Join Us

We are 225,721 members in 83 forums discussing 164,194 topics.

Help with Abbreviations

Topic: Liver mets: resection, ablation, SBRT, Y-90, anything else?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 19, 2015 08:49PM

Trish03 wrote:

I'm interested in who has had local treatment for liver mets and what was your experience and outcome. I've been talking about this with my onc, and he seems a little hesitant. I have my regular appt. for a 2-mth MRI of brain and followup with rad onc. I plan to ask him about the possibilities. I think that some of the procedures must be done by an interventional radiologist. I assume that's a different person. Do most teams contain an interventional radiologist separate from the rad onc?

I would appreciate if you would share your experience with any procedures. I always like to hear first-hand experience.

All the best to everyone. Hugs, Trish

Dx 09/03, ILC, Stage IIIa, 7 cm, 4/18+ nodes, ER+/PR+, Her2-, 11/05 BL DIEP, 5/13 Stage IV, dx mets to liver Dx 9/15/2003, ILC, 6cm+, Stage IIIA, 4/18 nodes, ER+/PR+, HER2- Surgery 9/30/2003 Mastectomy: Right Chemotherapy 10/14/2003 AC + T (Taxol) Hormonal Therapy 4/14/2004 Arimidex (anastrozole) Radiation Therapy 4/14/2004 Breast Surgery 11/16/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 5/27/2013, ILC, 6cm+, Stage IV, ER+/PR+, HER2+ Targeted Therapy 6/23/2013 Herceptin (trastuzumab) Targeted Therapy 6/23/2013 Perjeta (pertuzumab) Chemotherapy 6/23/2013 Taxotere (docetaxel)
Log in to post a reply

Page 38 of 42 (1,243 results)

Posts 1111 - 1140 (1,243 total)

Log in to post a reply

Apr 2, 2021 08:06PM BevJen wrote:

S3K5,

I did not have the same situation as you, but when I started talking to my IR about treatments, He was very emphatic about liver failure in the case that he tried to take out all of my mets at one time by any treatment. He always said that if I wanted all of them removed he would have to do them sequentially.

I'm not sure if I posted this before, but if you want some activity, you could ask the IR if there is a size differential in the lesions and, if so, is there some sort of plan that could take out several at a time -- I'd start with the largest first.

Good luck. I feel for you.

Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
Log in to post a reply

Apr 3, 2021 01:07PM vbishop wrote:

Alabama Dee -

Thanks for the reply. I started off with lymph node mets, now liver, I've had two brain lesions recently that we just zapped; follow-up MRI the end of April.

My previous treatments include:

Taxol - quit working January 2020

Ibrance - did nothing for me

Erubilin - this one did work ... until it didn't in November 2020

Gemzar - another one that showed promise but we moved on after two months

Abraxane - not sure if this one is working on not. One tumor marker going up, one going down. Just finished my third cycle; PET on 4/7. I don't have high expectations on the PET

For the record, I feel fine. I am dubbed the chemo queen as I tolerate everything they've thrown at me with little or no side effects so far. I am not interested in a clinical trial yet. We still have several options open to us. I did get genetically tested and Piqray (sp?) is an option for me down the road.

Since this journey, I know I have witnessed a minimum of two miracles, possibly three. So ... I do have some divine intervention at play, no question (my blog talks about it if anyone is interested .... its a place where I go to tell it like it is, mainly for me and my family but open to all). The least I can do is my part, hence the diet change. I have already realized some health benefits ... blood pressure being one. I typically have great blood pressure but it has been all over the map since I started chemo 18 months ago. It's back to 118/68 two weeks in a row. Plus ... my wrinkles are going away! I don't expect to see any diet related results in my PET this go around, but I am expecting improvement in the next one in two to three months (PET has proven to be the best way to monitor my cancer - elusive little suckers.).

