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Apr 7, 2014 05:24AM
Apr 7, 2014 05:24AM
Kjones, about those retreats, were the other sick parents visably very ill or mostly doing ok at the time? For now, I'm living a basically normal life and I'd be a little bit concerned that my daughter (14 yo) would find it really stressful if she had that kind of visable reminder of what the future (hopefully distant, but who knows) may look like.
For those of you who have had counseling for your kids, how did you find a good councilor and how did it help you kids?
I'm having so many "yep, know that so well" moments reading this thread. I hope the resiliency is true. I know it would hurt my daughter a lot but I like to think she would end up ok. I find a lot of comfort in knowing that if I don't make it that long, her grown-up sister and also her sister-in-law will without a doubt be there for things like wedding dress shopping and pregnancy and all the other things like that that I want to be ther for.
You can add me to the list of people who haven't done any letters or videos or things like that--I agree that it would totally mess with my denial and probably frighten the heck out of the kids. I tell myself I'll have plenty of time to deal with that kind of thing when they tell me there's progression and I don't need to deal with it right now. But, having said that, I totally do things with the idea so that they will be good memories, just without calling them "when I'm gone" sorts of things.
(age 42 at dx, lived to see 47 and counting!) my blog: mepluscancer.blogspot.com, Xgeva 2/27/14, Lupron 4/10/14
4/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/9 nodes, ER+/PR+, HER2-
6/15/2012 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
7/17/2012 AC + T (Taxol)
11/26/2012 Whole-breast: Breast, Lymph nodes, Chest wall
1/9/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
2/27/2014, IDC, Stage IV, metastasized to bone, Grade 3, mets, ER+/PR+, HER2-
3/23/2014 External: Bone
3/25/2014 Faslodex (fulvestrant)
4/1/2015, IDC, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR+, HER2-
4/1/2015 Femara (letrozole)
4/27/2015 Ibrance (palbociclib)
10/16/2015 Afinitor (everolimus)
10/26/2015 Aromasin (exemestane)
12/4/2015 Xeloda (capecitabine)
8/3/2017, IDC, Stage IV, metastasized to bone/liver/lungs
8/6/2017 Gemzar (gemcitabine), Taxol (paclitaxel)
11/12/2017 Halaven (eribulin)
11/13/2017, IDC, Stage IV, metastasized to bone/liver/lungs/other, ER+/PR+, HER2-