Topic: How Many Are We?

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jul 3, 2016 11:13PM - edited Jan 1, 2018 06:27AM by zarovka

Posted on: Jul 3, 2016 11:13PM - edited Jan 1, 2018 06:27AM by zarovka

zarovka wrote:

The purpose of this thread is to count the number of people lurking or posting on this forum and gather some basic info. We are trying to get a sense of who is out there and add everyone to the collective cyber hug that is this MBC forum.

This is not a thread for discussions. The only thing you need to put in the body of the post is Hi! (in the language of your choice) and/or the year of your diagnosis. This keeps the thread restricted to a simple head count. (number of posts = the number of people posting)

If you are willing to share the year of your stage IV diagnosis, put it in the body of the post. Also note if you are de novo if you choose. De novo means that you were diagnosed with metastasis from the beginning.

Please don't reply to posts to this thread. Reach out to people by PM. This is just a list.

That said, I do check this thread daily and it moves me deeply to see each name added. Sending peace and healing to everyone. Hope to chat with you elsewhere in this forum. Let us know the good and the bad and, of course, whatever is puzzling you. There are a lot of women on this forum ready to help you through this.

Hola! 2016 De Novo Multiple Mets to Liver and Possibly a Met to the Sternum

>Z<

3/5/17 addendum. Goodness this list is getting long. - Z

9/15/17 - rats we're over 400.

1/1/18 - happy new year! i sure hope there is strength in numbers ...

Ibrance/Letrozol Feb '16 -Sep '17. Adoptive Cell Therapy Oct 2017. Jan 2018 SBRT to sternum met and liver mets. Jan 2018 start Faslodex. Dx 12/28/2015, IDC, Left, 4cm, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 1/17/2016 Femara (letrozole) Targeted Therapy 2/2/2016 Ibrance (palbociclib)
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Mar 11, 2022 08:05AM karin777 wrote:

Hi

Bone, Lung, Liver Mets Diagnosed 2019

Hormonal Therapy 7/4/2019 Liquid tamoxifen (Soltamox) Chemotherapy 8/1/2019 AC Radiation Therapy 11/4/2019 Whole breast: Right breast, Chest wall, Lymph nodes Surgery 1/14/2021 Reconstruction (Right): Tissue Expander Local Metastases Thoracentesis or paracentesis: Liver, Lungs, Abdomen Local Metastases Thoracentesis or paracentesis: Bone, Liver, Abdomen
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Mar 12, 2022 08:11AM angy888 wrote:

Hello

Stg. 1b 2009

Stg.IV 2018

Surgery 11/4/2009 Lumpectomy (Left) Surgery 4/4/2018 Mastectomy (Left): Radical Chemotherapy 7/19/2018 CMF Radiation Therapy 11/19/2018 Whole breast: Left breast, Chest wall Hormonal Therapy 1/7/2019 Liquid tamoxifen (Soltamox)
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Mar 15, 2022 04:57AM li77 wrote:

Hi Everyone,

De Novo diagnosis February 2022, mets to bone (spine and pelvis).


Lauren, De Novo Stage IV diagnosis at 44, January 2022. Mets to spine, ribs, iliac bones. Former attorney, current smart ass, mom to an awesome 10-year-old. F this shit. Hormonal Therapy 2/9/2022 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/14/2022 Other part Targeted Therapy 4/25/2022 Ibrance (palbociclib) Hormonal Therapy 4/25/2022 Femara (letrozole) Dx IDC, Left, 4cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Mar 16, 2022 01:09AM hungryfrittata wrote:

Hi. De novo metastatic breast cancer, Feb 2022. Mets to bones (skull, vertebrae, ribs, sternum, humeri, pelvis, femora) and liver

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Apr 9, 2022 02:29PM jacque1102 wrote:

Hello all. Technology issues with my signature. I am Her2+. Diagnosed with Stage IV mets to liver 2011 right from the jump. Became NED in August 2012. Remained on Herceptin and then later onto Hylecta indefinitely. New spots on lungs indicating progression. Hope Enhertu gives me anothe 10 1/2 years. Peace to us all.

