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Topic: How Many Are We?

Forum: Stage IV/Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

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Posted on: Jul 3, 2016 10:13PM - edited Jan 1, 2018 05:27AM by zarovka

zarovka wrote:

The purpose of this thread is to count the number of people lurking or posting on this forum and gather some basic info. We are trying to get a sense of who is out there and add everyone to the collective cyber hug that is this MBC forum.

This is not a thread for discussions. The only thing you need to put in the body of the post is Hi! (in the language of your choice) and/or the year of your diagnosis. This keeps the thread restricted to a simple head count. (number of posts = the number of people posting)

If you are willing to share the year of your stage IV diagnosis, put it in the body of the post. Also note if you are de novo if you choose. De novo means that you were diagnosed with metastasis from the beginning.

Please don't reply to posts to this thread. Reach out to people by PM. This is just a list.

That said, I do check this thread daily and it moves me deeply to see each name added. Sending peace and healing to everyone. Hope to chat with you elsewhere in this forum. Let us know the good and the bad and, of course, whatever is puzzling you. There are a lot of women on this forum ready to help you through this.

Hola! 2016 De Novo Multiple Mets to Liver and Possibly a Met to the Sternum

>Z<

3/5/17 addendum. Goodness this list is getting long. - Z

9/15/17 - rats we're over 400.

1/1/18 - happy new year! i sure hope there is strength in numbers ...

Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/16/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Jul 3, 2016 10:21PM Lovelife49 wrote:

Hello! 2015


Dx 6/30/2010, IDC, Right, 6cm+, Stage IIIA, Grade 2, 6/17 nodes, ER+/PR+, HER2- Dx 9/9/2015, IDC, Stage IV, ER+/PR+, HER2- Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Radiation Therapy External: Bone
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Jul 3, 2016 10:29PM Tina2 wrote:

Hiya!

Stage I 1985. Stage I 1995. Stage IV 2011.

Tina

Update: on hiatus from Faslodex since September, 2018. Previous:Stage I, 1985, modified radical mastectomy; Stage I, 1995, modified radical mastectomy;Stage IV, lung mets, ER+/PR+; treated with Faslodex since July, 2011 Dx Stage IV, mets, ER+/PR+
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Jul 3, 2016 11:06PM AnimalCrackers wrote:

Hi! 2014 stage IV de novo

Cath

Cathy, Diagnosed de novo bone mets June 2014 at age 52. Progression to Liver 2017. Progression to bone mets Sept. 2018. Bisphoshonate (Zometa) infusions every 3 months. Participated in 2 clinical trials, including an AKT1 inhibitor. Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/5/2016 Femara (letrozole) Targeted Therapy 1/5/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/18/2017 Targeted Therapy 5/18/2017 Kisqali Targeted Therapy 12/19/2017 Hormonal Therapy 12/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/20/2018, IDC, Stage IV, metastasized to bone Radiation Therapy 8/20/2018 External: Bone Surgery Chemotherapy Taxol (paclitaxel)
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Jul 4, 2016 12:50AM artistatheart wrote:

July 2015 Stage IV DeNovo as well....

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/10/2015 Femara (letrozole) Targeted Therapy 8/25/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jul 4, 2016 06:50AM Sary wrote:

2015
Age 38 at diagnosis, Oncotype 23 Dx 3/14/2014, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 5/16/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 11/2015, Stage IV, metastasized to lungs Dx 6/2018, IDC, Stage IV, metastasized to liver Dx 11/2018, Stage IV, metastasized to bone Targeted Therapy 6/1/2019 Afinitor (everolimus) Chemotherapy 11/1/2019 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Targeted Therapy Kisqali
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Jul 4, 2016 11:21AM unc_lady wrote:

Hi ... Stage IV De Novo 2015

Dx 1/12/2015, ILC, Right, Stage IV, Grade 2, 22/26 nodes, ER+/PR+, HER2- (FISH) Surgery 2/4/2015 Lymph node removal: Right, Sentinel; Mastectomy Hormonal Therapy 2/12/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery 7/9/2015 Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Surgery 1/11/2016 Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin)
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Jul 4, 2016 11:26AM goldie0827 wrote:

2014


AKA - Sugar Lusty Heat! Hair pictures on my profile. DON'T LOOK DOWN ON ANYBODY, UNLESS YOU'RE PICKING THEM UP! Dx 3/27/2008, DCIS, Right, 5cm, Stage IIB, Grade 2, 2/2 nodes, ER+/PR+, HER2- Dx 7/2014, ILC, Right, Stage IV, 2/2 nodes, ER+, HER2- Chemotherapy AC + T (Taxol) Radiation Therapy Breast, Lymph nodes Surgery Lumpectomy; Lymph node removal Hormonal Therapy Arimidex (anastrozole)
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Jul 4, 2016 11:32AM Longtermsurvivor wrote:

Bilateral mastectomies in 1991, progression within 6 months. Stable or active disease since then.

