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Topic: Faslodex Girls Thread 2014

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Jan 2, 2014 06:16PM - edited Apr 28, 2017 09:19PM by pajim

Posted on: Jan 2, 2014 06:16PM - edited Apr 28, 2017 09:19PM by pajim

pajim wrote:

Tips for taking Faslodex without pain:

ABSOLUTE MUSTS:

  • Warm up the syringes. At least room temperature. Armpits work well, as does belly skin.
  • Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible.
  • Inject SLOWLY! It should take at least 30 seconds to empty each syringe.

General consensus as helpful:

  • Hydrate before and after the shots
  • Take a walk or massage the area afterwards in order to get the castor oil and fulvestrant moving.
  • If you get an allergic-type reaction (itchy, swelling), take Benadryl before the injection (or if skin rash use hydrocortisone cream afterwards).

Side-effects are more squishy so I'll post a list of ones we've seen on the thread next – would all the rest of you ladies please post your comments on this just below? That way any people coming new to the thread can find it all on the first page.

Here's some information on how to handle large-volume injections .

Best wishes to the Fanny Pack of the future! May Faslodex keep you NED for a long time.

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/27/2013 Femara (letrozole) Hormonal Therapy 4/22/2013 Faslodex (fulvestrant) Targeted Therapy 2/25/2016 Ibrance (palbociclib) Chemotherapy 6/19/2017 Xeloda (capecitabine) Targeted Therapy 8/15/2018 Verzenio Chemotherapy 1/2/2019 Halaven (eribulin) Chemotherapy 12/30/2019 CMF
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Dec 29, 2014 02:03PM susan_02143 wrote:

Valerie,

This is EXCELLENT! As I said earlier, it can cost some money, but now you know just how much, and your insurance even with premiums, should slow the drip, drip of depleting assets. The bonus is, you can make medical decisions based on what is best for you, not for your wallet. I bet you sleep better tonight!

*susan*

anotherplan.blogspot.com... and its back. May 3, 2010 mets found. Five years NED on Faslodex * 4/2015 progression to bone * 6/11/2015 Femara/Ibrance * 12/27/2015 Xeloda * 2/24/2016 Xgeva * another progression, another drug Taxol 2/14/2017 Dx 6/8/2005, IDC, 3cm, Stage IIB, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Dec 29, 2014 03:14PM denny123 wrote:

I was going to suggest a supplement. I get Medicaid since I am only on SSD. I do have an eBay store, and that helps to pay my bills and still keeps me well under the $$ max.

I am in my 13th year at Stage 4 and just started a second remission....second time was recurrence.

Guess I will be on Faslodex forever. Guess the fact that my butt is bigger just might be because I eat too much....

Also on Herceptin again. Kadcyla gave me remission.

Dx 12/14/2002, IDC, Both breasts, 5cm, Stage IV, metastasized to liver/other, Grade 3, 4/40 nodes, mets, ER+/PR+, HER2- Surgery 2/20/2003 Lymph node removal; Lymph node removal (Left); Lymph node removal (Right); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Latissimus dorsi flap; Reconstruction (Right): Latissimus dorsi flap Chemotherapy 3/31/2003 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 10/10/2003 Breast, Lymph nodes Targeted Therapy 1/30/2004 Herceptin (trastuzumab) Hormonal Therapy 7/5/2011 Faslodex (fulvestrant) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy
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Dec 29, 2014 04:03PM Adnerb wrote:

I pay $10 for Faslodex, Xgeva and doctor's visits. I'm a retired public schoolteacher who is not old enough to get Medicare, so I have the same health plan that was free when I was working. Today I only pay $290/month because the Union subsidizes part of my premium.

I guess I'm lucky or working for the state for 27 years is paying off.

May all our financial woes get better this coming year. The high cost of medicine should be the LEAST of our worries!!!

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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Dec 29, 2014 05:16PM carpe_diem wrote:

Valerie,

When you say that you have disability, is that Social Security Disability? If so, you will qualify for Medicare two years after you started on SSD. I'm glad to hear that you have your insurance problem worked out for now, but that may help down the line.

Lung mets from the start. Solitary met, right shoulder blade 12/1/14. Dx 3/11/2011, IDC: Mucinous, Left, 5cm, Stage IV, Grade 2, 2/4 nodes, mets, ER+/PR+, HER2-, Hormonal Therapy 3/12/2011 Arimidex (anastrozole) Surgery 11/27/2012 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 1/28/2013 Breast, Lymph nodes Surgery 5/13/2013 Reconstruction (left) Hormonal Therapy 12/19/2014 Faslodex (fulvestrant) Chemotherapy 4/17/2015 Xeloda (capecitabine) Chemotherapy 5/13/2016 Abraxane (albumin-bound or nab-paclitaxel)
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Dec 29, 2014 05:42PM cling wrote:

Valerie, so glad your insurance problem is timely resolved! 