Immunotherapy 10/1/2011 Dx 10/20/2011, IBC, Right, 2cm, Stage IV, metastasized to liver, Grade 3, 4/9 nodes, mets, ER-/PR-, HER2+ Chemotherapy 10/25/2011 Surgery 3/1/2012 Lymph node removal (Right): Underarm/Axillary; Mastectomy (Right): Modified Radical Surgery 3/1/2012 Lymph node removal (Right): Sentinel; Mastectomy (Right): Modified Radical Radiation Therapy 5/8/2012 Accelerated partial breast: Right breast, Chest wall Radiation Therapy 4/9/2022 Whole breast: Right breast, Chest wall Chemotherapy 4/9/2022 Targeted Therapy 6/1/2022 Enhertu (fam-trastuzumab deruxtecan-nxki) Radiation Therapy 6/1/2022 Accelerated partial breast: Right breast, Chest wall Chemotherapy 6/1/2022 Local Metastases Targeted Therapy Herceptin (hylecta)
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Apr 21, 2022 12:19AM justmle68 wrote:

Hi! De novo March 2022

Hormonal Therapy 3/25/2022 Arimidex (anastrozole) Targeted Therapy 3/25/2022 Ibrance (palbociclib)
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Apr 21, 2022 01:45AM moth wrote:

hi new members, sorry you're having to be here. Pls do join in on the threads that deal with your mets location or the treatment you're on. Hugs

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Hormonal Therapy 12/15/2020 Femara (letrozole) Radiation Therapy 3/2/2021 External Local Metastases 3/2/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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May 21, 2022 06:36PM meg8000 wrote:

Don't believe I've ever posted in this particular discussion board before, so thought I'd add my name to the list. Diagnosed Stage 1 in October 2009; Stage IV in November 2018. My beloved husband of almost 47 years passed away in July of 2018 and I fractured my left humerus the night he died. Turned out to be a pathologic fracture and wasn't diagnosed Stage IV till the end of November. Am ER/PR+, HER2-. After almost 3 years on Ibrance, started 2nd line of treatment on Piqray in December 2021. Moved from Atlanta to Boynton Beach, FL to follow my only son. Have had a lot of issues with Piqray, but am hoping to get them worked out. I don't post on BCO very much anymore because sadly there isn't really a forum for Piqray, or at least at the time I started they referred everyone to the FB group for Piqray. I'll try to do better.

Dx 10/22/2009, IDC, Right, 1cm, Stage IB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 11/4/2009 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 12/9/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/17/2010 Whole breast: Breast Hormonal Therapy 5/15/2010 Arimidex (anastrozole) Dx 12/7/2018, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 12/27/2018 Faslodex (fulvestrant) Targeted Therapy 12/27/2018 Ibrance (palbociclib)
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Jun 9, 2022 05:58PM kglee wrote:

HI!

Stage 1 10/2012

Stage IV mets to liver in 8/2019

Dx 10/19/2012, IDC, Right, 2cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 12/18/2012 Breast, Lymph nodes Hormonal Therapy 2/1/2013 Dx 9/2019, IDC, Right, Stage IV, metastasized to liver, ER+/PR+, HER2- Targeted Therapy 9/9/2019 Ibrance (palbociclib) Surgery Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right) Hormonal Therapy Faslodex (fulvestrant)
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Jun 11, 2022 02:46PM gonegirl wrote:

Stage IV HER2+ to liver, diagnosed Jan 2012. De Novo. Still here. Had a recent flare up but still here.

Targeted Therapy 2/10/2012 Herceptin (trastuzumab) Chemotherapy 2/10/2012 Taxol (paclitaxel) Surgery 11/1/2012 Mastectomy (Left): Simple; Mastectomy (Right): Simple; Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 11/6/2012 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left); Reconstruction (Right) Targeted Therapy 12/8/2013 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/7/2015 External Local Metastases 11/7/2015 Radiation therapy: Bone Targeted Therapy 9/12/2018 Herceptin (trastuzumab) Targeted Therapy 9/12/2018 Perjeta (pertuzumab) Radiation Therapy 3/24/2022 Other part

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