Regardless, I told myself I would give it at least 6 months before I revert back to eating Blue Bell Ice Cream for breakfast ... just kidding; that was not a common practice but it did happen occassionally SillyHeart

vjbishop.blogspot.com Dx 9/8/2013, LCIS/ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/7/2013 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/22/2013 Reconstruction (left); Reconstruction (right) Dx 9/2019, ILC, Left, Stage IV, metastasized to liver/other, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 9/2019, ILC, Stage IV, metastasized to liver/other, Grade 2, 0/3 nodes Chemotherapy
Log in to post a reply

Apr 19, 2021 02:47PM NicoleRod wrote:

Those that have had Y90 please read/help....

I just read my MRI.... it says all my liver tumors are like HUGE now... is that normal???

Also it did say something about "mild postobstructive biliary duct dialation identified in segment 8".... didn't someone say that the duct can cause high ALK PHOS?? Im so sorry I cant remember who told me that???

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Apr 20, 2021 03:03PM NicoleRod wrote:

IR called liver has no active disease it was radiation fibrosis from the Y90...also

Ref Y90... Grannax I know you mentioned that your IR said Y90 can only be done 3 times in Liver...did he mean for you? I asked my IR about that and she said she can do it as many times as the liver can tolerate it...and it show to be having good re-growth of liver and liver numbers are healthy and good. Obviously if a persons liver is in bad shape then no they cannot keep doing it. Just thought you all might want to know that... btw I was paraphrasing a bit from her exact words..lol

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Apr 20, 2021 05:15PM HopeandGratitude wrote:

Nicole - I met with radiologist today prior to the Y90 on Thursday for me and he said the same thing. No limit to how many times they can do Y90 as long as you have a healthy liver. I think the issue with some people is that they have diffuse mets throughout their liver and Y90 would lead to too much exposure of the entire liver to the radioactivity.

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
Log in to post a reply

Apr 20, 2021 05:20PM NicoleRod wrote:

yes hope thats probably it. I just remember Grannax saying Y90 can only be done 3 times...bc i remember replying back saying "really, I did not know that"...

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Apr 21, 2021 04:23PM theresa45 wrote:

HopeandGratitude - Very best wishes for your Y90 procedure tomorrow! I will be praying for excellent results and a relatively easy recovery!

Nicole - Congrats on the awesome results! No active disease in your liver is excellent news!!!!

Theresa

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Log in to post a reply

Apr 23, 2021 07:52AM HopeandGratitude wrote:

cross posting from liver mets thread:

Hello everyone. Thank you all for being in my pocket and for offering good wishes and kind prayers. It's Friday and my Y90 treatment is done!! The mapping/prep 10 days ago was a little more intensive than the actual treatment, because they had to embolize a few blood vessels and put in a coil to prevent anything from getting into my stomach. So the actual procedure yesterday was fairly short. And as I had mentioned before, they restricted it to segments five and eight, the anterior portion of the right lobe. So high exposure there but the rest of the liver should be well protected. I'm not sure what the side effects will really be since it's only day one, I'm assuming there will be fatigue and I hope not too much else from the list! Now it's just remembering to keep distance from my husband and the pups and just being careful for the next three days intently and for another four days with caution. I'll have a check up with the doctor in four weeks and an MRI in 10 weeks. Just posting a lot of detail, because this is all very new to me. Praying this procedure takes care of the two active tumors while the Verzenio keeps the remaining eight asleep. I did not have to stop taking Verzenio/exemestane in preparation for the treatment. I will find out in another 10 weeks if the verzenio is still working.

