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Dec 11, 2017 12:57PM
Dec 11, 2017 12:59PM
Lisa, there are quite a few people who have had good success at being NED or at least stable for quite a while on HP and Tamoxifen. Those drugs together make a very effective team.
I am really sorry you are feeling so down. I hope that you are able to talk to support about it whether it be family, friends or a social worker. Sometimes another person can offer perspective.
When I was first dx Stage IV, I felt I would be dead soon after since my single met was in my brain. I considered myself to be dying of cancer. I talked to a social worker in those early days and one way she really helped me was to get rid of the "I'm dying of cancer" thought process. Instead, she wanted me to think of it as "living with cancer" so that tx or SE would not seem so hard. It took me a couple of months consciously telling myself I am living with cancer. I don't bother thinking about how much time I have left. A lot of that is simply how a person responds to treatment which is luck a lot of times. What we can do is live with it and deal with any SE. We can find something to enjoy that has nothing to do with it, go for a walk, simple things. If the dark places are still there and you can't get out, please to find someone to talk to. It can help so much. I liked the social worker because I could talk about things that would have upset my family.
I am by no means OK having to deal with cancer, but I make do, walk almost everyday outside and hope I can keep going for longer with my qol. I hope you get to this point soon. Please keep us posted, don't ever feel you are letting people down or that this is not a safe place to unload some of your pain. Hugs to you. If it is too hard to bear, there is nothing wrong with asking for help ie an antidepresseant if not already prescribed. That may give you a jumping of point to dealing with it.
2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta.
3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+
4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right
5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+
7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+