We are 197,827 members in 81 forums discussing 145,380 topics.

Help with Abbreviations

All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Quotes from you for MBC Awareness Day (Oct 13)?!

Topic: Quotes from you for MBC Awareness Day (Oct 13)?!

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Oct 6, 2016 12:17PM - edited Oct 9, 2016 09:19AM by Moderators

Moderators wrote:

Hi Everyone,

Metastatic Breast Cancer Awareness Day is Thursday, October 13th and for this we would like to share inspirational, hopeful messages on our Facebook page and in our community.

To help us with this, would you mind completely this sentence, and provide your screen name, age, and where you are in the world?!

"I am living with metastatic breast cancer and I still . . . " (e.g. play with my kids, love gardening, plan on...., expect to..., etc.)

OR

"I am living with metastatic breast cancer and . . . "

(Screen name, age, where you live)

Thank you!


To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Page 1 of 3 (61 results)

Posts 1 - 30 (61 total)

Log in to post a reply

Oct 7, 2016 07:49AM - edited Oct 7, 2016 01:32PM by Zillsnot4me

I am living with Metatastic Breast Cancer. I still can aggravate my husband and play with our young children (with lots of naps taken). I've lost body parts every year and I'll be on chemo for life. Whatever it takes. I plan n being a perky granny with rainbow hair driving a Mini Cooper.

Zillsnot4me, 49 yrs young (3 yrs with mets), KY

Liver 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/28/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/22/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/5/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/6/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/3/2016 Arimidex (anastrozole) Hormonal Therapy 4/23/2017 Faslodex (fulvestrant) Hormonal Therapy
Log in to post a reply

Oct 7, 2016 08:15AM Moderators wrote:

Love it! Thank you, Zills! Heart

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Oct 7, 2016 04:03PM Stefajoy wrote:

I am living with metastic breast cancer and I still work out every day, make my family dinner every night, vacation as often as I can, and live as normally as possible for as long as possible...5 years and counting.

Stefajoy, 52, California

Dx 7/29/2011, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Chemotherapy Xeloda (capecitabine) Radiation Therapy Chemotherapy TAC Targeted Therapy Ibrance (palbociclib) Surgery Mastectomy; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole)
Log in to post a reply

Oct 7, 2016 04:09PM Moderators wrote:

Thanks so much Stefajoy. The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Oct 8, 2016 12:05AM AnimalCrackers wrote:

I am living with metastatic breast cancer and I still laugh and enjoy life. I work full time, spend quality time with my family and friends, work out when I can fit it in and appreciate the life I have more than ever. Is my life different? Absolutely!. Do I spend more time in doctors' offices, hospitals, and on the internet reading about cancer? No doubt! Do my treatments make me sick? Sometimes. Am I scared? You bet! But I'm here and I'm fighting and I'm LIVING with metastatic breast cancer!

AnimalCrackers, 54, Massachusetts

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis. Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial LSZ102 (oral SERD) and Kisqali (Ribociclib) 5/18/17-11/16/17. Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/4/2016 Femara (letrozole) Targeted Therapy 1/4/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/17/2017 Targeted Therapy 5/17/2017 Kisqali
Log in to post a reply

Oct 8, 2016 07:58AM Partyoffive wrote:

I am living with metastatic breast cancer and still find joy in life. I continue to love my husband and five children-and still cook clean and do everything and more that I used to do(unfortunately the cancer did not make the laundry disappear!) I try to give voice to my hope and quiet the fears and enjoy each day-I am 3 years out and planning on many more


Dx 6/2013, IDC, 5cm, Stage IV, 9/21 nodes, mets, ER+/PR+, HER2- Surgery 6/16/2013 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/24/2013
Log in to post a reply

Oct 8, 2016 10:13AM - edited Oct 8, 2016 10:15AM by Becs511

I am living with metastatic breast cancer and I still am not just a statistic, a medical id number, or an insurance file. I am an actual living, breathing person who is more than just an MBC patient: I am usually goofy, fairly klutzy, generally quick-witted, fairly intelligent, stunningly gorgeous, extremely loyal to my family, friends, and New York Rangers, a sucker for "bad" TV, tourist traps, and high levels of tackiness and kitsch. I am still, and will always be, a collector and lover of funny stories; whether it's reading them, watching them, hearing them, telling them, or most importantly, living them.

