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Wendy3
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Aug 2015
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1,003
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May 23, 2018
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Oct 22, 2017 10:07AM
Wendy3
wrote:
Yes animal crackers I saw that on web md as well not that I trust it . I think I'll take the medication /supplement train apparently it can also cause this and at my next appointment I will ask about my gallbladder. Thans
Dx
5/13/2015, IDC, Right, 2cm, Stage IV, metastasized to bone, ER+/PR+, HER2-
Hormonal Therapy
Faslodex (fulvestrant), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Z
zarovka
Joined:
Feb 2016
Posts:
3,597
Latest activity:
Nov 1, 2018
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Oct 22, 2017 01:05PM
zarovka
wrote:
Wendy - the flu like symptoms have been a response to meds or possibly a triggered immune response. i was burping a lot at some point... it was totally weird ... but not at the time of growth of liver mets. i think you have a long run ahead of you but i am glad you are watching how you feel. perhaps the flu like symptoms are ... the flu? it's funny how we can overlook the obvious. maybe you need hot tea and a brisk walk to move it through your system. (I am not much for bed rest, as you know.)
Take care.
Z
Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex.
Dx
12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2-
Hormonal Therapy
1/17/2016 Femara (letrozole)
Targeted Therapy
2/2/2016 Ibrance (palbociclib)
Z
zarovka
Joined:
Feb 2016
Posts:
3,597
Latest activity:
Nov 1, 2018
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Oct 22, 2017 01:20PM
zarovka
wrote:
Thank you Grannax. I start my last week of treatment here monday. Typhoon Lan hits Tokyo Bay at 6am on Monday, my appointment starts at noon. It is currently off the coast of southern Japan and a Class 4 storm.
I am told Monday will be a normal day in Tokyo as long as you can stay in the subway and buildings. The subway exits directly into the clinic building so that will be fine but my hotel is a 5 minute walk from the subway. It will be a long 5 minutes getting to the subway Monday morning for sure.
I am passed the chemo phase which was hard even though it was very low dose. I still get hyperthermia with most treatments and that is not a tea party but is easier for sure than chemo and hyperthermia. I am doing a lot better knowing that my CEA has leveled off. It was a little hard to feel that I was off treatment with demon liver mets from hell growing like fiends uncontrolled ... I think we've all been through that mental exercise.
>Z<
Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex.
Dx
12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2-
Hormonal Therapy
1/17/2016 Femara (letrozole)
Targeted Therapy
2/2/2016 Ibrance (palbociclib)
M
momallthetime
Joined:
Nov 2014
Posts:
1,562
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Dec 18, 2020
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Oct 22, 2017 02:50PM
momallthetime
wrote:
Zar unbelievable that on top of it all you'll have a story to tell about typhoons. Could you imagine your DD on the next show and tell? Yeeh for good news with the CEA, nice that you could at least see some improvement. That has been really hard work.
I think I am starting to understand what you meant re: rads, I'll ask. She is in such dire need for rads all over, including the orbital and other head areas, but they won't start till Y90 is done, IR said Y90 is too strong to have it in the same day as regular rads, and RO does not want a break, i'll wait till after the 1st angio and when we have a date for Y90 i'll try to bargain with RO.
Wendy wishing you to feel stronger fast. I had something like this come overnight, finally went to doc he said it could be the beginning of an Ulcer, he put me on Protonix and Zofran, because i was so nauseous, it took a few days but it got better, my burping kinda stayed, strangely i never had this, i am more careful in what i eat.
LindaE so sorry this stupid tx are not sticking. These are strong options, it seems that Onco wants to be aggressive, might not be a bad thing. How are you feeling? Where is the progression, in the liver?
