Sep 25, 2017 11:48AM - edited Sep 25, 2017 11:58AM by lisbet54
Hi again, I need advice. I wrote here a couple of weeks ago - very anxious about liver pains and additional pains in my left side. I am newly diagnosed stage 4 with liver mets (as of May 2017) and have been on Faslodex/Ibrance since July. I have anxiously waited for the results of my first scan after starting treatment. I had the scan last week and have a scheduled appointment with an oncologist (not MY oncologist - as I always see a new one due to the public health care system in DK) this Thursday.
I just made the TERRIBLE mistake of going to my electronic medical log where all test-results are stored just to see my blood work results. However, the scan results were already there and accidentally I read them. It turns out that there is a huge progression in the number of liver mets. From several rather small lesions, the metastases have now grown to fill up one third of the right hepatic lobe + additional mets in the left. Besides that it seems that now the bones in my lower back have also been attacked. I'm in chock but not surprised. I have had so terrible pains in my liver – like knives turning around. And though I hoped it was a symptom of 'dying metastases' as some have suggested, I could hardly believe that.
I know from this forum that Ibrance can take up to 5-6 cycles to work. However, with this kind of progression on Faslodex/Ibrance would it not be wise to go to another kind of drug - or should I give it more time?
What kind of drug could be the next step after Ibrance/Faslodex (Letrozole has already failed me)?