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Topic: Ibrance (Palbociclib)

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.

Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.

Learn more about living with MBC.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Feb 24, 2015 07:21PM - edited Dec 11, 2017 12:43PM by Moderators

Romansma wrote:

A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets. Anyone currently on Ibrance?

Edited by Mods to add Mod Note: Unfortunately, Romansma passed away in 2016. Our thoughts are with all who loved Hope.

Edited by Mods to add:

For more information on this medication, see the main Breastcancer.org site's section on Ibrance for information on how it works, who it's for, what to expect, and side effects. Also, read the latest research on the Research News on Ibrance pages.

Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition, transportation and financial assistance.

For cancer patients taking a Pfizer Oncology medicine (e.g. Ibrance) or caregivers, please visit www.PfizerOncologyTogether.com.

For live support call: 1-877-744-5675

Hope Dx 10/22/2010, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 11/1/2010 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/1/2011 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Radiation Therapy 6/8/2011 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/29/2011 Prophylactic ovary removal Dx 8/2013, ILC, Stage IV, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 9/17/2013 Faslodex (fulvestrant) Targeted Therapy 1/25/2014 Afinitor (everolimus) Radiation Therapy 2/11/2014 External: Bone Chemotherapy 12/6/2014 Xeloda (capecitabine) Hormonal Therapy 2/20/2015 Femara (letrozole) Targeted Therapy 2/20/2015 Ibrance (palbociclib)
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Jan 15, 2021 02:12PM Tinkerbell107 wrote:

Candy: Appreciate your response. I feel your MO has the best regime one week off before and after the vaccine. I plan to folllow your MO advice on the same.

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-
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Jan 15, 2021 02:13PM Snow-drop wrote:

I just received the same information from my MO office. Off ibrance one week before and one week after vaccine for each dose. Now I scare...

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Jan 15, 2021 02:28PM RhosgobelRabbit wrote:

Afternoon ladies!

Mouth sores these were a problem for me on capsules at 125mg and tablets at 125mg. Only colgate peroxyl rinse, small blue bottle by the regular mouthwash worked for me. At 100mg on the tablets I have had little if any. This has been nice as I'd get sores all over my tongue and cheeks, the colgate stuff worked but the bottle is small and its 10 bucks a bottle and I was using it all the time. A drop down to 100 worked well for me and still holding things back for 4 or 5 months now. I'm just ending cycle 14.

TMs. I've officially decided not to care about them anymore. They doubled last month then are back where they usually are this month. Whatever. I've decided to say dont tell me TMs, let's just continue to let scans speak, so much easier anxiety wise.

Today I turned 39 :) Hubby finished work early today. We are both taking a nap and then grabbing our dinner out :) Cheesecake is a very real reality tonight. Beloved stopped by my favorite plant and garden small business and picked me up these today.

Today is going to be a good good day.

MO has not brought up covid vaccine at all. I declined flu vaccine before. Will decline covid vaccine. Practicing advise I was given at chemo class presently ie: stay away from sick people, if you see someone sneeze go the other direction, wash hands often and surfaces regularly and try not to hang out in big crowds too long on your lowest WBC days. Has worked well for me.


Mets @ Rads planning. Mets to Pelvis, Femurs, Shoulders, Ribs, T. Spine, L. Spine, Sternum, Sacrum/SI Joints. MyRisk neg. KEAP1 "Courage of the heart is very rare, there's a power when its there" 37yrs old @ IV DX. lifeandirises.home.blog/ Dx 7/30/2018, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 9/26/2018 AC + T (Taxol) Hormonal Therapy 9/26/2018 Zoladex (goserelin) Dx 4/19/2019, IDC, Right, 3cm, Stage IIB, Grade 2, 5/16 nodes, ER+/PR+, HER2- (IHC) Surgery 4/19/2019 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 5/13/2019 Zoladex (goserelin) Dx 5/17/2019, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- (IHC) Surgery 10/1/2019 Prophylactic ovary removal Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Aromasin (exemestane)
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Jan 15, 2021 02:38PM SondraF wrote:

Ladies - do be aware that the JnJ/Janssen vaccine is nearing review at the end of this month and it is a one-shot dose. If their efficacy looks comparable to the others then it may be worth holding out for that vaccine instead of Moderna/Pfizer the two dose regimen.


Happy birthday Rabbit! Enjoy every bit of that cheesecake!

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
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Jan 15, 2021 02:51PM Tinkerbell107 wrote:

Sondra: I haven’t had a chance to research the up incoming vaccines.Are JnJ/Janssen live vaccines?

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-
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Jan 15, 2021 02:55PM - edited Jan 15, 2021 02:57PM by Rosie24

On the Covid vaccine, I hope to get more specifics from my MO at my appt on Monday. I remember someone here (sorry, not sure who) said they talked to a pharmacist at Accredo who said ANC should be 1500 at the time of getting the vaccine. That makes sense to go in strong, but for me it would probably take 2 weeks off beforehand to get that.