Becs511, New York City, 35 years old

Age at DX: 32. Childhood Leukemia survivor. Triple Positive mets and Triple Negative at the same time! www.theunderbelly.org Dx 5/5/2014, IDC, 5cm, Stage IV, mets, ER+/PR+, HER2+ Targeted Therapy 5/22/2014 Perjeta (pertuzumab) Chemotherapy 5/22/2014 Taxol (paclitaxel) Targeted Therapy 1/16/2015 Kadcyla (T-DM1, ado-trastuzumab) Surgery 6/17/2015 Prophylactic ovary removal Dx 7/1/2015, IDC, Left, ER-/PR-, HER2- Chemotherapy 7/20/2015 Carboplatin (Paraplatin), Gemzar (gemcitabine) Dx 2/2016, Stage IV, metastasized to brain Radiation Therapy External: Brain Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine) Chemotherapy Other
Log in to post a reply

Oct 8, 2016 10:28AM exbrnxgrl wrote:

I am living with MBC and will not put my foot in the grave until I absolutely have to. Whether I die in 10 days or in 10 years, I plan to live with joy and happiness.

-living with MBC for 5 years

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole)
Log in to post a reply

Oct 8, 2016 01:27PM teacher911 wrote:

I am living with metastatic breast cancer and I still enjoy the simple things in life, my family, friends, leaves changing colors and a walk with my dogs. I had early breast cancer in 2008 and then metastasized in 2012. Love that I'm still here and able to enjoy each day.

Dx 3/2008, DCIS, 1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 9/2012, IDC, 1cm, Stage IV, Grade 2, ER+/PR+, HER2- Chemotherapy 11/16/2012 AC + T (Taxol) Hormonal Therapy 3/15/2013 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/17/2013 3DCRT: Breast, Lymph nodes, Bone Targeted Therapy 11/26/2016 Ibrance (palbociclib)
Log in to post a reply

Oct 8, 2016 01:38PM Moderators wrote:

Thank you, everyone!

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Oct 8, 2016 02:08PM Lita57 wrote:

I am living with metastatic breast cancer and I still believe in God. He didn't do this to me, the toxic environment in which we all live, with polluted air and water, and toxins in our food supply, contributed to this. It saddens me that more and more people at younger and younger ages are coming down with cancer. We must FIGHT for more research and BETTER, more accurate testing methods. Mammograms are fallible, and repeated annual mammograms did not detect my cancer. A dye-infused CT scan spotted it. But rather than wallow in despair and defeat, I prefer to be an optimistic beacon of light for years to come. If I'm surviving despite the pain of my extensive organ and bone metastases, so can others with the information, love, and support of communities like breastcancer.org. Blessings to you all.

Lita57, Union City, California, 57 years old



Stage IV Occult, Amorphic right from the gate. New Brain Mets Aug 2017. I've been dragged into an arranged marriage that I didn't agree to, & divorce is totally off the table now that I'm married to Mr. Cancer. STAGE IV LIVES MATTER! Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/27/2016 External: Bone Targeted Therapy 5/15/2016 Chemotherapy 5/22/2016 Xeloda (capecitabine) Radiation Therapy 4/20/2017 External: Bone Dx 8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2- Radiation Therapy 9/6/2017 External: Brain Chemotherapy 10/10/2017 Taxol (paclitaxel)
Log in to post a reply

Oct 9, 2016 06:38AM MaineRottweilers wrote:

I am living with metastatic breast cancer and I still

LIVE! I move and think a bit more slowly but I smile, laugh, love and enjoy life more than I ever have. Living with MBC has given me a perspective and appreciation of life that I did not have before.

