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Topic: Ibrance (Palbociclib)

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Feb 24, 2015 05:21PM - edited Dec 11, 2017 10:43AM by Moderators

Romansma wrote:

A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets. Anyone currently on Ibrance?

Edited by Mods to add Mod Note: Unfortunately, Romansma passed away in 2016. Our thoughts are with all who loved Hope.

Edited by Mods to add:

For more information on this medication, see the main Breastcancer.org site's section on Ibrance for information on how it works, who it's for, what to expect, and side effects. Also, read the latest research on the Research News on Ibrance pages.

Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition, transportation and financial assistance.

For cancer patients taking a Pfizer Oncology medicine (e.g. Ibrance) or caregivers, please visit www.PfizerOncologyTogether.com.

For live support call: 1-877-744-5675

Hope Dx 10/22/2010, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 11/1/2010 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/1/2011 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Radiation Therapy 6/8/2011 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/29/2011 Prophylactic ovary removal Dx 8/2013, ILC, Stage IV, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 9/17/2013 Faslodex (fulvestrant) Targeted Therapy 1/25/2014 Afinitor (everolimus) Radiation Therapy 2/11/2014 External: Bone Chemotherapy 12/6/2014 Xeloda (capecitabine) Hormonal Therapy 2/20/2015 Femara (letrozole) Targeted Therapy 2/20/2015 Ibrance (palbociclib)
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Posts 11821 - 11850 (16,362 total)

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Apr 4, 2018 05:01PM jaycee49 wrote:

For me, vaginal dryness doesn't really feel like anything. BUT, I end up with UTI's, vaginal yeast and bacterial infections. Then, there is burning, itching, discharge and all the usual symptoms of those lovely afflictions. Sex for me has been a use or lose it situation and I've lost it right now. I'm experimenting with various vaginal moisturizers (no topical estrogen for us) and am having some success avoiding UTI's etc. I made a nice spreadsheet of the products I've tried but when I copy and paste a spreadsheet into the forum text box, it always gets all jumbled and unreadable. If anyone knows a solution to this issue, I'd love to hear it. If anyone wants the info I've collected, PM me an email address and I will send you the spreadsheet attached to an email. Even though you may not feel vaginal dryness, your sex partner will. It is quite obvious to them. And if you get as far as vaginal penetration, it will be quite obvious to you, too. The pain is excruciating. Aren't you guys glad I am here? I add such joy to the mix. Sorry about TMI.

Chris, I love, love, LOVE the dolls.

Pat, your house is so ... Memphis. I miss living in the Southeast so much.

JaneZ (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/15/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Apr 4, 2018 05:57PM jaycee49 wrote:

Philly, there are different levels of vaginal dryness. Mine is so far gone now, it is called vaginal atrophy. There is a very good thread called "I want my mo-jo back" and another on UTI's. I read those threads religiously and post whatever info I discover there.

JaneZ (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/15/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Apr 4, 2018 07:04PM - edited Apr 4, 2018 07:05PM by Ciaci

When I was getting the Xgeva shot, I always got it on Day 15, the same day as my bloodwork and Onc appointments. At first, everything happened every month, then onc appointment was changed to every 3 months, now monthly Xgeva has been replaced with twice yearly Prolia - but everything still occurs on Day 15 of the Ibrance cycle.

I have Blue Cross / Blue Shield private insurance (not through work or government), and never had an issue with them paying.

Dx 4/18/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 4/24/2017 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy 7/13/2017 Femara (letrozole) Targeted Therapy 8/1/2017 Ibrance (palbociclib)
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Apr 4, 2018 07:09PM Ciaci wrote:

Oh, and I don't remember who said they led a dull life, but I wanted to point out that my most strenuous activity pre-cancer was hurrying from the couch to the fridge for a snack, to get back before the commercial break ended.

See my profile picture? ATV-ing in the Nevada Desert, 10 months into this MBC diagnosis. Spent a total of four hours being bounced around at full-throttle, laughing my fool head off. I LOVED it!! Don't know what my next adventure will be, but now I can't wait!

