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Topic: Itchy with Ibrance?!

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Apr 30, 2015 07:48AM

jnh wrote:

Hi, I started Ibrance and Femara combo yesterday. Woke up with itchy skin and scalp. Anyone experience that? Also, didn't sleep very soundly, but could have been nerves.

Thanks,Julie

Julie Dx 10/24/2002, IDC, 2cm, Stage IIB, 3/14 nodes, ER-/PR-, HER2- Surgery 11/14/2002 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 12/22/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 7/7/2011, IDC, 3cm, Stage IV, metastasized to bone/liver/lungs, mets Chemotherapy 7/16/2011 Xeloda (capecitabine) Hormonal Therapy 6/7/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/7/2013 Aromasin (exemestane) Targeted Therapy 6/7/2013 Afinitor (everolimus) Targeted Therapy 4/29/2015 Ibrance (palbociclib) Hormonal Therapy 4/29/2015 Femara (letrozole)
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Apr 30, 2015 01:15PM sandilee wrote:

Hi Julie,

Nope, haven't had that SE yet. I do think that the Letrozole can keep you awake. I take melatonin at night to fall asleep faster. I hope the itchiness is just temporary!

- 4/2015- Mets to liver. 6/2011-Mets to spine, ribs, and skull, 6/2011 radiation, Xgeva and Faslodex 7/2011 Dx 11/2007, IDC, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR-, HER2- Hormonal Therapy 1/10/2008 Aromasin (exemestane) Dx 6/2011, IDC, mets Radiation Therapy 6/30/2011 Bone Hormonal Therapy 7/15/2011 Faslodex (fulvestrant) Hormonal Therapy 4/10/2015 Femara (letrozole) Targeted Therapy 4/20/2015 Ibrance (palbociclib) Chemotherapy 8/4/2015 Xeloda (capecitabine) Hormonal Therapy 3/11/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/13/2016 Doxil (doxorubicin) Chemotherapy 4/4/2018 Navelbine (vinorelbine) Targeted Therapy 6/6/2018 Verzenio Hormonal Therapy 6/6/2018 Faslodex (fulvestrant)
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Apr 30, 2015 01:42PM leggo wrote:

If it were me, I'd put a call into your onc. From experience, the itching is usually liver related. 

"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
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Apr 30, 2015 04:57PM jnh wrote:

thanks, ladies!

Itchiness is better now! Time will tell what all these SEs will be , I guess!

Julie

Julie Dx 10/24/2002, IDC, 2cm, Stage IIB, 3/14 nodes, ER-/PR-, HER2- Surgery 11/14/2002 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Chemotherapy 12/22/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 7/7/2011, IDC, 3cm, Stage IV, metastasized to bone/liver/lungs, mets Chemotherapy 7/16/2011 Xeloda (capecitabine) Hormonal Therapy 6/7/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/7/2013 Aromasin (exemestane) Targeted Therapy 6/7/2013 Afinitor (everolimus) Targeted Therapy 4/29/2015 Ibrance (palbociclib) Hormonal Therapy 4/29/2015 Femara (letrozole)
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May 1, 2015 06:27PM Nenabear wrote:

My mother is on her 2nd month of ibrance and letrozole. And she is also experiencing the itchiness and not sleeping well. We spoke with her oncologist about the itchiness but he didn't seem to think it was related. :/ Hope you found some relief!

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May 3, 2015 12:49AM - edited May 3, 2015 12:50AM by sandilee

well, now I'm getting an itchy scalp, too! Been on the combo for two weeks. The rest of my skin is fine.m just my head is itchy.

- 4/2015- Mets to liver. 6/2011-Mets to spine, ribs, and skull, 6/2011 radiation, Xgeva and Faslodex 7/2011 Dx 11/2007, IDC, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR-, HER2- Hormonal Therapy 1/10/2008 Aromasin (exemestane) Dx 6/2011, IDC, mets Radiation Therapy 6/30/2011 Bone Hormonal Therapy 7/15/2011 Faslodex (fulvestrant) Hormonal Therapy 4/10/2015 Femara (letrozole) Targeted Therapy 4/20/2015 Ibrance (palbociclib) Chemotherapy 8/4/2015 Xeloda (capecitabine) Hormonal Therapy 3/11/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/13/2016 Doxil (doxorubicin) Chemotherapy 4/4/2018 Navelbine (vinorelbine) Targeted Therapy 6/6/2018 Verzenio Hormonal Therapy 6/6/2018 Faslodex (fulvestrant)
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May 7, 2015 03:25PM irish4 wrote:

I have been in Ibrance for three weeks and have also had a very itchy scalp!

