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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: We are looking for bloggers

Topic: We are looking for bloggers

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Mar 1, 2017 01:51PM - edited Jun 22, 2017 04:31PM by Moderators

Moderators wrote:

We are looking for bloggers! If you are interested in writing about how you respond to some of the challenges of living with metastatic breast cancer, we would be interested in hearing from you and sharing your writings in our blog area (http://community.breastcancer.org/blog).

Here are some topics that come to mind along the lines of "How do you do it?"

Some ideas:

Staying connected to others (managing the isolation factor)
When possible, keeping cancer on the back burner and living life up front
Asking for what you need/learning to delegate

We are open to your thoughts and suggestions, and greatly appreciate your contributions. If you have an idea for a blog piece, please send it to cnixon@breastcancer.org. Please include a phone number where our blog editor can reach you.

NOTE TO MEMBERS WHO HAVE WRITTEN IN: Please check your email spam folders for responses!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Mar 21, 2017 12:25AM slepeint wrote:

I have a blog at http://thecolorofhopeblog.com and would be happy you let you all use it. I'm on my 8th line now with stage 4. Stage 2B 8/2008 and stage 4 6/2014 liver, lungs, bones, and, now, brain.


suzy-breastcancerand41.blogspo... Dx 8/5/2008, IDC, 2cm, Stage IIB, Grade 2, 2/10 nodes, ER+/PR+, HER2- Surgery 9/15/2008 Lymph node removal: Right; Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 10/13/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/31/2009 Hormonal Therapy 8/31/2011 Aromasin (exemestane) Targeted Therapy 6/12/2014 Hormonal Therapy 6/25/2014 Femara (letrozole) Dx 6/26/2014, IDC, Stage IV, mets, ER+/PR+, HER2- Hormonal Therapy 6/26/2014 Faslodex (fulvestrant) Radiation Therapy 9/13/2014 External: Bone Targeted Therapy 10/5/2014 Afinitor (everolimus) Chemotherapy 2/12/2015 Taxol (paclitaxel) Chemotherapy 1/3/2016 Navelbine (vinorelbine) Dx 2/12/2016, IDC, Stage IV, metastasized to brain/bone/liver/lungs, ER+/PR+, HER2+ Targeted Therapy 2/15/2016 Herceptin (trastuzumab) Targeted Therapy 2/15/2016 Perjeta (pertuzumab) Chemotherapy 2/16/2016 Xeloda (capecitabine) Radiation Therapy 7/10/2016 External: Brain Chemotherapy 9/13/2016 Halaven (eribulin) Chemotherapy 1/17/2017 Doxil (doxorubicin)
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Mar 21, 2017 06:12AM NancyHB wrote:

I'd be interested in contributing, as well. I'm at the beginning of this Stage IV diagnosis and still sorting it out, so blogging is helpful. I've kept a blog through my two previous diagnoses but haven't yet picked it back up - maybe it's time


"Be happy for this moment. This moment is your life." - Omar Khayyam Dx 11/22/2011, IDC, Left, 1cm, Grade 2, ER+/PR-, HER2- (FISH) Surgery 12/4/2011 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/18/2012 AC + T (Taxol) Radiation Therapy 6/11/2012 Whole-breast: Breast, Lymph nodes Dx 1/27/2016, IDC, Left, 1cm, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 2/14/2016 Lumpectomy; Lymph node removal: Left Chemotherapy 2/29/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/20/2016 Mastectomy: Left; Reconstruction (left): DIEP flap Dx 1/31/2017, IDC, Stage IV, metastasized to bone
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Mar 21, 2017 10:32PM - edited Mar 21, 2017 10:37PM by RM3

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Apr 5, 2017 03:53PM - edited Apr 24, 2017 03:32PM by Moderators

I would love to contribute - I write a blog Go Home Cancer, You're Drunk (gohomecancer.com), though haven't posted in awhile as treatment lately has taken priority over everything. I'm 41 and living with stage IV met breast cancer, triple negative - mets in bones, liver, lungs, lymph nodes.

Excited to participate!


Dx 3/5/2013, IDC, Right, 4cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 4/12/2013 AC + T (Taxol) Dx 4/9/2015, IDC, Right, 4cm, Stage IV, Grade 3, ER-/PR-, HER2- Surgery Lumpectomy: Right Radiation Therapy 3DCRT: Breast
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May 3, 2017 02:07PM - edited May 31, 2017 03:52AM by Moderators

Orlando, FL


Hi Kari:

I'll be returning to my home in Bethesda on June 4th--I'm MBC to the bones and belong to two support groups and a book club at the HOPE Connection in Bethesda--off Rockville Pike, near the Beltway. If you've not been there, please check out these free resources.

We don't have good internet at this RV campground, so if you ever want to talk, call me: 301.785.7619


(Edited by Mods to remove user's personally identifiable information)

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May 3, 2017 02:08PM - edited May 31, 2017 03:51AM by Moderators

I'd be glad to add a post in June, when I'm back home in Bethesda and have a good wifi system in our home!


(Edited by Mods to remove user's personally identifiable information)

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May 30, 2017 06:45PM - edited May 31, 2017 03:50AM by Moderators

I have been blogging my story for stage 4 breast cancer for over a year. (mets to liver) beverlymartinwpg.blogspot.ca

(Edited by Mods to delete member's personal email address. We strongly recommend not posting personal information on a public forum, for your own privacy and security. Please exchange contact information using the Private Message feature.)

Dx 11/28/2008, IDC, 3cm, Stage IIIA, Grade 3, 6/17 nodes, ER+/PR+, HER2- Dx 4/5/2016, Left, 5cm, Stage IV, metastasized to liver, Grade 3, 6/16 nodes, ER+/PR+, HER2-

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