MaineRottweilers 46, Jay, Maine

Tracy Arcari Dx 5/1/2013, DCIS, Left, 4cm, Stage 0, Grade 3, 1/4 nodes, ER+/PR-, HER2- Dx 5/1/2013, IDC, Left, 3cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2+ (IHC) Surgery 5/13/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left Targeted Therapy 6/13/2013 Herceptin (trastuzumab) Chemotherapy 6/13/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 9/30/2013 External: Lymph nodes, Chest wall Surgery 8/27/2014 Prophylactic mastectomy: Right Dx 10/8/2015, IDC, Stage IV, Grade 3, ER-/PR+, HER2+ (IHC) Surgery 10/18/2015 Chemotherapy 10/21/2015 Taxotere (docetaxel) Targeted Therapy 10/22/2015 Herceptin (trastuzumab) Targeted Therapy 10/22/2015 Perjeta (pertuzumab) Radiation Therapy 11/8/2015 External: Bone Chemotherapy 1/6/2016 Taxol (paclitaxel) Hormonal Therapy 3/31/2016 Arimidex (anastrozole)
Log in to post a reply

Oct 9, 2016 08:41AM Lynnwood1960 wrote:

I am living with metastatic Breast cancer and I still enjoy life! Following my passion as still working as a nurse, caring for others. Still a Mom to 3 great sons, a wife to my wonderful husband of 36 years. A little slower, a lot more tired, but still getting it done!

Dx 4/6/2015, ILC, Right, 3cm, Stage IV, Grade 2, 0/12 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Oct 9, 2016 02:22PM akshelley wrote:

I am living with Metastatic Breast Cancer and I still am holding out for a cure! Treatment options are wonderful, and perhaps life extending, but a cure is the only answer for Stage IV. I am living each day surrounded by peace and love, with supportive family and

More than just a cancer patient! Dx 4/2009, IDC, Stage IA, 0/6 nodes, ER+, HER2- Surgery 5/28/2009 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/26/2013, IDC, Stage IV, 0/6 nodes, mets, ER+, HER2- Chemotherapy 7/14/2013 Taxol (paclitaxel), Xeloda (capecitabine) Hormonal Therapy 10/1/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/5/2014 Prophylactic ovary removal Hormonal Therapy 12/31/2014 Arimidex (anastrozole) Hormonal Therapy 8/2/2015 Faslodex (fulvestrant), Femara (letrozole) Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol) Chemotherapy CMF Chemotherapy Doxil (doxorubicin)
Log in to post a reply

Oct 9, 2016 05:36PM remz wrote:

I am living with metastatic breast cancer and I still haven't "checked-out". 14 years after my final round of chemo I now know I am not cured. I do know that my life will end before I thought it may.The coming months will be difficult but that's the way life can be for everyone. Personally, I am facing this head on gathering as much knowledge and support as I need. It'll all be ok in the end...and if it's not ok it's not the end.

Hormonal Therapy 1/17/2002 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/2002, ILC, Right, 5cm, Stage IIA, ER+, HER2- Dx 7/29/2016, ILC, Stage IV, metastasized to bone, ER+, HER2- Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Right Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Oct 9, 2016 11:44PM dlb823 wrote:

I am living with metastatic breast cancer and I still live a very full life, running two small businesses (I'm an antiques dealer and I also created and run an on-line business to share the non-toxic personal care products I am passionate about), traveling, and advocating for much-needed mbc research, all while trying to integrate as much family time and self-TLC as possible into my busy life. dlb823, Bermuda Dunes, CA

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
Log in to post a reply

Oct 11, 2016 11:29AM Shutterbug73 wrote:

I am living with metastatic breast cancer and I still work full time, make my husband laugh, enjoy being with family & friends, and like to find quiet time time alone in the woods with my camera. I love my 2 cats, spring, Thai food, cheesy Bollywood movies, and singing 80's tunes on long road trips with my husband. I know my time is probably limited, but I'm determined to make the most of the time I have.

