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Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.

Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.

Learn more about living with MBC.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Aug 16, 2013 04:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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May 4, 2021 07:37AM Grannax2 wrote:

Saulious. Can’t be any better news than NED. Congrats

I haven’t heard about any tumors being too big for y90, either.

My MO decided to wait until May 13 for my next appointment, as scheduled. So, I get two weeks off instead of one. I’m happy about that. My body is recovering and my appetite is, too. I did some yard work yesterday and I’m eating like a horse. Lo

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May 4, 2021 07:50AM HopeandGratitude wrote:

Grannax, glad you are feeling well, gardening, and eating well!!!! Sometimes a break is good

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/5/2002 AT Surgery 8/29/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/5/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/15/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/6/2018 Taxol (paclitaxel) Radiation Therapy 10/10/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/14/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/7/2020 Faslodex (fulvestrant)
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May 4, 2021 08:33AM B-A-P wrote:

Salius!

What amazing news!!!

One more cycle left for me and then a scan 🤞🏻🤞🏻🤞🏻

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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May 4, 2021 08:46AM Rosie24 wrote:

Great news, Saulius!

Grannax, I’m glad you’re getting some appetite, (maybe a lot 😊) and some energy back.


Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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May 4, 2021 08:52AM - edited May 4, 2021 12:31PM by Husband11

Congrats Saulius! Grannax, good to hear you are recovering and regaining an appetite. It's a vicious circle when you lose your will to eat.

Concerned husband Dx 2008, Left, Stage IIIB, Grade 3, 7/14 nodes, ER+/PR+, HER2- Dx 5/2016, Stage IV, metastasized to liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Chemotherapy Hormonal Therapy Femara (letrozole)
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May 4, 2021 09:22AM moth wrote:

saulius - that's wonderful news! Congratulations! Wishing Sandra speedy recovery & smooth sailing through rads

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/2/2021 External: Bone
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May 4, 2021 11:44AM theresa45 wrote:

Saulius - Congrats on your wife being NED!!! Very happy for you all!

Grannax - You never cease to amaze me! You inspire me to keep on doing the things I love with the people I love! Enjoy your extra week off.

I also have not heard of a tumor size limit for treating with Y90...

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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May 4, 2021 03:19PM macbookair2018 wrote:

hopeandgratitude & grannax, yes she saw a radiologist and they did some type of radiation to the liver but it was >9cm and she said it was too big for ablation and y90. super frustrating. it was once ~5-6cm but they didn't do y90 then since there was some lymph node involvement (stable, but made it so the liver spot wasn't the only area of metastasis). dunno what to do, should i keep asking abou y90 or resection?

Dx 4/2018, IDC, Left, Stage IV, metastasized to bone, ER-/PR-, HER2+ Dx 12/2020, 6cm+, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy External: Liver Targeted Therapy Enhertu (fam-trastuzumab deruxtecan-nxki) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy External: Bone Radiation Therapy Surgery Mastectomy: Left Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 4, 2021 06:05PM Sadiesservant wrote:

Fabulous news Sailius. You seem to have an excellent team standing beside you. So happy for you and Sandra

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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May 4, 2021 06:11PM HopeandGratitude wrote:

macbookair2018 - you need to consult with an interventional radiologist, preferably one who has vast experience with Y90 and in multiple cancer types. I am not the expert but never heard size limit and know it was often used on larger tumors to reduce bulk size

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/5/2002 AT Surgery 8/29/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/5/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/15/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/6/2018 Taxol (paclitaxel) Radiation Therapy 10/10/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/14/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/7/2020 Faslodex (fulvestrant)
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May 4, 2021 11:04PM BSandra wrote:

Dear all, thank you. My sincerest wish is that we all succeed in this journey together - nothing less. Saulius

Since May2021: NED. Mar2021: local axilla LN recurrence.Sep2019-Mar2021:NED. Feb2019:local recurrence in left breast,IBC. May2018-Feb2019:NED. Jun2018:DC/CIK. Aug2017:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/8/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary
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May 5, 2021 05:13AM Kattysmith wrote:

Saulius, what beautiful news! I'm so happy for you, Sandra, and your little one!

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/4/2015 AC Hormonal Therapy 2/5/2016 Femara (letrozole) Targeted Therapy 2/5/2016 Ibrance (palbociclib) Immunotherapy 12/23/2018 Hormonal Therapy Faslodex (fulvestrant)
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May 5, 2021 07:39AM leftfootforward wrote:

Saulius- that’s good news. I hope she heals well and that you can begin BBC and get through radiation soon. I look forward to hearing from you that this intense period of treatment is over.

