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Topic: Ibrance (Palbociclib)

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Feb 24, 2015 08:21PM - edited Dec 11, 2017 01:43PM by Moderators

Romansma wrote:

A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets. Anyone currently on Ibrance?

Edited by Mods to add Mod Note: Unfortunately, Romansma passed away in 2016. Our thoughts are with all who loved Hope.

Edited by Mods to add:

For more information on this medication, see the main Breastcancer.org site's section on Ibrance for information on how it works, who it's for, what to expect, and side effects. Also, read the latest research on the Research News on Ibrance pages.

Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition, transportation and financial assistance.

For cancer patients taking a Pfizer Oncology medicine (e.g. Ibrance) or caregivers, please visit www.PfizerOncologyTogether.com.

For live support call: 1-877-744-5675

Hope Dx 10/22/2010, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 11/1/2010 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/1/2011 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Radiation Therapy 6/8/2011 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/29/2011 Prophylactic ovary removal Dx 8/2013, ILC, Stage IV, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 9/17/2013 Faslodex (fulvestrant) Targeted Therapy 1/25/2014 Afinitor (everolimus) Radiation Therapy 2/11/2014 External: Bone Chemotherapy 12/6/2014 Xeloda (capecitabine) Hormonal Therapy 2/20/2015 Femara (letrozole) Targeted Therapy 2/20/2015 Ibrance (palbociclib)
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Jan 21, 2019 11:39AM Grannax2 wrote:

gumdoctor. Right on about the hair. I know what's coming so I've let my hair grow, it's down to the middle of my back. I have lots of people say I liked your hair better short. I wore mine short for 17 years after my second chemo and third. I wear it in a ponytail. How many 70 ish ladies get to swing a high, white ponytail? I lost at least a third from IL and was surprised when lots more started coming out about my second week of AA. I had not read about that. It was coming out so much I wondered if it would continue to baldness. This is my 3 week anniversary on AA. It reminds me of real chemo as it seems to cycle. I think last week was the bottom, now I'm on the up cycle. But how can it cycle since its an everyday pill? It's not like I have a nadir, labs dipping on a certain day, because I continue to take it every day.

I need to read Amarantha post. I get my results today. Praying it changed. What did hers change to? Does she still post?

Joyner this is one week anniversary on X, right? Nkb I don't have a good story on AA yet. Except, that I don't feel as bad as last Thursday. Maybe I'm through the worst of it?!?! Except for weight loss. I weighed again today, lost another three pounds. A pound a day? That is not sustainable. Being about 20 pounds overweight, I'm happy to lose the weight. It's a dieters dream come true to watch the scale go down but........

Holmes that is so scary. What symptoms made you know to go in?

I am opposite about my resources. Ha. I'm remodeling my kitchen. I had windfall of some unexpected money. Thought one second about saving it then called my carpenter. My kids are both on board. It might increase value of my house a little. But, I'm doing it for me, my way. It's going to be Vicki's Farmhouse Kitchen on a shoestring. I'll have my own TV show soon. That's a laugh. It's taken 3 months already and I will be certifiably crazy if two more weeks. 😵

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Jan 21, 2019 12:16PM Tanya_Djamila wrote:

Holmes hospitals are scared for us but I’m grateful they’re there. I hope you feel better soon. When you get a chance please share the symptoms.

Grannax the swishing pony tail though. I don’t know about your new medicine. AA you take it daily without a break, like Ibrance? I agree with the remodeling. I’m waiting for money to refinish a blinds project. Then bathrooms bedroom and kitchen. But not in that order.

Joyner I hope your X treatment is doing its job. I know you were concerned with the amount of time you didn’t take anything. It must make you feel almost normal not to have these meds on board, searching for SE’s. Well soon you’ll be boating again.

Take care all

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Jan 21, 2019 04:30PM airlinegal wrote:

Thinking about you Holmes....hope you are better soon. Grannax and Joyner thanks for keeping us posted.
Dx 2000 Stage I left breast, lumpectomy, chemo, radiation, tamoxifen 5 yr Dx 2016 Stage IV metastasized to bone/lung. Hormonal Therapy Femara 5/1/16. Targeted Therapy Ibrance 5/1/16
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Jan 21, 2019 05:52PM 50sgirl wrote:

Holmes, I am sorry that you are in the hospital, but I am glad that your clots were found before they caused a serious problem. I have to admit that you are the first person I have known who had clots in the bottom. Maybe you will look back and laugh about it some day. For now, I just hope that they decide upon the appropriate blood thinner for you. I have no doubt that you want to go home soon.