Grateful to be here. Advanced breast cancer for 25 years, engage holistic approaches. Am dealing with ascites and many mets. Am on hospice.
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Jul 4, 2016 11:53AM mikarae wrote:

2014

Stage lV. Bone mets at time of diagnoses. Currently, bone mets resolved and one active supra-clavicle node. Surgery 1/14/2014 Lymph node removal: Left, Underarm/Axillary Surgery 1/15/2014 Mastectomy: Left, Right Dx 2/19/2014, IDC, Left, 2cm, Stage IV, Grade 3, 18/18 nodes, mets, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Targeted Therapy 3/3/2014 Perjeta (pertuzumab) Chemotherapy 3/3/2014 Taxotere (docetaxel)
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Jul 4, 2016 12:15PM Linda11111111 wrote:

Hi!

Stage 4 diagnosis in 2010.

Surgery 1/1/2001 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 2/1/2001 AC + T (Taxol) Hormonal Therapy 4/1/2010 Femara (letrozole) Dx 5/2010, IDC, 2cm, Stage IV, Grade 3, 3/12 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 8/1/2013 Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Chemotherapy 1/1/2015 Xeloda (capecitabine)
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Jul 4, 2016 12:30PM JFL wrote:

Hello,

Stage 2B diagnosis in 2006.

Stage 4 diagnosis in 2014.


Chart your own course. Dx at 30. Dx with mets at 38 while pregnant - extensive liver & bone involvement. Currently on Gemzar, XGeva & COC Protocol. ER+/PR+, HER2 equivocal (IHC +2/FISH negative). Y90 liver radioembolization in 2018. Dx 9/2006, IDC, Right, 1cm, Stage IIB, Grade 3, 1/16 nodes, ER+/PR+, HER2- (FISH) Surgery 9/22/2006 Mastectomy: Left, Right Chemotherapy 11/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/15/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 12/2014, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Surgery 12/26/2014 Prophylactic ovary removal Hormonal Therapy 12/26/2014 Aromasin (exemestane), Faslodex (fulvestrant) Targeted Therapy 6/18/2015 Ibrance (palbociclib) Chemotherapy 3/10/2016 Xeloda (capecitabine) Hormonal Therapy 5/13/2017 Aromasin (exemestane) Targeted Therapy 5/13/2017 Afinitor (everolimus) Chemotherapy 8/17/2017 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/22/2018 Doxil (doxorubicin) Chemotherapy 4/25/2019 Navelbine (vinorelbine) Hormonal Therapy 4/25/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 11/26/2019 Gemzar (gemcitabine)
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Jul 4, 2016 12:33PM Kessala wrote:

Hello! 2005 Stage IV de novo

Bone mets at initial diagnosis. Liver mets discovered Sept. 2011. On Xeloda for 3 1/2 years before it stopped working. Ibrance and Faslodex combo is next. Dx 10/12/2005, IDC, 5cm, Stage IV, Grade 2, 3/19 nodes, mets, ER+/PR+, HER2-
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Jul 4, 2016 12:34PM Becs511 wrote:

Hello from NYC!

May, 2014 de nov

Age at DX: 32. Childhood Leukemia survivor. Triple Positive mets and Triple Negative at the same time! Dx 5/5/2014, IDC, 5cm, Stage IV, mets, ER+/PR+, HER2+ Targeted Therapy 5/23/2014 Perjeta (pertuzumab) Chemotherapy 5/23/2014 Taxol (paclitaxel) Targeted Therapy 1/17/2015 Kadcyla (T-DM1, ado-trastuzumab) Surgery 6/17/2015 Prophylactic ovary removal Dx 7/1/2015, IDC, Left, ER-/PR-, HER2- Chemotherapy 7/20/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Dx 2/2016, Stage IV, metastasized to brain Radiation Therapy External: Brain Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine) Chemotherapy Other
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Jul 4, 2016 12:49PM LovesMaltese wrote:

Stage 2-A 1997

Stage 4 2015

The Devil whispered in my ear, "You're not strong enough to handle the storm." Today I whispered in the Devil's ear, "I am the storm." Dx 10/1/1997, ILC, Left, 2cm, Stage IIA, Grade 1, 2/25 nodes, ER+/PR+, HER2- Dx 10/25/2015, Stage IV, metastasized to bone Dx 8/30/2016, Stage IV, metastasized to liver
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Jul 4, 2016 12:54PM blainejennifer wrote:

2012 - ER/PR+, HER - Bone Mets. 2016 - Liver Mets.

