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All TopicsForum: Stage IV and Metastatic Breast Cancer ONLY → Topic: ENZALUTAMIDE HAVE YOU BEEN ON IT?

Topic: ENZALUTAMIDE HAVE YOU BEEN ON IT?

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: May 19, 2017 08:13AM

momallthetime wrote:

I am looking for ladies that were on the trial of Enzalutamide. Please let us know asap. Decision has to be made right away. Thanks

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May 19, 2017 09:41AM Fraidycat1954 wrote:

Hey Mom! Your onc is pure genius. The Xtendi has been very successful with the triple negative and the Herceptin can clean up those pesky her2 cells. They will find a cure for this and Dani will be a part of it. Hold on to hope. She is a miracle!

9/28/16 Stage IV mets to chest nodes. Dx 6/2015, IDC, Both breasts, 5cm, Stage IIIC, Grade 3, 7/9 nodes, ER+/PR+, HER2+ (IHC) Surgery Lymph node removal; Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Herceptin (trastuzumab) Chemotherapy Chemotherapy Other
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May 19, 2017 11:22AM momallthetime wrote:

Hi but i heard it kinda not took off. And what about the fact that it could be too slow or not enough of an umph(my language) to kick this in the butt.

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May 19, 2017 11:23AM momallthetime wrote:

Do you know anybody that was on it? I'd love to know. Thanks

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May 19, 2017 11:53AM - edited May 19, 2017 11:54AM by gramen

Momallthetime! I'm excited about you considering this trial. When i applied the trial closed at my location before they tested my sample for AR. So they didn't even do the AR testing after all.

Dx 7/2014, IDC, Stage IIB, 2/19 nodes, ER-/PR-, HER2+ Dx 3/2016, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Targeted Therapy 4/26/2016 Perjeta (pertuzumab) Targeted Therapy 4/26/2016 Herceptin (trastuzumab) Chemotherapy 4/26/2016 Navelbine (vinorelbine) Radiation Therapy Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Mastectomy; Reconstruction (left); Reconstruction (right)
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May 19, 2017 01:27PM momallthetime wrote:

Hmm well i hope i would share your excitement. But it does help. First, maybe you ask them to test anyway, it's just a blood test, and then you will at least know where you are at. It's just that's it's such a luck thing that it's hard to get excited, but it does make me feel better to hear that more people heard of it for BC.Thanks.

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May 19, 2017 02:49PM gramen wrote:

Mom, I understand what you mean, please hang in there. I admire so much your strength and dedication.

I didn't push for the test because they were using the sample from my Jan 2015 mastectomy since there's no tissue left from my April 2016 liver biopsy, and we know how this beast changes.


Dx 7/2014, IDC, Stage IIB, 2/19 nodes, ER-/PR-, HER2+ Dx 3/2016, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Targeted Therapy 4/26/2016 Perjeta (pertuzumab) Targeted Therapy 4/26/2016 Herceptin (trastuzumab) Chemotherapy 4/26/2016 Navelbine (vinorelbine) Radiation Therapy Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Mastectomy; Reconstruction (left); Reconstruction (right)
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May 19, 2017 03:40PM momallthetime wrote:

i will try to hang in there. re: the testing for the AR it was taken the same day she had her blood drawn, 1 2 3, nothing to it. It was not done through a biopsy. I actually learned from a thread here, someone mentioned how it became a thing, and i asked the Onco to do it, and they screwed up on the orders, so it took much longer, but it was done, and now she will be applying it. I just hope there is something to this brouhaha.

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May 22, 2017 08:07AM Fraidycat1954 wrote:

momallthetime. When are Dani's tests so she can get going? It is so hard with these new treatments. They don't work all the time but when they do they work well. Here is to hoping the AR factor is the missing link!

9/28/16 Stage IV mets to chest nodes. Dx 6/2015, IDC, Both breasts, 5cm, Stage IIIC, Grade 3, 7/9 nodes, ER+/PR+, HER2+ (IHC) Surgery Lymph node removal; Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Herceptin (trastuzumab) Chemotherapy Chemotherapy Other
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May 22, 2017 10:53AM momallthetime wrote:

Fraidycat I spoke to Onco late friday , she is suppose to be working on ordering Xtandi as we speak. I hope so . And I hope the Insurance does not give her a hard time. herceptin she has been in the past, I have no idea if it did a/t for her, because she had progression all along. So it's all a big mystery. Will let you know when she starts, thanks so much.

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