I an currently in day 5 of 10 for radiation to my chest for a metastatic lymph node that they could not respect. So far the biggest SE is fatigue. I am still working full days and taking care of my 4 kids after the s hol day, so I am hopeful that your wife’s fatigue from radiation is not so bad.

All my best

Dx 12/13/2010, IDC, 3cm, Stage IIIA, Grade 2, 1/16 nodes, ER-/PR-, HER2+ Dx 12/4/2012, IDC, Stage IV, 0/0 nodes, ER-/PR-, HER2+
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May 5, 2021 07:43AM AlabamaDee wrote:

LFF - hang in there. When I had SBRT to the lung, the fatigue dissipated pretty quickly. Hope you are the same. You are amazing to “do it all”. But like I tell people- you do what you have to and keep on going. Hugs

Dee

Primary neuroendocrine breast cancer, on SERD trial ARV-471, failed Pfizer’s CDK 2/4/6 trial after 8 weeks Dx 5/23/2013, Right, 1cm, Stage IIB, Grade 2, 1/22 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 7/29/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 4/2019, Stage IV, metastasized to liver, ER+/PR+, HER2- Targeted Therapy 10/8/2020 Radiation Therapy External Chemotherapy Doxil (doxorubicin) Targeted Therapy Afinitor (everolimus) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Fareston (toremifene), Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Verzenio Chemotherapy Xeloda (capecitabine)
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May 5, 2021 08:30AM Grannax2 wrote:

Thanks, Theresa, Husband 11 and Rosie.

Macbookair, there is something wrong with that picture. Seek out another IR for an opinion.

LFF I hope you whiz through the next 5 rads.

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May 5, 2021 08:47AM theresa45 wrote:

LFF - I'm so glad that they are treating the unresectable lymph node! I had a number of chest nodes treated with proton radiation therapy 4 years ago and none of them have become active again. I hope that you will be rewarded with a long period of calm after the last crazy couple of months of treatment!! You are truly a superwoman taking care of 4 kids and dealing with cancer treatments! Theresa

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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May 5, 2021 09:07AM ilowen wrote:

Saulius, that is wonderful news!

Grannax, yay for the increased appetite!

LFF, wishing for smooth sailing through the rest of your radiation treatments.

Dx 10/20/2020, IDC, Left, 4cm, Stage IV, metastasized to bone/liver/lungs, Grade 3, ER+/PR+, HER2- (IHC) Targeted Therapy 11/19/2020 Kisqali Hormonal Therapy 11/19/2020 Femara (letrozole), Zoladex (goserelin) Radiation Therapy 11/25/2020 External: Bone
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May 5, 2021 09:11AM macbookair2018 wrote:

uh oh. i'll message her medical onc about potentially referring us to someone who does y90. if that doesn't work should i reach out to someone on my own without him coordinating her care? besides the liver spot she only has two more cancerous lymph nodes (i think those are her only spots of metastasis but the liver is quite large), should we be aiming to have those lymph nodes removed? i'm nervous that i'm young and inexperienced with this and can't get her the best care as she is not really an advocate for herself

Dx 4/2018, IDC, Left, Stage IV, metastasized to bone, ER-/PR-, HER2+ Dx 12/2020, 6cm+, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy External: Liver Targeted Therapy Enhertu (fam-trastuzumab deruxtecan-nxki) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy External: Bone Radiation Therapy Surgery Mastectomy: Left Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 5, 2021 09:15AM Elderberry wrote:

BSandra: Doing the Happy Dance for you and your wife. What good news!! Yay yay yay

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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May 5, 2021 09:34AM HopeandGratitude wrote:

macbookair2018 - if you go into https://www.sirtex.com/us/patients/treatment-center-locator/ you might find something that helps. Otherwise I would look to a large institution near you where they have a number of interventional radiologists. I am not sure where you are located. It might take a little digging but I found an expert 2 hours from me. Local hospital did not impress me with their knowledge or use of Y90 for breast cancer metastases. Your mother’s doctor should give you a referral. No reason he should not. Very important consult.


regarding lymph nodes - where are they located? I have not had to have any lymph node treatments yet but folks on here have and I hope they answer. Sometimes the lymph nodes can be removed and followed with radiation or whatever is appropriate, sometimes chemo. Please see recent conversations from BSandra/Saulius

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/5/2002 AT Surgery 8/29/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/5/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/15/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/6/2018 Taxol (paclitaxel) Radiation Therapy 10/10/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/14/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/7/2020 Faslodex (fulvestrant)
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May 5, 2021 12:34PM B-A-P wrote:

Update :