Margie Dx 10/20/2006, IDC, 2cm, Grade 3, 0/8 nodes, ER+/PR+, HER2- Dx 9/2011, Stage IV Chemotherapy Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole), Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy Afinitor (everolimus) Targeted Therapy Avastin (bevacizumab)
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May 7, 2015 05:31PM sandilee wrote:

I hope it doesn't mean our hair will fall out, lol!

- 4/2015- Mets to liver. 6/2011-Mets to spine, ribs, and skull, 6/2011 radiation, Xgeva and Faslodex 7/2011 Dx 11/2007, IDC, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR-, HER2- Hormonal Therapy 1/10/2008 Aromasin (exemestane) Dx 6/2011, IDC, mets Radiation Therapy 6/30/2011 Bone Hormonal Therapy 7/15/2011 Faslodex (fulvestrant) Hormonal Therapy 4/10/2015 Femara (letrozole) Targeted Therapy 4/20/2015 Ibrance (palbociclib) Chemotherapy 8/4/2015 Xeloda (capecitabine) Hormonal Therapy 3/11/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 10/13/2016 Doxil (doxorubicin) Chemotherapy 4/4/2018 Navelbine (vinorelbine) Targeted Therapy 6/6/2018 Verzenio Hormonal Therapy 6/6/2018 Faslodex (fulvestrant)
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Dec 5, 2016 07:24PM Brixton wrote:

Yes, I have it too, what are you using to alleviate pain and itch.
Jessica lamdry
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Dec 5, 2016 07:30PM Brixton wrote:

Ladies do u have a certain shampoo. I'm using d' oro for hair loss it has argan oil in it do u keep your hair short. Washing seems to help

Jessica lamdry
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Dec 5, 2016 09:34PM artistatheart wrote:

I get very itchy scalp and skin. Hydrate hydrate hydrade. As soon as I jump out of the shower I lotion up well. The scalp I just scratch a lot...

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/10/2015 Femara (letrozole) Targeted Therapy 8/25/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Apr 25, 2017 09:59AM GG22 wrote:

Been on Ibrance/Letrozole for 1-1/2 cycles and have been extremely itchy lately-especially scalp.  I too am hoping hair doesn't fall out.  Been using Nioxin scalp therapy and washing hair only three times a week.  I am attributing the itchiness to not enough water so starting today I am going to try an do better with hydration.  I do not like water so it is always a challenge. 

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Apr 25, 2017 07:48PM singlemom1 wrote:

The CVS specialty pharmacy has an outreach nurse who called me yesterday to see how I was doing with the Ibrance. She mentioned to me that itchy skin is a common complaint with Ibrance users. My skin overall is not too bad, but my scalp is very itchy!

Dx 2/7/2011, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Dx 9/2015, Stage IV, metastasized to lungs, ER+, HER2-
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Jun 30, 2017 05:08AM Bouka wrote:

I've been on Ibrance for six months now. I do experience itchy scalp. And in general itching on others parts of the body, but mostly, on the scalp. Also thinning of hair.

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Jun 30, 2017 03:22PM Moderators wrote:

Bouka, welcome to our community, and thanks for sharing your experience.

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Jun 30, 2017 05:18PM NineTwelve wrote:

My scalp started itching too with Ibrance. I don't see any hair loss though. I have very short hair now, and that has been a good thing for me. One less thing to deal with.

I usually find I have to distract myself when it starts. Or take an antihistamine, if it won't go away after a reasonable time.

Right thoughts, right words, right action! - Franz Ferdinand Dx 9/12/2014, IDC, 4cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 9/15/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 9/30/2014 Dx 7/2016, IDC, Stage IV, metastasized to bone/lungs Hormonal Therapy 8/15/2016 Faslodex (fulvestrant), Zoladex (goserelin) Targeted Therapy 8/15/2016 Ibrance (palbociclib)
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Jul 11, 2018 06:55PM Saintsnow wrote:

I have had an itchy scalp since starting Ibrance (with exemesthane) in September 2017 and am slowly losing hair. I recently had a biopsy of two bumps on my scalp and found out they have metastatic breast cancer cells. About 2 weeks ago I discovered a bald spot of about 1.5 inches in diameter where it does not appear the hair will grow back in at all. Does anyone have a similar situation?

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Jul 15, 2018 09:59PM singlemom1 wrote:

Itchy scalp and major hair thinking!

Dx 2/7/2011, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Dx 9/2015, Stage IV, metastasized to lungs, ER+, HER2-

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