Prayers and well wishes to all my sisters and brothers on this thread. Will take me a couple days to catch up

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
Log in to post a reply

Apr 25, 2021 11:29AM theresa45 wrote:

HopeandGratitude - I'm so happy to hear that your Y90 procedure is done and that you are feeling well overall!! Thanks for posting your detailed experience! It is so helpful for those of us who will undergo Y90 in the future! I will be praying that the combination of Y90 and Verzenio/Exemestane will be very effective against your liver mets. Prayers and very best wishes! Theresa

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Log in to post a reply

Apr 26, 2021 12:34PM moth wrote:

European study on surgical resection of liver mets for MBC

Association between the histopathological growth patterns of liver metastases and survival after hepatic surgery in breast cancer patients

https://www.nature.com/articles/s41523-020-00209-1


"in patients with liver-only or liver-dominant metastases, surgical resection of liver metastases (LM) is associated with survival between 22 and 61 months and long-term progression-free survival (PFS) in selected cases4, serving as a proof of concept for an oligometastatic status in a subgroup of patients. "

BUT they said that it seems to depend what type of liver mets you have, specifically their growth pattern, which unfortunately appears like it can only be assessed at surgery, not from a biopsy. One type of met has a little covering around it and it grows its own blood vessels. The other doesn't have the little covering and tends to just steal the livers blood supply. The type with the covering had better outcomes as far as PFS and OS.

But again, seems right now you can't tell which you have until after surgery. They're hoping we can test for this somehow or learn to tell from imaging because it would identify pts for whom surgery would be appropriate.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 26, 2021 01:11PM NicoleRod wrote:

MOTH thank you for your commentary its so easy to understand!!

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Apr 28, 2021 08:04AM NicoleRod wrote:

ok all I heard from Bev. She is feeling pretty bad..she is still in hospital ..may go to short term rehab later. So let's just keep her in our prayers for quick recovery. I will cross post.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Apr 29, 2021 04:27PM SandiBeach57 wrote:

I am posting this photo to help others.

I had SBRT to my 2cm liver met 5 weeks ago. I am also on Xeloda.

Today I found out that my recent

angry red rash on my right flank back is latent SE radiation burn.."Radiation Recall". My rad onc is treating me with pentoxifylline, silver sulfadiazine cream, lidocaine-prilocaine cream and vitamin E.

So just be aware. I am posting a photo.

Wear your jewelry. See my Biography for treatment history.
Log in to post a reply

Apr 29, 2021 09:24PM HopeandGratitude wrote:

sandi- omigiosh!!! That looks scary. How painful is it? I hope it heals quickly. Will remember that!!

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
Log in to post a reply

Apr 30, 2021 06:42AM NicoleRod wrote:

Sandi that looks really bad and scary...glad they know what is wrong and they are treating it.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

Apr 30, 2021 07:08AM SandiBeach57 wrote:

Hi to all.

From what I understand, Radiation Recall is not understood on why it occurs. The chemo triggers it..weeks, months, years from radiation tx.

Apparently it can happen also when undergoing palliative care tx to bone mets while being on chemo.

I have not heard what to do about Xeloda. My RO and MO are in discussion as this news is only 1 day old. I have started tx for the radiation burn.

My questions to RO are (1) will I be able to have future radiologic procedures (2) will I be able to take future chemos that tend to cause this, like taxanes.

This is rare, but I felt my met friends should know it can happen. My "rash" went undiagnosed by internist, MO and two dermatologists for 11 painful days. The RO knew exactly what is was when seen as it matched the SBRT mapping.

Wear your jewelry. See my Biography for treatment history.
Log in to post a reply

Apr 30, 2021 01:29PM moth wrote:

Wow SandiBeach, thanks for showing us so we can learn!

I don't have anything like that but I have an area with more minor rash & phantom itching. It's a spot on my back which was part of the lung met treatment. It just constantly feels like something like a tag or something is irritiating it or I have a bug walking on it etc but other than once having an actual minor rash there, most of the time it's just a phantom feeling.

I hope yours clear up soon - that looks so painful.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Log in to post a reply

Apr 30, 2021 01:39PM theresa45 wrote:

Nicole - Thanks for the update on BevJen. I'm so sorry that the news isn't better. I've been worrying about her and praying for her...

Sandi - I'm glad the cause of the rash is now known. I hope that t will clear up soon with appropriate treatment! Thanks for sharing your experience.

