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Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Aug 16, 2013 04:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Mar 29, 2021 10:22AM Bliss58 wrote:

Hope& Gratitude, thanks! I'll post when I know more. I'll bet they're still working on insurance approval.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/8/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Mar 29, 2021 11:36AM Sadiesservant wrote:

Thanks Nicole. CT scan tonight (at 9:15 PM ugh... will be awesome trying to sleep with the water they want me to drink). You have had so much on your plate lately that keeping up with threads is the last thing you should be worrying about. We are all here for you too!

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Mar 29, 2021 12:18PM snooky1954 wrote:

Chicago, Yes I know the original thread is still there. I quit after 5 mons because I was going on IV Taxal and I didn't want any interference from FenBen. Not that I knew there would be, just felt safer that way.

Please don't think that I insulted you in any way, it was not my intention. I was very grateful you started the thread. Who knows, I may give it another go! Oh absolutely, it's worth trying

HUGS


Dx 7/2017, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 8/2018, IDC, Right, Stage IV, metastasized to lungs Targeted Therapy 8/14/2018 Ibrance (palbociclib) Dx 11/1/2018, IDC, Right, Stage IV, metastasized to bone/lungs Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Radiation Therapy Bone Targeted Therapy Afinitor (everolimus) Chemotherapy Halaven (eribulin) Targeted Therapy Afinitor (everolimus)
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Mar 29, 2021 01:01PM - edited Mar 29, 2021 01:08PM by candy-678

Thinking of questions for my MO visit. Here is one--

MRI shows small progression in size of my liver mets. Should we do a PET to show activity? 3 of 4 lesions are over 1cm, 4th just below a cm. Will PET pick up these and will the info be helpful? Or should we just look at MRI for size surveillance? I guess if growing in size, then they are active?

Also, should I ask for a copy of the Guardant test before my appointment? I would like to see the results and see if that generates more questions for me. We should have results in plenty of time--- my next appointment with MO is 4 weeks after the test was drawn. Do I ask MO office for copy, or can I call Guardant? I think with the Foundation One studies I called the company and they sent me a copy of the results. But might have been after I got results from my doctor---- too long ago to remember just how it went.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Mar 29, 2021 01:14PM NicoleRod wrote:

Candy I would ask for those results yes.

I would also ask about getting a PET...have you made the decision about Y90?

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Mar 29, 2021 02:19PM Husband11 wrote:

My wife's oncologist has asked her to come in and give blood for some "molecular tests". This was relayed through a nurse, so neither of us have any idea what this consists of, other than that it is being shipped off somewhere outside the province, and possibly the country, for processing. I pray that it identifies some vulnerability of her cancer that can be exploited. She just had another MRI, so we await results of the latest scan plus all the usual blood tests. The molecular test results, whatever those might be, will apparently take weeks. I'll be sure to ask the Onc just what type of testing this is, next time we have a teleconference with her.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Mar 29, 2021 02:30PM SandiBeach57 wrote:

Candy, a PETCT scan will show if the liver lesions are active. I had both MRI and PETCT.

My oncology nurse called me when the blood genomic results were available and I picked them up.

I had one active, the others dead (hopefully). I had SBRT as it was the only one and 2+cm.

Wear your jewelry.
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Mar 29, 2021 02:31PM SandiBeach57 wrote:

Hisband11. Is your wife getting a blood biopsy sent for genomic studies? I never heard of the phrase molecular testing. But I am still learning.

