Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 07:02PM

Posted on: Aug 16, 2013 07:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Sep 26, 2017 04:47PM hartrish wrote:

lisbet: how are you doing? Have they changed your treatment yet? I am newly dx Liver Mets as well and am anxious if my chemo is working or not. I am TNBC so limited on some future options. Lifting you up today and everyday to give you strength

Dx 3/9/2015, ILC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER-/PR-, HER2-, Dx 3/9/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-, Surgery 4/15/2015 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 7/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 8/29/2017, ILC, Stage IV, metastasized to liver, ER-/PR-, HER2-, Chemotherapy 9/8/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 9/11/2019 Xeloda (capecitabine)
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Sep 27, 2017 12:35AM artistatheart wrote:

Wow kaayborg, that was an abrupt about face on Tx. i am glad your Onc is so on top of things and hope this is a winner for you.

You too Z! Off to Japan for a whole new protocol. You are truly amazing. Have a great trip, we are all very interested in this whole concept.

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/10/2015 Femara (letrozole) Targeted Therapy 8/25/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Sep 27, 2017 06:13AM kaayborg wrote:

I'll just post this friend/family update to you here as well, my online friends and family:

I didn't expect that the scans would be good but turns out they were worse than I thought. No measurements to give you about the growth. Basically new tumors are growing so close to old ones and to each other, they cannot accurately measure them. Tumor load is estimated to be worse than it was at diagnosis two years ago. Liver function is okay, abnormal and higher still but no immediate threat of failure. However, Dr. Lustberg stated it is very important that this treatment work. Progression is rapid.

We have been considering for some time at what point it would be appropriate to tell the girls that these treatments won't keep me alive forever. Today's news helped us to decide along with the counsel of staff at the Spielman. While we still remain hopeful that I may get a durable response out of eribulin, if I do not, and things progress faster than the next treatment can keep up with, the end will be soon. I feel they deserve the opportunity to process this over time and with us, not alone. The conversation went as well as I think it could have. A horrible thing to have to do but I know God will take care of us all, and we believe it was the right thing to do and the right time to do it.

Things to hope and pray for:

a change in the tumor make up...achieving HER2+ status occurs 30% of the time and gives many more potentially effective treatment options, or anything else that opens doors

insurance approval of immunotherapy off label to add to eribulin, increasing chances of its effectiveness and durability

a liver that tolerates decline slowly so treatments have a chance to be effective

the resiliency of our children...us too

Dx 6/24/2014, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 7/16/2014 Lumpectomy: Left Chemotherapy 8/21/2014 AC + T (Taxol) Surgery 1/4/2015 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/31/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/24/2015, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2- Chemotherapy 8/4/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 6/21/2016 Carboplatin (Paraplatin) Chemotherapy 9/13/2017 Xeloda (capecitabine) Chemotherapy 9/25/2017 Halaven (eribulin) Targeted Therapy 11/14/2017 Chemotherapy 2/6/2018 Gemzar (gemcitabine)
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Sep 27, 2017 07:06AM PHOTOGIRL-62 wrote:

kaayborg, I'm shocked by this news of so much progression! I hope they can slow it down ASAP. I'm thinking of you and your family. This disease is so horrible!!! Don't lose hope yet, they might have something to keep this at bay. I'm praying for you and your family!

Hugs to you,

Anita

Dx 10/30/2008, IDC, Right, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 8/24/2016, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Sep 27, 2017 07:14AM babs6287 wrote:

Kaaborg. I'm so sorry about your progression. And so sorry you had to have that talk with your girls. That's the hardest thing to do! I am hoping and praying that the drs find something that will put a stop to further progression and improves your condition. This disease really does suck!

Sending you hugs

Bab

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/24/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/21/2012 AC + T (Taxol) Radiation Therapy 1/21/2013 Breast, Lymph nodes Hormonal Therapy 3/22/2013 Aromasin (exemestane) Surgery 8/29/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/30/2013 Reconstruction (left) Surgery 1/28/2014 Reconstruction (left) Surgery 5/18/2014 Reconstruction (left) Surgery 10/17/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2-, Hormonal Therapy 2/17/2015 Femara (letrozole) Targeted Therapy 3/14/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/24/2015 Chemotherapy 1/1/2016 Xeloda (capecitabine) Chemotherapy 10/6/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/27/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/10/2017 Chemotherapy 11/29/2017 Halaven (eribulin) Chemotherapy 12/14/2017 Doxil (liposomal doxorubicin) Chemotherapy 7/26/2018 Halaven (eribulin)
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Sep 27, 2017 09:12AM kaylynne wrote:

Kay (kaayborg)

Heartbreaking news. I've only recently became a part of this blog family but I want you to know your posts are an inspiration to me, full of information, compassion and honesty. It's hard enough discussing this with grown adult children and I can't imagine explaining this to your young daughters. I am sending love and light to you and praying for new doors to open.

