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Topic: ​Receive Articles Specific to Your Metastatic Diagnosis

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Oct 14, 2015 06:40AM

Moderators wrote:

Receive Articles Specific to Your Metastatic Diagnosis

We know that a metastatic breast cancer diagnosis can feel overwhelming. Let Breastcancer.org bring you content that's tailored to your specific metastatic breast cancer diagnosis. Visit the My Profile(https://community.breastcancer.org/my-profile/new) page where you can create an account and enter as much diagnosis information as you know right now. You'll instantly receive articles featuring medical, Research News, and side effect management information specific to your situation. You can also sign up for email alerts letting you know when new articles arrive. Please PM us if you need any assistance!


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Posts 1 - 24 (24 total)

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Nov 6, 2015 05:56AM evelym wrote:

I am looking for information and treatment options for metastatic breast cancer that has spread to the peritoneum and momentum. I have been unable to find many articles relating to this. I had breast cancer which spread to the ovaries and peritoneum. There is a lot of information on ovarian cancer, but apparently breast cancer in the ovaries and peritoneum does not respond the same way.

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Nov 8, 2015 06:42AM capinva wrote:

I also had breast cancer and now have tumors on both ovaries and affecting the peritoneum. The tumors are pumping fluid into the peritoneum so I go weekly to get 5 liters of fluid drained. I am having trouble finding out information about this also. Have you started chemo yet? I would like to hear how you are doing.


Dx 6/6/2011, ILC, Right, 4cm, Stage IIIA, Grade 2, 5/7 nodes, HER2+
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Jul 13, 2016 10:53AM Lunalin wrote:

I am a true old veteran on this 2board. 2004 to 2016, now stage IV with mets to lung. Recently started Faslodex and Ibrance. Anyone else on this combo? I'd like to hear. Thank You! Linda

Dx 8/17/2004, ILC, Right, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 9/2014, ILC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 5/2016, ILC, Right, 5cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2-
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Jul 13, 2016 01:02PM Faith-840 wrote:

lunalin, check out the Ibrance thread. I am also stage 4 with mets to the lung after 25 years and have been following the Ibrance thread which is mostly used with letrozole. However, there are several women there also on Faslodex and there is a Faslodex thread too.

I'm sorry you find yourself her again but there's lots of new treatments out there and good info here too.

If you update your treatments and diagnosis, it will help others answer your questions.

Faith (in the future)

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/5/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/23/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 11, 2016 11:11AM Sophie_7 wrote:

Hi Linda,


I am on Faslodex and Ibrance. Have been since April 2016. So far, so good! I had a low blood count once but now I seem fine. My body is fatigued. That is the biggest side effect. I feel physically weak when I climb a flight of stairs. So it is not a tired feeling like I need a nap... just weak.

How are you doing?

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Sep 28, 2016 12:20PM Lunalin wrote:

Hi! Sophie! Nice to meet a pal. I just completed my third round of Ibrance/Faslodex. Not too bad. I had to take a two week vacation from Ibrance, due to very low counts and fatigue. I am totally wiped out by the end of my 3rd week, which is today. The shots are painful, but I think effective. Had chest CT yesterday and see my MO in 3 days for results. I don't look forward to thoracentises again. I do feel hopeful and hope you do too. I pray that we both have positive results!!

Dx 8/17/2004, ILC, Right, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 9/2014, ILC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 5/2016, ILC, Right, 5cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2-
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Oct 6, 2016 09:10AM Lunalin wrote:

Now I am told I most likely have bone mets and have been told to withhold Ibrance. PET scan this week.

Dx 8/17/2004, ILC, Right, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 9/2014, ILC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Dx 5/2016, ILC, Right, 5cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2-
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Oct 25, 2016 11:33PM - edited Oct 25, 2016 11:42PM by Chico

This Post was deleted by Chico.
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Oct 25, 2016 11:39PM Chico wrote:

Hi I am looking for articles re Breast Cancer that has spread to spine & ribs. Also whether cancer that has metastasised 12 years after primary is considered slow moving and whether prognoses is better or worse under these circumstances. I an Er+ & HER2 -


Many Thanks

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Jan 27, 2017 03:59PM Godsown wrote:

I too am looking for articles on metasteses to spine, ribs and other bone. Diagnosed 19 years after primary. Original biopsy showed ER / PR -, HER 2 +. Waiting for new biopsy to verify markers are the same.

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Jan 27, 2017 04:01PM Godsown wrote:

I too am looking for articles on metasteses to spine, ribs and other bone. Diagnosed 19 years after primary. Original biopsy showed ER / PR -, HER 2 +. Waiting for new biopsy to verify markers are the same.
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Jul 12, 2017 01:07AM - edited Jul 12, 2017 01:11AM by StrugglingOn

Have mets to liver. Need information on this. Mets to liver diagnosed 3 years past original invasive ductal cell carcinoma with lymph involvement. Liver met biopsy reveals change from original Er+ to ER- in Anyone else with a similar situation?

