isn't any change at first but later, after a few more rounds, tumors shrink or are gone. I have had lots of side effects, so not looking for improvement yet. Actually, never had any liver pain.

Dx 9/11/2012, IDC, 5cm, Stage IV, Grade 2, 1/30 nodes, mets, ER-/PR-, HER2- Targeted Therapy 11/30/2012 Herceptin (trastuzumab) Surgery 2/28/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 4/16/2013 Breast, Lymph nodes Radiation Therapy 1/30/2014 Bone, Brain
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Aug 16, 2013 08:09PM MaryGLA wrote:

I was diagnosed with liver mets two years and three months ago, not that I'm counting. They have grown and shrunk with various treatments, but I have only had pain once for about a week when abraxane/Avastin stopped working and we switched to Xeloda. I have been on gemzar/carboplatin for the past year and there is currently no evidence of disease in my liver.

Dilaudid took care of the pain while we waited for the Xeloda to kick in. You should not have to suffer if you have proper pain management. That's what my doctor tells me, anyway. I am 5'8" and weigh 120. Not sure what size has to do with pain. It's not like we have giant-sized organs in petite bodies!

Good luck! I am positive most of the time, but sometimes I get a little down. Then I just cry it out on my husband's shoulder and try to move past it. Hang in there! What is your next chemo going to be?

Diagnosed with Stage I IDC in October 2006. DMX, chemo, hysterectomy. April 2011- diagnosed with mets to bones, liver, lungs. Dx 10/11/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Dx 4/24/2011, Stage IV, ER+/PR-, HER2-
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Aug 16, 2013 08:13PM Trish03 wrote:

Blonde, thanks for starting this thread. I was dx with liver mets the end of May, and I would like to hear how others are doing. I have my first scans Monday after 3 rounds of perjeta/herceptin/taxotere. Liver enzymes have dropped to normal range, so I hope this results in good scans. I had a lot of pain at first, but it went away shortly after starting chemo. You're right, liver mets are very scary. I hope others will share their stories.

Dx 09/03, ILC, Stage IIIa, 7 cm, 4/18+ nodes, ER+/PR+, Her2-, 11/05 BL DIEP, 5/13 Stage IV, dx mets to liver Dx 9/15/2003, ILC, 6cm+, Stage IIIA, 4/18 nodes, ER+/PR+, HER2- Surgery 10/1/2003 Mastectomy: Right Chemotherapy 10/15/2003 AC + T (Taxol) Hormonal Therapy 4/15/2004 Arimidex (anastrozole) Radiation Therapy 4/15/2004 Breast Surgery 11/17/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 5/27/2013, ILC, 6cm+, Stage IV, ER+/PR+, HER2+ Targeted Therapy 6/24/2013 Herceptin (trastuzumab) Targeted Therapy 6/24/2013 Perjeta (pertuzumab) Chemotherapy 6/24/2013 Taxotere (docetaxel)
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Aug 16, 2013 09:52PM OBXK wrote:

I was dx about 10 months ago. No pain, and no luck with any drugs, I am triple negative.
I just found out that I have the antigen needed for a trial - the drug is xtandi. It is used to treat prostate cancer.
I am very upbeat. I am also very aware that my days are numbered. So I just enjoy them as they come.

Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
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Aug 16, 2013 10:29PM gonegirl wrote:

Liver mets from start. Liver covered with spots. Taxol with Herceptin for 5 months. Now just Herceptin. My liver did hurt. I think it depends on how swollen liver gets, not size of body. My liver would hurt after each Taxol. I took that as sign that chemo was worked. My liver enzymes and tumor markers dropped with each treatment. I've talked to 4 women who are more than 10 years out from liver mets.

Targeted Therapy 2/10/2012 Herceptin (trastuzumab) Chemotherapy 2/10/2012 Taxol (paclitaxel) Surgery 11/1/2012 Mastectomy (Left): Simple; Mastectomy (Right): Simple; Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 11/6/2012 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left); Reconstruction (Right) Targeted Therapy 12/8/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/7/2015 External Local Metastases 11/7/2015 Radiation therapy: Bone Targeted Therapy 9/12/2018 Herceptin (trastuzumab) Targeted Therapy 9/12/2018 Perjeta (pertuzumab) Radiation Therapy 3/24/2022 Other part
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Aug 16, 2013 10:45PM nancyh wrote:

I'm nearly 4 years out with liver mets, still going strong.  I've been through several hormonal therapies and half a dozen chemos or so, but my onc says we still have lots of tools in the arsenal.  Hang in there!

