Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 06:02PM

Posted on: Aug 16, 2013 06:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Sep 26, 2017 06:16AM babs6287 wrote:

Momall. That's just unbelievable! Keep us posted on Dani. Sending you a big virtual hug!!!!!

Bab

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/20/2012 AC + T (Taxol) Radiation Therapy 1/20/2013 Breast, Lymph nodes Hormonal Therapy 3/21/2013 Aromasin (exemestane) Surgery 8/28/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/29/2013 Reconstruction (left) Surgery 1/27/2014 Reconstruction (left) Surgery 5/17/2014 Reconstruction (left) Surgery 10/16/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2-, Hormonal Therapy 2/16/2015 Femara (letrozole) Targeted Therapy 3/13/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/23/2015 Chemotherapy 12/31/2015 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/26/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/9/2017 Chemotherapy 11/29/2017 Halaven (eribulin) Chemotherapy 12/13/2017 Doxil (liposomal doxorubicin) Chemotherapy 7/25/2018 Halaven (eribulin)
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Sep 26, 2017 06:40AM kaayborg wrote:

Mom, so sorry to hear about Dani. Hope all is well this morning and she is still able to stay on the trial. Not at all okay that the dr office is so unresponsive in an emergency. I just don't understand that.

Thanks all for your supportive words. Good to be reminded of the hope of immunotherapy and I like the idea that the faster things pop up the faster they can disappear. I'm banking on that. I am very thankful to have my MO. I don't think I mentioned that she did all of this at 10 pm on a Sunday evening. Quite amazing.Enjoying the leisurely morning before my noon appt.

Dx 6/24/2014, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 7/16/2014 Lumpectomy: Left Chemotherapy 8/20/2014 AC + T (Taxol) Surgery 1/4/2015 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/31/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/24/2015, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2- Chemotherapy 8/3/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 6/21/2016 Carboplatin (Paraplatin) Chemotherapy 9/13/2017 Xeloda (capecitabine) Chemotherapy 9/25/2017 Halaven (eribulin) Targeted Therapy 11/13/2017 Chemotherapy 2/5/2018 Gemzar (gemcitabine)
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Sep 26, 2017 06:51AM 50sgirl wrote:

Mom, I hope that Dani has been given some answers and treatment by now. She has been through so muc, as have you. I am lifting you both up in prayer. Let us know how things are going when you have a chance. (((Hugs))).

Kaayborg, Your onc sounds amazing. I hope that your new treatment plan knocks out those cancer cells quickly. I look forward to reading your updates.

Hugs and prayers, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 6/9/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/30/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/10/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/26/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 9/30/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex) Chemotherapy 2/11/2022 Ixempra (ixabepilone) Local Metastases Whole brain radiation: Brain
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Sep 26, 2017 08:06AM Grannax2 wrote:

Kaayborg. What is the name of the immunotherapy you will be taking? Is it a pill? Whatever it is, I'm praying it will work ASAP. I have a very caring MO. too. I knew I would like her before I met her. I live in the Dallas area, Texas Oncology has the monopoly here. My MO, however, has gone out on her own. I was impressed by that and chose her. I think she would be like your MO if I am ever in your situation. She really listens and she cares about me. And, she's smart.

Z. Wherever you are, I thought you would want to know that I start today at the CARE exercise program. It's free for 16 weeks to cancer patients in treatment. For some reason, I'm nervous about it. I'm hoping it will help me feel better and help with the fatigue.

Life keeps on happening to my little family. Two weeks ago today., my daughter in law's father died. He literally dropped dead. We still don't know the cause. It takes eight weeks for the autopsy report to get back. Everyone is still in shock. He was only 64 and was not sick. To say the past two weeks has been stressful is an understatement.

Yesterday, the trainer asked if I needed help with stress, YES,I believe I do.

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Sep 26, 2017 08:25AM kaayborg wrote:

Grannax, it is nivolumab (Opdivo). IV administration over about 60 minutes. Still not sure whether we'll be combining with eribulin, having it as a back up if eribulin doesn't do anything, or perhaps using it to prime the pump for eribulin. Just read this...

http://oncologypro.esmo.org/Meeting-Resources/ESMO...

...which supports the idea of priming. I know we can't start nivo right away because it will take too long to get approval for it off-study/label.

So glad you have such excellent care as well!

Dx 6/24/2014, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 7/16/2014 Lumpectomy: Left Chemotherapy 8/20/2014 AC + T (Taxol) Surgery 1/4/2015 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/31/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/24/2015, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2- Chemotherapy 8/3/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 6/21/2016 Carboplatin (Paraplatin) Chemotherapy 9/13/2017 Xeloda (capecitabine) Chemotherapy 9/25/2017 Halaven (eribulin) Targeted Therapy 11/13/2017 Chemotherapy 2/5/2018 Gemzar (gemcitabine)
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Sep 26, 2017 01:21PM Bluebird-DE wrote:

NOV1 - you have been through it. My right lung, upper lobe collapsed in summer 2016 until a few months ago. I had terrible left back pain, didn't understand until the scan revealed. Breathless, couldn't sleep on my right side, would cough and see stars literal stars.

MomATT - We're with you two. Is this a new doctor / center for her?

Have been off Xeloda for three weeks, long story - starting today. My liver has felt all right for days now. When I take the Xeloda, if there are dying cancer cells then I feel pain. Will see how it goes.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Sep 26, 2017 03:28PM hartrish wrote:

Bluebird: I just started carbo and Gemzar for my Liver Mets. I was interested in your previous comment about pain when your Xeloda was working and cancer cells dying.

I have some pain at times and I think it is too early to say my pain is from dying cancer cells or progression on the chemo. I have had 1 round of chemo and begin 2nd cycle Oct 3rd. I am sure hoping the pain is from dying cancer cells and not progression. Really scared that the chemo is not keeping up with the cancer. Next MRI is end of Nov or beginning of Dec. My oncwill do TM on Oct 3rd and see if decreasing.

Dx 3/9/2015, ILC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER-/PR-, HER2-, Dx 3/9/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-, Surgery 4/15/2015 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 7/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 8/29/2017, ILC, Stage IV, metastasized to liver, ER-/PR-, HER2-, Chemotherapy 9/7/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 9/10/2019 Xeloda (capecitabine)
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Sep 26, 2017 03:35PM hartrish wrote:

Kaayborg: just checking to see how your appointment went today.

Dx 3/9/2015, ILC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER-/PR-, HER2-, Dx 3/9/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-, Surgery 4/15/2015 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 7/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 8/29/2017, ILC, Stage IV, metastasized to liver, ER-/PR-, HER2-, Chemotherapy 9/7/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 9/10/2019 Xeloda (capecitabine)
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Sep 26, 2017 03:38PM - edited Sep 26, 2017 03:39PM by zarovka

Go Grannax - Exercise is always a good idea but I really understand being nervous. Are we sick, are we not sick? Weird disease. But get out into that program and go for it. It will help.

MomATT - You lucky duck! An actual doctor on call! The message at my center says call 911.

>Z<

Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/16/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Sep 26, 2017 03:45PM ShetlandPony wrote:

I was away for a long weekend, so I'm three pages behind here. Was thinking about Z's trip, saw the latest post, and just wanted to jump in and offer my support to you, Zarovka, as you process first signs of progression and head for cutting-edge treatment in Japan. I hope your treatment experience goes smoothly, that you get to enjoy some great sightseeing, and that your daughter gets to see a Totoro.

Back later to catch up.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Surgery Lumpectomy

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