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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: Stage 4 - triple negative breast cancer, mets to lungs

Topic: Stage 4 - triple negative breast cancer, mets to lungs

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Mar 17, 2017 08:11AM

Becky717 wrote:

Diagnosed with triple negative breast cancer in May of 2014, went through FEC chemo and weekly Taxol for 5 months, then 33 radiation treaments . All of this after a lumpectomy to remove the small tumor. Skip to August 2016, metastasized into tumors on my lungs. Started Carbo/Abraxane chemo....seeing shrinking tumors but still constantly worried.  Gained 45 lbs but trying to live life. Taken several trips since August and still planning them but I feel like everything I have read has a bad prognosis for this kind of cancer. Really sad! Anyone else???

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Mar 17, 2017 10:36AM blainejennifer wrote:


I was just talking to my NP about TN cancer yesterday! Her mom had it years ago, and mine behaves like TN, even though I'm ER/PR+. I'm sure other "real" TNs will chime in soon.

Long story short, we were happy that there has been so much forward movement with TN therapies.

You are responding to treatment, and that is a great place to be. Get out there and play! It's a good idea to avoid Dr. Google, as he has data that is out of date, and often hysterical.

ER/PR+, HER2-, Grade 3. Stage 4, July 2012. Currently on Doxil Dx 5/2006, IDC, 4cm, Stage IIB, Grade 3, 4/12 nodes, ER+/PR+, HER2- Dx 3/2012, IDC, Stage IV, 4/12 nodes, ER+/PR+, HER2- Chemotherapy 6/28/2012 Taxol (paclitaxel) Hormonal Therapy 6/5/2013 Faslodex (fulvestrant) Chemotherapy 7/1/2014 Xeloda (capecitabine) Hormonal Therapy 8/15/2015 Femara (letrozole) Chemotherapy 2/1/2016 Halaven (eribulin) Chemotherapy 9/1/2016 CMF Chemotherapy Halaven (eribulin)
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Mar 20, 2017 03:37PM KSkier wrote:

I too was dx'd with tumors in my lungs in July, 2009. I think I am a "real" triple negative. Back in 2009, triple negative did look like an immediate death threat - but that is changing as the therapies become better targeted. Get yourself a top medical team in a research setting with access to clinical trials.


Dx 8/15/2008, IBC, 6cm+, Stage IV, mets, ER-/PR-, HER2-
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Apr 21, 2017 11:25AM Hope92611 wrote:

So encouraging to read your story! My sister has triple negative stage IV mets and is looking for someone that is going through it that she can communicate with. Do you have a blog or recommendation for how to find others battling this beast? God Bless

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