Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 07:02PM

Posted on: Aug 16, 2013 07:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Sep 24, 2017 02:34AM Bluebird-DE wrote:

Your comment, Z, rang true for me. "They treat cancer as a disease of the immune system and they treat the immune system, not the cancer."

In dealing with lupus, scleroderma, autoimmune hypothyroid and cancer, my immune system is attacking me daily and not doing its job. It is a very sick immune system, indeed. I will be following your progressand information. Thank you.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Sep 24, 2017 11:21AM Scwilly wrote:

Zarovka, I am so sorry to hear of your progression. You have always been so supportive of me and all of us on these threads.

Interesting to think about the immune system and cancer. Mine has always been great, both prior to and during treatment. I didn't catch anything other than normals colds whilst on my first round of chemo (ACT) back in 2013, and neither under Ibrance and now Xeloda (well not been on that for long) But I read all the info you give with great interest, I think I might step up my reading (sometimes I feel a littlest reticent in case I find out something not encouraging for me) and really get to understand (if I can) What gets me is how it seems a game of chance what will work for some and won't for others!

I will be rooting for you on your next treatment course and admire you for your grit and determination.

Dx 11/4/2013, IBC, Left, 2cm, Stage IIIB, Grade 2, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 11/14/2013 AC Chemotherapy 1/14/2014 Taxol (paclitaxel) Surgery 4/29/2014 Radiation Therapy 6/24/2014 Whole breast: Breast, Lymph nodes, Chest wall Dx 2/16/2015, DCIS, Right, 2cm, Stage 0, Grade 2, 0/6 nodes, ER+/PR-, HER2- Surgery 4/6/2015 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 3/23/2016 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 11/15/2016, Stage IV, metastasized to liver, ER+ Hormonal Therapy 11/15/2016 Arimidex (anastrozole) Targeted Therapy 2/17/2017 Ibrance (palbociclib) Chemotherapy 8/31/2017 Xeloda (capecitabine) Dx 4/5/2018, Stage IV, metastasized to bone, ER+ Surgery 4/5/2018 Radiation Therapy 4/18/2018 Chemotherapy 5/3/2018 Other Chemotherapy 7/27/2018 Carboplatin (Paraplatin) Chemotherapy 9/20/2018 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Aromasin (exemestane)
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Sep 24, 2017 12:49PM JFL wrote:

Z, I am sorry to hear about your progression but am so excited you have the NKC therapy opportunity in Japan. I can't wait to hear updates about your status and please take some time to enjoy Japan. You can take the high speed train from Tokyo to many other cities for day trips. When I was there, I visited Osaka, Kobe and Kyoto that way. Tokyo is one of my favorite cities in the world
Chart your own course. Dx at 30. Dx with mets at 38 while pregnant - extensive liver & bone involvement. Currently on Enhertu & XGeva. ER+/PR+, HER2-low (IHC equivocal, +2/FISH negative). Y90 liver radioembolization in 2018. Dx 9/2006, IDC, Right, 1cm, Stage IIB, Grade 3, 1/16 nodes, ER+/PR+, HER2-, Surgery 9/22/2006 Mastectomy: Left, Right Chemotherapy 11/6/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Surgery 12/26/2014 Prophylactic ovary removal Hormonal Therapy 12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy 6/18/2015 Ibrance (palbociclib) Chemotherapy 3/10/2016 Xeloda (capecitabine) Hormonal Therapy 5/14/2017 Aromasin (exemestane) Targeted Therapy 5/14/2017 Afinitor (everolimus) Chemotherapy 8/18/2017 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/23/2018 Doxil (doxorubicin) Chemotherapy 4/26/2019 Navelbine (vinorelbine) Hormonal Therapy 4/26/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 11/27/2019 Gemzar (gemcitabine) Hormonal Therapy 8/25/2020 Faslodex (fulvestrant) Targeted Therapy 8/25/2020 Piqray (alpelisib) Targeted Therapy 10/2/2020 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Sep 24, 2017 12:53PM Emily-Louise wrote:

Has anyone had any experience with

Radioembolization I have mapping this Tuesday, with surgery booked for the following Tuesday, would appreciate any feedback :) Thanks xx
Surgery 10/10/2008 Dx 10/15/2008, Left, 6cm+, Stage IIIA, Grade 3, 4/12 nodes, ER+/PR+, HER2- Chemotherapy 1/1/2009 AC + T (Taxol) Hormonal Therapy 10/4/2009 Femara (letrozole), Zoladex (goserelin) Dx 6/4/2015, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 6/25/2015 Dx 9/22/2016, Left, 2cm, Stage IV, metastasized to liver/lungs, ER+/PR+, HER2- Chemotherapy 10/10/2016 Carboplatin (Paraplatin), Taxol (paclitaxel)
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Sep 24, 2017 12:59PM Emily-Louise wrote:

