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Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

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Posted on: Aug 16, 2013 04:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Nov 13, 2019 11:55AM candy-678 wrote:

Thanks Shetland for your words to me. I do plan on talking with my MO on the 25th appt---" So things look good on PET. Are we still going to scan with CT every 3 months?" " I don't want to get too confident". Yes I will convey my fears to her.

Gumdoctor- Lookin good. Wish I could knit. But I am not good with "crafty" things. You are in my area of the country----Yes it is really cold for this time of November. Broke a century old record yesterday for the temp.

Anotherone- 1 and only PET done at diagnosis--Sept 2017. This was the 2nd PET. Usually do CT's. Insurance has denied PET's until this one---since change on last CT.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo, then switched to hormone therapy/targeted therapy. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 13, 2019 12:48PM - edited Nov 13, 2019 12:49PM by S3K5

Bevjen, your announcemnt:

"Does everyone know about the webinar tomorrow night sponsored by Living Beyond Breast Cancer? It's at 6 p.m. EST -- if you go to their website you can still sign up. It's about metastatic cancer treatment choices and side effects, and there is some kind of a participatory Q & A session."

Is this today at 6 pm EST? Thanks for letting us know. I will sign up, if it is not too late.

S3K5 Chemotherapy 4/14/2008 AC + T (Taxol) Dx 4/19/2013, IDC, 3cm, Stage IV, metastasized to bone/liver, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 9/5/2016 Faslodex (fulvestrant) Chemotherapy 9/30/2016 Other
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Nov 13, 2019 12:51PM BevJen wrote:

S3K5,

Yes, it's tonight at 6 pm EST.


Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 8/1/2019 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Chemotherapy TAC Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap
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Nov 13, 2019 09:48PM leftfootforward wrote:

thanks Shetland-

Your thoughts must have worked. It looks like I might be accepted into a clinical trial for the drug I was denied by insurance to try and treat my brain Mets. I am very hopeful.

Thanks everyone for your thoughts and well wishes.

Dx 12/13/2010, IDC, 3cm, Stage IIIA, Grade 2, 1/16 nodes, ER-/PR-, HER2+ Dx 12/4/2012, IDC, Stage IV, 0/0 nodes, ER-/PR-, HER2+
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Nov 14, 2019 10:06AM Jaylea wrote:

Leftfoot, that's amazing news, congrats! I'm hoping for great things. Keep us posted on your progress.

Gumdoctor, love the wig and cap look, bonus for winter warmth!

Dx 10/2006, IDC, Left, Stage IIB, ER+, HER2- Dx 5/2017, IDC, Stage IV, metastasized to bone/lungs, ER+, HER2- Hormonal Therapy 6/20/2017 Femara (letrozole) Targeted Therapy 7/26/2017 Ibrance (palbociclib) Dx 2/2019, IDC, Right, Stage IV, metastasized to liver/other Chemotherapy 3/22/2019 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 6/10/2019 Halaven (eribulin)
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Nov 14, 2019 10:07AM S3K5 wrote:

leftfootforward , that's great news! Hopefully the clinical trial will start soon and the outcome is positive. You will be paving the way for other ladies here with brain mets.

S3K5 Chemotherapy 4/14/2008 AC + T (Taxol) Dx 4/19/2013, IDC, 3cm, Stage IV, metastasized to bone/liver, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 9/5/2016 Faslodex (fulvestrant) Chemotherapy 9/30/2016 Other
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Nov 14, 2019 03:06PM Gumdoctor wrote:

Congratulations Leftfootforward!!!

Anywhere we can find hope is a great thing.

Gumdoctor


Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/28/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Nov 14, 2019 08:14PM NicoleRod wrote:

Hi All...well here we are :) It was a nice ball and I am grateful to have been able to attend another Birthday Ball with the love of my life.. I guess I will cross post since not everyone comes here ....


Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 14, 2019 08:14PM NicoleRod wrote:

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 14, 2019 08:15PM NicoleRod wrote:

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 14, 2019 09:10PM - edited Nov 14, 2019 09:12PM by mediclisa

Nicole,

Such a beautiful couple and lovely pictures. Thank you Rod for your service. I'm so happy you were able to enjoy this year's ball and to many, many more. Lisa