Dx 4/18/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 4/24/2017 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Hormonal Therapy 7/13/2017 Femara (letrozole) Targeted Therapy 8/1/2017 Ibrance (palbociclib)
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Apr 4, 2018 07:41PM IntoLight wrote:

Wow, seems like we have different timing with our meds although to be fair, I am on Zometa and not Xgeva. I get my labs done during my week off (any day during my off week) and I pick up my next meds that same day because I get it all done at the hospital. But I don't start my next cycle until my labs are read by my onc. If she doesn't call, I can start them at regular time. I get my Zometa infusion every 90 days and they make the appointment when I am in for the next infusion. I am sure it all works because so far I have not had any problems requiring time off. For now I appreciate the consistency.

Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Apr 4, 2018 08:11PM Liwi wrote:

Jaylea - that’s great news on your results! Mine are also good this scan which is after 7 cycles. So relieved, now I can plan trip to East coast to visit my father and sister.

Jaycee - I have had issues with vaginal dryness causing real and imagined (symptoms but tests don’t reflect) uti’s and vaginal infections. My gynecologist last year told me i had vaginal atrophy which thought sounds like a horrible word for a condition. I’ll pm you to get your spreadsheet.

I love the pictures of the plants and princesses. I’ve not been good at gardening in past but have been thinking of putting together some pots with herbs that I want to eat.

I’ve been getting headaches odd and on the past two months. They aren’t particularly painful, just there, usually on my temple and similar to ones I’ve had in the past. My MO didn’t seem too concerned but to let her know if they continue.
Dx 9/2014, ILC, Left, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/23/2014 AC + T (Taxol) Dx 4/2015, ILC, Left, 6cm+, Stage IIIA, Grade 2, 3/3 nodes, ER+/PR+, HER2- Surgery 4/2/2015 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 4/20/2015 Arimidex (anastrozole) Radiation Therapy 5/6/2015 Dx 7/2017, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 8/9/2017 Faslodex (fulvestrant) Targeted Therapy 8/10/2017 Ibrance (palbociclib) Dx 8/1/2018, ILC, Stage IV, metastasized to other, ER+/PR-, HER2- Chemotherapy Doxil (doxorubicin)
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Apr 4, 2018 08:42PM PatgMc wrote:

About headaches: Before this last recurrence, one of the things that sent me in for a check-up was headaches which I rarely had throughout my life. A week before my appointment (give or take a few days) I ran out of the Magnesium tablets I had been taking for about 8 months. Guess what? The headaches stopped and it seems they had been caused by the Magnesium. Yep! And they never came back.

The other thing that sent me to the doctor was new pain in my legs and hips. When the PET/CT showed widespread bone mets I figured that was causing the pain. Nope! I went in for an evaluation from a Physical Therapist who started something called Myofascial Release Therapy. Thirteen treatments and the only pain I had left was in the top of one leg. It has stayed the same even after the bone mets healed and my doctor says he feels sure it's arthritis.

All this to say that I've learned not to assume each new thing is cancer though that is sometimes hard. I tried taking Zofran for nausea recently, had some headaches and realized Zofran did that to me back in 1994 so I'm back to taking Phenergan (sp?). I pray this will help those of you who worry over new things.

Have a wonderful Thursday, my fellow Ibrance Dancers (and those of you who have moved on to other dances)!

Pat G

Pat G. Dx 2/1994, IDC, Left, 4cm, Stage IIB, Grade 3, 0/15 nodes, ER-/PR- Dx 3/2002, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2+ (FISH) Dx 3/2012, Right, 1cm, ER+/PR+, HER2- Dx 9/2016, IDC, 0/16 nodes, ER+/PR+, HER2- Targeted Therapy 10/1/2016 Ibrance (palbociclib) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap Chemotherapy FAC Chemotherapy Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery Lymph node removal; Mastectomy; Reconstruction (right): Tissue expander placement
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Apr 4, 2018 10:44PM marianelizabeth wrote:

I absolutely cannot keep up with this thread but I do try. MountainLady, NZ is indeed New Zealand and I was there for 4 weeks with family. My husband is a Kiwi and in a few days will be starting to sail home to Victoria, BC. He has done a bit of a cheat as our catamaran is on a ship from Auckland to Tahiti and he and crew of good friend in NZ, our oldest son and his Austrian girlfriend will sail home.

I had a fall Monday AM and cut open my forehead (tripped into my grandmother's desk in our bedroom) and got 4 stitches plus purple getting worse shiners. I took Edie, the little one I look after often, to the library today and got a few stares. But I do know that we are a tough lot.

I am going to try to answer some posts here tomorrow. Ashlyn, some interesting results!