HopeandGratitude - Are you still feeling ok after the Y90? I hope that your first post Y90 scan will show that the treated tumors are dead!

Grannax - How is Halaven going?

Hugs to everyone!

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Log in to post a reply

Apr 30, 2021 08:29PM HopeandGratitude wrote:

theresa45 - thanks for checking in! I’m just over a week out from the procedure and I’m doing OK. First two days no issues at all and then on day three I got hit with fatigue, loss of appetite for a few days, and low grade fever, which they say is normal. Then I seemed to shake that fog and I think I’m moving to recovery mode. Doing normal every day activities, but taking it easy as I am a bit tired overall and appetite is not the best. They told me at least 2 to 4 weeks for recovery and there could be fatigue a little after that. Looking forward to positive results 10 weeks from procedure with an abdominal MRI. I have a thoracic CT (regular scan timing) probably a month or so before then. And of course will start monitoring tumors markers. We did send samples from the tumor biopsy off to foundation one so hopefully will get results from that in a few weeks. It’s kind of hard waiting, but I’m also praying very hard that it was successful.

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
Log in to post a reply

May 1, 2021 02:32PM theresa45 wrote:

HopeandGratitude – Thanks for the update! I'm glad that you've been doing ok and hope that you will feel a little bit better with every passing day. I will be praying and watching for your positive results from your liver MRI in 10 weeks! I truly believe that there is every reason to be very optimistic that the Y90 will have been very effective. I'm glad that you sent your biopsy off to Foundation1. I didn't have a tumor biopsy with either or my microwave ablation procedures late last year, and am regretting that decision. I actually wanted to biopsy, but I was on the DESTINY04 trial and I was already pushing it by asking for microwave ablations while on the trial. Hugs and prayers! Theresa

Dx 4/20/2009, IDC, <1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Log in to post a reply

May 4, 2021 12:15PM HopeandGratitude wrote:

Dee - this is exciting news!!!!

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
Log in to post a reply

May 4, 2021 11:07PM Jjzn wrote:

Dee

Does that mean only 3 to 4 spots in your body? Or if you have 2 spots in your liver and 10 in your bones will they do sbrt on liver?

Thanks

Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

May 5, 2021 08:50AM Jjzn wrote:

Thank you Dee for the explanation. That makes sense!


Julie

Dx 6/2019, Left, 2cm, Stage IV, metastasized to bone/liver, 12/14 nodes, ER+/PR+, HER2- Radiation Therapy External: Bone Surgery Targeted Therapy Verzenio Chemotherapy Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine) Chemotherapy Taxol (paclitaxel) Chemotherapy Taxol (paclitaxel)
Log in to post a reply

May 6, 2021 06:29AM BSandra wrote:

"Curative intent"... most oncologists always run away from these words. It is great there are brave people who at least try. Thank you Dee... Saulius

Since May'21:NED. Mar'21:axilla LN surgery. Sep'19-Mar'21:NED. Feb'19:recurrence, left breast,IBC. May'18-Feb'19:NED. Jun'18:DC/CIK. Aug'17:stage IV de novo at age 33. Dx 8/4/2017, IDC, Left, 6cm+, Stage IV, metastasized to liver, Grade 2, ER-/PR-, HER2+ (IHC) Chemotherapy 8/27/2017 Taxotere (docetaxel) Targeted Therapy 8/28/2017 Herceptin (trastuzumab) Targeted Therapy 8/28/2017 Perjeta (pertuzumab) Chemotherapy 3/12/2019 Taxotere (docetaxel) Surgery 7/22/2019 Mastectomy: Left Radiation Therapy 9/9/2019 Whole-breast: Lymph nodes, Chest wall Surgery 4/15/2021 Lymph node removal: Underarm/Axillary Radiation Therapy 12/13/2021 3DCRT: Lymph nodes
Log in to post a reply

May 6, 2021 08:11AM - edited May 6, 2021 08:12AM by SandiBeach57

I have a question for those that got a radiation burn (radiation recall) at the site of SBRT. I have the moist desquamation on right flank and use silver sulfa cream mixed with lidicaine/prilocaine with nonadhesive dressing. Granulation is starting to begin in the open wound.

