Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.
Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.
Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.
Learn more about living with MBC.
Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020
Posted on: Jul 3, 2016 11:13PM - edited Jan 1, 2018 06:27AM by zarovka
The purpose of this thread is to count the number of people lurking or posting on this forum and gather some basic info. We are trying to get a sense of who is out there and add everyone to the collective cyber hug that is this MBC forum.
This is not a thread for discussions. The only thing you need to put in the body of the post is Hi! (in the language of your choice) and/or the year of your diagnosis. This keeps the thread restricted to a simple head count. (number of posts = the number of people posting)
If you are willing to share the year of your stage IV diagnosis, put it in the body of the post. Also note if you are de novo if you choose. De novo means that you were diagnosed with metastasis from the beginning.
Please don't reply to posts to this thread. Reach out to people by PM. This is just a list.
That said, I do check this thread daily and it moves me deeply to see each name added. Sending peace and healing to everyone. Hope to chat with you elsewhere in this forum. Let us know the good and the bad and, of course, whatever is puzzling you. There are a lot of women on this forum ready to help you through this.
Hola! 2016 De Novo Multiple Mets to Liver and Possibly a Met to the Sternum
3/5/17 addendum. Goodness this list is getting long. - Z
9/15/17 - rats we're over 400.
1/1/18 - happy new year! i sure hope there is strength in numbers ...
Posts 1 - 30 (724 total)
Jul 3, 2016 11:29PM Tina2 wrote:
Stage I 1985. Stage I 1995. Stage IV 2011.
Jul 4, 2016 12:06AM AnimalCrackers wrote:
Hi! 2014 stage IV de novo
Jul 4, 2016 07:50AM Sary wrote:2015
Jul 4, 2016 12:21PM unc_lady wrote:
Hi ... Stage IV De Novo 2015
Jul 4, 2016 12:26PM goldie0827 wrote:
Jul 4, 2016 12:32PM Longtermsurvivor wrote:
Bilateral mastectomies in 1991, progression within 6 months. Stable or active disease since then.
Jul 4, 2016 12:53PM mikarae wrote:
Jul 4, 2016 01:15PM Linda11111111 wrote:
Stage 4 diagnosis in 2010.
Jul 4, 2016 01:30PM JFL wrote:
Stage 2B diagnosis in 2006.
Stage 4 diagnosis in 2014.
Jul 4, 2016 01:33PM Kessala wrote:
Hello! 2005 Stage IV de novo
Jul 4, 2016 01:34PM Becs511 wrote:
Hello from NYC!
May, 2014 de nov
Jul 4, 2016 01:49PM LovesMaltese wrote:
Stage 2-A 1997
Stage 4 2015
Jul 4, 2016 01:54PM blainejennifer wrote:
2012 - ER/PR+, HER - Bone Mets. 2016 - Liver Mets.
Jul 4, 2016 04:49PM - edited Jul 13, 2016 01:50AM by kt1966
2003 Stage IIIA
2014 Bone & Lung mets
Edited to add Leptomeningeal mets July 8 2016
Jul 4, 2016 05:23PM catsteme wrote:
Stage IV 2016 - Bone, lung
Jul 4, 2016 11:30PM DebK227 wrote:
Stage 2b 2014 Feb
Stage IV 2016 March
Jul 4, 2016 11:46PM - edited Jul 4, 2016 11:47PM by MsTee
De novo, 2013 bone
Jul 5, 2016 08:26AM annieoakley wrote:
Stage 1, May 2012
Stage IV, September 2014
Jul 5, 2016 09:04AM Texasrose53 wrote:
2013 Stage IIIA
2015 Stage IV - Lungs and Sternum
Jul 5, 2016 06:07PM - edited Jul 5, 2016 06:07PM by windlass
Hi! 2015 brain mets. Now NED!
Had neurosurgery to resect tumors. Now on herceptin and copper chelation.
Original diagnosis 2011 - Stage IIIC, 6 cm (!) ductal tumor.
Jul 5, 2016 06:12PM Groovywilma wrote:
Stage IV from the start January 2011.
Jul 5, 2016 07:00PM dcjoslin56 wrote:
Stage 3B in 2008, ILC, lumpectomy, 9/10 lymph nodes removed, 7 chemo treatments, 38 radiation treatments
Stage 4 in 2015, ILC, large tumor in left armpit is wrapped around nerves and blood vessels, so surgery impossible, no radiation; am taking Ibrance and Femara for 1 year now. Have had 3 PET scans; first two showed shrinkage of tumor, third one showed a plateau; What does de novo mean? Is anyone else in a similar position as i am? What does your oncologist tell you about length of life? Would love to chat with someone in my position. Thank you, Diane
Jul 5, 2016 09:47PM Dianarose wrote:
Stage 4 2013
Jul 5, 2016 09:53PM AmyQ wrote:
De Novo bones 2013