Shutterbug73, 43, SE Michigan

“‎Life is a shipwreck, but we must not forget to sing in the lifeboats.” ― Voltaire Treatment summary: 9/15/14: Also began with Xgeva every 6 weeks. 12/29/14: Last Taxotere. 1/1/15 Changed Xgeva to every 3 months Dx 8/18/2014, IDC, Stage IV, Grade 3, mets, ER+/PR+, HER2+ Radiation Therapy 8/28/2014 Bone Targeted Therapy 9/15/2014 Herceptin (trastuzumab) Targeted Therapy 9/15/2014 Perjeta (pertuzumab) Chemotherapy 9/15/2014 Taxotere (docetaxel) Hormonal Therapy 1/20/2015
Log in to post a reply

Oct 11, 2016 12:46PM Iwrite wrote:

I am living with metastatic breast cancer and I'm now focused on what is important...time with the family I love and friends I cherish. After the initial diagnosis one year ago (stage IV from the start) i now take care of myself without guilt or stress after a lifetime of chasing deadlines and goals set by others. With a deadline of my own, the sun is sunnier, every hug from a grandchild means more, every minute with my grown daughters is precious and every rose smells sweeter. Those in the cancer community are a blessing though we all wish we had never met under these circumstances. Living joyfully for as long as it lasts.

Kathryn, 64, Illinois, US

Kathryn Dx 11/2/2015, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, ER+/PR+, HER2- Hormonal Therapy 11/5/2015 Femara (letrozole) Targeted Therapy 11/11/2015 Ibrance (palbociclib)
Log in to post a reply

Oct 11, 2016 06:22PM - edited Oct 11, 2016 06:45PM by ShetlandPony

Moderators, you have received quotations from many very brave and kind-hearted women here, who are making the best of a horrible situation and want to offer encouragement to others. It is very important that MBC patients hear these messages and be able to encourage each other. And yet I think it would be a disservice to these women to paint a rosy picture of MBC by publishing only "inspirational, hopeful messages" without also addressing the harsh reality of MBC and the need for action. I do appreciate the effort of BCO to participate in improving awareness of MBC. But what is the goal of awareness? If only part of our reality is spoken, it perpetuates the problems with the whole "breast cancer awareness" culture and brings these problems to the MBC world. This feel-good awareness culture minimizes the mental and physical impact of breast cancer and promotes empty awareness with no action that will actually help breast cancer patients or end the epidemic. The general public needs to feel the urgency, the outrage, the horror of this epidemic and join the movement for more attention and research money to go toward better treatments that could allow people with MBC to live their normal lifespan, and to prevention and a cure. They need to know that MBC can happen to anyone. They need to know this is not ok, despite the courage exhibited by these women who have contributed comments. I fear this "positive" narrative will only lull the people into feeling that things are not too bad. And it may make MBC patients who are struggling physically and emotionally, unable to carry on with their normal lives, feel more lonely because they are not inspirational enough. So I think there needs to be some kind of balance and I hope whatever is published will achieve that.

I am living with metastatic breast cancer and I am dismayed by the very small amount of resources devoted to MBC research. I am living with metastatic breast cancer and I need people to hear the whole story so things can change.

(These comments of mine are not for your Facebook page. I just wanted to offer this perspective.)

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn. Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast, liver, retroperitoneal nodes. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda
Log in to post a reply

Oct 11, 2016 07:19PM kt1966 wrote:

I agree with Shetlandpony,

It is the reality that it won't always be easy having MBC. Sure while you're stable life can be very doable and you can still enjoy most of the things you used to do. However progression does happen. It s not planned, you have no say when it does.

You can adjust to yet another new normal, but sometime eventually it turns into the slippery slope you can't bounce back from. Eventually our quality of life just won't be there :(


We need more awareness of the reality of MBC & more research for new drugs. We need cures!

