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Nov 15, 2017 02:21PM
Nov 15, 2017 02:22PM
Hi ladies, wow, a lot going on here, a lot to respond too. First of all thank you to to all of you lovely people who virtually just flew to France for a group hug. I would take you off the beaten path away from the Eiffel Tower, into some beautiful castle-laden back-country, because Paris is waaaay too tiring. I hope you like cheese :D
Leapfrog, I read your home situation with great interest and much sorrow. I second what sandibeach and Hobbes said, you are not in any way over-reacting, if anything, you've been putting up with a crazy situation for far too long, there has been betrayal on several levels including financial. Sounds like some serious sorting out needs to happen with both legal and financial counselors, as well as a mariage counselor. I'm not sure you will really wish to salvage the mariage when it all comes out in the open (this young thing sounds terribly manipulative, by the way) - it sounds like it has been a huge drain on you. It's not the mariage which is crumbling, but the double life he has managed to hold on to for so long, the illusion. Maybe something new can be built, if you both really want it. For goodness sakes, for now it sure sounds like you are better off away on your own, and just being super wonderful to you. Thank goodness for your son. I hope things get worked out swiftly !
50's girl, in answer to your question, my white counts were above normal, in the "red", but apparently no big deal. Whatever.
Faith. Thinking of you !
Cjctov : the cream I found mentioned on this site is Imiquimod. I have not been able to convince my oncologist to let me try it, but I did ask her to look into it. It has obviously not been approved for use in skin mets in France but in the U.S. there have been a few trials that showed success.
Now for all of you who have encouraged me to leave my oncologist, this is the ironic thing -- I had a feeling something like this was going to happen (!) - after our appointment (uneventful for once) she told me that she was leaving the Hospital at the end of the year, and also the only other person in the service who has looked after me (her superior) is also leaving. So I will be seeing an entirely new person at my next appointment ! So actually now is the perfect time to seek treatment in another cancer center (Curie Institute in Paris, or the Cancer center at Villejuif) -- and I'll be offending absolutely nobody, on the contrary, would have their full support !
Current treatment, chemo - Halaven, plus XGEVA, after failure of Ibrance/fulvestrant; failure of Afinitor/Aromasine; mets to skin on chest, extensive node mets, spine and ribs.
11/11/2013, IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/7 nodes, ER+/PR-, HER2-
12/12/2016, IDC/IBC, Both breasts, Stage IV, metastasized to other, ER+/PR+, HER2-
10/2017, IBC, Both breasts, Stage IV, metastasized to bone/other, Grade 2, HER2-
1/25/2018 Halaven (eribulin)
2/2/2018, IBC, Both breasts, Stage IV, metastasized to bone/other, Grade 3, ER-/PR-, HER2-