Grannax, I didn't realize that your hair was so long. I did notice in your pictures it is a beautiful color. There have been many times that I have started to grow my hair long, but everytime it reaches a certain length I break down and cut it. I think I am too lazy to to dry it when it gets long. Has your MO said anything about your rapid weight loss and lack of appetite? Is she concerned about it or is it an expected side effect?

Joyner, How is Xeloda treating you? I hope you find it to be as easy as I found it to be. I also hope that it will be effective for a very long time.

Jen, You were right in your post last week. I did try tamoxifen after Ibrance/faslodex failed. I did not do at all well on it, and moved to Xeloda after three months. I began to feel much better after the first two cycles of Xeloda, and when I had my scans two weeks ago, I expected to see stellar results. My bones mets remained stable, but unfortunately, my liver tumors had doubled in size and increased in numbers during the three months on Xeloda. Go figure! I will be starting on taxol after I take a two week vacation in Florida. Xeloda seems to work really well for most people who post to the thread. It is a good treatment that just didn't work on my liver mets. I miss Ibrance and faslodex.

Hugs and prayers from, Lynne


Dx 6/5/2015, IDC, Left, 3cm, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/25/2015 Arimidex (anastrozole) Dx 8/9/2016, IDC, Left, 3cm, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Hormonal Therapy 8/10/2016 Faslodex (fulvestrant) Targeted Therapy 8/31/2016 Ibrance (palbociclib) Hormonal Therapy 7/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/2/2018 Xeloda (capecitabine) Chemotherapy 2/11/2019 Taxol (paclitaxel)
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Jan 21, 2019 06:55PM Nkb wrote:

50's Girl- I am so sorry to hear that Xeloda did not work on your liver mets! I hope that the Taxol beats them down and you can return to something that is tolerable. I keep hoping a miracle is right around the corner. Sounds like a good plan to get warmed up in Florida first.

Grannax- I am glad that your days are a bit better-->hoping you are the good story! I love that you are Doing your kitchen so that you can enjoy it the way you want it.

The other thing about hair- I've known my hairdresser since long before cancer- she went to the wig store with me- she has seen a lot and is so supportive.

I am still going to convert my fireplace to gas- cosy chair, coffee, good book.


Dx 1/2012, ILC, Stage IIIC, Grade 2, ER+/PR+, HER2- Surgery 2/4/2012 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 2/28/2012 AC + T (Taxol) Radiation Therapy 9/11/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, Stage IV, metastasized to bone/other, ER+/PR-, HER2- Targeted Therapy 6/1/2017 Ibrance (palbociclib) Hormonal Therapy 6/1/2017 Faslodex (fulvestrant) Hormonal Therapy 3/13/2019 Aromasin (exemestane) Targeted Therapy 3/13/2019 Afinitor (everolimus)
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Jan 21, 2019 08:50PM jensgotthis wrote:

Holmes, if it's an option, I highly suggest Eliqius. It's pill form, taken twice a day. I'm glad I did so I don't have to give myself daily shots.

Dx 12/3/2015, IDC: Tubular, Left, 2cm, Stage IV, metastasized to bone, Grade 1, 0/12 nodes, ER+/PR+, HER2- Chemotherapy 1/5/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/2/2016 External: Bone Hormonal Therapy 5/24/2016 Surgery 5/25/2016 Lymph node removal: Left; Mastectomy: Left Targeted Therapy 9/14/2016 Ibrance (palbociclib) Hormonal Therapy 9/14/2016 Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy
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Jan 21, 2019 09:42PM KatyK wrote:

50sgirl, so very sorry to hear about your liver mets. I hope the next meds will work better for you. Wishing you a good trip to FL. Maybe mentioned this is the past but I grew up in NH, Peterborough. Now live in Idaho. Still have family in New England that I visit. Take care

She believed she could, so she did. Dx 7/2017, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 21, 2019 11:17PM Grannax2 wrote:

Lynn I am so very sorry that X failed you. I would be very unhappy if it happened to me. In fact I think X will be my third line TX.

My MO was very unhappy with the weight loss. I've lost ten pounds in a month but 7 of it was this week. One pound a day is not acceptable. She gave me a different med for nausea. She didn't talk about reducing the dose.

