Dec 6, 2018 11:21AM snooky1954 wrote:
Dear sweet Ladies....
I don't post very often, but that doesn't mean that I don't care and think about each and every one of you. All of you are in my prayers.
There's so much about BC that I just don't understand. Reading just confuddles my brain more lol
Does this sound right to you? I am 64 yrs old.
Dx 7/2017 5cm tumor, one node. Had Pet/Ct and no evidence of cancer any where else in my body. I took an Al for 6 mos.( I needed room to breath) and after a sonogram was told it had grown 1/2 cm. Well, that didn't sound like much to me and I knew that scans didn't always jive with the size. So I continued on with my Al. (the onc did not suggest that the al was not working) Fast forward one yr. 7/2018 A CT scan revealed suspicious nodules in my lungs. Original breast tumor had grown 1cm. but, it got sneaky grew inward toward my chest wall and came out as skin nodules around my nipple. My onc. said you are now stage IV!!!! The AL had not worked. Never realized that cancer grew this fast. And I am grade 2 on aggressiveness.
I was put for Ful/IBRANCE just finished my second cycle. That was Oct 15. I felt great though. So in a one week period, I had redecorated my apt. lots of cleaning, up and down ladders!
The groin of my right leg started to hurt. It felt like a badly pulled muscle. Got considerably worse until I could barely walk. Went to ONc. Bone scan was ordered. It found mets in 4 places in my body. Was put on Xgeva along with the other two meds. (F/I) Then a couple of weeks after that I had an invursion fracture in my neck. (cervical) A piece of bone had chipped off while I was bending over to pick up a towel. The pain was horrendous. Arthritis and degenerative bone disease also was advanced.
What I do not understand is, if I had had a CT in July, why did it not show bone mets? That was a mere 3 months before my bone scan. My ONC said bone scans are nuclear so they are better.
I've read the wonderful responses you ladies have had with IBRANCE and I know/believe that I can achieve the same. So I have hope. I just don't understand the scans.
Thank You so much for sharing your knowledge, I have three grown sons but they are very busy with there own lives. Two of them think there's not nothing much the matter with me.!!!! My first son is my rock, however he is a type a personality and has such an active, overachieving life, I can't put too much on him.. I live alone.