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Jul 4, 2014 03:25PM
jeanieb2
wrote:
Annie62 - I am so glad to hear you got to go to Puerto Rico. I am sure you had a great time just getting away. We went to Minnesota to see my dad, he goes there for the summer to stay in his cabin on the lake so we went to see him for 4 days. It was so nice to get away. I felt pretty good most of the time but had a couple of times that I did not feel the best. I have found that if I do not lay down for a couple of hours in the afternoon I get to feeling nauseated and just not well. Of course I was afraid I would miss something
so I did not lay down until my body forced me to. I saw the oncologist on July 3 for my 3rd treatment of Doxil. He said my markers had pretty much stayed the same after 2 treatments, of course I was hoping they would go down a little, so when I got home I went to write down what he told me and they had actually gone down 6 points, which is nothing as I know they can vary from day to day but it made me feel better just knowing they were headed in the right direction. He wants to do 4 treatments before we scan and then we will decide what to do. He said if it was stable we would continue with Doxil as I am tolerating it well, well much better than Taxotere. If it is spreading then we will switch to something else. I thought of a question while I was getting treatment so I asked the onco nurse if this was a slower acting one and a mild chemo, she said yes to both of them, she said it is not unusual to have 4 treatments before you see some results and it is milder than some, but it is a good chemo, which I was glad to hear all of that. Overall it was a good appointment so I am thankful for that.
I have noticed that I get so tired and think I can fall asleep if I just lay my head down and then I go to bed but can not sleep. With the other chemos I have taken I could sleep well but for some reason this one does not let me sleep very well, any suggestions as to what to do. I know when I do not sleep well the side effects seem worse and if I do not lay down for an hour or two everyday I get so nauseated even when I take my Zofran. I am still trying to adjust to this and I keep a journal so I can look back at the month before when something pops up that I do not remember happening, most times I see that it happened the same day as the month before and if something is new I be sure to write it down. I had a headache last night and did not remember having headaches with it but when I looked back at the last 2 treatments, sure enough I had a headache each time so I have found this to be helpful. I did end up with an ulcer in the esophagus 2 weeks after the 2nd treatment and did not have that with the 1st treatment but definitely know what to look for if it happens again and then can get started on the medicine they gave me for it. Has anyone else had problems with this and what did you do to keep from getting one?
jeanieb
Dx
10/27/1992, ILC, 3/14 nodes, ER+, HER2-
Surgery
10/29/1992 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Chemotherapy
11/9/1992 CMF
Dx
6/2/2009, Stage IV, 2/17 nodes, ER+/PR-, HER2-
Hormonal Therapy
6/15/2009 Femara (letrozole)
Dx
6/2/2011, ILC, Stage IV, mets, ER+, HER2-
Hormonal Therapy
6/3/2011 Aromasin (exemestane)
Radiation Therapy
8/9/2011 Bone
Chemotherapy
9/4/2011 Xeloda (capecitabine)
Dx
9/9/2011, ILC, Stage IV, ER+, HER2-
Radiation Therapy
1/16/2012 Bone
Dx
9/6/2012, Stage IV, ER+
Chemotherapy
9/6/2012 Taxotere (docetaxel), Xeloda (capecitabine)
Chemotherapy
4/4/2013 Taxotere (docetaxel), Xeloda (capecitabine)
Chemotherapy
11/14/2013 Taxotere (docetaxel), Xeloda (capecitabine)
Hormonal Therapy
3/6/2014 Aromasin (exemestane)
Targeted Therapy
3/6/2014 Afinitor (everolimus)
Chemotherapy
5/8/2014 Doxil (doxorubicin)