Thinking of all of us trying our very best to do what our money tells us. But sometimes it's really tough. This one is a brute. Grrr

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Jan 22, 2019 05:32AM JoynerL wrote:

Holmes, I'm so sorry about those clots! It's always something, and being in the hospital is not fun. Good luck with getting that sorted out quickly and easily.

Grannax, I started X on Friday, so I'm on my 5th day. So far, all feels normal, but I'm not sure how long it takes to notice SE. I'm worried about your weight loss. Are you attributing it to the nausea? Hoping that the SE continue to diminish and that the weigh loss stops with the nausea! You need to be gorgeous next month!

Tanya, thanks for checking. So far, so good.... You're so cute to remember the boat! We're making plans for where we want to go and hoping to be back aboard in May. Grannax is doing her kitchen, and I'm ordering new carpet and pillows for the boat!! Damn the torpedoes.....:)

Oh, 50s Girl, I'm sick about the liver mets. You were a shining light on Xeloda, and we all so hoped for years on it for you. I don't know anything about Taxol but hope that it does the trick for you and is kind as well. I'm so glad you're headed to Florida. It must be brutal right now in NH. My kids in Burlington VT are sending stories of wind chill and snow above the dogs' heads. Get warm and replenished (and try not to think about BC), and we'll be right there with you when you tackle the Taxol.

xoxox

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Targeted Therapy 3/5/2017 Ibrance (palbociclib) Hormonal Therapy 3/7/2017 Faslodex (fulvestrant) Chemotherapy 1/17/2019 Xeloda (capecitabine)
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Jan 22, 2019 09:26AM snooky1954 wrote:

Good Morning Girls

    This am is my scheduled biopsy to see if the hormonal status of my C has changed.  I should be a wreck.  But I feel quite peaceful.  I need to get on a treatment that works. I totally know that all the praying from the last few days has brought Jesus' peace into my heart. He'll be there at that biopsy with me. And then we can get on with it. Being in this stand still since Jan8 was so difficult.  But I'm much better now and ready to fight.

All you ladies on this sight have helped me reach this point. Thank you for letting me believe in myself. My God's grace and mercy touch all of you today.   Sue

Dx 7/2017, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 8/2018, IDC, Right, Stage IV, metastasized to lungs Targeted Therapy 8/14/2018 Ibrance (palbociclib) Dx 11/1/2018, IDC, Right, Stage IV, metastasized to bone/lungs Chemotherapy Taxol (paclitaxel) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole)
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Jan 22, 2019 10:01AM candy-678 wrote:

Snooky-

My prayers go up for you and your biopsy today.  Peace that passes all understanding...

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo, then switched to hormone therapy/targeted therapy. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Jan 22, 2019 10:07AM Tanya_Djamila wrote:

50’s girl Lynne in 2003 I took taxol which I found out I was allergic to (anaphylaxis). I’m sure the dosing is different now. I think they gave us larger doses back then etc. then I completed the cycle with taxotere. Of course I had some red chemo first. I got almost 14 years from that treatment. I pray you get as many years if not more. Enjoy FL sunshine and relaxation.

Joyner remodeling the boat is fantastic. And then you just sail from port to port admiring your work. I know that’s your peaceful happy place so I’m looking forward to hearing about your May excursions and adventures.

PatMC I’m missing your posts. I hope all is well.

Grannax I pray your AA treatment is working hard and you get a break soon.

Holmes I hope you’re home by now!!! Jensgothis suggested some pills. I would’ve much rather Had that than that months supply of shots I took home after surgery. I hope it’s all resolved.

Snooky I’m glad you’re in a zen place for the biopsy and pray all goes well (results) and you rest easy.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Jan 22, 2019 03:45PM Seaway wrote:

50sgirl; I've had taxol twice. Back in 2004 and again in 2015. I found it tiring (so what's new) and as I recall about day 3 to day 5 after infusion I had a lot of arthritic type pain and for those days I took 2 tylenol 3's every 4 hours.....so for 2 or 3 days. It worked very well for me and the first time I got almost 14 years NED and have had no recurrence of the ovarian cancer. In 2004 I also had A/C (aka the red devil and another) and in 2015 I also had carboplatin but I do credit the taxol very much for those great results.

Take care and please have something on hand just in case.

