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Topic: We are looking for bloggers

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Mar 2, 2017 05:51AM - edited Mar 17, 2018 02:50AM by Moderators

Moderators wrote:

We are looking for bloggers! If you are interested in writing about how you respond to some of the challenges of living with metastatic breast cancer, we would be interested in hearing from you and sharing your writings in our blog area (http://community.breastcancer.org/blog).


Here are some topics that come to mind along the lines of "How do you do it?"

Some ideas:

Staying connected to others (managing the isolation factor)
When possible, keeping cancer on the back burner and living life up front
Asking for what you need/learning to delegate

We are open to your thoughts and suggestions, and greatly appreciate your contributions. If you have an idea for a blog piece, please PM the Mods. Please include a phone number where our blog editor can reach you.

NOTE TO MEMBERS WHO HAVE WRITTEN IN: Please check your email spam folders for responses!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Posts 1 - 20 (20 total)

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Mar 21, 2017 03:25PM slepeint wrote:

I have a blog at http://thecolorofhopeblog.com and would be happy you let you all use it. I'm on my 8th line now with stage 4. Stage 2B 8/2008 and stage 4 6/2014 liver, lungs, bones, and, now, brain.

Suzy

suzy-breastcancerand41.blogspo... Dx 8/5/2008, IDC, 2cm, Stage IIB, Grade 2, 2/10 nodes, ER+/PR+, HER2- Surgery 9/16/2008 Lymph node removal: Right; Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 10/14/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/1/2009 Hormonal Therapy 9/1/2011 Aromasin (exemestane) Targeted Therapy 6/12/2014 Dx 6/26/2014, IDC, Stage IV, mets, ER+/PR+, HER2- Hormonal Therapy 6/26/2014 Femara (letrozole) Hormonal Therapy 6/27/2014 Faslodex (fulvestrant) Radiation Therapy 9/13/2014 External: Bone Targeted Therapy 10/6/2014 Afinitor (everolimus) Chemotherapy 2/13/2015 Taxol (paclitaxel) Chemotherapy 1/4/2016 Navelbine (vinorelbine) Dx 2/12/2016, IDC, Stage IV, metastasized to brain/bone/liver/lungs, ER+/PR+, HER2+ Targeted Therapy 2/15/2016 Herceptin (trastuzumab) Targeted Therapy 2/15/2016 Perjeta (pertuzumab) Chemotherapy 2/16/2016 Xeloda (capecitabine) Radiation Therapy 7/10/2016 External: Brain Chemotherapy 9/13/2016 Halaven (eribulin) Chemotherapy 1/17/2017 Doxil (doxorubicin)
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Mar 21, 2017 09:12PM NancyHB wrote:

I'd be interested in contributing, as well. I'm at the beginning of this Stage IV diagnosis and still sorting it out, so blogging is helpful. I've kept a blog through my two previous diagnoses but haven't yet picked it back up - maybe it's time

http://nancysbreastcancerjourney.blogspot.com/?m=1

"Be happy for this moment. This moment is your life." - Omar Khayyam Dx 11/22/2011, IDC, Left, 1cm, Grade 2, ER+/PR-, HER2- (FISH) Surgery 12/4/2011 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/18/2012 AC + T (Taxol) Radiation Therapy 6/11/2012 Whole-breast: Breast, Lymph nodes Dx 1/27/2016, IDC, Left, 1cm, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 2/14/2016 Lumpectomy; Lymph node removal: Left Chemotherapy 2/29/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/20/2016 Mastectomy: Left; Reconstruction (left): DIEP flap Dx 1/31/2017, IDC, Stage IV, metastasized to bone
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Mar 22, 2017 01:32PM - edited Mar 22, 2017 01:37PM by RM3

This Post was deleted by RM3.
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Apr 6, 2017 05:53AM - edited Apr 25, 2017 05:32AM by Moderators

I would love to contribute - I write a blog Go Home Cancer, You're Drunk (gohomecancer.com), though haven't posted in awhile as treatment lately has taken priority over everything. I'm 41 and living with stage IV met breast cancer, triple negative - mets in bones, liver, lungs, lymph nodes.

