Topic: How are people with liver mets doing?

Nov 13, 2019 02:55PM candy-678 wrote:

Thanks Shetland for your words to me. I do plan on talking with my MO on the 25th appt---" So things look good on PET. Are we still going to scan with CT every 3 months?" " I don't want to get too confident". Yes I will convey my fears to her.

Gumdoctor- Lookin good. Wish I could knit. But I am not good with "crafty" things. You are in my area of the country----Yes it is really cold for this time of November. Broke a century old record yesterday for the temp.

Anotherone- 1 and only PET done at diagnosis--Sept 2017. This was the 2nd PET. Usually do CT's. Insurance has denied PET's until this one---since change on last CT.

Nov 13, 2019 03:51PM BevJen wrote:

S3K5,

Yes, it's tonight at 6 pm EST.

Nov 14, 2019 01:06PM Jaylea wrote:

Leftfoot, that's amazing news, congrats! I'm hoping for great things. Keep us posted on your progress.

Gumdoctor, love the wig and cap look, bonus for winter warmth!

Nov 14, 2019 06:06PM Gumdoctor wrote:

Congratulations Leftfootforward!!!

Anywhere we can find hope is a great thing.

Gumdoctor

Nov 14, 2019 11:14PM - edited Dec 18, 2019 05:58AM by NicoleRod

Nov 15, 2019 12:10AM - edited Nov 15, 2019 12:12AM by mediclisa

Nicole,

Such a beautiful couple and lovely pictures. Thank you Rod for your service. I'm so happy you were able to enjoy this year's ball and to many, many more. Lisa

Nov 15, 2019 01:37AM leftfootforward wrote:

beautiful Nicolero just beautiful.

Nov 15, 2019 06:36AM Kattysmith wrote:

Oh Nicole, you look smashing, absolutely radiant! Your hubby is very handsome and dashing! Here's to many more years of happiness together!

Nov 15, 2019 08:53AM NicoleRod wrote:

Thank you ladies for all the compliments so nice.... We had a nice time. :)

Nov 15, 2019 12:40PM NicoleRod wrote:

thanks lori :)

Nov 15, 2019 08:19PM candy-678 wrote:

Nicole- Good pics !!!! Your gown is beautiful. MRI tomorrow (11-16), right? Good luck.

Nov 16, 2019 07:30AM NicoleRod wrote:

Candy..yes MRI of femur today. Surgery Monday..and today my constipation was so bad I think I might be forming an anal prolapse..I cannot get the poop out I had to push so hard...I just want to cry. I am hearing now that the Zoladex can constipate you. I just got that shot a week ago (for the first and Last time) and now surgery is Monday and I have to be put under and I am not going to be able to poop....I just don't know what to do. I drink like 60 oz of water a day I have very little dairy I take 400mg magnesium citrate a night, I take a cap full of miralax every morning... Colace and senna do not work...I don't know what else to do???? :(

Nov 16, 2019 08:31AM - edited Nov 16, 2019 08:32AM by NicoleRod

Hi Lisa and thank you ...I will ask the doctor about that med. I am going today to buy glycerine suppositories, I am going to up my magnesium at night, one girl told me she takes 1000mg...I take 400 mg...I am going to up to 600 or even 800mg and I will continue with the miralax and I will also buy prunes and prune juice..I didn't want to do it because of the sugar..but I NEED too... I seriously think I may require surgery after this morning..it was THAT bad...it looks almost a tiny bit prolapsed :( :( I think I will start a thread about the consitpation thing..I don't want to hijack this thread...

Good luck with your scans I am praying the markers going up are from die off!!!

Nov 16, 2019 09:42AM Grannax2 wrote:

I've been missing in action! Sorry, it's been crazy busy at my house. My sister was here, we walked the Catwalk and I had the mapping for y90s. UGH This is my life for the next few months.

On November 20 I will have the real y90. For some reason it's scaring me, this second time around. How many people even get to have second y90s? Not very many, none on BCO, that I know of. I know I'm not paving the way, I'm sure there are worldwide statistics that I know nothing about. But, I'm not a statistic. I'm the zebra, always the unexpected hoofprint in Texas. Evidently, that analogy is taught in medical school.

For example, my IR found an AVF, artery to portal vein in my liver. What?!?! Rarely, after y90s, the liver manages to form this abnormality. UGH. So, after y90s and recovery, my IR will embolize it in another procedure. He also told me that he found more liver mets than he expected. Yes, he still plans to zap all of the ones he can see. He asked when my MO plans to start chemotherapy again. My MO mentioned capecitabine, the only one I haven't had. But, I read it is contraindicated post y90. I am taking Faslodex in the meantime. I didn't experience any problems with the loading dose.

This life we live is hard for people who like to PLAN things. We have learned to plan with caution. We know it doesn't always go as planned. We know what plan B, C, D E, F G....... feels like. So, WHY do our family and friends expect us to tell them them what to plan for?!?! Now, what are the dates so I can put it on my calendar? Then, when I say but there are things that could happen that could change the plan. WHAT?!?! They say. Clueless. How can they be so involved with care and not see that? Grrrrr. Here I go growling again. Over and over I explain to my support team. I don't like saying the same list of complications over and over. It gets stuck in my head and plays like a broken record.💞

Nov 16, 2019 10:56AM candy-678 wrote:

Grannax- Praying for you for the Y90 on the 20th. Then the embolization procedure and the chemo. I am a planner. Always have been. So I am one of those that gets out of joint when plans change. Guess I am going to have to lighten up with MBC, huh.

Nicole- Time for an enema (Over the counter kind). Need to get the job done for surgery Monday. Go into surgery cleaned out. I wonder about how much Magnesium is too much. Magnesium is one of those minerals that can effect heart function (calcium, magnesium, potassium). I feel for you. I fight constipation too.