Topic: How are people with liver mets doing?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Aug 16, 2013 04:02PM

Posted on: Aug 16, 2013 04:02PM

blondie1 wrote:

I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely cause me some pain until chemo takes care of it.

How are others doing and getting through this with a positive attitude?

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Oct 24, 2017 05:09PM momallthetime wrote:

JFL so well put. I really feel that they are caring. We've been fooled many times, it discourages you, but this guy had all the depts. that could help her get in touch with us, and set up an array of appointments.

Blubird they did not put Dani to sleep, so sorry you had such bad experience, i don't think it should have been.Thx for the help w Faslodex.

NO102Nov I think it took like 10 days or so. You could actually call yourself F1 give them the info, they would speak directly to you. Zar is absolutely right. I called, sent them the POA from my DD to me, and they had no trouble in sending me the info.

Zar how was the treatment on typhoon day?

Grannax thanks for checking.

I was so wiped out last night, i went to sleep 9sh!! Ok i took 2 ambien in middle of the night, i did not want to think.

If i am wiped out i cannot imagine Dani, but she will NOT complain. It went very well. they were all terrific with her. But their faces when they spoke to me, spoke volumes. They - the nurses, Fellow they could not believe the amount of damage they saw. IR was a bit more reserved, but he told me also.

They do the angiogram, to see the hmmm architecture of the liver, they do the mapping, the same as when regular radiation to the rest of the body is done,then they send the person to Nuclear Medicine, they do a SPECT scan, it's very detailed 3D scan, they check if a person has no shunts or something not allowing the radiation to pass to the right places or worse that the radiation ends up where it should not.

So the results for her is that she is a candidate. So we were happy. You know when my kids were little and the doc said yep it's strep, i knew hey this is not a good thing, but i was so happy because i knew- ok, let's get that antibiotic and it will all be well, so something like this here, i know (we know) it's a tough procedure but it could help her.

IR said that there is no question it has to be done, otherwise any treatment that needs to be metabolized through the liver is not gonna work, the liver is really jeopardized.

BUT, it's scheduled ONLY for the 3rd. He is not in the Hospital that week only Friday. It might work out for her because she needs to get the other Rads and they did not want her to have a break, (she would need to stop on the day of theY90), like this if it's on a Friday ( e/o is fooling themselves, and just letting it go, knowing that Sat/Sunday there are no Rads here anyway). So RO agreed that she could start this Thursday.

BabyRuth thanks for the heads up with your experience, she really cannnnnnnot afford 6 weeks recup no way!. I could distract the kids a day, two but they need her up and around. As is, her sibs are helping out, but still trying to get things running at home.

I'll try to get the report tomorrow, we'll see the new Neuro, then i'll see what they really saw.

I'll definitely keep you guys in the loop.

You are all really my backbone.

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Oct 24, 2017 06:10PM 50sgirl wrote:

Mom, Thank you for taking the time to check in and give us an update. I am happy that Dani is a candidate for the procedure. It is good that things will be moving quickly. I continue to pray for Dani and for you. Please don't neglect yourself as you help Dani through these treatments. My thoughts are with you. We are all her for you.

Hugs and prayers, Lynne


Dx 6/5/2015, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 6/9/2015 Arimidex (anastrozole) Dx 8/9/2016, ILC/IDC, Left, 3cm, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/30/2016 Ibrance (palbociclib) Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/10/2019 Taxol (paclitaxel) Hormonal Therapy 11/12/2019 Aromasin (exemestane) Targeted Therapy 11/13/2019 Afinitor (everolimus) Hormonal Therapy 12/26/2019 Femara (letrozole) Chemotherapy 3/8/2020 Adriamycin (doxorubicin) Targeted Therapy 2/6/2021 Verzenio Chemotherapy 4/12/2021 Halaven (eribulin) Chemotherapy 9/30/2021 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex) Chemotherapy 2/11/2022 translation missing: en.treatments.chemotherapy.chemotherapy_regimen.options.short_drugs.epithilone.ixempra
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Oct 24, 2017 06:35PM babs6287 wrote:

Anita- amazing photos. Thank you!!!!!

