Oct 24, 2017 06:42AM NO1-2NV wrote:

Z, you really are remarkable! I am praying that the treatment you are receiving does what it is designed to do and you get the response you deserve.

I will call F1 and ask that they send me a copy of the results and will sign up for their clinical trial search.

When I was in the MO office a couple of weeks ago I ask about clinical trials...the answer was we don't have any currently for you but they are coming. That was the same answer I received 8 months ago. This time I quickly stated I would be looking for one else where. I don't have the luxury of time. Also pointed out that most trials are targeted therapies. That is how I was able to get the F1 testing. I had asked for this also about 8 months ago but was told we would do it later. Well later came with progression due to a treatment that did not work.

Hmmmm, I wonder if they have trials in Hawaii? I could do sand and surf.

Oct 24, 2017 10:10AM - edited Oct 24, 2017 10:10AM by PHOTOGIRL-62

It sounds like all of our liver mets are getting all sorts of treatment. I'm still taking Xeloda and my TMs have come down to normal. They came down to 37 in July, now back up to the forties which is still in the normal range. I'm waiting for my MO tell me I need scans when I get home from Africa. I guess that will be normal. I'm thinking of all of you. I'm behind on the threads, but think of everyone daily. I've been out west taking photos and now leave this week for Africa. Someone had asked for a photo fix. I have a few from Antelope Canyon. Some of the hardest photography I have ever done. I'm sending you all a HEART photo from the Canyon and a few others to remind us of the beauty we have all around us. Love to all. I'll catch up one of these day!!

Hugs to All!!! Anita

Oct 24, 2017 10:13AM PHOTOGIRL-62 wrote:

One more. Enjoy,

Anita

Oct 24, 2017 11:35AM Bluebird-DE wrote:

The Universe is of art and these photos just remind us. They are absolutely beautiful Anite, good work on capturing them. I really like the "tunnel" best.

NO1 - you are right, when someone says to us later then we have to say no, now. There is no later for me, it has to be done now so there will be a later. I am still learning the hard way.

I am still reeling that I cannot be on Ibrance while on Xeloda. My liver hurts and I feel another lesion gnawing in the front left. All these months and no tx to stop them. But of course we thought the Xeloda was doing it since the TMs dropped to normal. Labs are a lie for my body. I wanted to trust them but I cannot and I tell the oncs all the time not to get too happy about labs that are dropping or look normal. Looks like it is scans for me from here out. But I wanted hahahaha the last to be the last forever.

Oct 24, 2017 04:50PM Lindalou wrote:

Anita it was me who asked for the photo fix. I almost made it out to see Antelope Canyon this fall but wasn't able to so thank you for the pictures. Beautiful.