Kay (kaylynne)


Kay Edgar Dx 4/20/2017, IDC, Left, 2cm, Stage IV, metastasized to liver, Grade 3, ER-/PR-, HER2-, Chemotherapy 5/5/2017 AC Chemotherapy 9/12/2017 Taxol (paclitaxel) Chemotherapy 12/7/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 2/15/2018 Xeloda (capecitabine)
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Sep 27, 2017 12:00PM Grannax2 wrote:

Kaayborg . Praying for all your requests. I'm guessing that you'll have to have a liver BX to determine a change in hormone status?

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Sep 27, 2017 12:31PM lisbet54 wrote:

Hartrish - no, I have the appointment with the doctor tomorrow morning. I just read the scan results for myself. Pretty sure they will give me extra time for the appointment because of the huge progression in such a short time - and really hoping for one of the nice and empathic doctors. (Several of them are so young and besides that they're foreigners and speak a poor Danish).

Kayyborg, so sorry to hear about your progression. Heartbreaking to share the news with your children. Praying for you that you will get the right treatment and have years ahead of you!

Dx 4/2001, ILC, Left, Stage IIA, Grade 3 Dx 5/2008, LCIS/DCIS, Left, 2cm, Stage IIIA, Grade 3, 9/18 nodes, ER+, HER2- Dx 5/2014, LCIS/ILC, Left, 1cm, Stage IIIC, Grade 3, ER+, HER2- Hormonal Therapy 2/28/2015 Femara (letrozole) Dx 6/2017, LCIS/DCIS/ILC, Stage IV, metastasized to liver, ER+, HER2- Hormonal Therapy 7/4/2017 Faslodex (fulvestrant) Targeted Therapy 7/4/2017 Ibrance (palbociclib) Chemotherapy 10/25/2017 Taxol (paclitaxel) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane) Surgery Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Prophylactic ovary removal Surgery Mastectomy: Left Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 27, 2017 12:49PM - edited Sep 27, 2017 01:26PM by Scwilly

Kaaborg: I am heartbroken for you to hear your news of progression. I know no words will be of comfort, just know there are so many of us thinking of you and wishing you better news and success.

I was originally TN and my liver biopsy returned ER+. Whilst I got 7 months from Ibrance/Anastrozole, I did get some progression in August. I have always worried about the spots in my liver being made up of mixed types. Interesting to hear of change to Her2+. I wonder sometimes whether I would benefit of another liver biopsy on the spots that have grown.

Lisbet: wishing you good news in your appointment.


Sarah

Dx 11/4/2013, IBC, Left, 2cm, Stage IIIB, Grade 2, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 11/14/2013 AC Chemotherapy 1/14/2014 Taxol (paclitaxel) Surgery 4/29/2014 Radiation Therapy 6/24/2014 Whole breast: Breast, Lymph nodes, Chest wall Dx 2/16/2015, DCIS, Right, 2cm, Stage 0, Grade 2, 0/6 nodes, ER+/PR-, HER2- Surgery 4/6/2015 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 3/23/2016 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 11/15/2016, Stage IV, metastasized to liver, ER+ Hormonal Therapy 11/15/2016 Arimidex (anastrozole) Targeted Therapy 2/17/2017 Ibrance (palbociclib) Chemotherapy 8/31/2017 Xeloda (capecitabine) Dx 4/5/2018, Stage IV, metastasized to bone, ER+ Surgery 4/5/2018 Radiation Therapy 4/18/2018 Chemotherapy 5/3/2018 Other Chemotherapy 7/27/2018 Carboplatin (Paraplatin) Chemotherapy 9/20/2018 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Aromasin (exemestane)
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Sep 27, 2017 01:33PM - edited Sep 27, 2017 02:42PM by lalady1

Kaayborg - chiming in on shocked with your progression, but applaud including family and girls at this point. Rooting for next med (havalen) and TN change to +, when do you start? Also hoping a trial can be in your pocket. Please keep us posted.

(()) Claire

Surgery 1/30/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 9/9/2013 Breast, Lymph nodes Hormonal Therapy 1/7/2016 Arimidex (anastrozole), Faslodex (fulvestrant) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Targeted Therapy 5/17/2017 Afinitor (everolimus) Chemotherapy 8/15/2017 Abraxane (albumin-bound or nab-paclitaxel) Dx IDC, Left, Grade 3, 1/1 nodes, ER+/PR+, HER2-

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