Apr 21, 2017 12:01PM blainejennifer wrote:
That's so scary and irritating! I'm happy the brain scan is clear, cause I'll bet your dark thoughts went straight there.
I'm awash with questions: Do you still have tonsils, and do they get inflamed with seasonal allergies? Did they run a white count to se if there was an infectious process happening? Do you have difficulty swallowing? Are any other muscle sets in your body acting funny?
I see that you've had radiation - was it anywhere near this area? Are your vocal chords affected at all? Have you been clearing your throat a bunch?
There's a wild chance this could be a neuropathy. An allergy would have been the easy answer, but you report that Benadryl didn't touch it. Look up "idiopathic angioedema" and see if anything rings a bell for you. Idiopathic is just doctor speak for "we have no idea why this is happening".
My mind goes to nerve damage, because I've had two friends with motor neuron disease who had some presentations like this, but you don't seem to have had nerve damaging chemo. Do you have any bone lesions in your cervical spine area?
Sorry for all the questions. In our family, you would be the topic of a lively dinner discussion. Too many doctors hanging around.