Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 04:02PM

Posted on: Aug 16, 2013 04:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Oct 23, 2017 09:26PM zarovka wrote:

F1 takes 14 days from the time they receive the sample. Period. The pathology department can take a few days to send it. You can find out what date that was by calling F1. If you call F1, they will send you the results directly as soon as it is released. This will be quite a bit sooner than your doctor gets and long before your doctor's office gets around to sending it to you.

F1 has a trial navigation service that I recommend signing up for as another opinion to support and compare with your own research and your doctor's opinion. That said, I signed up online last week and have not heard back ... probably need to call them. Nothing happens unless you make it happen, but I understand this is a useful service.

Foundation One can be reached in the following ways:

• Online form: http://info.foundationmedicine.com/foundationaccesstrialnavigator

• Email: trialnavigator@foundationmedicine.com

• Foundation Medicine's customer services department: 888.988.3639

>Z<

Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/16/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Oct 24, 2017 06:42AM NO1-2NV wrote:

Z, you really are remarkable! I am praying that the treatment you are receiving does what it is designed to do and you get the response you deserve.

I will call F1 and ask that they send me a copy of the results and will sign up for their clinical trial search.

When I was in the MO office a couple of weeks ago I ask about clinical trials...the answer was we don't have any currently for you but they are coming. That was the same answer I received 8 months ago. This time I quickly stated I would be looking for one else where. I don't have the luxury of time. Also pointed out that most trials are targeted therapies. That is how I was able to get the F1 testing. I had asked for this also about 8 months ago but was told we would do it later. Well later came with progression due to a treatment that did not work.

Hmmmm, I wonder if they have trials in Hawaii? I could do sand and surf.

Dx 8/3/2011, IDC, 5cm, Stage IIB, Grade 3, 1/3 nodes, mets, ER+/PR+, HER2- Radiation Therapy 2/29/2012 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/28/2012 Arimidex (anastrozole) Dx 12/6/2015, IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- Radiation Therapy 12/19/2015 External: Bone Chemotherapy 5/18/2016 Doxil (doxorubicin) Hormonal Therapy 5/11/2017 Faslodex (fulvestrant) Targeted Therapy 6/29/2017 Ibrance (palbociclib) Chemotherapy 10/16/2017 Xeloda (capecitabine)
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Oct 24, 2017 06:49AM Grannax2 wrote:

Has anyone heard from mom about Dani's procedure yesterday?

Z. How was it for you getting to your appt yesterday in the Typhoon?

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Oct 24, 2017 10:10AM - edited Oct 24, 2017 10:10AM by PHOTOGIRL-62

It sounds like all of our liver mets are getting all sorts of treatment. I'm still taking Xeloda and my TMs have come down to normal. They came down to 37 in July, now back up to the forties which is still in the normal range. I'm waiting for my MO tell me I need scans when I get home from Africa. I guess that will be normal. I'm thinking of all of you. I'm behind on the threads, but think of everyone daily. I've been out west taking photos and now leave this week for Africa. Someone had asked for a photo fix. I have a few from Antelope Canyon. Some of the hardest photography I have ever done. I'm sending you all a HEART photo from the Canyon and a few others to remind us of the beauty we have all around us. Love to all. I'll catch up one of these day!!

Hugs to All!!! Anita

Dx 10/30/2008, IDC, Right, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 8/24/2016, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Oct 24, 2017 10:12AM PHOTOGIRL-62 wrote:

A few more that will make you smile. Antelope Canyon.

Anita

Dx 10/30/2008, IDC, Right, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 8/24/2016, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Oct 24, 2017 10:13AM PHOTOGIRL-62 wrote:

One more. Enjoy,

Anita

Dx 10/30/2008, IDC, Right, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 8/24/2016, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Oct 24, 2017 10:50AM kaylynne wrote:

WOW! Just WOW!

Kay Edgar Dx 4/20/2017, IDC, Left, 2cm, Stage IV, metastasized to liver, Grade 3, ER-/PR-, HER2-, Chemotherapy 5/4/2017 AC Chemotherapy 9/11/2017 Taxol (paclitaxel) Chemotherapy 12/6/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 2/14/2018 Xeloda (capecitabine)
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Oct 24, 2017 11:35AM Bluebird-DE wrote:

The Universe is of art and these photos just remind us. They are absolutely beautiful Anite, good work on capturing them. I really like the "tunnel" best.

NO1 - you are right, when someone says to us later then we have to say no, now. There is no later for me, it has to be done now so there will be a later. I am still learning the hard way.

I am still reeling that I cannot be on Ibrance while on Xeloda. My liver hurts and I feel another lesion gnawing in the front left. All these months and no tx to stop them. But of course we thought the Xeloda was doing it since the TMs dropped to normal. Labs are a lie for my body. I wanted to trust them but I cannot and I tell the oncs all the time not to get too happy about labs that are dropping or look normal. Looks like it is scans for me from here out. But I wanted hahahaha the last to be the last forever.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Oct 24, 2017 04:39PM kaayborg wrote:

Anita, your photos send chills through me. What a gift.

Dx 6/24/2014, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 7/16/2014 Lumpectomy: Left Chemotherapy 8/20/2014 AC + T (Taxol) Surgery 1/4/2015 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 3/31/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 7/24/2015, 6cm+, Stage IV, Grade 3, ER-/PR-, HER2- Chemotherapy 8/3/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 6/20/2016 Carboplatin (Paraplatin) Chemotherapy 9/12/2017 Xeloda (capecitabine) Chemotherapy 9/25/2017 Halaven (eribulin) Targeted Therapy 11/13/2017 Chemotherapy 2/5/2018 Gemzar (gemcitabine)
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Oct 24, 2017 04:50PM Lindalou wrote:

Anita it was me who asked for the photo fix. I almost made it out to see Antelope Canyon this fall but wasn't able to so thank you for the pictures. Beautiful.


Linda Dx 11/1/2007, ILC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Dx 8/2009, Stage IV, metastasized to bone Dx 5/13/2014 Targeted Therapy 4/21/2017 Ibrance (palbociclib) Chemotherapy 10/1/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 10/22/2017 Xeloda (capecitabine) Radiation Therapy External: Bone Radiation Therapy External: Bone Surgery Mastectomy: Left, Right Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy External: Bone Radiation Therapy Bone

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