Has anyone had this side effect and what did you do?

For us stage IV folks, who have both low white blood and platelet counts and also on forever chemo/targeted tx, I would like to get peer input.

P.S I did not stop Xeloda while I heal.

Wear your jewelry. See my Biography for treatment history.
Log in to post a reply

May 7, 2021 07:07PM - edited Sep 28, 2021 08:03PM by SandiBeach57

Dee..thanks for responding. I was hearing "crickets"..haha.

I am still in the "moist desquamation phase of this radiation recall. I am using sulfa silver cream with nonadhesive bandage.

it is an unusual phenomenom, that is why I posted. I had SBRT to liver met and 6 weeks later I developed an initial rash where radiation was super targeted. Apparently being on chemo can trigger this. At 16 days, the center ulcerated..but now healing. My MO said she has seen this with breast rad, but not SBRT where the burn appeared on right back flank.

I have attached a photo.

** I decided to delete the photo of radiation recall. It was a little too graphic, even for me! Basically it is a radiation burn and treated like other radiation burns, that silver cream and nonadhesive bandages.

I will know with June PETCT if liver met was killed and if others are growing..hope not!! Had to wait 12 weeks for everything to calm down.

Wear your jewelry. See my Biography for treatment history.
Log in to post a reply

May 7, 2021 08:53PM SandiBeach57 wrote:

Yes, it hurts and I have no idea when it will heal.

Do not feel sorry for me as I am still training for a long distance bike trip. Keeps my miind off scans.

Wear your jewelry. See my Biography for treatment history.
Log in to post a reply

May 8, 2021 05:21PM NicoleRod wrote:

OMGOSH Sandi!!!! I am sending you HUGE (((((HUGS)))))

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 **TNBC AUG 2021 Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
Log in to post a reply

May 8, 2021 05:28PM HopeandGratitude wrote:

wow Sandi! You are handling that in stride. It looks very painful and I am sorry you have to go through it!! 🙏 the liver met is taken car of to make this worth it

Dx 3/1/2002, ILC, Left, 6cm+, Stage IIIB, Grade 3, 0/14 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/27/2002 CEF Chemotherapy 6/4/2002 AT Surgery 8/28/2002 Mastectomy: Left; Reconstruction (left): Free TRAM flap, Nipple reconstruction, Nipple tattoo Radiation Therapy 10/15/2002 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 1/4/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 1/12/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/1 nodes, ER+/PR+, HER2- (FISH) Surgery 2/14/2018 Lumpectomy: Left; Lymph node removal: Left Chemotherapy 4/3/2018 CMF Chemotherapy 8/5/2018 Taxol (paclitaxel) Radiation Therapy 10/9/2018 External: Breast, Lymph nodes, Chest wall Dx 3/13/2019, IDC, 1cm, Stage IV, metastasized to liver, Grade 3, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/13/2019 Femara (letrozole) Targeted Therapy 3/24/2019 Ibrance (palbociclib) Targeted Therapy 10/24/2019 Verzenio Dx 3/18/2020, IDC, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 3/20/2020 Aromasin (exemestane) Hormonal Therapy 4/6/2020 Faslodex (fulvestrant)
Log in to post a reply

May 9, 2021 11:05AM SandiBeach57 wrote:

Hi to all..you are so kind, especially with your own challenges.

I am healing, but anxious already with June PTCT scan.

I will have questions for my IR at followup..like how is this internal beam SBRT burn different from external beam radiation burn? Both can occur as "radiation recall".

Wear your jewelry. See my Biography for treatment history.

Page 38 of 42 (1,243 results)