Grannax I spoke to moral and Dani's treatment will be end of next week. I think she's doing rads until then.

Babs

Dx 8/17/2012, IDC, 4cm, Stage IIIC, Grade 2, 16/26 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 9/20/2012 AC + T (Taxol) Radiation Therapy 1/20/2013 Breast, Lymph nodes Hormonal Therapy 3/21/2013 Aromasin (exemestane) Surgery 8/28/2013 Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/29/2013 Reconstruction (left) Surgery 1/27/2014 Reconstruction (left) Surgery 5/17/2014 Reconstruction (left) Surgery 10/16/2014 Reconstruction (left); Reconstruction (right) Dx 1/2015, IDC, Left, <1cm, Stage IV, metastasized to other, Grade 2, 16/26 nodes, ER+/PR+, HER2-, Hormonal Therapy 2/16/2015 Femara (letrozole) Targeted Therapy 3/13/2015 Ibrance (palbociclib) Dx 10/1/2015, IDC, Left, Stage IV, metastasized to bone/liver, Grade 2, 16/26 nodes, ER+/PR+, HER2- Targeted Therapy 10/23/2015 Chemotherapy 12/31/2015 Xeloda (capecitabine) Chemotherapy 10/5/2016 CMF Chemotherapy 12/9/2016 Taxol (paclitaxel) Chemotherapy 4/26/2017 Gemzar (gemcitabine) Chemotherapy 6/21/2017 Halaven (eribulin) Targeted Therapy 8/9/2017 Chemotherapy 11/29/2017 Halaven (eribulin) Chemotherapy 12/13/2017 Doxil (doxorubicin) Chemotherapy 7/25/2018 Halaven (eribulin)
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Oct 24, 2017 07:49PM marylark wrote:

Mom I am praying for Dani. It seems they have their stuff together and have a good course of action.

In prayer,

Mary

Dx 5/1/2015, IDC, Right, 5cm, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 5/12/2015 Taxol (paclitaxel) Chemotherapy 8/12/2015 AC Dx 4/2017, Stage IV, metastasized to bone Chemotherapy Taxol (paclitaxel) Radiation Therapy External: Bone Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Radiation Therapy Whole breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Afinitor (everolimus) Chemotherapy Xeloda (capecitabine)
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Oct 24, 2017 09:55PM JFL wrote:

Mom, I am so happy Dani was cleared for Y90. The procedure has come on the scene in the breast cancer world rather quickly but seems like it is just as quickly turning into "standard of care" for liver mets. Just another option (that is highly effective) amongst the chemos and everything else.

Chart your own course. Dx at 30. Dx with mets at 38 while pregnant - extensive liver & bone involvement. Currently on Enhertu & XGeva. ER+/PR+, HER2-low (IHC equivocal, +2/FISH negative). Y90 liver radioembolization in 2018. Dx 9/2006, IDC, Right, 1cm, Stage IIB, Grade 3, 1/16 nodes, ER+/PR+, HER2-, Surgery 9/22/2006 Mastectomy: Left, Right Chemotherapy 11/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Surgery 12/26/2014 Prophylactic ovary removal Hormonal Therapy 12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy 6/18/2015 Ibrance (palbociclib) Chemotherapy 3/10/2016 Xeloda (capecitabine) Hormonal Therapy 5/13/2017 Aromasin (exemestane) Targeted Therapy 5/13/2017 Afinitor (everolimus) Chemotherapy 8/17/2017 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/22/2018 Doxil (doxorubicin) Chemotherapy 4/25/2019 Navelbine (vinorelbine) Hormonal Therapy 4/25/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 11/26/2019 Gemzar (gemcitabine) Hormonal Therapy 8/24/2020 Faslodex (fulvestrant) Targeted Therapy 8/24/2020 Piqray (alpelisib) Targeted Therapy 10/1/2020 Enhertu (fam-trastuzumab deruxtecan-nxki)
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Oct 24, 2017 10:31PM - edited Oct 24, 2017 10:34PM by artistatheart

Mom, I'm so glad Dani is a candidate! We are all waiting for positive news!

cool pic Z! Just a silly typhoon to add to your adventure? No problem right......