Cathy

2015 diagnosed with high grade serous ovarian cancer. Debulking hysterectomy followed by carboplatin and taxol. Dx 2004, IDC, Left, 3cm, Stage IIIC, Grade 3, ER+/PR+, HER2+ (FISH) Dx 2018, IDC, Stage IV, metastasized to lungs, ER+/PR+, HER2- (IHC) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Hormonal Therapy Arimidex (anastrozole) Chemotherapy Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery Lumpectomy: Left
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Jan 22, 2019 05:34PM Novagirl wrote:

I’m having coilicky sharp abdominal pain. I’m in radiation to my hips/pelvis and lumbar spine. I just started my second cycle of Ibrance. I’m also having pain in my right ribs, lower spine and hips again. It had gotten better. Is it possible that I’mhaving progression and the Ibrance/Letrozole isn’t working?

Currently on first line treatment: Ibrance, Letrozole, Xgeva, Zolodex since 12/22/18 Mets to Lungs and Bones. Originally diagnosed early stage at 31 during the one year postpartum period. Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Jan 22, 2019 08:03PM - edited Jan 22, 2019 08:05PM by Gumdoctor

Novagirl,

Anything is possible in this strange, surreal MBC world. But as we seem to learn slowly but surely on this journey, it is much more likely these new pains are NOT progression but your body working through all this new treatment you are getting.

I have learned, and am still learning, to watch and wait. Others here also share over and over, how jumping to conclusions immediately is so easy to do but they are very often wrong.

We can be kind and loving with ourselves by focusing on treatment helping us, even through the pain. And somehow, seemingly miraculously, things get better. And the immediate worry we had about new treatment failure, tends to go away and be replaced with relief and more time on a treatment that IS working.

Hoping you will be able to watch and wait and find some peace through the current fear and disbelief.

Gumdoctor

Dx 7/9/2014, IDC, Both breasts, 5cm, Stage IIIA, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Surgery 7/29/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/20/2017, IDC, Both breasts, 5cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Surgery Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction Surgery Reconstruction (left): DIEP flap Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Jan 22, 2019 08:51PM Novagirl wrote:

Thank you Gumdoctor. That is good advice. Maybe these pains are the cancer dying.

Currently on first line treatment: Ibrance, Letrozole, Xgeva, Zolodex since 12/22/18 Mets to Lungs and Bones. Originally diagnosed early stage at 31 during the one year postpartum period. Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Jan 22, 2019 09:08PM Grannax2 wrote:

My kids are monitoring my food in take. I tex them everything I eat and when. I'm takin the anti nausea med. But, what is there to do about Afinitor also causing the food not to absorb as well? I think my dress will have to be altered, at this rate who knows what size I'll wear. So many things to think about.

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Jan 22, 2019 10:30PM SouthJersey wrote:

Ciaci - Thanks for the advice about Prolia. Will see what the Doctor says at my next appointment.

KatyK - I am curious to hear what the name of the new drug is that your Doctor mentioned, that she heard about at the San Antonio conference. Fully understand the monthly TM stress. My Doctor mentioned the PACE clinical trial as the next line of treatment after the Ibrance/Letrozole combo.

Wishing everyone the best -


Dx 2/22/2015, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy 3/27/2015 External: Bone Targeted Therapy 4/9/2015 Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Jan 23, 2019 01:13AM time-for-a-cure wrote:

Happy to report some good news. I just started my 43rd cycle of I/L. Saw my MO today and labs and tumor markers all good. I take the 75mg due to fatigue at higher doses. Wishing you all the same success!

Dx 12/2012, ILC, Right, 2cm, Stage IIB, metastasized to other, 0/2 nodes, ER+/PR-, HER2- Dx 1/2015, IDC, Stage IV, metastasized to other Surgery Lumpectomy: Right Targeted Therapy Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 23, 2019 07:16AM JoynerL wrote:

FABULOUS news, time-for-a-cure! Congratulations!!

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Targeted Therapy 3/5/2017 Ibrance (palbociclib) Hormonal Therapy 3/7/2017 Faslodex (fulvestrant) Chemotherapy 1/17/2019 Xeloda (capecitabine)
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Jan 23, 2019 08:11AM Tanya_Djamila wrote:

nova girl check with your onc and rad crew. You’re supposed to stop ibrance while on radiation.

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Jan 23, 2019 09:24AM nonahope wrote:

time for a cure....Congratulations! Such an inspiration to all of us. I've managed to be on 125 mgs. Just started month 10. Have scans scheduled for next Wednesday. Praying for stability!