Excited to participate!

Kari


Dx 3/5/2013, IDC, Right, 4cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 4/12/2013 AC + T (Taxol) Dx 4/9/2015, IDC, Right, 4cm, Stage IV, Grade 3, ER-/PR-, HER2- Surgery Lumpectomy: Right Radiation Therapy 3DCRT: Breast
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May 4, 2017 04:07AM - edited May 31, 2017 05:52PM by Moderators

Orlando, FL

5/3/17

Hi Kari:

I'll be returning to my home in Bethesda on June 4th--I'm MBC to the bones and belong to two support groups and a book club at the HOPE Connection in Bethesda--off Rockville Pike, near the Beltway. If you've not been there, please check out these free resources.

We don't have good internet at this RV campground, so if you ever want to talk, call me: 301.785.7619

Elizabeth


(Edited by Mods to remove user's personally identifiable information)


Elizabeth Hurlow-Hannah
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May 4, 2017 04:08AM - edited May 31, 2017 05:51PM by Moderators

I'd be glad to add a post in June, when I'm back home in Bethesda and have a good wifi system in our home!

Elizabeth


(Edited by Mods to remove user's personally identifiable information)

Elizabeth Hurlow-Hannah
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May 31, 2017 08:45AM - edited May 31, 2017 05:50PM by Moderators

I have been blogging my story for stage 4 breast cancer for over a year. (mets to liver) beverlymartinwpg.blogspot.ca

(Edited by Mods to delete member's personal email address. We strongly recommend not posting personal information on a public forum, for your own privacy and security. Please exchange contact information using the Private Message feature.)


Dx 11/28/2008, IDC, 3cm, Stage IIIA, Grade 3, 6/17 nodes, ER+/PR+, HER2- Dx 4/5/2016, Left, 5cm, Stage IV, metastasized to liver, Grade 3, 6/16 nodes, ER+/PR+, HER2-
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Jun 30, 2017 12:10AM - edited Mar 17, 2018 02:50AM by Moderators

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Jul 1, 2017 03:27PM IntoLight wrote:

Moderators,

I would like to contribute. I do not have a personal blog site already but I have been journaling and writing for other contributions. Just let me know what I need to do.

Shining the light of God's grace to the world. Dx 5/20/2016, Left, 3cm, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jul 2, 2017 08:41AM - edited Jul 2, 2017 02:39PM by Frenchhorn654

I would love to write a blog post for your blog. Some ideas I have are... 10 things that surprised me about living with Stage IV breast cancer, Now I understand why they call it a battle, Reasons why I get up every morning, Making goals and preparations is strangely calming and lots more ideas.

Dx 6/2006, Right, 2cm, Stage IIB, 3/13 nodes, ER+/PR+, HER2- Dx 6/2011, Right, Stage IV, metastasized to lungs Dx 5/2017, Stage IV, metastasized to lungs Hormonal Therapy 10/9/2017 Faslodex (fulvestrant) Surgery Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Chemotherapy AC Surgery Lymph node removal: Right; Mastectomy: Right
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Jul 3, 2017 12:45AM - edited Mar 17, 2018 02:51AM by Moderators

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Jul 25, 2017 12:30AM curleygirly wrote:

I would be honored if you would highlight my blog. I was dx de novo at the age of 38 and have been fighting this beast for the past 3 1/2 years. I started my blog last year and have reached 4000 people in 25 countries so far. I am open, honest and sometimes funny. I have received a lot of positive feedback. Informative and supportive and inspiring are some the words I have had my blog described as. My blog helps me get it all out and I have helped others understand and get through hard times as well. Please feel free to check it out! Many thanks Krista


https://metastaticbreastcancernowwhat.wordpress.com/

Dx 2/14/2014, IDC, Right, 3cm, Stage IV, metastasized to bone, mets, ER+/PR-, HER2- (IHC) Hormonal Therapy 3/14/2014 Zoladex (goserelin)
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Jul 25, 2017 12:42AM - edited Mar 17, 2018 02:51AM by Moderators

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Oct 18, 2017 06:58AM - edited Dec 5, 2017 11:08AM by NeverForsaken

I just re-opened my cancer diary blog at:

https://roomsinmylife.blogspot.com/

I am a devout Christian.

