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babs6287
Joined:
Aug 2012
Posts:
2,021
Latest activity:
Oct 14, 2018
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Sep 26, 2017 06:16AM
babs6287
wrote:
Momall. That's just unbelievable! Keep us posted on Dani. Sending you a big virtual hug!!!!!
Bab
Dx
8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2-
Surgery
8/23/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left
Chemotherapy
9/20/2012 AC + T (Taxol)
Radiation Therapy
1/20/2013 Breast, Lymph nodes
Hormonal Therapy
3/21/2013 Aromasin (exemestane)
Surgery
8/28/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Surgery
10/29/2013 Reconstruction (left)
Surgery
1/27/2014 Reconstruction (left)
Surgery
5/17/2014 Reconstruction (left)
Surgery
10/16/2014 Reconstruction (left); Reconstruction (right)
Dx
1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2-,
Hormonal Therapy
2/16/2015 Femara (letrozole)
Targeted Therapy
3/13/2015 Ibrance (palbociclib)
Dx
10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2-
Targeted Therapy
10/23/2015
Chemotherapy
12/31/2015 Xeloda (capecitabine)
Chemotherapy
10/6/2016 CMF
Chemotherapy
12/9/2016 Taxol (paclitaxel)
Chemotherapy
4/26/2017 Gemzar (gemcitabine)
Chemotherapy
6/21/2017 Halaven (eribulin)
Targeted Therapy
8/9/2017
Chemotherapy
11/29/2017 Halaven (eribulin)
Chemotherapy
12/13/2017 Doxil (liposomal doxorubicin)
Chemotherapy
7/25/2018 Halaven (eribulin)
K
kaayborg
Joined:
Apr 2015
Posts:
612
Latest activity:
May 21, 2018
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Sep 26, 2017 06:40AM
kaayborg
wrote:
Mom, so sorry to hear about Dani. Hope all is well this morning and she is still able to stay on the trial. Not at all okay that the dr office is so unresponsive in an emergency. I just don't understand that.
Thanks all for your supportive words. Good to be reminded of the hope of immunotherapy and I like the idea that the faster things pop up the faster they can disappear. I'm banking on that. I am very thankful to have my MO. I don't think I mentioned that she did all of this at 10 pm on a Sunday evening. Quite amazing.Enjoying the leisurely morning before my noon appt.
Dx
6/24/2014, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2-
Surgery
7/16/2014 Lumpectomy: Left
Chemotherapy
8/20/2014 AC + T (Taxol)
Surgery
1/4/2015 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Surgery
3/31/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Dx
7/24/2015, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2-
Chemotherapy
8/3/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
6/21/2016 Carboplatin (Paraplatin)
Chemotherapy
9/13/2017 Xeloda (capecitabine)
Chemotherapy
9/25/2017 Halaven (eribulin)
Targeted Therapy
11/13/2017
Chemotherapy
2/5/2018 Gemzar (gemcitabine)
5
50sgirl
Joined:
Jul 2015
Posts:
2,557
Latest activity:
Jan 15, 2023
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Sep 26, 2017 06:51AM
50sgirl
wrote:
Mom, I hope that Dani has been given some answers and treatment by now. She has been through so muc, as have you. I am lifting you both up in prayer. Let us know how things are going when you have a chance. (((Hugs))).
Kaayborg, Your onc sounds amazing. I hope that your new treatment plan knocks out those cancer cells quickly. I look forward to reading your updates.
Hugs and prayers, Lynne
Dx
6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2-
Hormonal Therapy
6/9/2015 Arimidex (anastrozole)
Dx
8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2-
Hormonal Therapy
8/10/2016 Faslodex (fulvestrant)
Targeted Therapy
8/30/2016 Ibrance (palbociclib)
Hormonal Therapy
7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Chemotherapy
10/2/2018 Xeloda (capecitabine)
Chemotherapy
2/10/2019 Taxol (paclitaxel)
Hormonal Therapy
11/12/2019 Aromasin (exemestane)
Targeted Therapy
11/13/2019 Afinitor (everolimus)
Hormonal Therapy
12/26/2019 Femara (letrozole)
Chemotherapy
3/8/2020 Adriamycin (doxorubicin)
Targeted Therapy
2/6/2021 Verzenio
Chemotherapy
4/12/2021 Halaven (eribulin)
Chemotherapy
9/30/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Chemotherapy
2/11/2022 Ixempra (ixabepilone)
Local Metastases
Whole brain radiation: Brain
G
Grannax2
Joined:
Jan 2017
Posts:
2,522
Latest activity:
Jan 23, 2022
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Sep 26, 2017 08:06AM
Grannax2
wrote:
Kaayborg. What is the name of the immunotherapy you will be taking? Is it a pill? Whatever it is, I'm praying it will work ASAP. I have a very caring MO. too. I knew I would like her before I met her. I live in the Dallas area, Texas Oncology has the monopoly here. My MO, however, has gone out on her own. I was impressed by that and chose her. I think she would be like your MO if I am ever in your situation. She really listens and she cares about me. And, she's smart.
Z. Wherever you are, I thought you would want to know that I start today at the CARE exercise program. It's free for 16 weeks to cancer patients in treatment. For some reason, I'm nervous about it. I'm hoping it will help me feel better and help with the fatigue.
Life keeps on happening to my little family. Two weeks ago today., my daughter in law's father died. He literally dropped dead. We still don't know the cause. It takes eight weeks for the autopsy report to get back. Everyone is still in shock. He was only 64 and was not sick. To say the past two weeks has been stressful is an understatement.