Dx 10/2006, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+, HER2- Chemotherapy 1/10/2007 Cytoxan (cyclophosphamide), Taxol (paclitaxel) Hormonal Therapy 7/1/2007 Arimidex (anastrozole) Surgery 8/1/2007 Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left); Reconstruction (right) Dx 10/2014, Stage IV, metastasized to bone, 0/2 nodes Radiation Therapy 11/3/2014 Targeted Therapy 2/5/2015 Afinitor (everolimus) Dx 10/2015, Stage IV, metastasized to liver Chemotherapy 11/27/2015 Xeloda (capecitabine) Dx 2/2017, Stage IV, metastasized to lungs Chemotherapy 3/10/2017 Taxol (paclitaxel) Radiation Therapy 1/5/2018 External: Bone Chemotherapy 1/19/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/3/2018 Avastin (bevacizumab) Targeted Therapy 3/4/2018 Lynparza Chemotherapy 10/19/2018 Gemzar (gemcitabine) Dx 7/2019, Stage IV, metastasized to liver Hormonal Therapy 7/19/2019 Faslodex (fulvestrant) Radiation Therapy 8/10/2019 External: Bone Dx 9/5/2019, Stage IV, metastasized to bone Chemotherapy 9/27/2019 CMF Hormonal Therapy Aromasin (exemestane) Hormonal Therapy 12/10/2019 Femara (letrozole) Targeted Therapy 12/10/2019
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Nov 14, 2019 10:13PM SandiBeach57 wrote:

Nicolerod, oh my goodness! Great photographs of you both. Frame these.

What are you..like 18? How do you look so young? Obviously, I am jealous.

I will be thinking of you with your upcoming surgery and new treatment plan.

(2006 and 2007 DCIS) Oct 2016 Stage IV, widespread liver mets with pulmonary tumor emboli syndrome, IDC, ER+PR-HER2-, Oct 2016 AC, Jan 2017 Ibrance Letrozole, NEAD since Oct 2017.
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Nov 14, 2019 10:37PM leftfootforward wrote:

beautiful Nicolero just beautiful.

Dx 12/13/2010, IDC, 3cm, Stage IIIA, Grade 2, 1/16 nodes, ER-/PR-, HER2+ Dx 12/4/2012, IDC, Stage IV, 0/0 nodes, ER-/PR-, HER2+
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Nov 15, 2019 01:47AM ShetlandPony wrote:

Nicole, wow, wow, wow!

Leftfoot, I’m so glad it’s looking good for the trial. Do I remember right it is neratinib you’re after? If for some reason the trial doesn’t happen for you, your onc needs to fight for you. It is shameful that insurance denied.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Nov 15, 2019 03:36AM Kattysmith wrote:

Oh Nicole, you look smashing, absolutely radiant! Your hubby is very handsome and dashing! Here's to many more years of happiness together!

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/4/2015 AC Hormonal Therapy 2/5/2016 Femara (letrozole) Targeted Therapy 2/5/2016 Ibrance (palbociclib) Immunotherapy 12/23/2018 Hormonal Therapy Faslodex (fulvestrant)
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Nov 15, 2019 04:30AM BevJen wrote:

Nicole,

You look gorgeous and your husband looks quite dashing in his dress uniform. Hope you had a terrific time at the ball!

Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 8/1/2019 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Chemotherapy TAC Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap
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Nov 15, 2019 05:53AM NicoleRod wrote:

Thank you ladies for all the compliments so nice.... We had a nice time. :)

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 15, 2019 09:19AM LoriCA wrote:

Absolutely beautiful Nicole!

IBC Stage IV de novo - mets throughout skeleton, liver, distant nodes, chest wall, skin, tumor in brachial nerves.Still trying to get it to slow down. Dx 9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ (IHC) Chemotherapy 9/26/2017 Taxol (paclitaxel) Targeted Therapy 2/6/2018 Perjeta (pertuzumab) Targeted Therapy 2/6/2018 Herceptin (trastuzumab) Chemotherapy 11/26/2018 Taxol (paclitaxel) Radiation Therapy 1/30/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab)
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Nov 15, 2019 09:40AM NicoleRod wrote:

thanks lori :)

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 15, 2019 09:55AM Jaylea wrote:

Charge your glass, Nicole, you two look smashing! Glad you had a good time, you deserve it.