Dx 9/7/2010, IDC, 4cm, 12/12 nodes, ER+/PR-, HER2- Dx 6/5/2014, ILC, Stage IV, mets
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Dec 31, 2014 08:36PM Megc wrote:

Happy New Year to all. Am very impressed with the knowledge base here and the help you could give Valerie. Would like to throw out a question: has anyone here tried the Ketogenic diet.....low carb, high fat, medium protein. Because of my many allergies, most meds have to be made for me. I'm allergic to the inactive ingredients, not the medication. The more expensive the meds, the less the chance we can get our hands on the raw medication so they can make it for me. Therefore, I need to look way outside the box. The diet is a new in the last week concept.

North Carloina is crawling with flu. I have my next set of shots on 1/2/15 so I have been hiding and surfing the web and thus the Ketogenic diet question.

Mary


Your not a statistic until you become one. Dx 2012, ILC, 6cm+, Stage IV, Grade 2, 10/10 nodes, ER+/PR+, HER2- Surgery 1/30/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Radiation Therapy 4/6/2013 Breast, Lymph nodes Hormonal Therapy 5/18/2013 Arimidex (anastrozole) Hormonal Therapy 9/18/2014 Hormonal Therapy 12/19/2014 Faslodex (fulvestrant) Chemotherapy 7/5/2015 Xeloda (capecitabine)
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Dec 31, 2014 09:34PM pajim wrote:

I'm headed down to NC on Sunday to hospital-sit my Mom.  I'd like to stay away from the flu.

Happy New Year to everyone!

Dx 4/20/2008, IDC, Right, 4cm, Stage IIIA, Grade 2, 1/15 nodes, ER+/PR+, HER2- Dx 2/1/2013, IDC, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 2/27/2013 Femara (letrozole) Hormonal Therapy 4/22/2013 Faslodex (fulvestrant) Targeted Therapy 2/25/2016 Ibrance (palbociclib) Chemotherapy 6/19/2017 Xeloda (capecitabine) Targeted Therapy 8/15/2018 Verzenio Chemotherapy 1/2/2019 Halaven (eribulin) Chemotherapy 12/30/2019 CMF
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Jan 1, 2015 01:02PM Valerie5746 wrote:

Hi everyone and happy new year!

Oh my goodness ( I swear a lot so that's the best I can do!) I have never been so relieved. I have a great insurance guy I TOTALLY forgot about.....thank you again for reminding me...I just could not think! I got the infamous butt shot again yesterday and no matter how much it hurts my butt I know it's also saving it! Gone down 700 and something points thus far and hoping to have a date with NED someday. Have a wonderful New Year may it bring us permanent remissions!

Valerie Dx 7/10/2009, IDC, 5cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2- Surgery 7/10/2009 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 9/1/2009 Taxotere (docetaxel) Radiation Therapy 2/1/2010 Breast, Lymph nodes Dx 5/15/2014, IDC, Right, Stage IV, metastasized to bone, Grade 2, 1/17 nodes, ER+/PR+, HER2- Radiation Therapy 1/15/2015 Bone
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Jan 1, 2015 01:31PM Valerie5746 wrote:

Oh and I was just looking at other posts and noting steel rose that you were looking for this on both anastrozole and faslodex. I am on a similar drug letrazole and faslodex and started both at the same time. So far, so great. No side effects and tumbling tumor markers. I don't know why one doc does one thing and one another but I have a platonic crush on my onc so I tend to share his decisions. I think I will ask him why both when I see him but chances are I will forget. Hey, do we all have the worst memories ever or is it just me. I forget. Tee hee. Much love.

Valerie Dx 7/10/2009, IDC, 5cm, Stage IIB, Grade 2, 1/27 nodes, ER+/PR+, HER2- Surgery 7/10/2009 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 9/1/2009 Taxotere (docetaxel) Radiation Therapy 2/1/2010 Breast, Lymph nodes Dx 5/15/2014, IDC, Right, Stage IV, metastasized to bone, Grade 2, 1/17 nodes, ER+/PR+, HER2- Radiation Therapy 1/15/2015 Bone
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Jan 2, 2015 12:55PM bethu77 wrote:

I saw a post from I believe steelrose about taking Faslodex for skin mets. How many of you are taking it got these? My mets first appeared December 2013. 2014 was a nightmare with radiation burning off the top layer of my skin on my chest and belly. After all this, the mets came back. I was on Navelbine and now Gemzar. I need som advice from those who have been there. Thanks for any help you can give me

Beth Williams

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