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Sep 29, 2020 09:42AM
Well group I had my MO visit yesterday--Monday. And my CT. This was the first actual visit with my new MO (traveling 2 hours one way) and the first CT at the new facility.
This is going to be a long post, so those that are not interested in my saga you may want to skim only.
Trip was long. I went alone. I was thinking "this is weird traveling all this way for a doctor visit". Had CT scheduled first and then a 1 1/2 hour lull till saw MO.
The CT was different. Usually I have to drink a contrast 1 hour before scan. Not this time. And it was the same type of CT-- chest, abdomen, pelvis. They have people that their only job is to start the IV-- the CT tech would start the IV at the old place. We did 1 pass thru the machine "Take a deep breath and hold it", then the dye went in IV, then 1 pass again "take a deep breath and hold it". All done. Maybe 2 minutes in machine. The old place did several swipes of the machine, then gave dye and then another 8 minutes of swipes. The machine would rev up, run, and wind down several times. Weird that the testing was so different. I hope it is due to more advanced equipment, but I worry that it is not as thorough.
Then the office visit. No gown. MO came in with the nurse. MO pulls up CT pics on computer and shifts computer screen so I can see. I do not know what I am looking at. She points out the original tumor and measures with the mouse. Around the same measurements as it has been--give or take a mm or so. It is just a shadow. I am thinking "this shadow is what is so deadly?". She said radiologist sees a new tumor measuring 7mm and recommends a MRI. We are going to do the MRI in a couple of weeks-- my first MRI of the liver. I had a list of questions on an index card. I ask about dental appt--no issues, just check up and cleaning. I told her I had been holding off due to lower ANC lately. She looked at me with a blank look. She said "well I can ask my colleague that works with leukemia patients. They have low counts all the time. See what he says". I ask about mammograms, how does she feel about them with MBC patients (I am due in Oct for mine). She said no need. Said CT would catch anything. I ask about Palliative Care. She said they do not have a program for that, just Hospice. She did not ask why I wanted Palliative Care, so I mentioned constipation and my pain issues. She did not say "What are you doing for the constipation?" or " What other issues are you having?". She doesn't seem to have much of a bedside manner. Or seem to want to deal with anything except the tumor. Her name badge said "Associate Professor". I think she had the head smarts and will be good for the academics of the cancer, but I don't think she will be the type of MO that handles all your issues--side effects of meds (constipation, AI pains, fatigue), or other issues with dealing with a cancer diagnosis. She then ended with listening to my lungs and lightly palpating my abdomen-- kind of a cursory exam.
So MRI on Oct 10. Will hear from office on results and will probably stay on Ibrance for now. See her in Dec again to recheck scans and status of the tumors. Oh, and to continue the Ibrance 5/2 schedule with checking ANC every 2 weeks for the next month, then go to monthly lab. Long day and exhausted when got home.
Thanks for listening to me. Any comments from group?
Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets
6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2-
9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2-
Femara (letrozole), Zoladex (goserelin)
Lymph node removal: Sentinel; Mastectomy: Left