Saw my MO today and asked about why we aren't staying on chemo until progression. She said she usually does 6 cycles and then a break because of toxicity and wanting to give the body a break. Because she knows that currently, my body responds well to chemo, and because to her, I got a long time off endocrine therapy ( I guess everyone's definition of long is subjective. I was on tamoxifen for 5 months before having an oopherectomy and switching to letrozole where I feel I got a year or maybe a little more out of it), that it would be okay to just do tamoxifen, give my body a break from toxicity , and go from there. The risk we run into is becoming resistant, progressing, and going to an even more toxic therapy without giving my system a chance to rebound. She told me it is up to me and there is no rigth or wrong answer in our case. There're reasons to continue and reasons to take a break. Unless i've already stopped responding to treatment, there's a good chance my tumours will be gone by the end of six. fingers crossed

She did mention that where we live, treatments like ibrance are given on a compassionate basis and in windows, so we have to consider that as well . She does not want to use those drugs until we have to but it might have to end up being earlier than we want so I can access it period. It is so frustrating my province hasn't adopted it yet.

I know this is a liver mets threat but I also wanted to ask anyone who's gotten the covid vaccine.. how long did it take for SE's to appear and disappear? I booked my shot for day 3 of my cycle, and i get tx on day 1,8, and 15. I don't want the SE's to be so bad I miss chemo.


Thanks!!


Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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May 5, 2021 12:52PM arolsson wrote:

Hi everyone

Not sure if anyone remembers me, its been hard for me to follow this site due to some computer problems and neuropathy which makes typing messages irritatingly long. I am following all of you and am so grateful for your news. BevJen, you are particularly in my thoughts and I haven't forgotten your warmth and courage in your posts.

My latest scan showed a small regression in my liver mets (now about 4.5 cm) and some evidence of bone healing(hooray!), but my CA 15-3 is spiking again, so preparing myself for the idea that I might truly be out of options. Also the olaparib (Lynparza) is hard on the kidneys and I need blood transfusions every couple of months. But otherwise I am so grateful for this extra year (covid notwithstanding!). I guess my next steps will be trying to reconnect with the interventional radiologist I found a year ago--she didn't want to operate while I was on any chemo/targeted therapy -why,l don't know since it doesn't seem to be the case for many of you who have had a good experience with Y90. But she may be more open to it when I show progression again.

B-A-P, I got the Pfizer vaccine 4 days ago and the only SE is a sore arm just like a flu shot.

Hugs to all/Amy

Dx 8/2017, IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, 5/5 nodes, ER-/PR-, HER2+ Surgery Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy Halaven (eribulin)
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May 5, 2021 12:58PM BLMike wrote:

BAP - we got the Pfizer vaccine and although I had no real SEs other than a sore arm, my wife had a fever of about 101 starting five days after the second shot. She took Tylenol which arrested the fever and it was totally gone after another 24 hours. None of us including her MO don't know what else could have caused it other than the vax. Good luck.

A member to gather information for my wife Dx 2009, DCIS, Stage 0, ER+/PR+, HER2- Dx 2016, IDC, Stage IA, 0/5 nodes, ER+/PR+, HER2- Dx 4/20/2019, IDC, Stage IV, metastasized to lungs, ER+/PR+, HER2- Dx 10/2020, IDC, Stage IV, metastasized to liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Targeted Therapy Lynparza Chemotherapy Xeloda (capecitabine) Targeted Therapy Piqray (alpelisib) Hormonal Therapy Faslodex (fulvestrant) Surgery Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy Breast Hormonal Therapy Femara (letrozole)
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May 6, 2021 01:24AM BSandra wrote:

Dear BAP, when Sandra got her Pfizer vaccine, with both doses she did not feel anything - just the sore arm for 1-2 days but knowing what you all go through in treatments, I would not consider it as anything serious. We checked her IgG yesterday and it was 31 Units/ml, so not fantastic but it means she's got immunity and that the vaccine is wonderful (again, thank you USA).

Today we went to the NCI's radiology department for consultation, and after reading the whole medical-history RO decided that radiation is will not be done, as it was performed 1.5 years ago, and with this "minimal progression" and surgical removal, RT could "do more harm than bring benefits". We asked our MO after this, if multidisciplinary team's decision to maybe try RT, has influenced the chemotherapy-consillium decision not to give chemotherapy, and she said "no, decision not to prescribe additional chemotherapy was made taking into account whole situation". So, Sandra stays on trastuzumab+pertuzumab. This actually was our initial wish: radical removal of these malignant lymph nodes, and staying on trastuzumab+pertuzumab, but now, as we prepared for chemotherapy or RT and, suddenly, non of them will be given, we feel strange - we joke with Sandra that a human can never be happy, can he?:) Or are we just those strange people who ask for more treatment? Ehm... so let's hope our team made the best decision (we'll meet the surgeon on Saturday, so we might ask once again why he thought chemo could be given)... maybe in the beginning they just did not want to exclude the "harshest" scenario and were preparing us for it?