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Apr 5, 2018 06:02AM lakewoman wrote:

TY once again for personal posts..I so appreciated them all ..I have checked out abbreviations ..so helpful ..Onc I knew but MO had me stymied..old RN that I am.dah!! Still working..on my diagnosis etc ty so for that .And to NJ gal..ty so for sharing about crying and that you would have danced had you known..!! I cried, yes ,as my guy and I opened the package ..I kinda get over things like that fast ...but your post big help ..My folks taught dancing..not good at it..but I will think of something ha!! Speaking of my folks.. My mom is 101 in nursing home going to see her today..Dementia yes but even with bad eyes she still recognizes us.!!! aAcompassionate RN writer /singer...yes ,dancer makes her smile when he does a dance for her..My guy driving since I started Ibrance yesterday.chemo pharmacist said not to for few days..All enjoy your today's.Love flower photos..17 degrees here.still snow on front lawn and lake still frozen..But a creek to left.opening up..A good sign..my recliner 25 ft from our dock..

Sharlene
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Apr 5, 2018 08:18AM Ashlyn wrote:

Thanks for all of the headache comments. Hoping Letrozole is the culprit. And yes it’s worse in my off week. I’ve had a head CT tacked on to my April 23 scan. (I don’t do well with MRIs)

Marian, ouch with your fall! Hope you’re not in much discomfort from that.

Love seeing how active everyone is here. All the trips planned, art-making, skiing etc. ! Hawaii sounds nice right about now!

DX 28 - stage 2B ; DX 34 - stage 4 (lung, mediastinal nodes) • PALB2+ A946-1038del (confirmed Apr '18) • RECQL variant (A503V) Dx 1/3/2012, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 2/8/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left) Chemotherapy 4/3/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/20/2014 Zoladex (goserelin) Hormonal Therapy 9/1/2014 Femara (letrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Dx 7/10/2017, IDC, Left, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 7/12/2017 Zoladex (goserelin) Hormonal Therapy 9/14/2017 Femara (letrozole) Radiation Therapy 9/21/2017 External: Lymph nodes Targeted Therapy 10/15/2017 Ibrance (palbociclib) Hormonal Therapy 11/13/2018 Faslodex (fulvestrant)
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Apr 5, 2018 09:07AM Piggy99 wrote:

Marian, sorry to hear about your fall - wishing you a speedy recovery!

Ashlyn, good luck with your April 23rd scan and CT. Hope the headaches are only Letrozole playing with your hormones.

Love seeing all the flowers and dolls and garden pics.

Diagnosed as Stage IV de novo at age 42. Dx 1/23/2018, ILC/IDC, Left, 6cm+, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- Hormonal Therapy 1/31/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 2/8/2018 Ibrance (palbociclib) Hormonal Therapy 3/31/2018 Femara (letrozole)
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Apr 5, 2018 01:01PM lakewoman wrote:

Please I do not want to offend anyone.but this was written by a minister..and perhaps many of you are familiar with her and her book It's Not About The Hair..this excerpt ..Prince and the Gun Oil ..was in Cure magazine..I send it to you Jaycee and any interested others. I too experimented during my arimidex 5 yr stint..and discovered a product.Wondering.am I able to see my past posts from this era??I had a lot of comments on my experiment..One woman saying her husband cried when she responded!!!!lol..another said she thought her hubby was going to take the day off to watch for the UPS truck..!!! Yes the product worked for me and still does!! Now , as you know, WE will see how it works while I am on Letrozole!!!

https://www.curetoday.com/publications/cure/2009/fall2009/prince-and-the-gun-oil

Sharlene
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Apr 5, 2018 01:16PM jaycee49 wrote:

Thanks, Lakewoman. I made the URL into a link so people can click it to go there. I read a little. Looks interesting. I have considered dilators. I'm just soooooooooooo lazy.

https://www.curetoday.com/publications/cure/2009/fall2009/prince-and-the-gun-oil

JaneZ (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/15/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Apr 5, 2018 01:25PM jaycee49 wrote:

I read the whole article just now. It is worth a read, even if you don't have this ... problem. It is hilariously funny.

Thanks again Lakewoman. This may inspire me. You can buy sets of dilators in various sizes to ... work your way up. Shopping in my future. Online.