Gelinda Smith Chemotherapy 4/25/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jul 12, 2017 02:33AM - edited Jul 12, 2017 02:38AM by Bouka

My original diagnosis of Breast cancer was in 2008. Now it is metastasized to liver, lining of lung and between T3 and T4 vertebrae. I am on Ibrance and fulvestrant injections. No trouble with low blood counts but very fatigued and weak. I have to rest often and have pain in my back. I started with the Ibrance in December 2016. So far so good! Aleda Knol, East Lansing , MI

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Jul 12, 2017 01:03PM Faith-840 wrote:

Hello Bouka, so sorry to hear you have entered stage 4 land but there is lots of reason to hope you can still live a long time. You should join us on the Ibrance thread, lots of very smart, helpful ladies there always willing to lend an ear and give helpful tips for dealing with this dread disease.

There is also an Ibrance-Faslodex forum with nice ladies too. Feel free to join any and all of these forums. You will learn so much and get much needed support.

Good luck, my prayers are with you.

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/5/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/23/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 16, 2017 10:49AM notagain1965 wrote:

How did they diagnose the cancer in the peritoneum? So far I have ascites and the fluid has cancer cells in it but that is the only place they are finding it. What treatments did you have

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May 28, 2018 04:38AM Manza5683 wrote:

I was diagnosed with metastasis to the peritoneum

I’m February and have been treated with taxol and now Abraxane due to an allergic reaction to taxol

Manza 1

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May 31, 2018 05:25PM Plasem wrote:

I have breast cancer stage IV metastasis to bones, taking Ibrance, Letrozole

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Jun 1, 2018 09:23AM Chrstene502 wrote:

New Poster here.

I was diagnosed with breast cancer Oct 2017. Breast surgeon sent me to an oncologist, who said to have port in my chest for chemo. Dr also sent me to have several scans done. Had the port surgically installed and had the scans. The day I was to begin Chemo, was the day the Oncologist reviewed the scans. At which point he told me I have Metastatic breast cancer. Cancer has spread to my bones and he wasn't going to do Chemo.--

Oncologist put me on Ibrance and Letrozole.

April I had another PET-CT Scan done, which showed my tumor has shrunk drastically.

Both my Breast Surgeon and Oncologist feel I am doing great on treatment and now suggesting a mastectomy.

Read online that mastectomy won't help with Metastatic breast cancer.

I don't know if I should have the mastectomy or not.

Advice please!!!

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Jun 17, 2018 11:11PM susan3 wrote:

hi all, I have been stage 4 for 7 years. 17 years age first diagnosed. Every 4 months new chemo. Now we are at the point where the last two haven't worked. Only one more left. Always knew we were buying time.

Not sure what to do with the pain in my neck. Lymph nodes swollen bad around jugular and other nerves and vessels. If we radiate I will lose my voice ( some will be happy) ha ha, and I will need a feeding tube. Yuck to both.

Just frustrated now. Very blessed to have had 7 very functional years.

Susan

Live and love fully Dx 3/2001, IDC, Stage IV, Grade 3, 40/5 nodes, ER+/PR-, HER2-
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Jul 6, 2018 12:26AM - edited Jul 6, 2018 12:28AM by Manza5683

wonderful that you had seven good years I wish you more successful treatment and a long life

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Aug 14, 2018 07:50AM maws wrote:

My July PET/CT scan showed metastatic  breast cancer disease progression. Now I am on a new cancer treatment plan as follows: fulvestrant  injections, afinitor tablets, and continuation  of xgeva injections. I'm wondering if someone reading my posting has any comments from their experience with fulvestrant and afinitor that they are comfortable to share. My treatment options are very few now and I really am hopeful of my body systems adapting successfully to the new meds. Thanks

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Aug 14, 2018 10:24AM Tina2 wrote:

Maws,

Check out the Faslodex Girls thread.

Tina


Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
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Sep 18, 2018 05:53AM Les-43-intheUK wrote:

I’m on that combo, along with zolodex and denusomab.. im in the Uk so not sure if the names are the same. Just started my 4th cycle.. how you doing?

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Oct 25, 2018 12:28AM - edited Oct 25, 2018 12:50AM by Moominmamma

please share articles on MBC with me. I have recently been dx with metastases to spine, T5, C1, L4-5, many more spots, ribs, hip, leg, skull, and left axillary nodes full of adenocarcinoma, poorly differentiated, ER +, PR+ focally, HER2 -. Just started Femara, Ibrance, and Xgeva. No previous hormone therapy after prior cancers. I have small pleural effusions and some ascites in abdomen but no tumours found in organs.

Back in learning and coping mode. My mammos on right side all normal. It never occurred to me cancer woukd go to bones when never had any lymph node involvement on 2 prior localized cancers in left breast and had chemo for 2012 tumour which was hormone receptor negative, Her2 positive, treated w TCH. Found out about the metastatic cancer when sent to ER for chest and rib pain and shortness of breath.

Still stunned and mourning.

Dx 8/2007, DCIS, Left, Stage 0, ER+/PR+, HER2- (IHC) Surgery 9/10/2007 Lumpectomy: Left Surgery 9/17/2007 Lumpectomy: Left Dx 5/2012, IDC, Left, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 7/12/2012 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Dx 9/2018, Left, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 10/2/2018 Femara (letrozole) Targeted Therapy 10/6/2018 Ibrance (palbociclib) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy 3DCRT: Breast, Lymph nodes

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