I did have a 4 week break and a 6 week break over the past year and nothing changed, but I get the hesitation to stop. The 4 week break was when I was scheduled for my lumpectomy and had a pretty bad cough, MO ordered a Z pack and said stop the Ibrance then, and add 2 more weeks post surgery. The 6 week break was last April/May and my counts were going very low and Covid was new so MO suggested a 6 week break. Little did we know how much worse the spread of cases would get. I eventually went down to 100 mg and feel better but still struggle with ANC.

I think it will be a while until I am offered the vaccine. Ohio is including 65 and over with school employees in the 1B phase, and they already know they won't have enough to cover all of that group anytime soon, unless there are a lot of them not wishing to get vaccinated. (I'm 61.)

Separate topic: Does anyone have a good solution to dry eyes? My optometrist said my watery eyes in the morning are actually dry and the tearing is the response of my eyes trying to compensate. I use eyedrops she recommended but they haven't really done the job.

Edited to add: Happy bday, Rabbit. It sounds like a special day. Enjoy being 39!

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Jan 15, 2021 04:04PM pinestate51 wrote:

Hello from Maine, I went off list for a few months, and am back under another name. I have been in tx for metastatic disease for 7 years now. In the last 3 months I have felt a big drop in stamina. I've been on Ibrance and Faslodex pretty much for almost 3 years. My doses of both are low: Ibrance 75 and faslodex one shot. There are slight changes in small liver mets and some lung stuff, enough to be considering verzenio. However, my question is about hemoglobin. Its running around 9 lately, but doesn't mean anything as for transfusions or tx, since its well above 5. Can you share how you felt when your hemoglobin went down? Its gone as low as 8. I am hating this weak and dragged out feeling. I used to spring back eventually, but am not at this point. Many thanks. Marsh
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Jan 15, 2021 04:11PM Spookiesmom wrote:

🎂🍷

Happy birthday!

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Jan 15, 2021 04:17PM JACK5IE wrote:

Happy Birthday Miss Rabbit! Beautiful flowers! Enjoy your day...and the cheesecake!

10 Cute Happy Birthday Animations And Gifs | Happy birthday cake images, Cute happy birthday, Happy birthday cakes

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jan 15, 2021 07:05PM - edited Jan 15, 2021 07:07PM by KBL

Happy birthday, Rabbit. I hope you had a wonderful day. Beautiful flowers.

Pinestate, my hemoglobin has been low since October of 2018. The lowest it’s been is 9.8. I'm sorry, I can't help with your question per se. I have some days better than others. I hope you can figure out the cause.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Jan 15, 2021 10:35PM aprilgirl1 wrote:

Happy birthday to RRabbit! The bouquet from your husband is gorgeous!!!! Have a wonderful weekend and please enjoy your cheesecake! :)

Pinestate, I am sorry you are having low hemoglobin. I have not experienced that, yet so don't have any advice. Hope you can get an answer soon!

Covid Vaccine: my state seems slow in doling these out, oncologist told me Monday she has no idea when patients like me will qualify for the vaccine (I am 56). I will try to be a patient patient. I would like the vaccine when it is available to me and will continue to social distance etc until then!

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2-
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Jan 15, 2021 11:17PM pinestate51 wrote:

Thanks, KBL. Are you gaining back energy after a cycle of Ibrance? Or in the week off

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Jan 16, 2021 06:25AM KBL wrote:

The only difference I usually feel on my week off is I’m a little less patient, especially with my husband. Poor guy. It almost seems a little like PMS. I’m on 75mg and don’t see much of a difference in my energy level on or off. I know last month I was especially low energy. This month hasn’t been as bad.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Jan 16, 2021 03:07PM cowgal wrote:

In my state (Oklahoma) I will be emailed when I will be able to get the COVID vaccine. I asked my oncology nurse last Tuesday when I was getting my bloodwork, XGEVA and Faslodex shots if I would need to have the shots at a certain time in my Ibrance cycle and she said no to just get the vaccine as soon as I could get it. Also, my understanding with the vaccines is that we will not be able to pick which one we get so opting for the J/J one time vaccine may not be an option.

