Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 06:02PM

Posted on: Aug 16, 2013 06:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Oct 22, 2017 07:00PM BabyRuth wrote:

Mom-it took me quite a while. About 6 weeks to be exact. Not everyone recovers at the same pace. It may be much easier for her. My IR also went through an artery in my left wrist instead of my groin.

I have not had any issues with faslodex. I get the shots one at a time and make sure to take the weight off the side receiving the shot. I try to walk around a little before getting in the car as that seems to help with the soreness. I also use a low temp heating pad to ease any pain. I will be thinking of you and Dani this week.

Dx 12/29/2008, IDC, 2cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+ Targeted Therapy 1/9/2009 Herceptin (trastuzumab) Chemotherapy 3/18/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 4/23/2012, IDC, Grade 2, ER+/PR+, HER2+ Dx 5/13/2013, IDC, 2/2 nodes, ER+/PR+, HER2+ Chemotherapy 9/11/2013 Taxol (paclitaxel) Dx 6/26/2015, IDC, 1cm, Stage IV, ER+/PR+, HER2+, Chemotherapy 7/15/2015 Taxotere (docetaxel) Targeted Therapy 7/15/2015 Herceptin (trastuzumab) Targeted Therapy 7/15/2015 Perjeta (pertuzumab) Hormonal Therapy Faslodex (fulvestrant)
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Oct 22, 2017 09:03PM Snowfall wrote:

Bluebird, I had my liver biopsy with just lidocaine. I didn't have any pain during the procedure or afterwards. Was you experience more difficult?

Dx 10/2016, IDC, Left, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 11/1/2016 Perjeta (pertuzumab) Targeted Therapy 11/3/2016 Herceptin (trastuzumab) Chemotherapy 2/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 5/4/2017 AC Surgery 7/24/2017 Mastectomy: Left Dx 8/10/2017, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy Tykerb (lapatinib) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy Xeloda (capecitabine)
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Oct 22, 2017 10:15PM JFL wrote:

Bluebird and Snowfall, I was pushing for no sedation/twilight meds and they told me they couldn't do the liver biopsy without it. So annoying! Would have preferred lidocaine only.

Chart your own course. Dx at 30. Dx with mets at 38 while pregnant - extensive liver & bone involvement. Currently on Enhertu & XGeva. ER+/PR+, HER2-low (IHC equivocal, +2/FISH negative). Y90 liver radioembolization in 2018. Dx 9/2006, IDC, Right, 1cm, Stage IIB, Grade 3, 1/16 nodes, ER+/PR+, HER2-, Surgery 9/22/2006 Mastectomy: Left, Right Chemotherapy 11/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Surgery 12/26/2014 Prophylactic ovary removal Hormonal Therapy 12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy 6/18/2015 Ibrance (palbociclib) Chemotherapy 3/10/2016 Xeloda (capecitabine) Hormonal Therapy 5/13/2017 Aromasin (exemestane) Targeted Therapy 5/13/2017 Afinitor (everolimus) Chemotherapy 8/18/2017 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/23/2018 Doxil (doxorubicin) Chemotherapy 4/26/2019 Navelbine (vinorelbine) Hormonal Therapy 4/26/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 11/26/2019 Gemzar (gemcitabine) Hormonal Therapy 8/24/2020 Faslodex (fulvestrant) Targeted Therapy 8/24/2020 Piqray (alpelisib) Targeted Therapy 10/1/2020 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Oct 22, 2017 10:21PM Snowfall wrote:

I had expected twilight drugs, but the appointment was scheduled at the last minute and I didn't have time to fast. The dr said local anesthesia was plenty, and as far as I was concerned, it turned out he was right. I had a little soreness for a day or so in the muscle that he had to go through, but nothing I'd call pain.

Dx 10/2016, IDC, Left, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 11/1/2016 Perjeta (pertuzumab) Targeted Therapy 11/3/2016 Herceptin (trastuzumab) Chemotherapy 2/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 5/4/2017 AC Surgery 7/24/2017 Mastectomy: Left Dx 8/10/2017, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy Tykerb (lapatinib) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy Xeloda (capecitabine)
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Oct 23, 2017 12:40AM Bluebird-DE wrote:

It was a nightmare and the worst day of my life. I don't know what went wrong if lidocaine only can work for some. Perhaps location? Perhaps it was rushed before the lidocaine worked fully? I just don't know. But i will say no further comment due to not wanting to freak people out prior to their biopsies. I will say there was no clue from these boards of what I would go through, none. So something had to be done wrong.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Oct 23, 2017 07:28AM zarovka wrote:

The difficulty of a liver biopsy depends on the location and I would expect that influences the sedation they choose. Mine was a piece of cake. Could have done it with no sedation, which is saying a lot since I incline to panic attacks in medical situations. My met is just below the ribs, near the surface. Super easy to get to.

>Z<

Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/16/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Oct 23, 2017 08:50AM Grannax2 wrote:

Plan A was conscious sedation. Plan B was intubation because my sats would not stay up. I have mets in my lung and was was having some trouble breathing when it was done last December. It seemed to take forever to wake up, sore throat, lots of coughing and a very long day. I don't think it was hard to get to, my liver mets were big, too.

I can't believe it's been almost a year since my DX of MBC.

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Oct 23, 2017 09:28AM NO1-2NV wrote:

Approximately how many weeks did it take for you to get your F1 results back? I am anxious to get mine back so I can start to research trials and treatments. Trying to understand why, if I am ER/PR+, hormonals failed and IV chemo worked. Just started Xeloda and hope this works for a long time but the day will come...need to be ready when that happens.

Dx 8/3/2011, IDC, 5cm, Stage IIB, Grade 3, 1/3 nodes, mets, ER+/PR+, HER2- Radiation Therapy 3/1/2012 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/29/2012 Arimidex (anastrozole) Dx 12/6/2015, IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- Radiation Therapy 12/20/2015 External: Bone Chemotherapy 5/19/2016 Doxil (doxorubicin) Hormonal Therapy 5/12/2017 Faslodex (fulvestrant) Targeted Therapy 6/30/2017 Ibrance (palbociclib) Chemotherapy 10/17/2017 Xeloda (capecitabine)
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Oct 23, 2017 10:18AM Snowfall wrote:

So sorry to hear that, Bluebird. Just goes to show that while we're all dealing with the same disease, our bodies are different and there is no single certain solution to any issue.

Dx 10/2016, IDC, Left, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 11/1/2016 Perjeta (pertuzumab) Targeted Therapy 11/3/2016 Herceptin (trastuzumab) Chemotherapy 2/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 5/4/2017 AC Surgery 7/24/2017 Mastectomy: Left Dx 8/10/2017, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy Tykerb (lapatinib) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy Xeloda (capecitabine)
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Oct 23, 2017 10:19AM - edited Oct 23, 2017 10:19AM by Snowfall

My Foundation 1 results took about 4 weeks to get back

Dx 10/2016, IDC, Left, Stage IIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 11/1/2016 Perjeta (pertuzumab) Targeted Therapy 11/3/2016 Herceptin (trastuzumab) Chemotherapy 2/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 5/4/2017 AC Surgery 7/24/2017 Mastectomy: Left Dx 8/10/2017, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy Tykerb (lapatinib) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy Xeloda (capecitabine)

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