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Aug 13, 2019 11:08PM
candy, stopping work is hard. I've been on LTD since January 2018. It took a while for my brain to not go into work mode on Sunday night rabbiting around about what I had to do during the week. I had to give myself permission to stop “working", to stop feeling like I was weak or a quitter for not working. Days kinds of felt empty at first, like I was floating.
Some ideas to think about....what gives you meaning...what in life fills your spirit...family, music, nature, travel, reading, art, friends? What gives you a purpose....we always seem to say “work" as the only answer but in reality is it the only thing that we have? How important is it to you to take better care of yourself? What will you do to do that?
I try to focus my energy every day on doing the things that matter to me, knowing that some days I am too fatigued to do much of anything. It’s a new way of living and of being that you’re in now. Truthfully, I would go back to work at the drop of a hat if only I could....but I can’t. Not if I want to have any QOL.
Money is short for us too. We have several organizations here that offer programming/services to people living with cancer for free. If you see something you would like to take or learn, like pottery, you may be able to ask for a discount given your status. By the way, doing pottery at a community studio has saved me...it gives me a place to go to on a regular basis, gets me out with other people, challenges me and let’s me play
7/2013, Right, 3cm, Stage IIIB, Grade 2, 5/20 nodes, ER+/PR-, HER2-
5/2017, Right, Stage IV, metastasized to other, ER+/PR-, HER2-
3/2018, Right, Stage IV, metastasized to lungs/other
Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)