Dx 10/2006, IDC, Left, Stage IIB, ER+, HER2- Dx 5/2017, IDC, Stage IV, metastasized to bone/lungs, ER+, HER2- Hormonal Therapy 6/20/2017 Femara (letrozole) Targeted Therapy 7/26/2017 Ibrance (palbociclib) Dx 2/2019, IDC, Right, Stage IV, metastasized to liver/other Chemotherapy 3/22/2019 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 6/10/2019 Halaven (eribulin)
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Nov 15, 2019 05:19PM candy-678 wrote:

Nicole- Good pics !!!! Your gown is beautiful. MRI tomorrow (11-16), right? Good luck.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo, then switched to hormone therapy/targeted therapy. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 15, 2019 09:03PM IntoLight wrote:

Nicolerod, beautiful photo! You look amazing!!! I will be praying for your surgery and for Leftfootforward's... new medicine plan. Gumdoctor, love the hat and hair. I struggle with hats but you have the right idea to add the hair. I am right with you all with having a scan taken today. Now for the waiting... I don't remember who said it, but I agree that it is so hard when you have good results (NEAD) but are Stage IV and people don't understand you are still sick, feel crappy, and struggle with everything you do. So many people say to me in surprise "You look good." I want to add, "how bad did you think I would look?" Thanks for letting me vent. I don't say much on this thread, but I lurk.

Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Nov 16, 2019 04:30AM NicoleRod wrote:

Candy..yes MRI of femur today. Surgery Monday..and today my constipation was so bad I think I might be forming an anal prolapse..I cannot get the poop out I had to push so hard...I just want to cry. I am hearing now that the Zoladex can constipate you. I just got that shot a week ago (for the first and Last time) and now surgery is Monday and I have to be put under and I am not going to be able to poop....I just don't know what to do. I drink like 60 oz of water a day I have very little dairy I take 400mg magnesium citrate a night, I take a cap full of miralax every morning... Colace and senna do not work...I don't know what else to do???? :(

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 16, 2019 04:56AM - edited Nov 16, 2019 04:59AM by mediclisa

Good morning Nicole, dealing with constipation is hard (pun intended). When I occasionally take opioids for the pain, which causes constipation, my oncologist prescribed Amitiza. Just a pill and very easy on your system. You can see if that works. Senna caused abdominal pain for me. Good luck today on your MRI. I have my PET/CT scans on Friday, last week my CA 27/29 tripled, so the CMF might not be working. After my experience with Gemzar, I was hoping for a break. Ugh! Cancer really does suck. Lisa

Dx 10/2006, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+, HER2- Chemotherapy 1/10/2007 Cytoxan (cyclophosphamide), Taxol (paclitaxel) Hormonal Therapy 7/1/2007 Arimidex (anastrozole) Surgery 8/1/2007 Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left); Reconstruction (right) Dx 10/2014, Stage IV, metastasized to bone, 0/2 nodes Radiation Therapy 11/3/2014 Targeted Therapy 2/5/2015 Afinitor (everolimus) Dx 10/2015, Stage IV, metastasized to liver Chemotherapy 11/27/2015 Xeloda (capecitabine) Dx 2/2017, Stage IV, metastasized to lungs Chemotherapy 3/10/2017 Taxol (paclitaxel) Radiation Therapy 1/5/2018 External: Bone Chemotherapy 1/19/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/3/2018 Avastin (bevacizumab) Targeted Therapy 3/4/2018 Lynparza Chemotherapy 10/19/2018 Gemzar (gemcitabine) Dx 7/2019, Stage IV, metastasized to liver Hormonal Therapy 7/19/2019 Faslodex (fulvestrant) Radiation Therapy 8/10/2019 External: Bone Dx 9/5/2019, Stage IV, metastasized to bone Chemotherapy 9/27/2019 CMF Hormonal Therapy Aromasin (exemestane) Hormonal Therapy 12/10/2019 Femara (letrozole) Targeted Therapy 12/10/2019
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Nov 16, 2019 05:31AM - edited Nov 16, 2019 05:32AM by NicoleRod

Hi Lisa and thank you ...I will ask the doctor about that med. I am going today to buy glycerine suppositories, I am going to up my magnesium at night, one girl told me she takes 1000mg...I take 400 mg...I am going to up to 600 or even 800mg and I will continue with the miralax and I will also buy prunes and prune juice..I didn't want to do it because of the sugar..but I NEED too... I seriously think I may require surgery after this morning..it was THAT bad...it looks almost a tiny bit prolapsed :( :( I think I will start a thread about the consitpation thing..I don't want to hijack this thread...

Good luck with your scans I am praying the markers going up are from die off!!!

Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/30/2019 Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019
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Nov 16, 2019 06:25AM - edited Nov 16, 2019 06:33AM by mediclisa

Nicole, I'm not knowledgeable about magnesium, maybe others are on this thread. Can you take to much? When I came back from Spain, I had no new cancer, then in September had 10-12 new cancer in my bones and new Mets in my liver. My liver and lung mets have been stable for a few years, but bone mets hang in there. Keep a eye on your bottom - if you have a urgent care you might want to go in. Working on the ambulance today and will be praying and thinking about everybody on this site. Take care 💕

Dx 10/2006, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+, HER2- Chemotherapy 1/10/2007 Cytoxan (cyclophosphamide), Taxol (paclitaxel) Hormonal Therapy 7/1/2007 Arimidex (anastrozole) Surgery 8/1/2007 Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left); Reconstruction (right) Dx 10/2014, Stage IV, metastasized to bone, 0/2 nodes Radiation Therapy 11/3/2014 Targeted Therapy 2/5/2015 Afinitor (everolimus) Dx 10/2015, Stage IV, metastasized to liver Chemotherapy 11/27/2015 Xeloda (capecitabine) Dx 2/2017, Stage IV, metastasized to lungs Chemotherapy 3/10/2017 Taxol (paclitaxel) Radiation Therapy 1/5/2018 External: Bone Chemotherapy 1/19/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/3/2018 Avastin (bevacizumab) Targeted Therapy 3/4/2018 Lynparza Chemotherapy 10/19/2018 Gemzar (gemcitabine) Dx 7/2019, Stage IV, metastasized to liver Hormonal Therapy 7/19/2019 Faslodex (fulvestrant) Radiation Therapy 8/10/2019 External: Bone Dx 9/5/2019, Stage IV, metastasized to bone Chemotherapy 9/27/2019 CMF Hormonal Therapy Aromasin (exemestane) Hormonal Therapy 12/10/2019 Femara (letrozole) Targeted Therapy 12/10/2019
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Nov 16, 2019 06:42AM Grannax2 wrote:

I've been missing in action! Sorry, it's been crazy busy at my house. My sister was here, we walked the Catwalk and I had the mapping for y90s. UGH This is my life for the next few months.

On November 20 I will have the real y90. For some reason it's scaring me, this second time around. How many people even get to have second y90s? Not very many, none on BCO, that I know of. I know I'm not paving the way, I'm sure there are worldwide statistics that I know nothing about. But, I'm not a statistic. I'm the zebra, always the unexpected hoofprint in Texas. Evidently, that analogy is taught in medical school.

For example, my IR found an AVF, artery to portal vein in my liver. What?!?! Rarely, after y90s, the liver manages to form this abnormality. UGH. So, after y90s and recovery, my IR will embolize it in another procedure. He also told me that he found more liver mets than he expected. Yes, he still plans to zap all of the ones he can see. He asked when my MO plans to start chemotherapy again. My MO mentioned capecitabine, the only one I haven't had. But, I read it is contraindicated post y90. I am taking Faslodex in the meantime. I didn't experience any problems with the loading dose.

This life we live is hard for people who like to PLAN things. We have learned to plan with caution. We know it doesn't always go as planned. We know what plan B, C, D E, F G....... feels like. So, WHY do our family and friends expect us to tell them them what to plan for?!?! Now, what are the dates so I can put it on my calendar? Then, when I say but there are things that could happen that could change the plan. WHAT?!?! They say. Clueless. How can they be so involved with care and not see that? Grrrrr. Here I go growling again. Over and over I explain to my support team. I don't like saying the same list of complications over and over. It gets stuck in my head and plays like a broken record.💞




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Nov 16, 2019 07:45AM Anotherone wrote:

nicol , have you tried olive oil?

A spoon a day was just enough softening action for me but you may want to take half a glass by the sound of it 😱😥

Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/17/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy External: Chest wall Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement
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Nov 16, 2019 07:56AM candy-678 wrote:

Grannax- Praying for you for the Y90 on the 20th. Then the embolization procedure and the chemo. I am a planner. Always have been. So I am one of those that gets out of joint when plans change. Guess I am going to have to lighten up with MBC, huh.

Nicole- Time for an enema (Over the counter kind). Need to get the job done for surgery Monday. Go into surgery cleaned out. I wonder about how much Magnesium is too much. Magnesium is one of those minerals that can effect heart function (calcium, magnesium, potassium). I feel for you. I fight constipation too.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo, then switched to hormone therapy/targeted therapy. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Nov 16, 2019 09:15AM SandiBeach57 wrote:

Nicolerod.

Being impacted can be a very serious condition. Please think about calling your MO or whoever is on call and ask for advice..especially since you have surgery Monday.

I am assuming you will be given pain meds for your surgery which could make this worse.

Please call them today if you get no bm soon.

(2006 and 2007 DCIS) Oct 2016 Stage IV, widespread liver mets with pulmonary tumor emboli syndrome, IDC, ER+PR-HER2-, Oct 2016 AC, Jan 2017 Ibrance Letrozole, NEAD since Oct 2017.

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