Topic: can we start a group for people on doxil?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Oct 22, 2013 06:58PM

Posted on: Oct 22, 2013 06:58PM

bhd1 wrote:

hello. I am moving on from pht to doxil, Herceptin, perjeta. I am interested in learning all I can about doxil and was hoping there are others out there on this drug to share experience with. thanks. barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Oct 23, 2013 02:07AM 33skidoo wrote:

I'm currently on Afinitor/Aromasin after going thru several chemos. Have had plannned doxil treatment postponed twice due to shortages. I'll be following this threat as I expect to do doxil eventually.

Dx 8/2007, IDC, 1cm, Stage IV, Grade 3, 1/1 nodes, mets, ER+/PR-, HER2-
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Oct 23, 2013 02:23AM bhd1 wrote:

I did not know about doxil shortage. When was that?

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Oct 23, 2013 03:13AM MothersDaughterTNBC wrote:

My mom has had 2 rounds of doxil. She has done pretty well with it. She sleeps the day after chemo but bounces back after that. She has had a little constipation but senekot has cleared that up. She had a little abdominal cramping but I'm not sure if that is from chemo or liver mets. She had a scan yesterday so we should know something on Thursday.

She was worried about the hand foot syndrome but so far that hasn't been an issue. She ices her hands and feet during the infusion as well as on and off throughout the day. She got some udder cream and keeps hers hands moisturized.

Hope this helps.

Shannon

Dx 7/10/2013, IDC, 5cm, Stage IV, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 7/18/2013 AC Chemotherapy 9/19/2013 Doxil (liposomal doxorubicin)
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Oct 23, 2013 03:16AM MothersDaughterTNBC wrote:

oh yeah, she did have a few mouth sores but I think she ate something a little too spicy.

Dx 7/10/2013, IDC, 5cm, Stage IV, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 7/18/2013 AC Chemotherapy 9/19/2013 Doxil (liposomal doxorubicin)
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Oct 23, 2013 03:23AM bhd1 wrote:

thank you so much for responding. Did you bring ice from home to the infusion room? I hope the scans show improvement. Let me iknow. I care

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Oct 23, 2013 04:01AM moderators wrote:

There's more info about Doxil (chemical name doxorubicin) at the main Breastcancer.org site, including uses, side effects, and Research News.

You'll also find a current thread here on the boards about doxorubicin.

To send a PM to the Mods: community.breastcancer.org/my/...
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Oct 23, 2013 04:05AM MothersDaughterTNBC wrote:

Yeah she bought some ice packs and took them with her. She got ice chips to put in her mouth. I think she got them from the cafe in the hospital.

She also started taking biotin (suggested by a lady in a support group) and lysine.

Dx 7/10/2013, IDC, 5cm, Stage IV, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 7/18/2013 AC Chemotherapy 9/19/2013 Doxil (liposomal doxorubicin)
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Oct 23, 2013 08:16AM - edited Oct 23, 2013 08:55AM by bhd1

mothers daughter how do you keep the ice packs frozen before chemo? Do you just put the soles of your feet on the ice pack?

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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Oct 23, 2013 10:54AM - edited Oct 23, 2013 11:12AM by cheery

Hi Barb

News on doxil shortage, which according to Janssen, part of Johnson & Johnson's, will stretch till end of next year.

http://www.doxilsupply.com/news.html

Doxil is part of the anthracycline family, which is known to be very effective against BC. Hope it will kick the mets away for you.

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Oct 23, 2013 11:35AM - edited May 5, 2014 05:08PM by bhd1

thx bon Now I am wondering if I will get it since there is a shortage

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+

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