Wear your jewelry.
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Mar 29, 2021 02:45PM Husband11 wrote:

SandiBeach, we have no idea. No one has explained it to us yet. Could be genomic testing I am thinking, but we really don't know. Any kind of testing is welcome.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Mar 29, 2021 02:48PM BevJen wrote:

Husband11,

My guess is that it's genomic testing. At my center, they have a "molecular tumor board" that considers only patients who have had genomic testing, to make treatment recommendations for these folks.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy Immunotherapy
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Mar 29, 2021 04:31PM candy-678 wrote:

Nicole- would you ask for the results before the office visit? I know I want a copy of the results for my own records, but I wish I could look them over before my office visit. I have not decided about Y90 yet, or any of the local therapies. I do not know what therapies my cancer center has experience in or what they will recommend for my case---size of my tumors or where located. I read that some treatments depend on the blood supply to the mets, and the location of the blood vessels. Also location of other organs/body parts (diaphragm for example). I am lightly reading about the various treatments, but not getting too deep into any particular one.

Sandi- All 4 of mine have grown in size. Wouldn't they be active if they are growing, not be dead?

Anyone know the size a tumor has to be to be picked up on a PET? Greater than 1cm or 2cm?

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy 11/1/2017 Ibrance (palbociclib) Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Mar 29, 2021 04:56PM NicoleRod wrote:

Husband praying you and your wife get great news!!! I was hoping to see you more in the Verzenio thread but I am already off it and moving on :(

Candy... I would ask for it before the appointment...also NOTE: my tumors were not connected like most that get Y90.... however after the procedure it looks like the old ones i had cryoblated did have some connection but the 2 she did were not connected (via blood supply) at all...

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Mar 29, 2021 07:34PM SandiBeach57 wrote:

Candy you are right..if lesions getting bigger, they must be alive. I think for me, MO wanted to make sure the discrepancies were not in the radiologist readings. The SUV update confirmed suspicions.

I am sorry you have this on your mind. Targeted Rx could be your answer for the ones growing. I was able to stay on Xeloda with the SBRT.

Wear your jewelry.
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Mar 30, 2021 04:45AM Anotherone wrote:

Candy , lesions of a few mm can be seen by PET so certainly it would work for under 1 cm ones.

Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. On Kadcyla now as had progression on H&P Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/16/2019 Abraxane (albumin-bound or nab-paclitaxel) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy External: Chest wall Targeted Therapy Herceptin (trastuzumab)
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Mar 30, 2021 06:01AM NicoleRod wrote:

FENBEN..... so for those asking about fenben....you do not need to take the cannibis and Vit E in order for it to work. I am in a FB group for almost 2 years about it. The thing is it will ONLY work if your cancer is caused by a parasite. In some cases people have gotten worse on it and also note that the Mebedazole has been and currently may still be. If you have liver mets and take Mebedazole please be aware of your ALT AST numbers mine quadrupled after only 100. mg after only 5 days.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Mar 30, 2021 08:11AM Husband11 wrote:

Great news this morning, the switch from palbo to abemaciclib continues to work. Drops in CEA and CA-15 of a further 45% and 35% since her last markers in early February. No progression on the scans, but lots of stable but ambiguous things. The blood testing she is being sent out for is genetic testing. I believe they will be looking for the pik mutation among other things.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Mar 30, 2021 08:13AM - edited Mar 30, 2021 10:19AM by Grannax2

Thanks for the info,about fen benNicole. So, you are on to Affinitor? Let us know how it goes.

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Mar 30, 2021 08:36AM SeeQ wrote:

Husband11, great news! I'm curious about the "stable, but ambiguous" findings. My MO was originally talking about sending my biopsy tissue for genomic testing, but then said we didn't need to do that now, since this treatment is working so well and we don't need to make a change. When we need to change treatments, we'll reevaluate. The only reason to test now would be to satisfy my curioisity, I guess.