JaneZ (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/15/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Apr 5, 2018 02:19PM Tanya_Djamila wrote:

Good afternoon all

Thank you gum doctor for the beautiful pictures. The tip lips are gorgeous. Nice $20 investment t.

Tanya

Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/19/2017 Faslodex (fulvestrant)
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Apr 5, 2018 04:03PM Leapfrog wrote:

Well I have to say right here that I think we're all doing amazingly well! Skiing sounds such fun but we don't get snow here. PaGMc as usual you've filled. Us all with your positive energy. Ive beenn seeing some of your artwork on Facebook.. i love it.

50sgirl good luck with your scan results..

Blueshine thanks SO much for the encouragement for my wriing.. I have a lot more material to share yet but i fear writing a book would beyond my ability. If anyone has any feedback on the blog or has any thoughts you'd like to contribute feel free to PM. me. We've all had such different experiences and I'd like to reflect that. It's amazing how little the general public understands about MBC and the difference between this and other stages and how much, once they get it, they want to know more.

Umm I think that's all. My phone won't let me scroll back to check I've said what I want to say to the right person, so I hope I have it right!

Find your joy Dx 10/15/2016, ILC/IDC, Both breasts, 6cm+, Stage IV, metastasized to bone, Grade 3, 29/29 nodes, ER+/PR+, HER2- (IHC) Surgery 11/1/2016 Mastectomy: Left, Right Hormonal Therapy 12/10/2016 Femara (letrozole) Targeted Therapy 1/15/2017 Ibrance (palbociclib)
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Apr 5, 2018 05:01PM Bigbhome wrote:

Thanks so much for the info lakewoman, cracked me up! Good to know tips

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Apr 5, 2018 06:42PM lakewoman wrote:

YW Laughter good for all of us..!!!

Sharlene
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Apr 5, 2018 10:11PM dorimak wrote:

Anyone on IBRANCE for over two years? I have been on for just two years for a solitary met under my sternum. My most recent scan has shown something new in a node at the airway to my lung, yet area under sternum is stable. Don't know if this means the IBRANCE is failing, if it's a new met that's not hormone positive, or (please God) not cancer. Waiting to see a pulmonary doctor for evaluation. Blessings to all you ladies (and gents if applicable).

Dx 10/2001, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/2005, IDC, Right, 2cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 1/2016, IDC, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- Targeted Therapy 3/31/2016 Ibrance (palbociclib) Hormonal Therapy 3/31/2016 Femara (letrozole) Hormonal Therapy 3/31/2018 Faslodex (fulvestrant) Targeted Therapy 10/31/2018 Afinitor (everolimus) Hormonal Therapy 10/31/2018 Aromasin (exemestane) Dx 1/2019, Stage IV, metastasized to brain/lungs/other, Grade 2, ER+/PR+, HER2- Radiation Therapy External: Brain Surgery Mastectomy: Right Radiation Therapy Chemotherapy AC Surgery Lumpectomy: Right
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Apr 6, 2018 01:00PM Maire67 wrote:

Lakewoman, that was a laugh out loud article. At least I’m laughing at myself but out loud.

Dx 6/2005, ILC, Right, 5cm, Stage IIIB, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy
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Apr 6, 2018 01:37PM - edited Apr 6, 2018 10:30PM by IntoLight

This Post was deleted by IntoLight.
Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Apr 6, 2018 02:00PM Kattysmith wrote:

I've had a great run on Ibrance since February 2016, but with some new mets popping up in my liver, it's time to move on to a new protocol. I have nothing but good to say about the two years I've been on it...I've felt really well with no bad side effects. I've been so fortunate. I wish you all the best and hope it is successful for you for a long, long time!

First diagnosed borderline Stage 2 IDC, left breast in 2003. No problems until a surprise (!) Stage IV recurrence in 2015! In addition to treatments listed below, I started monthly injections of Xgeva for bone support in July 2016. Dx 10/23/2015, Left, Stage IV, metastasized to other, Grade 3, 0/3 nodes, ER+, HER2- Chemotherapy 11/3/2015 AC Hormonal Therapy 2/4/2016 Femara (letrozole) Targeted Therapy 2/4/2016 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Apr 6, 2018 02:26PM - edited Apr 6, 2018 02:40PM by georgiabirdgirl

Hi All,

Kattysmith- I'm so sorry that Ibrance has stopped working for you. What treatment are they talking about for you next? How did they discover the liver mets? I'm just a few days into taking it, so I'm hoping that I get a couple of years of good results from it too. Good luck and please let us know what protocol they plan for you next!

