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Jan 24, 2021 06:55PM
Hi all - I haven't posted in a week or so and there is a lot of stuff going on!
BlueGirl - I agree with RRabbit and others that a foundation 1 test would be a good idea to see if this cancer has new mutations that targeted drugs can work with. Please keep us posted!
Cure-ious - sorry to hear that you have a progression. You are such a great advocate for us and yourself and like others have mentioned, sounds like this is treatable . Please keep us posted on your treatment and how you are doing!
Katrose I am sorry to hear that you have a progression but it is good news that your brain MRI is clear, and you have a plan with piqray and possibly will get a second opinion ? Keep us posted!
Snow-drop - do you have more scans coming up? We're here for you! Let us know.
EastCoast - welcome to the Ibrance thread. We do understand how you are feeling, and as Rabbit said - it is such a balancing act to deal with how OTHERS are dealing or not dealing with our reality. It bothered me back in 2008 with stage 1 so REALLY gets on my nerves now :) might also be the lack of estrogen making me moody (haha). I decided this time to not tell many people until I am struggling with treatment or progression, which hasn't happened yet. Family and a few close friends know and to be honest, I don't know if my local close friends really get it. I look fine, feel fine and have continued to work (by choice). If I switch treatment or start to have some side effects, I will of course have no issue sharing. I hated the random questions when I was doing chemo at stage 1 so imagine I would be very annoyed now.
RRabbit - I will have to watch some old game shows! My work has been quiet so I have been busy purging/spring cleaning as we are hoping to downsize this May. Listening to some podcasts that are entertaining. My current favorite is "SmartLess" - they have great guests on that podcast! However, youtube and the amount of shows etc you can find on it is amazing.
I agree with Rabbit that Covid has amplified the feeling of stolen time - having stage IV cancer during a pandemic truly sucks. My husband and I are making some travel plans for the summer, wishful thinking but we can always cancel! We have started hiking a lot (weather permitting) and that has been fun. 8 miles yesterday!
JACK5IE - I hope you don't get Covid and hope your daughter just has a cold. You're doing the right thing by trying to isolate and hope your daughter gets results soon. Keep us posted! Definitely call your oncologist if your daughter tests positive.
RK, Jaycee, Ciaci and others - check in and say hello if you have time:)
Sending everyone good wishes for this upcoming week!
recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass
11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2-