Diagnosed de novo Stage IV; numerous liver mets; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Mar 30, 2021 09:38AM Husband11 wrote:

My wife's liver has pseudocirrhosis. It's not cirrhosis, but it has that appearance. It's the result of diffuse cancer mets. The diffuse cancer in one lobe messed up the appearance so badly that it will always look messed up and wavy at the periphery and full of scar tissue. Also her spine has some spots that aren't changing, but they can't say exactly what they were or are. As well, her peritoneum has thickening that they can't identify what exactly happened or is happening, other than that all this mess is staying static. Her spleen is permanently enlarged from the hepatic hypertension, and many veins are dilated. She has regular endoscopy to look for varices in her esophagus that might bleed. Luckily there have been few lately. Internally, she looks a bit like a battlefield.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Mar 30, 2021 10:02AM NicoleRod wrote:

Husband soooo happy for you both!!!! Awesome!

Grannax...will go to Afinitor Dr. wants to wait to start till our appt on the 8th, my spine MRI with sedation is the 7th....

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Mar 30, 2021 10:05AM BevJen wrote:

Husband,

Happy that the Verzenio is working. That's great.

I often wonder what all of these drugs do to our insides. Now I have an idea. So long as all stays static or decreases, then all is okay.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy Immunotherapy
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Mar 30, 2021 10:06AM moth wrote:

Husband, glad you're going to get the genomic test but I'm super surprised as it's expensive and I've not heard of provincial cancer agencies paying for it - you're the first. I had mine done through a clinical trial & I know other Canadians who have paid out of pocket for theirs. I'm hoping you are the sign that provinces will start covering this for mets pts.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Mar 30, 2021 10:11AM Husband11 wrote:

Moth, apparently it is being offered for free from Contexia, a BC company. The program is ending soon and she had to get my wife's blood in before the program ended. She said there was no limit on the number of tests offered to each hospital. Now approx 4 years ago, a company called Contexual Genomics out of BC was offering free testing, but we asked our Onc at that time, and he said that only a limited number of tests were being offered each province and that the Oncology board of the hospital has to make sure they went only to the best candidates. This sounds like the same company, but the eligibility sounds completely different that was explained to us previously. If someone in Canada wants this, get on it ASAP before the program ends.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Mar 30, 2021 10:16AM moth wrote:

Thanks Husband! That's excellent. I hope you get actionable results.

I will spread the word. Mine was through Foundation One. It's over 6K for liquid and more for tissue...

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Mar 30, 2021 10:54AM SeeQ wrote:

Husband11, you're right, that is a lot of ambiguity. I guess "stable" is the bottom line and that's good.

Diagnosed de novo Stage IV; numerous liver mets; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Mar 30, 2021 11:21AM - edited Mar 30, 2021 11:22AM by Sadiesservant

Thanks Husband. Very interesting. Unfortunately, it looks like the program is ending tomorrow which probably rules out getting access. Perhaps they will extend? At the very least, it might prove to be a cheaper test than Foundation One. I appreciate the heads up and will discuss with my MO.

Edited to add for those searching for it the new name of the company is Canexia and the project is the ACTT project.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Mar 30, 2021 02:18PM - edited Mar 30, 2021 02:33PM by Husband11

Dee, that is fantastic! So happy for you!

Have you considered the supplement, lactoferrin? It builds bone, and has shown some anti cancer activity. It's also fairly cheap.

Sadiesservant: Looks like Contextual Genomics was renamed Conexia Health. I wish I had known about the program and the possibility it was ending sooner so I could have let people know. I only found out what test it was and why there was a rush, this morning. First time we've had the opportunity to talk with the Onc in quite some time. Prior to that it was my wife talking with a nurse, who really didn't know any details, thus the vague description "molecular testing".

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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Mar 30, 2021 02:22PM HopeandGratitude wrote:

Dee - YAY!!! GREAT NEWS!!! Breathe a little easier today

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
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Mar 30, 2021 02:24PM NicoleRod wrote:

Dee YAY!!!! So so so so so Happy for you!!!!!! Also which drug made your Mag tank again, verzenio???

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/29/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Mar 30, 2021 03:11PM SeeQ wrote:

Dee, Yay! for the clear brain scan!


Diagnosed de novo Stage IV; numerous liver mets; single small breast tumor identified 4 weeks later Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio

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