I've been enjoying reading everyone's updates. I laughed out loud at the gun oil article. HILARIOUS! Thanks for sharing. I'm really relieved to hear that so many of you don't have all the terrible side effects from Ibrance. I finally was approved and got my medicine on Tuesday. Whoever said they cried, but looking back would have done a happy dance, I thank you. Because instead of feeling dread, I imagined myself a couple of years from now happily taking my expensive pill, knowing how well it works for me. It's a good exercise to practice feeling hopeful. So far so good with these meds. I've had a little bit of stomach upset, but nothing drastic. Fingers crossed that it stays that way. They have started me on 125mg, so time will tell if I can stay with it. I've been busy being a normal harried working mom, and it's glorious. I'm thrilled not to be on the "chemo coaster" schedule. We did manage to go to a sunrise Easter service in the mountains of South Carolina to watch the sun come up, and it was beautiful. We got there in the pitch black, and listened to the choir and the preacher until the sun started to peek over the mountains. Then, as the sun rose, everyone sang "Amazing Grace" together. It was a very moving experience. Thank you for sharing your stories and your inspiring adventures. I've attached a couple of photos of the sunrise service, and one professional photo of the place known as "Pretty Place" so you can see what it looks like without a crowd and in the light of day. - MISSY

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Apr 6, 2018 04:48PM lakewoman wrote:

Okay couple things today LEFT over breast biopsy √

Small area in mouth under tongue back of lower front teeth that I cant stop touching with my tongue√

Intolight..ty so very much for your sharing re dildo(As in Prince and the Gun Oil article).my guy said well maybe it was just a vibrator..He got me thinking!! After I stopped laughing ty.!!

Leapfrog..so enjoyed hearing about your interest in writing..I wrote my first article ( Determined to Heal)for a real magazine Woman Hunter.in 2010...it folded..pun intended..Then I wrote articles for Huntress Life an Online magazine.Publisher wonderful.even sold t-shirts hats etc.Unfortunately he had to give it up..He even published my 2010 article..As you can see by preface to this article he used the wrong picture..I will post that BC article next week if you are not bored..Enjoy and leapfrog ..go for it..!! Best of luck..the creative mind heals ...begins on page 36..I think!!!

https://issuu.com/ladyhuntermagazine/docs/huntress...

Sharlene
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Apr 6, 2018 05:44PM 50sgirl wrote:

I must admit that when I was diagnosed with MBC almost three years ago, I would never have predicted that I would get so many good laughs while reading posts here on these threads. It is so therapeutic. Thank you so much. Oh dear Lakewoman, I will never get that hilarious story out of my mind. There has been so much bad news lately, and I really needed this. IntoLight, It must have been a challenge to find a time to actually take that "something" out of the paper sack and use it in a dorm room.

Missy, Welcome to our world of Ibrance. I hope you get many years of good results from those expensive pills. I have been taking Ibrance for 20 months and have had a really good response, and I am one of the lucky ones who feels great. Your pictures from the sunrise service are beautiful. What a serene setting to start a special day. Thank you for posting them.

Kattysmith, Good luck with your new treatment protocol. I hope you get as good a response from you new treatment plan as you did from Ibrance and Femera (and for as long or longer). Please stay in touch with those of us on this thread.

Dorimak, I hope that the new node in your airway is benign, but if it is not, there are many other treatments available. I know it can be frightening to face the possibility of progression. Our minds always seem to imagine the worst. Do you know how soon you will se a pulmonary specialist? I realize that the waiting is difficult. Once you find out what is going on, you will find out what is next. Let us know what happens.

Hugs and prayers to everyone, Lynne



Dx 6/5/2015, IDC, Left, 3cm, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/25/2015 Arimidex (anastrozole) Dx 8/9/2016, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel)
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Apr 6, 2018 07:29PM MountainLady wrote:

Such an amazing group of women! PatgMc, Thereishopr4us, Blueshine--thank you all for the words of encouragement. So glad to see that you all are traveling and skiing. I have a 16 year old daughter and she keeps me busy. After being in remission for 6 1/2 years, it was so hard to hear that Cancer had returned. This is my first cycle of Ibrance (100mg). I have been tired and white blood count was low after 2 weeks (2.5). I get my blood tested again Monday after the 3rd week to see if it's fallen more. I'm wondering if the Doc will lower the mg dose if the count is to low. Other side affects I've had are constipation and a painful mouth sore. I hope that I will adjust as time goes on. Do any of you ladies have suggestions for any of this?