Bluebird, Sorry your biopsy was so traumatic. I only had the lidocaine also and had a minute to two of EXTREME discomfort. But I am also like Z, not really great with hospital stuff.

Wendy, I hope it is just a pesky 24 hour bug.

Spectacular photos Anita!

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/9/2015 Femara (letrozole) Targeted Therapy 8/24/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Oct 25, 2017 03:56AM PHOTOGIRL-62 wrote:

Lindlou, if you can make the trip go in the Spring when the sun gets higher. Our world is so beautiful. I’m leaving for Africa Friday so I hope I get a few nice photos.

Hope everyone is doing good. Thank you for your kind comments. I’m not a pro but I get lucky once in a while😉.

Anita

Dx 10/30/2008, IDC, Right, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 8/24/2016, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Oct 25, 2017 06:05AM Kaption wrote:

Joining the liver group now. (Hi, artist). I won’t go into the details as I did on the Abraxane board. But 2 small liver mets have been around since at least February but just confirmed with last week’s PET. Very small and seem to be responding to Abraxane. Just nowtrying to process another body part involved. I was bone only for about 3 years. Last year I added one (now stable) brain met. Now this.

I’m carefully reading your experiences and learning. Thank you.


Dx 8/2005, DCIS, Left, Stage 0, ER+, HER2+ Dx 5/2012, DCIS, Right, Stage 0, Grade 3, 0/1 nodes, ER+, HER2+ Dx 6/2013, Stage IV, metastasized to bone, ER+, HER2- Surgery Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy External: Bone Surgery Lumpectomy: Left Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
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Oct 25, 2017 06:52AM AnimalCrackers wrote:

Photogirl (Anita) - oh those pics are just what I needed today!  Thanks for posting.  I know I'm a broken record but you are epically talented!! 

Cathy, Diagnosed de novo bone mets June 2014 at age 52. Progression to Liver 2017. Progression to bone mets Sept. 2018. Bisphoshonate (Zometa) infusions every 3 months. Participated in 2 clinical trials, including an AKT1 inhibitor. Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/4/2016 Femara (letrozole) Targeted Therapy 1/4/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/17/2017 Targeted Therapy 5/17/2017 Kisqali Hormonal Therapy 12/18/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 12/18/2017 Radiation Therapy 8/19/2018 External: Bone Dx 8/20/2018, IDC, Stage IV, metastasized to bone Chemotherapy Taxol (paclitaxel) Surgery
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Oct 25, 2017 07:58AM lalady1 wrote:

Anita - glad you are Africa-bound. One of my fav places, but too far for me to fly again. Which countries will you visit? Send pics! Smart to take extra undies just in case. I've been down vomiting/diarrhea the past 2 days - my nephew brought home a flu. :( I had to postpone chemo yesterday, going in now. Momatt - I will pm you later. Z our warrior princess please continue to do well in Nippon. We are all waiting for good results. Kaption, I am so sorry. I have been off the boards sick and didn't read your progression. If I get any smaller I will steal my younger sister's pants. Just like when we were teenagers. lol

Surgery 1/29/2013 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 9/8/2013 Breast, Lymph nodes Hormonal Therapy 1/6/2016 Arimidex (anastrozole), Faslodex (fulvestrant) Targeted Therapy 1/6/2016 Ibrance (palbociclib) Targeted Therapy 5/16/2017 Afinitor (everolimus) Chemotherapy 8/14/2017 Abraxane (albumin-bound or nab-paclitaxel) Dx IDC, Left, Grade 3, 1/1 nodes, ER+/PR+, HER2-

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