Hope

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Jan 23, 2019 11:41AM LoveFromPhilly wrote:

hi there! Anyone else experiencing some bloody noses (with blowing)? I’m not having full blown nose bleeds but I’m the morning when I blow my nose (gently) it is bloody. I am also aware that’s it winter and drier etc but just curious if Ibrance May be impacting this one at all or is it just me and my nose? Thanks

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 23, 2019 12:50PM MuddlingThrough wrote:

LovefromPhilly, yes that happens to me, too. It seems it was worse during the first few months and has gotten a bit better. Once or twice a day I put some vaseline on a q-tip and coat the dry places in the nostrils. Not a big blob vaseline, just a little bit. It has seemed to help.

Diagnosed stage 4, de novo. It was quite a shock. Dx 1/4/2018, IDC, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 3/28/2018 Femara (letrozole) Targeted Therapy 3/28/2018 Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Jan 23, 2019 12:55PM Seaway wrote:

LovefromPhilly;

I have the same nose issue. It's been going on for quite a while.

Cathy


2015 diagnosed with high grade serous ovarian cancer. Debulking hysterectomy followed by carboplatin and taxol. Dx 2004, IDC, Left, 3cm, Stage IIIC, Grade 3, ER+/PR+, HER2+ (FISH) Dx 2018, IDC, Stage IV, metastasized to lungs, ER+/PR+, HER2- (IHC) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Hormonal Therapy Arimidex (anastrozole) Chemotherapy Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery Lumpectomy: Left
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Jan 23, 2019 02:02PM LoveFromPhilly wrote:

thank you friends!! 💕💕

💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏽‍♂️ 💫 🧚🏽‍♂️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ 💫 🧚🏾‍♀️ Dx 3/25/2017, IDC, Right, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/4/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 23, 2019 03:01PM Nell19 wrote:

Hello,

I just wanted to introduce myself. I am new to this group, although I have been lurking for a while. I'm due to start IF next month when radiation is done. I'm glad to be able to get this drug, but wonder how common the se s are. Is life pretty normal on it?

Best regards,

Ellen

Dx 6/30/2001, IDC, Left, 1cm, Stage IB, 0/15 nodes, ER+/PR-, HER2- Dx 9/2005, IDC, Left, Stage IB, ER+/PR- Dx 5/2/2016, IDC, Left, 2cm Dx 12/11/2018, IDC, 2cm, Stage IV, metastasized to bone, ER+/PR+, HER2- Radiation Therapy Hormonal Therapy Arimidex (anastrozole) Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 23, 2019 04:02PM MuddlingThrough wrote:

Hi Nell19, Ibrance only give me a couple of se's. I do have the famous fatigue and also it gives me a slight bloody nose, just when I blow the nose. I have not had the F. My other therapy is letrozole and it is not very kind to me. It is keeping me alive though...You ask if life is pretty normal. For me, no. I've had to adjust to a new normal but it is doable. I hope it works for a long time! There are ladies here who have been on it for years and are keeping active.

Diagnosed stage 4, de novo. It was quite a shock. Dx 1/4/2018, IDC, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Hormonal Therapy 3/28/2018 Femara (letrozole) Targeted Therapy 3/28/2018 Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Jan 23, 2019 05:34PM KatyK wrote:

No bloody noses any more. When I first started on the I/L I had a few gushers but that stopped. Now my eyelids are taking a beating - red and dry and a cracked lip. I stay hydrated use lip balm but no luck. I’ve tried a couple things for eyelids but it seemed to make it worse. It gets better during my week off.

Hello Nell19. I’ve been on the 125 mg Ibrance and letrozole for eighteen months. I tolerate it pretty well. I continue to have good quality of life. The biggest change for me is that I was very fit and active with mountain biking, skate skiing, hiking, backpacking, gym, yoga, etc. and while I still engage in all of these activities ( just got back from a morning yoga class and skate ski) it’s just not the same. I can’t do the same intensity and need to rest while I’m doing these activities. Likely due to meds and lung mets. But this diagnosis did stop my desire to keep trying to do these things. I can get some rashes and I gained weight. But life is still good. I think many women tolerate these meds pretty well and I hope you do too

She believed she could, so she did. Dx 7/2017, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jan 23, 2019 05:56PM Novagirl wrote:

timeforacure, that’s great news! Congrats!

Nell19-welcome, I’m new here too. This thread is great for support and advice.

Tanya- no one told me not to take Ibrance while in radiation. Today was my Last day of radiation and I took Ibrance the entire time. Do you know why Ibrance isn’t taken with radiation

Currently on first line treatment: Ibrance, Letrozole, Xgeva, Zolodex since 12/22/18 Mets to Lungs and Bones. Originally diagnosed early stage at 31 during the one year postpartum period. Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)

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