K
Kandy
Joined:
Feb 2010
Posts:
1,445
Latest activity:
Jan 25, 2018
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Oct 22, 2017 03:55PM
Kandy
wrote:
Nib, I see MO on Tuesday, I'm planning on asking him then. I haven't seen him since I was released from the hospital. We should settle on something then. I'll definitely let you know what we decide and what his opinion is. Thanks for asking. Keeping everyone in my thoughts and prayers.
Dx
1/20/2009, IDC, 1cm, Stage IIIA, Grade 3, 4/9 nodes, ER+/PR+, HER2-
Surgery
2/26/2009 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary
Chemotherapy
3/9/2009 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Navelbine (vinorelbine)
Radiation Therapy
10/7/2009 Breast, Lymph nodes
Hormonal Therapy
1/4/2010 Arimidex (anastrozole)
Dx
10/31/2013, IDC, Stage IV, Grade 3, ER+/PR+, HER2-
Radiation Therapy
11/18/2013 3DCRT: Bone
Hormonal Therapy
12/3/2013 Faslodex (fulvestrant)
Targeted Therapy
10/7/2016 Afinitor (everolimus)
Hormonal Therapy
10/31/2016 Aromasin (exemestane)
Chemotherapy
2/2/2017 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
5/8/2017 Carboplatin (Paraplatin)
Chemotherapy
8/15/2017 Halaven (eribulin)
Targeted Therapy
B
BabyRuth
Joined:
Aug 2010
Posts:
263
Latest activity:
Nov 11, 2021
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Oct 22, 2017 04:03PM
BabyRuth
wrote:
Mom- I can not imagine having rads anytime soon after completing the Y90. I was in no shape to have been able to do that. When will the mapping for the Y90 be done? I hope it will be soon so she can get this step behind her.
I do remember the IR saying not to be in contact with small children but my kids are teenagers so I did not think too much about it.
Dx
12/29/2008, IDC, 2cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
Targeted Therapy
1/10/2009 Herceptin (trastuzumab)
Chemotherapy
3/19/2009 Carboplatin (Paraplatin), Taxotere (docetaxel)
Dx
4/23/2012, IDC, Grade 2, ER+/PR+, HER2+
Dx
5/13/2013, IDC, 2/2 nodes, ER+/PR+, HER2+
Chemotherapy
9/12/2013 Taxol (paclitaxel)
Dx
6/26/2015, IDC, 1cm, Stage IV, ER+/PR+, HER2+,
Chemotherapy
7/16/2015 Taxotere (docetaxel)
Targeted Therapy
7/16/2015 Herceptin (trastuzumab)
Targeted Therapy
7/16/2015 Perjeta (pertuzumab)
Hormonal Therapy
Faslodex (fulvestrant)
L
LindaE54
Joined:
Apr 2014
Posts:
2,047
Latest activity:
Jan 11, 2018
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Oct 23, 2017 01:27AM
LindaE54
wrote:
Wendy - no such symptoms for me.
Momall - Quite a week it will be for you and Dani. I'll be holding your hand in spirit. My progression is in liver and peritoneal mets.
Linda - dx at 54. Decision to stop all treatments on 9 Jan 2018
Dx
11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2-
Radiation Therapy
12/19/2013 External: Bone
Hormonal Therapy
12/30/2013 Femara (letrozole)
Hormonal Therapy
5/28/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
5/29/2014 External: Bone
Radiation Therapy
8/28/2014 External: Bone
Hormonal Therapy
9/25/2014 Femara (letrozole)
Radiation Therapy
12/14/2014 External: Bone
Hormonal Therapy
2/17/2017 Faslodex (fulvestrant)
Chemotherapy
5/15/2017 Taxol (paclitaxel)
Radiation Therapy
6/5/2017 External: Bone
Chemotherapy
10/3/2017 Ellence (epirubicin)
Chemotherapy
10/23/2017 CEF
Chemotherapy
12/27/2017 Halaven (eribulin)
M
momallthetime
Joined:
Nov 2014
Posts:
1,562
Latest activity:
Dec 18, 2020
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Oct 23, 2017 02:59AM
momallthetime
wrote:
LindaE giant hugs.