Age at Diagnosis: 37 Dx 12/11/2003, ILC, 4cm, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Surgery 12/15/2003 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 2/24/2004 AC Hormonal Therapy 5/19/2004 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/25/2004 Hormonal Therapy 7/3/2011 Femara (letrozole), Zoladex (goserelin) Surgery 10/7/2013 Prophylactic mastectomy: Left Dx 7/9/2014, ILC, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+ Chemotherapy 7/14/2014 Xeloda (capecitabine) Chemotherapy 6/16/2015 Taxol (paclitaxel) Dx 7/8/2016, Stage IV, metastasized to brain/liver Radiation Therapy 7/18/2016 External: Brain Chemotherapy 8/29/2016 Navelbine (vinorelbine) Chemotherapy 10/18/2016 Cytoxan (cyclophosphamide), Methotrexate (Amethopterin, Mexate, Folex)
Log in to post a reply

Oct 11, 2016 08:14PM - edited Oct 12, 2016 12:16PM by Bluefrog76

Agreed. I've hesitated to post, because I am living a fairly normal life, but I've lost so much and feel like I'm constantly calculating how much time I have left and what that means to my 9 and 11 year olds. No on really "gets it" except the women here. I feel lonely even when surrounded by friends and family.

***

I am living with MBC and I still feel

heartbroken every day.

Rachel, 40, Philadelphia

Rachel, diagnosed stage IV out of the gate at 38 in August 2015 after 2 fractured vertebrae revealed bone metastases. Mom of an 8 and 10-year-old. Dx 8/4/2015, Both breasts, 4cm, Stage IV, ER+/PR+, HER2+ (IHC) Targeted Therapy 8/13/2015 Perjeta (pertuzumab) Chemotherapy 8/13/2015 Taxotere (docetaxel) Targeted Therapy 8/13/2015 Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Oct 11, 2016 09:08PM ShetlandPony wrote:

Thank you, kt and Bluefrog.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn. Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast, liver, retroperitoneal nodes. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda
Log in to post a reply

Oct 11, 2016 11:00PM Moderators wrote:

Thank you, ladies, for your words. We appreciate you all so much, and we value your perspectives.

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Oct 11, 2016 11:05PM pwilmarth wrote:

I'm living with MBC and I still walk my dogs everyday and I grow tomatoes on my patio - which gives me great pleasure. I work occasionally which keeps me involved and active in my profession, but eliminates the demands of a very stressful job that was decreasing my joy and happiness with living.

I get great pleasure teaching people and this forum has given me one outlet for continuing this passion.

Each of us are at different places in our lives. Some of us are still dealing with the sadness, anger and denial that comes with a disease that isn't curable, but treatable. Some of us are a little bit further into acceptance. And while some of us are still dealing with the emotional realities of the disease, some of us have overcome many more difficult life stories before we were hit with MBC. It isn't always easy thinking about my own mortality, but life is still good and I'm choosing to live life with as much joy as possible. I'm 62, and I've worked with many people who have passed away before this age. So any day I get on this earth is a bonus, a gift that I choose to spend wisely.

Dx 12/1/2014, Left, 6cm+, Stage IV, ER-/PR-, HER2+ (FISH) Surgery 1/12/2015 Mastectomy: Left Chemotherapy 2/24/2015 Taxotere (docetaxel) Targeted Therapy 2/24/2015 Perjeta (pertuzumab) Targeted Therapy 2/24/2015 Herceptin (trastuzumab) Radiation Therapy 7/21/2015 3DCRT: Breast, Lymph nodes Radiation Therapy 10/21/2016 External: Brain Targeted Therapy 11/25/2016 Kadcyla (T-DM1, ado-trastuzumab)
Log in to post a reply

Oct 11, 2016 11:22PM AnimalCrackers wrote:

wow! ShetlandPony I applaud you for that tremendously sobering reality check! I agree with everything you wrote. When I submitted my quote I fell into the trap of putting forth that brave front that helps me get through each day. I wasn't thinking in terms of how this is an opportunity to underscore the need for more attention to MBC and more research and funding for a cure. I'd like to amend my quote to say: I am living with MBC and still try so hard to maintain a positive outlook and support my mbc sisters and brothers under the ominous specter of a very uncertain future fraught with myriad unpleasant and painful treatment side effects, never ending anxiety inducing scans and blood tests, constant fear of progression, actual progression, more pain, compromised immune systems, assembly line treatment options that will all fail at some point, clinical trials, no cure, and inevitably death

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis. Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial LSZ102 (oral SERD) and Kisqali (Ribociclib) 5/18/17-11/16/17. Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/4/2016 Femara (letrozole) Targeted Therapy 1/4/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/17/2017 Targeted Therapy 5/17/2017 Kisqali
Log in to post a reply