Hugs to everyone,

Saulius

Since May2021: NED. Mar2021: local axilla LN recurrence.Sep2019-Mar2021:NED. Feb2019:local recurrence in left breast,IBC. May2018-Feb2019:NED. Jun2018:DC/CIK. Aug2017:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/8/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary
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May 6, 2021 05:04AM B-A-P wrote:

Salius,

Sometimes the hardest thing to believe is the best case scenario you know? Like what? We are getting what we actually wanted this time? I think after so long in this world, we are just used to hearing we need harsh treatment and that it's the only way. I think your appointment will go well this weekend. Keep the faith. this blip in the road has been going in a positive trajectory and I think it'll keep up. FIngers crossed!

And thanks for the replies re the vaccine. I'm still at a crossroads . My naturopathic oncologist said it was his opinion that I try to do it as far from chemo as possible and since i'm at the end essentially, I could wait another 4-5 weeks. I'm still going to think on it another day or so. The schedule isn't open for June yet and thats when everyone can book.. so I worry if I cancel now, that i'm setting myself up for waiting even longer than I prefer. No decision is easy for me , clearly lol

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Dx IDC, Stage IV, metastasized to liver, ER+/PR-, HER2- (FISH) Chemotherapy Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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May 6, 2021 05:48AM - edited May 6, 2021 05:48AM by HopeandGratitude

BAP - I had the moderns vaccination. 1st one, no issues at all, just a slightly sort arm. I feared the second one, but got it 1.5 weeks post Y90 and while still on verzenio. I developed a blistering headache late day 1, but ice packs and meds and hydration helped reduce that. A little tired and minor headache 24 h later but 48 h later back to normal. My husband however got hit pretty hard for first 72 hours and then slowly back to normal few days later.

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/5/2002 AT Surgery 8/29/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/5/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/15/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/6/2018 Taxol (paclitaxel) Radiation Therapy 10/10/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/14/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/7/2020 Faslodex (fulvestrant)
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May 6, 2021 06:01AM SandiBeach57 wrote:

BAP, I am on Xeloda for liver mets and had the JJ vaccine. I had a mild headache for a day, but no further problems.

2016: MBC with liver mets (DCIS in 2006 & 2007), AC followed by Ibrance, Letrozole. Grade 3 ER+PR-, HER2-. 2020: progression liver mets, Xeloda, Grade 3 ER+PR+HER2-, 3/21: SBRT liver met
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May 6, 2021 06:06AM BSandra wrote:

BAP, yes, we are so used to harsh treatments that it is so hard to believe doctors chose "easier but better treatment". Crazy... I also think, if you are on chemotherapy, you risk not to develop COVID-19 immunity, so it is best to be vaccinated after chemotherapy, if you do not have big risk factors. So, I think, it is more about getting the best out of vaccine but not about SE that you could face while on chemotherapy. In LT all cancer patients were vaccinated in February.

Arolsson, are you joking? Of course we remember you, and I am so happy you got these tumors reduced. Again, I am a very big proponent of ultrasound. Could you get one just to be sure CA15.3 is behaving badly for other reasons than progression?

Saulius

Since May2021: NED. Mar2021: local axilla LN recurrence.Sep2019-Mar2021:NED. Feb2019:local recurrence in left breast,IBC. May2018-Feb2019:NED. Jun2018:DC/CIK. Aug2017:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/8/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary
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May 6, 2021 06:22AM Grannax2 wrote:

macbookair, Yes, I think getting a consultation with an IR is very important. I hope the MO will give you a referral but if not, pursue it on your own. Also, with only one large tumor, re section could be a good option depending on where the tumor is located. Being an advocate is absolutely necessary.

I had the Moderna vaccine. The first one was slight soreness in my arm. The second one I had the textbook reaction 24 hours after the shot. Flu like symptoms with 101 fever, muscle and joint aches, etc. it went away in 24 hours.

Aroison of course I remember you. Glad you are doing okay, stable at least.

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May 6, 2021 10:53AM Kattysmith wrote:

Hi Amy,

So good to see you and I'm happy you've been stable since last summer.

As far as the rise in your CA 15, my oncologist always says he doesn't treat numbers, it's just one indicator that he keeps an eye on. I'm keeping my fingers crossed that it's just inflammation or simply "one of those things" it turns out to be a false alarm.

Keep us posted and again it's so good to hear from you!

Katty

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/4/2015 AC Hormonal Therapy 2/5/2016 Femara (letrozole) Targeted Therapy 2/5/2016 Ibrance (palbociclib) Immunotherapy 12/23/2018 Hormonal Therapy Faslodex (fulvestrant)

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