I'm happy to hear that many of you have done so well on Ibrance. It gives me hope!

Dx 10/2008, ILC, Right, 3cm, Stage IV, metastasized to other, 4/17 nodes, ER+, HER2- Targeted Therapy 3/18/2018 Ibrance (palbociclib) Hormonal Therapy 3/18/2018 Faslodex (fulvestrant) Surgery Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxotere (docetaxel), Xeloda (capecitabine) Surgery Prophylactic ovary removal Radiation Therapy Whole-breast: Breast Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right; Reconstruction (right): Pedicled TRAM flap Chemotherapy AC + T (Taxol)
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Apr 6, 2018 07:56PM georgiabirdgirl wrote:

mountainlady-

I don’t have constipation as a side effect of Ibrance/Femara (so far)but I did with the Gemzar/Carboplatin chemo I was on. I started taking a Sennakot daily and it made all the difference. Also, there is a “magic mouth wash” they can prescribe you for the mouth sores. I hope your bloodwork comes back better on your next labs.

Missy

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Apr 6, 2018 08:07PM MountainLady wrote:

jaycee49 -- A fellow New Mexican! I'm east of Albuquerque in the Mountains. So nice to "meet" you. I enjoyed your article about the Oil Gun. Quite funny. Thanks for posting.

Dx 10/2008, ILC, Right, 3cm, Stage IV, metastasized to other, 4/17 nodes, ER+, HER2- Targeted Therapy 3/18/2018 Ibrance (palbociclib) Hormonal Therapy 3/18/2018 Faslodex (fulvestrant) Surgery Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxotere (docetaxel), Xeloda (capecitabine) Surgery Prophylactic ovary removal Radiation Therapy Whole-breast: Breast Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right; Reconstruction (right): Pedicled TRAM flap Chemotherapy AC + T (Taxol)
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Apr 6, 2018 08:11PM MountainLady wrote:

Georgiabirdgirl-- thank you for the input! I'm on Ibrance/Faslodex and the nurse thought the Faslodex was actually causing the constipation. Going to try a few things she recommended. Hopefully I'll take care of it.

Dx 10/2008, ILC, Right, 3cm, Stage IV, metastasized to other, 4/17 nodes, ER+, HER2- Targeted Therapy 3/18/2018 Ibrance (palbociclib) Hormonal Therapy 3/18/2018 Faslodex (fulvestrant) Surgery Hormonal Therapy Arimidex (anastrozole) Chemotherapy Taxotere (docetaxel), Xeloda (capecitabine) Surgery Prophylactic ovary removal Radiation Therapy Whole-breast: Breast Surgery Lymph node removal: Right, Sentinel; Mastectomy: Right; Reconstruction (right): Pedicled TRAM flap Chemotherapy AC + T (Taxol)
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Apr 6, 2018 10:24PM Leapfrog wrote:

This thread is so busy and moves so fast that if I don't check in twice a day, which I don't, I get behind. This time I'm so far behind that I'm not even going to try to but those of you who know me know that I'm always thinking of you girls.

PatMcG....I think it was you answering a query about headaches. Most of the "oldies" on here know I've been on it for over a year and that I have a lot of skull mets. For the last few months I've had stabbing pains occasionally around the area where I know there are mets, near the temple and in the orbital bone of my left eye. My husband and son assure me that it's stress and that I only get it at a certain part of the Ibrance cycle. Normally I make a note of these things but I haven't with this so I have no way of remembering whether they're right with my foggy memory. I'm sure I had it before my last bone scan at the end of January and I was told it was stable. Has anyone had this experience of stabbing pains? If I'm stressed I usually experience it as a tight band around the temples, not stabbing pains.


Find your joy Dx 10/15/2016, ILC/IDC, Both breasts, 6cm+, Stage IV, metastasized to bone, Grade 3, 29/29 nodes, ER+/PR+, HER2- (IHC) Surgery 11/1/2016 Mastectomy: Left, Right Hormonal Therapy 12/10/2016 Femara (letrozole) Targeted Therapy 1/15/2017 Ibrance (palbociclib)

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