Stage 4 in 2009, mets to liver, lungs, bones, and brain. Dx 8/12/2002, IDC, 1cm, Stage IIB, 3/12 nodes, ER+/PR+, HER2- Chemotherapy 10/1/2002 AC Chemotherapy 1/1/2003 Taxol (paclitaxel) Hormonal Therapy 5/1/2003 Dx 4/2/2007, IDC, 1cm, Stage II, ER+/PR+, HER2- Chemotherapy 6/1/2007 CMF Dx 9/1/2009, IDC, Stage IV, metastasized to brain/bone/liver/lungs, mets, ER+/PR+, HER2- Targeted Therapy 9/1/2009 Avastin (bevacizumab) Chemotherapy 9/1/2009 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy 6/1/2010 Femara (letrozole) Chemotherapy 9/1/2011 Xeloda (capecitabine) Hormonal Therapy 1/1/2012 Faslodex (fulvestrant) Chemotherapy 6/1/2012 Navelbine (vinorelbine) Chemotherapy 5/1/2013 Gemzar (gemcitabine) Hormonal Therapy 6/1/2013 Aromasin (exemestane) Targeted Therapy 8/1/2013 Afinitor (everolimus) Chemotherapy 10/28/2013 Halaven (eribulin) Chemotherapy 11/12/2014 Taxotere (docetaxel) Chemotherapy 10/1/2015 Adriamycin (doxorubicin) Targeted Therapy Ibrance (palbociclib)
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Aug 16, 2013 10:49PM MamaPeg2 wrote:

MaryGLA - why did you go off the Xeloda?

Two advantages of Xeloda are - pill form and my hair is growing.

Dx 9/11/2012, IDC, 5cm, Stage IV, Grade 2, 1/30 nodes, mets, ER-/PR-, HER2- Targeted Therapy 11/30/2012 Herceptin (trastuzumab) Surgery 2/28/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 4/16/2013 Breast, Lymph nodes Radiation Therapy 1/30/2014 Bone, Brain
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Aug 16, 2013 11:11PM OBXK wrote:

Mama Peg - I had no real side effects from Xeloda. It didn't do a thing for me. Hope it is working for you!!!!

Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
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Aug 17, 2013 08:42AM Mamita49 wrote:

I started back again with liver mets after almost 5 years in Dec. 2012.

My Onc gave me the choice of changing from Tamox to Femera only, which would take a long time to work, or take the fast track and take Chemo ( Navalbine) to get rid of the buggers fast.

He recom. Navalbine, and my last scan in July showed that I have no tumors in my liver, all resolved. He wanted me to get " maxim. results" and said that I would take the Navalbine for another 3 months, just to be sure. I do have no SE at all, and I must say, taking the Navalbine is like eating blueberries.  ( My tumor markers are presently at 15. 05) If this is still an indication that cells are in the blood system ? Maybe !!! After my next scan in 3 months, I will be on Femera. And than.......Who knows....

Never felt a thing, besides the pain in the bottom going to the hospital, I feel great, just like the last 5 years.

small little liver buggers Dx 12/15/2008, IDC, 3cm, Grade 3, 2/7 nodes, ER+/PR+, HER2- Dx 12/2012, IDC, Stage IV, Grade 3, 0/0 nodes, mets, ER+/PR-, HER2-
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Aug 17, 2013 09:40AM blondie1 wrote:

Thanks for the feedback. My onc started me on xeloda but because of liver enlargement causing me problems wants me on iv chemo to knock it out quicker then at some point go back on xeloda. It got enlarged while I was off chemo for a month doing radiation for back/leg pain. The enlargement is what causes the pain and bloating as it is pressing on other organs like the stomach. Even small meals can cause the bloating and pressure.

Wishing you all the best with your journeys.

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