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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: ​Receive Articles Specific to Your Metastatic Diagnosis

Topic: ​Receive Articles Specific to Your Metastatic Diagnosis

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Oct 13, 2015 01:40PM

Moderators wrote:

Receive Articles Specific to Your Metastatic Diagnosis

We know that a metastatic breast cancer diagnosis can feel overwhelming. Let Breastcancer.org bring you content that's tailored to your specific metastatic breast cancer diagnosis. Visit the My Profile(https://community.breastcancer.org/my-profile/new) page where you can create an account and enter as much diagnosis information as you know right now. You'll instantly receive articles featuring medical, Research News, and side effect management information specific to your situation. You can also sign up for email alerts letting you know when new articles arrive. Please PM us if you need any assistance!


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Posts 1 - 15 (15 total)

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Nov 5, 2015 11:56AM evelym wrote:

I am looking for information and treatment options for metastatic breast cancer that has spread to the peritoneum and momentum. I have been unable to find many articles relating to this. I had breast cancer which spread to the ovaries and peritoneum. There is a lot of information on ovarian cancer, but apparently breast cancer in the ovaries and peritoneum does not respond the same way.

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Nov 7, 2015 12:42PM capinva wrote:

I also had breast cancer and now have tumors on both ovaries and affecting the peritoneum. The tumors are pumping fluid into the peritoneum so I go weekly to get 5 liters of fluid drained. I am having trouble finding out information about this also. Have you started chemo yet? I would like to hear how you are doing.


Dx 6/6/2011, ILC, Right, 4cm, Stage IIIA, Grade 2, 5/7 nodes, HER2+
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Jul 12, 2016 05:53PM Lunalin wrote:

I am a true old veteran on this 2board. 2004 to 2016, now stage IV with mets to lung. Recently started Faslodex and Ibrance. Anyone else on this combo? I'd like to hear. Thank You! Linda

Dx 8/17/2004, ILC, Right, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 9/2014, ILC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 5/2016, ILC, Right, 5cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2-
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Jul 12, 2016 08:02PM Faith-840 wrote:

lunalin, check out the Ibrance thread. I am also stage 4 with mets to the lung after 25 years and have been following the Ibrance thread which is mostly used with letrozole. However, there are several women there also on Faslodex and there is a Faslodex thread too.

I'm sorry you find yourself her again but there's lots of new treatments out there and good info here too.

If you update your treatments and diagnosis, it will help others answer your questions.

Faith (in the future)

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/4/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/22/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 10, 2016 06:11PM Sophie_7 wrote:

Hi Linda,


I am on Faslodex and Ibrance. Have been since April 2016. So far, so good! I had a low blood count once but now I seem fine. My body is fatigued. That is the biggest side effect. I feel physically weak when I climb a flight of stairs. So it is not a tired feeling like I need a nap... just weak.

How are you doing?

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Sep 27, 2016 07:20PM Lunalin wrote:

Hi! Sophie! Nice to meet a pal. I just completed my third round of Ibrance/Faslodex. Not too bad. I had to take a two week vacation from Ibrance, due to very low counts and fatigue. I am totally wiped out by the end of my 3rd week, which is today. The shots are painful, but I think effective. Had chest CT yesterday and see my MO in 3 days for results. I don't look forward to thoracentises again. I do feel hopeful and hope you do too. I pray that we both have positive results!!

Dx 8/17/2004, ILC, Right, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 9/2014, ILC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 5/2016, ILC, Right, 5cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2-
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Oct 5, 2016 04:10PM Lunalin wrote:

Now I am told I most likely have bone mets and have been told to withhold Ibrance. PET scan this week.

Dx 8/17/2004, ILC, Right, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 9/2014, ILC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 5/2016, ILC, Right, 5cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2-
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Oct 25, 2016 06:33AM - edited Oct 25, 2016 06:42AM by Chico

This Post was deleted by Chico.
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Oct 25, 2016 06:39AM Chico wrote:

Hi I am looking for articles re Breast Cancer that has spread to spine & ribs. Also whether cancer that has metastasised 12 years after primary is considered slow moving and whether prognoses is better or worse under these circumstances. I an Er+ & HER2 -


Many Thanks

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Jan 26, 2017 09:59PM Godsown wrote:

I too am looking for articles on metasteses to spine, ribs and other bone. Diagnosed 19 years after primary. Original biopsy showed ER / PR -, HER 2 +. Waiting for new biopsy to verify markers are the same.

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Jan 26, 2017 10:01PM Godsown wrote:

I too am looking for articles on metasteses to spine, ribs and other bone. Diagnosed 19 years after primary. Original biopsy showed ER / PR -, HER 2 +. Waiting for new biopsy to verify markers are the same.
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Jul 11, 2017 08:07AM - edited Jul 11, 2017 08:11AM by StrugglingOn

Have mets to liver. Need information on this. Mets to liver diagnosed 3 years past original invasive ductal cell carcinoma with lymph involvement. Liver met biopsy reveals change from original Er+ to ER- in Anyone else with a similar situation?

Gelinda Smith
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Jul 11, 2017 09:33AM - edited Jul 11, 2017 09:38AM by Bouka

My original diagnosis of Breast cancer was in 2008. Now it is metastasized to liver, lining of lung and between T3 and T4 vertebrae. I am on Ibrance and fulvestrant injections. No trouble with low blood counts but very fatigued and weak. I have to rest often and have pain in my back. I started with the Ibrance in December 2016. So far so good! Aleda Knol, East Lansing , MI

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Jul 11, 2017 08:03PM Faith-840 wrote:

Hello Bouka, so sorry to hear you have entered stage 4 land but there is lots of reason to hope you can still live a long time. You should join us on the Ibrance thread, lots of very smart, helpful ladies there always willing to lend an ear and give helpful tips for dealing with this dread disease.

There is also an Ibrance-Faslodex forum with nice ladies too. Feel free to join any and all of these forums. You will learn so much and get much needed support.

Good luck, my prayers are with you.

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/4/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/22/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 15, 2017 05:49PM notagain1965 wrote:

How did they diagnose the cancer in the peritoneum? So far I have ascites and the fluid has cancer cells in it but that is the only place they are finding it. What treatments did you have

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