BabyRuth thx for the heads up, i cannot imagine a delay on the other rads. It's real urgent for danger reasons and things really bothering her. Oh my gosh!!! How long did it take you to get back to yourself.
Re: faslodex - she had that years ago. Aside from having it at room temperature, any other tips, the one she got last week, she had much pain on one leg for a while. Could be the way the nurse gave it to her.
J
JFL
Joined:
Mar 2015
Posts:
1,943
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Apr 21, 2021
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Oct 23, 2017 05:50AM
JFL
wrote:
Zarovka, hang in tight with the typhoon. I sympathize, begin in a hurricane zone. I hope you can make it to your Monday appointments.
Mom, this is all too much for one person to bear with what Dani is up against. I do find myself in amazement at how much it seems her doctors are fighting for her (the IR and RO, at least). It sounds like she is finally in the hands of some doctors that want to fight for her. So many times it seems that the doctors are ready to give up long before we are. I am happy to hear about these two and hope the fight continues with all of her doctors.
Chart your own course. Dx at 30. Dx with mets at 38 while pregnant - extensive liver & bone involvement. Currently on Enhertu & XGeva. ER+/PR+, HER2-low (IHC equivocal, +2/FISH negative). Y90 liver radioembolization in 2018.
Dx
9/2006, IDC, Right, 1cm, Stage IIB, Grade 3, 1/16 nodes, ER+/PR+, HER2-,
Surgery
9/23/2006 Mastectomy: Left, Right
Chemotherapy
11/6/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2-
Surgery
12/26/2014 Prophylactic ovary removal
Hormonal Therapy
12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant)
Targeted Therapy
6/18/2015 Ibrance (palbociclib)
Chemotherapy
3/10/2016 Xeloda (capecitabine)
Hormonal Therapy
5/14/2017 Aromasin (exemestane)
Targeted Therapy
5/14/2017 Afinitor (everolimus)
Chemotherapy
8/18/2017 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
3/23/2018 Doxil (liposomal doxorubicin)
Chemotherapy
4/26/2019 Navelbine (vinorelbine)
Hormonal Therapy
4/26/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Chemotherapy
11/27/2019 Gemzar (gemcitabine)
Hormonal Therapy
8/25/2020 Faslodex (fulvestrant)
Targeted Therapy
8/25/2020 Piqray (alpelisib)
Targeted Therapy
10/2/2020 Enhertu (fam-trastuzumab deruxtecan-nxki)
B
Bluebird-DE
Joined:
Jan 2012
Posts:
1,941
Latest activity:
Jun 26, 2018
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Oct 23, 2017 12:35PM
Bluebird-DE
wrote:
Mom and Dani - Thinking of you every day. Faslodex warmed in the armpit, slowly injected in the right place, at least one min or up to two min for each side. Stand on opposite leg for the injection to go in more relaxed hip. Reclining is a new way to go, some say it helps. Afterward a warm pad, massaging. And before an Ibuprofen or Tylenol can help. There are threads. Here is a link.... https://community.breastcancer.org/forum/8/topics/... Oh, imo the cold pack on hips before is not a good idea as I think it stops the injection from dispersing properly, and I used to use the cold packs as was recommended by others.
Had a liver biopsy done with only the lidocaine injection to numb locally. No, nothing else due to drug sensitivities. What do you all think? Should they have insisted to put me to sleep?
"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane
Dx
7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2-
Chemotherapy
4/5/2017 Xeloda (capecitabine)
Hormonal Therapy
Femara (letrozole)
Hormonal Therapy
Faslodex (fulvestrant)
Targeted Therapy
Ibrance (palbociclib)
Hormonal Therapy
Arimidex (anastrozole)
Surgery
Lumpectomy: Right; Lymph node removal: Left
Radiation Therapy
External: Lymph nodes