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Jan 16, 2021 06:35PM dutchiris wrote:

My oncologist also told me to get the vaccine as soon as it was offered to me. I am a healthcare worker. I had the first injection of the Pfizer vaccine January 8th.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/21/2013 AC + T (Taxol) Surgery 6/18/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/1/2013 Radiation Therapy 7/14/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/9/2019 Femara (letrozole) Targeted Therapy 8/16/2019 Ibrance (palbociclib)
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Jan 16, 2021 07:00PM - edited Jan 16, 2021 07:55PM by Tinkerbell107

dutchris: Did you go off your ibrance? Just curious how your MO handled the situation. If I obtain my first dose of the vaccine next week then I will have a FDG pet ct scan right before my 2nd dose of the vaccine. I'm wondering if tracers can impact the vaccine only a few days apart. I'm leaning to waiting after my scan. Then I'll have to wait another cycle with Ibrance before obtaining the vaccine.

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-
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Jan 16, 2021 07:53PM dutchiris wrote:

Tinkerbell; I really don't know about the PET scan.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/21/2013 AC + T (Taxol) Surgery 6/18/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/1/2013 Radiation Therapy 7/14/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/9/2019 Femara (letrozole) Targeted Therapy 8/16/2019 Ibrance (palbociclib)
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Jan 18, 2021 08:54AM - edited Jan 18, 2021 08:54AM by Katrose

Hi JACK5IE,

Thanks for the well wishes!

I think your MO is right. I talked to my case manager on Friday and she said she has been so busy due to the increase in COVID-19 cases.

Life isn't about waiting for the storm to pass...It's about learning to dance in the rain. Dx 11/5/2009, ILC, Left, 6cm+, Stage IIIB, 9/18 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 12/2/2009 AC + T (Taxotere) Surgery 5/19/2010 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 8/5/2010 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 5/23/2011 Reconstruction (left): Pedicled TRAM flap, Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 4/15/2012 Aromasin (exemestane) Dx 6/2/2020, ILC, Stage IV, metastasized to bone/liver, 0/0 nodes, ER+/PR-, HER2- (IHC) Hormonal Therapy 6/18/2020 Femara (letrozole) Targeted Therapy 6/18/2020 Ibrance (palbociclib)
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Jan 18, 2021 09:01AM Katrose wrote:

Hi Dutchiris,

My MO said the same thing, but I'm waiting until after I get my MRI brain and PET this week. I work in healthcare also, but work remotely, so I'm able to wait until its offered by my facility. I don't work in patient care, so I feel comfortable waiting.

Life isn't about waiting for the storm to pass...It's about learning to dance in the rain. Dx 11/5/2009, ILC, Left, 6cm+, Stage IIIB, 9/18 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 12/2/2009 AC + T (Taxotere) Surgery 5/19/2010 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 8/5/2010 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 5/23/2011 Reconstruction (left): Pedicled TRAM flap, Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 4/15/2012 Aromasin (exemestane) Dx 6/2/2020, ILC, Stage IV, metastasized to bone/liver, 0/0 nodes, ER+/PR-, HER2- (IHC) Hormonal Therapy 6/18/2020 Femara (letrozole) Targeted Therapy 6/18/2020 Ibrance (palbociclib)
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Jan 18, 2021 12:49PM - edited Jan 18, 2021 12:50PM by KBL

Get to start back again. This is the third month in a row I've been above 1.0. The first time I had just gotten off a med pack of steroids, so I knew I'd be above a 1.0. The only thing I've done different is I take a probiotic, Florajen, because I was on an antibiotic, and once I stopped, I stayed on it, and the other is I had a few glasses of wine on my off week. Could either of those be the reason? I don't know, but I must try the few glasses of wine again before my next visit to see if it happens again. Lol

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Jan 18, 2021 12:58PM snooky1954 wrote:

KBL-My hemoglobin which held strong (high11's) during 4 TX's even Taxal is now giving me cause for concern. I'm on A/A which has caused it to drop more each month. Last Fri. it was 9.4 even though I'm on half dose of Afinitor. This scares me so badly because I know low hemo is what took Frisky. ( chemo took hers to mid 3's She had transfusions but it would not go back up.) Explaining my feelings/fear to ONC he agreed I could take 1 week off to see if that helps any.

But the real delimia is my thoracic vein in my chest, it has a 3.8cm area full of plaque. They've been watching it and it hasn't gotten larger in three years. But I'm ripe for an aneurism. They now want me to go to a vaincular(sp) surgeon to see what he recommends. My sister is a nurse and worked for years with the heart team at her hospital. I asked her the "likely" verdict. She said, if your real lucky they will try to stent it. (had stent in my hip area years ago, it was 90% closed)

She said other option is open heart surgery. I spoke openly with my Onc, asking long would I have to be off all cancer meds. He said yes for weeks.

I said well cancel the appointment with the V surgeon. I can't make that choice. Am I understanding this correctly? I can chose to die of a burst aneurysm or cancer? He sadly shook his head up and down.

I haven't told a soul until just now. I seem to be in the preverbal rock and a hard space. Right now I'm soul searching and praying that Jesus will tell me the answer. The reason I'm telling all of you --I'm asking for all your prayers that GOD gives me wisdom.