~Blessings & Love~ and remember, we are...~Never Forsaken~ Dx 12/17/2013, IDC, Right, 1cm, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2+ (FISH) Surgery 12/26/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy 1/23/2014 Herceptin (trastuzumab) Chemotherapy 1/23/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 10/9/2017, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 3, ER+/PR+, HER2+ Chemotherapy 10/24/2017 AC + T (Taxol) Radiation Therapy 4/3/2018 Targeted Therapy Perjeta (pertuzumab)
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Oct 18, 2017 02:55PM - edited Oct 18, 2017 02:56PM by Micmel

slepeint~ I have just come to learn of your passing on June 12, 2017. I am truly sorry for your family, and want you to know, you will not be forgotten,you're a beautiful person and woman. Smile could light up a room. I just find comfort in knowing you're not going to be worrying about your 8lines of treatment anymore. Now you're an angel. A beautiful lovely angel. I will miss you. ~M~ May your family find peace in remembering your loving caring, and kind ways....forever.💐🌹🌷
Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Oct 19, 2017 07:20AM kayrnic wrote:

I have a blog:

https://kayrnic.wordpress.com/

I will email cnixon!

Kay ---bone mets Dx 11/14/2001, IDC, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- Dx 3/9/2012, IDC, Stage IV, mets, ER+/PR+, HER2-
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Nov 7, 2017 02:04PM cchilders79 wrote:

I have been writing about my journey since 2013 but just switched over this last year to a new blog when it came back I will be reposting my first ones I was 34 when I got diagnosed and I am now 38. Just still sinking in for me because I just got diagnosed in August after my birthday and had spinal surgery in August for this.

Here is my blog: https://musicallypinkblog.wordpress.com/ and lemme know if I can be of any help! Thanks!


Chani




Dx 12/9/2013, IDC, Right, 1cm, Stage IIB, Grade 1, 1/5 nodes, ER+/PR+, HER2- Dx 12/9/2013, DCIS, <1cm, Stage 0, 0/0 nodes, HER2- Surgery 12/17/2013 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Chemotherapy 1/29/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 9/5/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 12/4/2014 Reconstruction (left): TUG flap Surgery 8/29/2015 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery 1/26/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/14/2017 Dx 8/31/2017, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 8/31/2017 Femara (letrozole) Radiation Therapy 9/20/2017 External: Chest wall, Bone Targeted Therapy 10/30/2017 Ibrance (palbociclib) Surgery 12/4/2017 Prophylactic ovary removal
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Dec 21, 2017 05:25PM marianelizabeth wrote:

Hi Moderators:

I wrote fr you in 2014 when you were looking for contributions from around the world. I was diagnosed with metatastic recurrent breast cancer August 22 this summer. I started my first blog ever back in 2012 soon after my first diagnosis. I was rarely posting other than to update people. But with this latest adventure, I am back at it. I seem to take forever to write each post but always I have a big sense of happiness and relief after. It is definitely therapeutic for me.

http://breastcancereh.blogspot.ca

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Dec 22, 2017 07:49AM nbnotes wrote:

I have been blogging over the last few years at beingstillinthestorm.blogspot.com I mostly update on my condition and the 'living' list that I have been crossing off.

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Surgery 8/22/2012 Mastectomy: Left, Right Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 10/8/2012 AC Dx 10/9/2012, 5cm, Stage IV, mets Hormonal Therapy 2/12/2013 Arimidex (anastrozole) Hormonal Therapy 1/9/2017 Faslodex (fulvestrant) Targeted Therapy 1/11/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/10/2017 Afinitor (everolimus)
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Dec 27, 2017 12:08PM wastate50 wrote:

I certainly never truly understood why they call it a battle, until i had to join the battle. It's wayyyy more then just a state of mind like i always thought. We need more of those centered topics in the world to help people better understand. I can try and contribute on that one if anyone writing something similar.


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