Jennifer

ER/PR+, HER2-, Grade 3. Stage 4, July 2012. Currently on Gemzar/Carboplatin Dx 5/2006, IDC, 4cm, Stage IIB, Grade 3, 4/12 nodes, ER+/PR+, HER2- Dx 3/2012, IDC, Stage IV, 4/12 nodes, ER+/PR+, HER2- Chemotherapy 6/28/2012 Taxol (paclitaxel) Hormonal Therapy 6/5/2013 Faslodex (fulvestrant) Chemotherapy 7/1/2014 Xeloda (capecitabine) Hormonal Therapy 8/14/2015 Femara (letrozole) Chemotherapy 1/31/2016 Halaven (eribulin) Chemotherapy 8/31/2016 CMF Chemotherapy 11/1/2016 Halaven (eribulin) Chemotherapy Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Jul 4, 2016 03:49PM - edited Jul 13, 2016 12:50AM by kt1966

Good morning

2003 Stage IIIA

2014 Bone & Lung mets

Edited to add Leptomeningeal mets July 8 2016

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
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Jul 4, 2016 04:23PM catsteme wrote:

Stage IV 2016 - Bone, lung

Dx 4/17/2014, IDC, Left, 1cm, Stage IIA, Grade 3, ER-/PR-, HER2+ Surgery 5/17/2014 Lumpectomy: Left Chemotherapy 7/5/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Dx 3/18/2016, Stage IV, metastasized to bone/lungs/other, ER-/PR-, HER2+ Surgery 5/5/2016 Targeted Therapy 7/3/2016 Kadcyla (T-DM1, ado-trastuzumab)
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Jul 4, 2016 10:30PM DebK227 wrote:

Hello everyone!

Stage 2b 2014 Feb

Stage IV 2016 March

Dx 2/27/2014, ILC, Left, 4cm, Stage IIB, Grade 2, 3/27 nodes, ER+/PR+, HER2- Surgery 4/4/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 6/20/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 3/17/2016, ILC, 4cm, Stage IV, metastasized to bone, Grade 2, 3/27 nodes, ER+/PR+, HER2- Targeted Therapy 3/27/2016 Ibrance (palbociclib) Radiation Therapy 4/21/2016 External: Bone Hormonal Therapy 6/23/2016 Faslodex (fulvestrant) Targeted Therapy 6/23/2016 Herceptin (trastuzumab) Dx 11/2017, ILC, Stage IV, metastasized to lungs, ER+/PR+, HER2+ (FISH) Targeted Therapy 11/22/2017 Herceptin (trastuzumab) Targeted Therapy 10/2/2018 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 1/8/2019 External: Bone Radiation Therapy External: Bone Chemotherapy Taxol (paclitaxel)
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Jul 4, 2016 10:46PM - edited Jul 4, 2016 10:47PM by MsTee

Hello!

De novo, 2013 bone

2014 liver


Hope is everything. Dx 12/11/2013, IDC, Left, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, mets, ER+/PR+, HER2- Hormonal Therapy 12/31/2013 Radiation Therapy 1/3/2014 Bone Radiation Therapy 1/29/2014 Bone Hormonal Therapy 3/25/2014 Faslodex (fulvestrant) Targeted Therapy Radiation Therapy External: Lymph nodes
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Jul 5, 2016 07:26AM annieoakley wrote:

Hello

Stage 1, May 2012

Stage IV, September 2014

Surgery 5/8/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/23/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/28/2012 Surgery 2/1/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/12/2013 Prophylactic ovary removal Surgery 9/4/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/4/2014 Femara (letrozole) Radiation Therapy 12/1/2014 Bone
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Jul 5, 2016 08:04AM Texasrose53 wrote:

Hello

2013 Stage IIIA

2015 Stage IV - Lungs and Sternum

Living and loving life each day to the fullest! Dx 9/12/2013, Left, 2cm, Stage IIIA, Grade 3, 4/22 nodes, ER-/PR-, HER2- Surgery 10/22/2013 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/25/2013 TAC Radiation Therapy 4/9/2014 Breast, Lymph nodes, Chest wall Surgery 2/26/2015 Dx 5/1/2015, 1cm, Stage IV, 2/0 nodes, ER-/PR-, HER2- Chemotherapy 5/22/2015 Taxol (paclitaxel) Chemotherapy 11/20/2015 CMF Chemotherapy 11/28/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 2/21/2017 Halaven (eribulin) Chemotherapy 5/14/2017 Doxil (doxorubicin) Radiation Therapy 7/26/2017 External: Brain
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Jul 5, 2016 10:59AM Ally46 wrote:

stage Iv denovo March 2015

Dx 3/27/2015, IDC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- (IHC) Radiation Therapy External: Bone Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy AC + T (Taxol)
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Jul 5, 2016 05:07PM - edited Jul 5, 2016 05:07PM by windlass

Hi! 2015 brain mets. Now NED!

Had neurosurgery to resect tumors. Now on herceptin and copper chelation.

Original diagnosis 2011 - Stage IIIC, 6 cm (!) ductal tumor.

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Jul 5, 2016 05:12PM Groovywilma wrote:

Stage IV from the start January 2011.

Shocked

Dx 1/3/2011, IDC, 2cm, Stage IV, Grade 2, mets, ER+/PR+, HER2- Hormonal Therapy 7/25/2013 Faslodex (fulvestrant) Hormonal Therapy 9/2/2015 Femara (letrozole) Targeted Therapy 9/2/2015 Ibrance (palbociclib) Chemotherapy 12/18/2015 Xeloda (capecitabine) Chemotherapy 4/7/2016 Gemzar (gemcitabine) Chemotherapy 3/31/2017 Navelbine (vinorelbine) Chemotherapy 4/21/2017 Taxol (paclitaxel) Chemotherapy 10/4/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole)
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Jul 5, 2016 06:00PM dcjoslin56 wrote:

Greetings;

Stage 3B in 2008, ILC, lumpectomy, 9/10 lymph nodes removed, 7 chemo treatments, 38 radiation treatments

Stage 4 in 2015, ILC, large tumor in left armpit is wrapped around nerves and blood vessels, so surgery impossible, no radiation; am taking Ibrance and Femara for 1 year now. Have had 3 PET scans; first two showed shrinkage of tumor, third one showed a plateau; What does de novo mean? Is anyone else in a similar position as i am? What does your oncologist tell you about length of life? Would love to chat with someone in my position. Thank you, Diane

Dx 3/13/2008, ILC, 5cm, Stage IIIA, 9/10 nodes, ER+/PR-
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Jul 5, 2016 08:05PM DJFJ wrote:

Hi - dx in 1999. Stage 4 in 2009

Chemotherapy 10/16/2013 Taxol (paclitaxel) Chemotherapy 6/13/2014 Xeloda (capecitabine)
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Jul 5, 2016 08:47PM Dianarose wrote:

diagnosed 2004

Stage 4 2013

6/10/13 mets to ovary now. Now mets. To peritoneal stage IV Dx 3/22/2012, ILC, Both breasts, 1cm, Stage IV, metastasized to bone/other, Grade 2, 17/17 nodes, ER+/PR+, HER2- Chemotherapy 5/31/2012 CMF Radiation Therapy 12/3/2012 3DCRT: Breast, Lymph nodes Hormonal Therapy 8/10/2013 Aromasin (exemestane) Targeted Therapy
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Jul 5, 2016 08:53PM AmyQ wrote:

Hello,

De Novo bones 2013

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/8/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/18/2013 Femara (letrozole) Radiation Therapy 11/24/2015 External: Bone Hormonal Therapy 1/9/2016 Faslodex (fulvestrant)
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Jul 6, 2016 05:47AM chrissyb wrote:

Hi, 2009 mets to bone. Right now I am NED.

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Jul 6, 2016 08:55AM Jaytee wrote:

Hi Stage 2B 2010

Stage 4 2014




Dx 5/2014, IDC, Stage IV, ER-/PR-, HER2+ Targeted Therapy 6/10/2014 Perjeta (pertuzumab) Targeted Therapy 7/12/2015 Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy 5/29/2016 Xeloda (capecitabine)

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