HUGS TO ALL

PS does anyone know why the A/A thread is lifeless?


Dx 7/2017, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 8/2018, IDC, Right, Stage IV, metastasized to lungs Targeted Therapy 8/14/2018 Ibrance (palbociclib) Dx 11/1/2018, IDC, Right, Stage IV, metastasized to bone/lungs Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Radiation Therapy Bone
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Jan 18, 2021 01:03PM cowgal wrote:

Prayers for you snooky1954.

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Jan 18, 2021 01:17PM KBL wrote:

snooky, I’m so sorry you have to make a very hard decision. I can’t give you any advice, but I want you to know I’m thinking of you. My hemoglobin goes up and down and has since before I was on medication. The lowest has been 9.8. It hovers around 10. I hope yours will pop back up. The anemia is not fun. I’m sure it causes my weakness here and there. It really sucks that you have to make these choices. Hugs.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Jan 18, 2021 02:03PM Cure-ious wrote:

Snooky- Maybe its worth consulting with the vasular vein surgeon anyway, given that there could be new procedures developed in the past couple of years? Good luck!!

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Jan 18, 2021 02:21PM candy-678 wrote:

Snooky-- Praying.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Jan 18, 2021 04:11PM Chicagoan wrote:

Snooky-You will be in my prayers. I agree with Cure-ious. Why not at least go see the vascular surgeon? Maybe you will be able to have just a stent. Better to have all the information available as you discern what God would have you do. Peace to you as you wait for guidance.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/26/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/26/2016 Ibrance (palbociclib)
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Jan 18, 2021 04:16PM Nkb wrote:

Snooky- I agree with Cure- ious. Get the consult and then weigh your options. I don’t know why the AA thread is quiet, maybe more people going to piqray and other options these days. I did not have anemia on AA like I did with ibrance. I was only on it 10 months- perhaps it is cumulative. I wonder if you are depleted in B12 or iron or something. Hugs to you

Dx 12/2011, ILC, Both breasts, 6cm+, Stage IIIC, Grade 2, 34/40 nodes, ER+/PR+ Surgery 2/3/2012 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 2/27/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Hormonal Therapy 10/21/2012 Arimidex (anastrozole) Dx 5/2017, ILC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 5/31/2017 Faslodex (fulvestrant) Targeted Therapy 5/31/2017 Ibrance (palbociclib) Targeted Therapy 3/12/2019 Afinitor (everolimus) Hormonal Therapy 3/12/2019 Aromasin (exemestane) Chemotherapy 3/9/2020 Xeloda (capecitabine)
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Jan 18, 2021 11:36PM Hopfull2 wrote:

snooky, you will be in my prayers. My hemoglobin has been crazy too since the end of September until beginning of December. I’ve needed 4 blood transfusions. My numbers got as low as in the 5’s. I think it was te radiation that sus it then I got on Ibrance so . My Onc took me off Ibrance. My numbers went back up and I course no longer on radiation. Now I’m starting verzenio.this week. Maybe Troy can ask about that.

E🌺41yes.old/ oncotype score 39 Dx 7/5/2016, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 8/8/2016 Mastectomy: Right Surgery 9/16/2016 Mastectomy Chemotherapy 11/10/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/23/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/9/2017 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Latissimus dorsi flap, Tissue expander placement Dx 7/2020, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 9/8/2020 External: Bone Targeted Therapy 1/20/2021 Verzenio Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone, Brain
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Jan 19, 2021 12:34AM - edited Jan 19, 2021 12:35AM by PatgMc

Snooky, I just popped in and hate so much to hear you're having to make a big decision. I agree with the others that seeing the vascular surgeon is a wise move. He may have a solution the MOs haven't even heard about.

Once you've learned what all your choices are you can just write them down with their pros and cons, pray about it and go with what you have peace about in the morning. That always works for me.

I'll be here praying for you and for all the rest of you friends. I'm sorry to be so absent but have been working on art projects which are keeping me somewhat sane in light of the news on TV!

Much love from PatGMc

PatGMc Dx 2/1994, IDC, Left, 4cm, Stage IIB, Grade 3, 0/15 nodes, ER-/PR- Dx 3/2002, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2+ (FISH) Dx 3/2012, IDC, Right, 4cm, Grade 3, ER+/PR+, HER2- Dx 9/2016, IDC, 0/16 nodes, ER+/PR+, HER2- Targeted Therapy 10/1/2016 Ibrance (palbociclib) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap Chemotherapy FAC Chemotherapy Carboplatin (Paraplatin), Taxol (paclitaxel) Surgery Lymph node removal; Mastectomy; Reconstruction (right): Tissue expander placement
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Jan 19, 2021 11:07AM JACK5IE wrote:

Snooky...you're in my thoughts and prayers.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)

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