Oct 12, 2016 06:23AM Moderators wrote:

Thanks Pwilmarth and AnimalCrackers for sharing a little piece of your lives with us

Heart

Looking forward to hearing from more of our members ThumbsUp

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Oct 12, 2016 08:27AM LindaE54 wrote:

Shetlandpony - thank you. You said it all. We live longer with MBC and we are very resilient women/men. We adjust as the disease evolves and it takes a toll on our bodies, sometimes it rebels. For some like myself, it's constant physical pain, a juggling act between pain meds and staying alert. Despite having a positive outlook and living my life in the best possible way, the "when will the other shoe drop" sneaks in my mind too often. Not only is there a need for research for MBC, recent new and upcoming meds should be made available throughout the planet. Many women do not have the same level of care because meds are not available to everyone.

I live with MBC for almost 3 years now and everyday is a gift.

Linda, 57, Quebec, Canada

Linda - dx at 54 Dx 11/26/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/liver/other, Grade 3, mets, ER+/PR+, HER2- Radiation Therapy 12/19/2013 External: Bone Hormonal Therapy 12/30/2013 Femara (letrozole) Hormonal Therapy 5/28/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/29/2014 External: Bone Radiation Therapy 8/28/2014 External: Bone Hormonal Therapy 9/25/2014 Femara (letrozole) Radiation Therapy 12/14/2014 External: Bone Hormonal Therapy 2/17/2017 Faslodex (fulvestrant) Chemotherapy 5/15/2017 Taxol (paclitaxel) Radiation Therapy 6/5/2017 External: Bone Chemotherapy 10/3/2017 Ellence (epirubicin) Chemotherapy 10/22/2017 CEF
Log in to post a reply

Oct 12, 2016 12:08PM Mab60 wrote:

I support the statement from Shetland pony 100%. She hit it out of the park. I stand with her.

Mary Anne

Dx 6/11/2015, IDC, Right, 3cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 6/11/2015 Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 7/29/2015 Femara (letrozole) Hormonal Therapy 11/4/2015 Aromasin (exemestane) Dx 11/5/2015, IDC, Stage IV, metastasized to bone Radiation Therapy 12/14/2015 External: Bone Hormonal Therapy 1/21/2016 Faslodex (fulvestrant)
Log in to post a reply

Oct 12, 2016 12:21PM - edited Oct 12, 2016 12:22PM by Zillsnot4me

You make a valid point Shetland Pony. I could never be called Miss Sunshine. No one gets stiv unless they are in our shoes.

My address is cancerland. I try to cram in as many memories as possible. It's a balancing act. My pain and fatigue vs my kids. My house always loses. I want to be there for my kids. I am unable to be an active mom. My life goes in three week to three month increments. We need a cure. I deserve one and so do my kids. Make my fantasy of me being a perky granny with rainbow hairdriving a Mini Cooper a reality. Please.

Liver 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/28/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/22/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/5/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/6/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/3/2016 Arimidex (anastrozole) Hormonal Therapy 4/23/2017 Faslodex (fulvestrant) Hormonal Therapy
Log in to post a reply

Oct 12, 2016 12:37PM mara51506 wrote:

I am living with MBC one day at a time. I was diagnosed Stage IV with a brain met July 29, 2016. I have since had a craniotomy to remove the large tumour and gone through whole brain radiation as well. The steroids I had to be on to avoid brain swelling were torturous, my moods were low, and completely bottomed out. I am not able to work, unsure if I can again due to extreme fatigue.

For me, I try to strike a balance and not think about things 24/7 or constantly dwell on my fears. Getting off the steroids has helped and a health issue with the cat gave me a distraction. In time, I may be able to get to doing a few more normal things but am not there yet. One day at a time is the best I can do. Trying not to worry about dementia or other tumours. It will take time.

I am grateful to my family who helped me greatly and continue to do so. Life is very different now. Not all bad but certainly not rosy at this stage for me.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+

Page 1 of 3 (61 results)