Yesterday, the trainer asked if I needed help with stress, YES,I believe I do.
K
kaayborg
Joined:
Apr 2015
Posts:
612
Latest activity:
May 21, 2018
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Sep 26, 2017 08:25AM
kaayborg
wrote:
Grannax, it is nivolumab (Opdivo). IV administration over about 60 minutes. Still not sure whether we'll be combining with eribulin, having it as a back up if eribulin doesn't do anything, or perhaps using it to prime the pump for eribulin. Just read this...
http://oncologypro.esmo.org/Meeting-Resources/ESMO...
...which supports the idea of priming. I know we can't start nivo right away because it will take too long to get approval for it off-study/label.
So glad you have such excellent care as well!
Dx
6/24/2014, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2-
Surgery
7/16/2014 Lumpectomy: Left
Chemotherapy
8/20/2014 AC + T (Taxol)
Surgery
1/4/2015 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Surgery
3/31/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Dx
7/24/2015, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2-
Chemotherapy
8/3/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
6/21/2016 Carboplatin (Paraplatin)
Chemotherapy
9/13/2017 Xeloda (capecitabine)
Chemotherapy
9/25/2017 Halaven (eribulin)
Targeted Therapy
11/13/2017
Chemotherapy
2/5/2018 Gemzar (gemcitabine)
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Bluebird-DE
Joined:
Jan 2012
Posts:
1,941
Latest activity:
Jun 25, 2018
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Sep 26, 2017 01:21PM
Bluebird-DE
wrote:
NOV1 - you have been through it. My right lung, upper lobe collapsed in summer 2016 until a few months ago. I had terrible left back pain, didn't understand until the scan revealed. Breathless, couldn't sleep on my right side, would cough and see stars literal stars.
MomATT - We're with you two. Is this a new doctor / center for her?
Have been off Xeloda for three weeks, long story - starting today. My liver has felt all right for days now. When I take the Xeloda, if there are dying cancer cells then I feel pain. Will see how it goes.
"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane
Dx
7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2-
Chemotherapy
4/4/2017 Xeloda (capecitabine)
Hormonal Therapy
Femara (letrozole)
Hormonal Therapy
Faslodex (fulvestrant)
Targeted Therapy
Ibrance (palbociclib)
Hormonal Therapy
Arimidex (anastrozole)
Surgery
Lumpectomy: Right; Lymph node removal: Left
Radiation Therapy
External: Lymph nodes
H
hartrish
Joined:
Mar 2015
Posts:
380
Latest activity:
Jul 11, 2020
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Sep 26, 2017 03:28PM
hartrish
wrote:
Bluebird: I just started carbo and Gemzar for my Liver Mets. I was interested in your previous comment about pain when your Xeloda was working and cancer cells dying.
I have some pain at times and I think it is too early to say my pain is from dying cancer cells or progression on the chemo. I have had 1 round of chemo and begin 2nd cycle Oct 3rd. I am sure hoping the pain is from dying cancer cells and not progression. Really scared that the chemo is not keeping up with the cancer. Next MRI is end of Nov or beginning of Dec. My oncwill do TM on Oct 3rd and see if decreasing.
Dx
3/9/2015, ILC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER-/PR-, HER2-,
Dx
3/9/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-,
Surgery
4/15/2015 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Chemotherapy
7/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
8/29/2017, ILC, Stage IV, metastasized to liver, ER-/PR-, HER2-,
Chemotherapy
9/7/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
9/10/2019 Xeloda (capecitabine)
H
hartrish
Joined:
Mar 2015
Posts:
380
Latest activity:
Jul 11, 2020
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Sep 26, 2017 03:35PM
hartrish
wrote:
Kaayborg: just checking to see how your appointment went today.
Dx
3/9/2015, ILC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER-/PR-, HER2-,
Dx
3/9/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-,
Surgery
4/15/2015 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Chemotherapy
7/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
8/29/2017, ILC, Stage IV, metastasized to liver, ER-/PR-, HER2-,
Chemotherapy
9/7/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
9/10/2019 Xeloda (capecitabine)
Z
zarovka
Joined:
Feb 2016
Posts:
3,597
Latest activity:
Oct 31, 2018
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Sep 26, 2017 03:38PM
- edited
Sep 26, 2017 03:39PM
by
zarovka
Go Grannax - Exercise is always a good idea but I really understand being nervous. Are we sick, are we not sick? Weird disease. But get out into that program and go for it. It will help.
MomATT - You lucky duck! An actual doctor on call! The message at my center says call 911.
>Z<
Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex.
Dx
12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2-
Hormonal Therapy
1/16/2016 Femara (letrozole)
Targeted Therapy
2/2/2016 Ibrance (palbociclib)
S
ShetlandPony
Joined:
Apr 2015
Posts:
4,885
Latest activity:
Feb 27, 2022
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Sep 26, 2017 03:45PM
ShetlandPony
wrote:
I was away for a long weekend, so I'm three pages behind here. Was thinking about Z's trip, saw the latest post, and just wanted to jump in and offer my support to you, Zarovka, as you process first signs of progression and head for cutting-edge treatment in Japan. I hope your treatment experience goes smoothly, that you get to enjoy some great sightseeing, and that your daughter gets to see a Totoro.
Back later to catch up.
2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets
Dx
2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
Dx
2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2-
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast: Breast
Surgery
Lumpectomy