Z, sorry to hear of progression, but my goodness the trial sounds exciting! Wish you all the best, safe travels and look forward to hearing how you go x

Surgery 10/10/2008 Dx 10/15/2008, Left, 6cm+, Stage IIIA, Grade 3, 4/12 nodes, ER+/PR+, HER2- Chemotherapy 1/1/2009 AC + T (Taxol) Hormonal Therapy 10/4/2009 Femara (letrozole), Zoladex (goserelin) Dx 6/4/2015, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2- Targeted Therapy 6/25/2015 Dx 9/22/2016, Left, 2cm, Stage IV, metastasized to liver/lungs, ER+/PR+, HER2- Chemotherapy 10/10/2016 Carboplatin (Paraplatin), Taxol (paclitaxel)
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Sep 24, 2017 04:14PM momallthetime wrote:

ZZZZZZZZZZZZZZ cannot cannot even imagine your shock. I would thou love to hear your cursing. I am shaking as I am reading these posts. When are you going? I could send you a copy of D's biopsy results, i'll pm you. How did that dinner go?? anyone poisoned? Oh moms moms, one cannot even imagine the length we go for these kids...

Image result for superwoman cartoon

I was looking for the right face, i did away with the ones with the docile face.

That angel the one you founs, is the one we all bump into from time to time, every bump in trying to get it right, (and there were tons) were only managed by these angels, every day so called medical people are working robots. NO is the vocabulary. Obviously your Onco is in the wrong business, i know you know that.

I am waiting for this week's BT if it's going up again, i sure hope they start gearing up for Immnuno. Can't even think straight till the results coming in, so much anxiety.

You've got the whole caravan here backing you up. Thanks so much for all the info you posted. You got this, baby.

NO1-2Nov were you feeling breathless? Dani got some lesions in her lung also and it got worse, but no rads are allowed in this trial, so we gotta wait it out. Would they do something about it for you?

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Sep 24, 2017 08:25PM Grannax2 wrote:

Emily Louise I've had radioembolization y-90. Is that what you're having? Some my info is on this thread but most is on the local treatment thread.

In general, it wasn't too hard for me. And the most recent scan showed no uptake in any of my multiple tumors.

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Sep 24, 2017 09:46PM zarovka wrote:

MomATT -

The cherry on the top was the phone call at 4:20 pm from my MO, as I was driving home from the biopsy, she wanted to know how I was doing ... first contact after my scan report had been posted the day before despite trying to reach her several times in the morning. I was gracious and grateful, as we must be. Proud of myself. We must keep our eye on the prize, which is getting the best care from a system over which we have very little control or even influence.

I just wrote her a lovely note, complementing her staff and explaining my upcoming treatment protocol. Chances are zero she will read it.


Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/17/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Sep 24, 2017 10:42PM momallthetime wrote:

Oh the prize, know it too well. I've pretzel myself so many times, thanks to you and to these wonderful women here that reigned me in. I am quite patient person, really, BUT when I see injustice uggghhh i really have to work on myself!

You did good, you never know when you might need her, well she better be there for you. Trust me it all changes real fast when one of these in medical profession become a patient themselves or someone very close to them, they sure sing a different tune.

Best of luck for you in your wonderful endeavor

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Sep 25, 2017 10:47AM NO1-2NV wrote:


It feels more like I could not take a deep breath. This has been a symptom for awhile and seems to be getting worse or more frequent. I had expressed this to my MO back in June. She checked with pharma regarding side effects to the various drugs for both cancer and the partial hand paralysis. Pharma assured her that the meds I was on should not be causing an issue. During my last visit in August we decided that we needed to get a scan. I do not know if this issue was present on the scans I had in June and the radiologist just did not mention the issue or if this is new. One of the causes of the partial collapse can be a result of surgery. I was on the OR table for 12 hours July '16 while they did major reconstruction on my back due to spinal tumors and a collapse causing spinal cord compression...hence the partial hand paralysis. No mets in the lungs...knock on wood. Hopefully my MO will call be this week and we can get this all sorted out.

Z...may the luck of my Irish ancestors travel with you on this journey. May the treatment be successful and may the outcome of your health return.


Dx 8/3/2011, IDC, 5cm, Stage IIB, Grade 3, 1/3 nodes, mets, ER+/PR+, HER2- Radiation Therapy 3/1/2012 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/29/2012 Arimidex (anastrozole) Dx 12/6/2015, IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- Radiation Therapy 12/20/2015 External: Bone Chemotherapy 5/19/2016 Doxil (doxorubicin) Hormonal Therapy 5/12/2017 Faslodex (fulvestrant) Targeted Therapy 6/30/2017 Ibrance (palbociclib) Chemotherapy 10/17/2017 Xeloda (capecitabine)

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